Guest guest Posted February 20, 2000 Report Share Posted February 20, 2000 Hi everyone! This is the first chance I have had to get on here. Thanks to Lucie (who is a Godsend) you all know about what is going on with my baby Jordan. On a good note she slept fairly well last night which surprised us since the doctors told us the next 2 nights would be worst than the first. She has held a 102 temp all day and has been coughing horribly all day - but not a croupy cough, just a normal one. I am so very greatful for all of your prayers, thoughts and support right now. I know that we will get our miracle and the God will make Jordan better in time for her surgery. I have printed each and every one of your posts and have kept them to help give us strenght during this time! Treasure, who ever you are, thank you for that prayer - you have touched many people and you brought tears to my eyes! Sheila, it was nice to hear from you too! There were so many responses - you have all touched me and my family - thank you again so much! I will update you on what the surgeon decides and on Jordan's condition soon! Love to you all! Sherry __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2000 Report Share Posted February 20, 2000 In a message dated 2/20/00 5:34:24 PM Eastern Standard Time, sherrym01@... writes: << There were so many responses -- you have all touched me and my family - thank you again so much! I will update you on what the surgeon decides and on Jordan's condition soon! Love to you all! Sherry Sherry, I will pray for Jordan. God bless you and your family. love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2003 Report Share Posted January 5, 2003 Shane, I really enjoyed reading your message and want to say your son is a very lucky boy to have you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2003 Report Share Posted January 5, 2003 What a marvelous, kind email. thank you for posting it. So many times, people put a great deal of effort into answers and it is great to know that sometimes really wonderful changes take place in people's lives. I hope your son goes from strength to strength. Marti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 M <marymakennan@y...> wrote:..... " felt terribly greedy " Greedy??? For those of you who don't know, M was the one who hosted the 2X room, the room that was OVERFLOWING with clothes. I think you deserve every single thing you took home girl! Thanks again for being so hospitable about it! Genn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 Hi , I'm glad the adjustment helped! How is she adjusting otherwise? , mom to Hannah, DOCgrad Cape Cod, Ma > I just wanted to thank all of you who responded to my emails. All of > the information I received was very helpful. This is a wonderful group, > and I really appreciate the support. Just so you know. I went into CT > today and they were able to adjust the DOC so it's fitting nicely. They > were very nice and eager to help. I'll see tomorrow if it eliminates > the swelling. Keep your fingers crossed! > > > > Fondly, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2007 Report Share Posted June 5, 2007 Hi Muriel, Thank you for joining our group. {I will be the first to join your new group - I am also besieged by collectors! <gr>}arg Just want to say you are not alone. I wonder if you have started the Buhner protocol- you didn't say. Some people who haven't been helped by antibiotics have found improvements thru the protocol. I'm glad you find support here. I do too. It's wonderful to know people who understand and care. best, ellen > > Since joining this group, I've been going through the darkest days of > my 60 years on our delicate planet. We are now, after working all our > lives, about to lose everything - home, cars, possessions, > electricity...everything. > > I've had chronic Lyme for over 10 years, first untreated because of > my insurance company, then treated with multiple IBX for several > years, plus 2+ years of IV Doxy and 1 year of IV Zithromax. All to no > avail. > > From 2004 until early this year I was completely confined to bed, > never leaving my bedroom, and without any idea, even, of who I am. > > Then I improved somewhat by starting the Rife, but then had work done > on an existing but imcomplete root canal in mid Feb. That slammed me > again in ways I had never dreamed of and I am not at all recovered > from that. (See Townsend Letter June 2007 about dentistry and root > canals infections). My dentist thinks I am fine. (!) > > Now I realize that no matter how much good you do, how much love and > charity you have given, all with no strings attached, that there may > come a time when life is better off without you. > > ***I haven't given up yet, because of the sense of caring and > community that I have gotten from this group, and its very > responsible and organized leader.*** > > My only humorous (albeit serious thought) - In speaking with all > these abusive collection agencies - I long to begin a group called > Citizens Against Collection Abuse (CACA) (!!). It is my hope that > some of you empathize and are amused. > > ALl My Best Wishes and Gratitude, Muriel > > PS, I will certainly accept anyone's suggestions with how to cope. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2008 Report Share Posted November 29, 2008 , Congrats to you in your decision to start MTX! I re-started it this week after being off it for 2 months. There is no doubt in my mind that this medication WORKS! RE: Prednisone.... Talk to your doctor about it. You may need a boost to 20 for a few days and then taper back down to 10. Are his/her intentions to get you off the prednisone completely after a few weeks? I LOVED being on prednisone but after a while, it made me depressed! *~ Kami ~* [ ] Thank you everyone! I started my MTX last night. Thanks to all the kind words & advice, I wasn't as nervous & felt more educated going into it. My Dr is starting me with 3 pills/wk + 1mg Folic Acid daily to start + my 10mg of prednisone. Once she sees how my body reacts, she will probably increase the MTX & decrease the prednisone (I hope). Anyway, its been almost 24 hrs since I took them & so far just tired (although I don't think its more than normal) so - YAY Thanks for all your support!!! Question for all those on Prednisone - does your body get used to it? When I first started, I was in Heaven - pain free & full of energy. This lasted for about 2 weeks & now I'm back to stiffness, pain & tired - not as bad as before, but its starting to creep back. I really don't want to go on a higher dose, but is Prednisone one of those drugs that stops working unless adjusted higher regularly? Hope everyone has a pain free weekend . