Guest guest Posted September 29, 2009 Report Share Posted September 29, 2009 Hi, had my visit with Dr. Talpaz yesterday, he is happy as a pig in a puddle of mud with my results from Ariad. On the other hand, my buddy from the Cleveland area has had to stop the drug, for the second or third time, due to a rash. I did run into , he was coming in as I was leaving, did not have time for coffee and donuts! Sorry , maybe you could ask Suzanne to book you in the morning? I did, with winter coming I prefer to drive home in day light. My labs were good, especially the hgb, 12.3, that was some good blood they gave me! Have a good day everyone, it is cold here, and raining, and the old arthritis is kicking up like mad. I look bundled up for winter, I'm not only wearing a turtle neck top, I have on a winter scarf to keep my neck warm. I'm getting to not like the idea of winter! Bobby a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR 04/29/08 - XL228 trial/U of Michigan 01/09/ - PCR 5.69 02/13/09 - XL228 trial ended due to side effects o4/13/09 - Ariad Trial U of Michigan 09/09/09 - PCR 0.017 04/13/09 - Ariad trial at U. of Michigan 09/09/09 - PCR 0.017 04/13/09 - Ariad trial, U. of Michigan 09/08/09 - PCR 0.017 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2009 Report Share Posted September 29, 2009 Hi Bobbie, Are you close to White Pine ? In Michigan? Sharon T _____ From: [mailto: ] On Behalf Of ROBERTA DOYLE Sent: Tuesday, September 29, 2009 7:30 AM Subject: [ ] labs Hi, had my visit with Dr. Talpaz yesterday, he is happy as a pig in a puddle of mud with my results from Ariad. On the other hand, my buddy from the Cleveland area has had to stop the drug, for the second or third time, due to a rash. I did run into , he was coming in as I was leaving, did not have time for coffee and donuts! Sorry , maybe you could ask Suzanne to book you in the morning? I did, with winter coming I prefer to drive home in day light. My labs were good, especially the hgb, 12.3, that was some good blood they gave me! Have a good day everyone, it is cold here, and raining, and the old arthritis is kicking up like mad. I look bundled up for winter, I'm not only wearing a turtle neck top, I have on a winter scarf to keep my neck warm. I'm getting to not like the idea of winter! Bobby a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR 04/29/08 - XL228 trial/U of Michigan 01/09/ - PCR 5.69 02/13/09 - XL228 trial ended due to side effects o4/13/09 - Ariad Trial U of Michigan 09/09/09 - PCR 0.017 04/13/09 - Ariad trial at U. of Michigan 09/09/09 - PCR 0.017 04/13/09 - Ariad trial, U. of Michigan 09/08/09 - PCR 0.017 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2009 Report Share Posted September 29, 2009 SHARON, I LIVE ABOUT 15 MILES SOUTH OF CLEVELAND, OHIO. a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR 04/29/08 - XL228 trial/U of Michigan 01/09/ - PCR 5.69 02/13/09 - XL228 trial ended due to side effects o4/13/09 - Ariad Trial U of Michigan 09/09/09 - PCR 0.017 04/13/09 - Ariad trial at U. of Michigan 09/09/09 - PCR 0.017 04/13/09 - Ariad trial, U. of Michigan 09/08/09 - PCR 0.017 From: Sharon Teichera <onthewtr@...> Subject: RE: [ ] labs Date: Tuesday, September 29, 2009, 11:14 AM Hi Bobbie, Are you close to White Pine ? In Michigan? Sharon T _____ From: groups (DOT) com [mailto:groups (DOT) com] On Behalf Of ROBERTA DOYLE Sent: Tuesday, September 29, 2009 7:30 AM Subject: [ ] labs Hi, had my visit with Dr. Talpaz yesterday, he is happy as a pig in a puddle of mud with my results from Ariad. On the other hand, my buddy from the Cleveland area has had to stop the drug, for the second or third time, due to a rash. I did run into , he was coming in as I was leaving, did not have time for coffee and donuts! Sorry , maybe you could ask Suzanne to book you in the morning? I did, with winter coming I prefer to drive home in day light. My labs were good, especially the hgb, 12.3, that was some good blood they gave me! Have a good day everyone, it is cold here, and raining, and the old arthritis is kicking up like mad. I look bundled up for winter, I'm not only wearing a turtle neck top, I have on a winter scarf to keep my neck warm. I'm getting to not like the idea of winter! Bobby a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR 04/29/08 - XL228 trial/U of Michigan 01/09/ - PCR 5.69 02/13/09 - XL228 trial ended due to side effects o4/13/09 - Ariad Trial U of Michigan 09/09/09 - PCR 0.017 04/13/09 - Ariad trial at U. of Michigan 09/09/09 - PCR 0.017 04/13/09 - Ariad trial, U. of Michigan 09/08/09 - PCR 0.017 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2009 Report Share Posted September 30, 2009 Hey Hey Hey!!! That sounds like fun Sharon T _____ From: [mailto: ] On Behalf Of ROBERTA DOYLE Sent: Tuesday, September 29, 2009 9:27 PM Subject: RE: [ ] labs DOES GROUP ROLLING IN THE MUD CALL FOR GROUP SHOWERS????????????