Re: Dear letter

[Guest guest]

Dear Lottie My first wife left me for a tractor salesman, I got a Dear

letter. I got a million of them. Seriously thanks for the info and your

perspective, I certainly am keeping the ole mug, looking up. I will try with all

I have thats for sure , thanks for the kind words, hope you are well,

________________________________

From: Lottie Duthu <lotajam@...>

CML < >

Sent: Sat, October 3, 2009 1:16:51 PM

Subject: [ ] Dear letter

 

Dear ,

I am sorry you have been diagnosed with CML and that you encountered so many

problems getting treatment. I am glad that you are getting your needs met,

finally. Do not give up your quest to find meaningful work or to go back to

living your life. You may encounter challenges with both along the way, but with

perseverance, you will win out.

There are programs that pay for cancer drugs, you just have to ask questions and

you will find where they are, as someone has already been there and is willing

to share. Novartis furnishes Gleevec, as that is probably the first TKI that you

will be given. Hydrea is only a band aid used to bring your white counts down to

normal, but it does not control the disease. I was on it for 4 years and the

charts on my progress nevered wavered away from 100% Ph+. It was like having a

governor on my gas pedal. It is still a useful drug, but be sure you are are

taking allopurinal, a very inexpensive drug used to control gout, as Hydrea is

famous for that. Probably by the time you begin to get responses from the group

because of the delay in time when letters are posted and the time they are

released to the group, you will already be on Gleevec and that information will

become moot.

Many of us have found our silver lining when we found this group, whose members

were so willing to share their experiences and give newcomers a show of positive

responses. I hope you will become a regular contributor so we can track your

record and allow us to walk the walk with you.

Hands & hearts,

Lottie Duthu