/ a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR 04/29/08 - XL228 trial/U of Michigan 01/09/ - PCR 5.69 02/13/09 - XL228 trial ended due to side effects o4/13/09 - Ariad Trial U of Michigan 09/09/09 - PCR 0.017 04/13/09 - Ariad trial at U. of Michigan 09/09/09 - PCR 0.017 04/13/09 - Ariad trial, U. of Michigan 09/08/09 - PCR 0.017 From: Zavie <zmillersympatico (DOT) <mailto:zmiller%40sympatico.ca> ca> Subject: RE: [ ] labs groups (DOT) <mailto:%40> com Date: Tuesday, September 29, 2009, 7:40 PM Hi Bobby, We are all rolling around in the mud filled with happiness for you. Zavie _____ From: groups (DOT) com [mailto:groups (DOT) com] On Behalf Of ROBERTA DOYLE Sent: September 29, 2009 10:30 AM Subject: [ ] labs Hi, had my visit with Dr. Talpaz yesterday, he is happy as a pig in a puddle of mud with my results from Ariad. On the other hand, my buddy from the Cleveland area has had to stop the drug, for the second or third time, due to a rash. I did run into , he was coming in as I was leaving, did not have time for coffee and donuts! Sorry , maybe you could ask Suzanne to book you in the morning? I did, with winter coming I prefer to drive home in day light. My labs were good, especially the hgb, 12.3, that was some good blood they gave me! Have a good day everyone, it is cold here, and raining, and the old arthritis is kicking up like mad. I look bundled up for winter, I'm not only wearing a turtle neck top, I have on a winter scarf to keep my neck warm. I'm getting to not like the idea of winter! Bobby a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR 04/29/08 - XL228 trial/U of Michigan 01/09/ - PCR 5.69 02/13/09 - XL228 trial ended due to side effects o4/13/09 - Ariad Trial U of Michigan 09/09/09 - PCR 0.017 04/13/09 - Ariad trial at U. of Michigan 09/09/09 - PCR 0.017 04/13/09 - Ariad trial, U. of Michigan 09/08/09 - PCR 0.017 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2009 Report Share Posted September 30, 2009 I don't think I'll be able to shake that thought from my head for a long, long time! Bob , Granger, IN > > From: Zavie <zmiller@...> > Subject: RE: [ ] labs > > Date: Tuesday, September 29, 2009, 7:40 PM > > > > > > > > > > > > > Hi Bobby, > > > > We are all rolling around in the mud filled with happiness for you. > > > > Zavie > > > > > > _____ > > > > From: groups (DOT) com [mailto:groups (DOT) com] On Behalf Of > > ROBERTA DOYLE > > Sent: September 29, 2009 10:30 AM > > > > Subject: [ ] labs > > > > > > Hi, had my visit with Dr. Talpaz yesterday, he is happy as a pig in a puddle > > of mud with my results from Ariad. On the other hand, my buddy from the > > Cleveland area has had to stop the drug, for the second or third time, due > > to a rash. I did run into , he was coming in as I was leaving, did > > not have time for coffee and donuts! Sorry , maybe you could ask > > Suzanne to book you in the morning? I did, with winter coming I prefer to > > drive home in day light. > > My labs were good, especially the hgb, 12.3, that was some good blood they > > gave me! > > Have a good day everyone, it is cold here, and raining, and the old > > arthritis is kicking up like mad. I look bundled up for winter, I'm not > > only wearing a turtle neck top, I have on a winter scarf to keep my neck > > warm. I'm getting to not like the idea of winter! Bobby > > > > a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec > > Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra > > Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's > > Zero Club 09/2006 - out of CCR 04/29/08 - XL228 trial/U of Michigan > > 01/09/ - PCR 5.69 > > 02/13/09 - XL228 trial ended due to side effects > > o4/13/09 - Ariad Trial U of Michigan > > 09/09/09 - PCR 0.017 > > > > 04/13/09 - Ariad trial at U. of Michigan > > 09/09/09 - PCR 0.017 > > > > 04/13/09 - Ariad trial, U. of Michigan > > 09/08/09 - PCR 0.017 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2009 Report Share Posted October 21, 2009 That is such great news Bobby. Everyone needs a boost to know that these trials are working, especially when maybe they are on one that is not doing so good. Its messages like this that keep you thinking positive thoughts. God Bless You > > Hi, I have been on Ariad since April 13, of this year, here are today's labs: > wbc - 7.0; rbc 4.07; hgb - 1`1.8; plt - 152, neuts 5.0 > So far so good with NO side effects, I remain on 15 mg once a day. I am pcr 0.017, and have never felt better. However, this is exactly how it went with Sprycel, with the exception of the great pcr, for 1 1/2 years, so I am praying nothing bad like PE will hit me. Hope all is well with everyone , > > a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 > Interferon/9 weeks/hydroxyurea/5 years > 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR 04/29/08 - XL228 trial/U of Michigan > 01/09/ - PCR 5.69 > 02/13/09 - XL228 trial ended due to side effects > o4/13/09 - Ariad Trial U of Michigan > 09/09/09 - PCR 0.017 > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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