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2009 Report Share Posted May 29, 2009 Doc ~ You are definately an earth angel............ Thank you for YOU ! ! We are very blessed to have you with us ! Dede**************We found the real ‘Hotel California’ and the ‘Seinfeld’ diner. What will you find? Explore WhereItsAt.com. (http://www.whereitsat.com/#/music/all-spots/355/47.796964/-66.374711/2/Youve-Found-Where-Its-At?ncid=emlcntnew00000007) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2009 Report Share Posted May 30, 2009 You know what I have noticed? Two years ago, I was bitten by a tick. In New Jersey, there's alot of Lyme disease so I was put on Doxycycline. I noticed while I was on it, my implant related symptoms improved. So, for the last year or so, my implant related symptoms seemed to be flaring again, although not as bad as before. I got bit by a tick again, and the doctor put me on Doxycycline again, and while I was on it, my implant related symptoms improved. I figure there must be some sort of infection in my body if I notice such a huge improvement when I'm on the antibiotics. I recall someone used to come to this site who was involved in antibiotic therapy for immune related disorders, and I'm curious to know if anyone has heard of this. I have never tested positive for Lyme, although I know there are false negatives - and I got sick from my implants within a few weeks of having them put in, so I was sick years before I got bit by the tick. Sis > > > > Ok, my dear, " list-mates " (humm, do you already have a group name that is pertaining to the " members " of the list? Like, Ex-Saliners? Or Saline-Xers? Am thinking of a term that would depict a sense of belongingness to the group. Anyway, do suggest if there's still none.) lol...no, we don't have a collective name. Some women call themselves Saline or Silicone Survivors. > - but what would you call me, haha, I was actually looking for a term that would signify me also as a member of the group, some sort of a sense of belongingness. hmmm...maybe Truth Seekers??? - Sure, why not, Truth Seekers it is (though sounds like Power Rangers or the like... or Indiana ...LOL.). > > Anyway, back to the topic at hand, can anyone describe exactly what you feel when you use the term " fogginess " , help me figure out first the exact description of what you feel. Maybe others are using the term incorrectly, that way, we can all agree on the same symptom when we are talking about it. This is difficult to convey. I've noticed in my own experience it changes daily, minute to minute. Before implant, I was in graduate school and had a quick, sharp mind with an IQ in the very superior range (whatever that means!)... > - you're too humble.. =) lol...maybe that did sound somewhat arrogant...just trying to convey how easy comprehension was pre-implant versus my current situation. I think that's what has been difficult for many of us women...we look " normal " , can carry on an intelligent conversation for a brief moment, but no one knows how it feels in our brains.  I feel disabled, yet I know if I had to take a written exam of some type, I could pass...sort of like a drunk feeling...you' re aware of what's going on but your brain doesn't respond as quickly. > - I understand how you feel. > > my point being that my mind/brain was one of my greatest assets. Looking back, there were a few times that after implantation I " spaced out " briefly, sort of an ADD-like feeling, but I chalked it up to a very busy life-style with so many things on my plate. > - so maybe what you are saying is that you felt that " you were in your own little world? " Locked in? Because that is usually how ADD patients are described. Definitely. Honestly, I have wondered if I am experiencing what many children on the autism spectrum feel because when I was at my worst, I lost peripheral vision and had difficulty looking people in the eye...and this is coming from a woman who was very social and made it a point to look others in the eye. It was strange...my body just wouldn't let me even though the desire was there. It is a trapped feeling. I can tell through cleansing that I am " coming back into my body/the world " ...I know that sounds weird but when I was really ill, it seemed nothing else in the world mattered...I no longer noticed details...my focus was horrendous. > - Cheer up, your little world just got bigger with all of us, understanding what you are going through with the single most objective of making everyone go back to the Perfect Health. > > By the time the fatigue set in after having implants for 5 years, confusion began (along with digestive issues and fatigue). Once I made it to Dr. Kolb for explant, I was really scared as I was forgetting to pick up my children, doing crazy things such as going out to the car with the oven mitt still on, forgetting that I had made plans to do something. At the same time I had splitting headaches and my vision was deteriorating. > - forgive me if during the cause of looking for answers I may be acting like a devil's advocate, I will intentionally doubt some of the symptoms that you will all tell me, the reason for that is for you to dig deeper and to be sure of your exact symptoms. I hope you will understand, but unlike the other doctors, my doubts are just to help you make sure of your answers... while other doctors will doubt you just because they believe in the saying " We destroy what we don't understand. " The big difference would be, I am here to stay. I completely understand and I appreciate your willingness to dig deeper and stick around. Too many of us have experienced doctors not knowing the answers...which I empathize... they/we are only human...we don't know the answers to everything. However, some docs, instead of admitting they don't know, tend to turn it on the patient and offer an antidepressant and/or infer it is all in our heads as a way to boost their own > self-esteem rather than confessing it's an unknown. > - We call it IDIOPATHIC... and for some of us, we interpret it as the doctor who termed it is an IDIOT, while the patient becomes PATHETIC. I personally don't use the term, alot of doctors do use it to cover something they don't know though. > > Dr. Kolb tested me with a melanocyte stimulating hormone (MSH) test. I scored an 8, indicating neurotoxins. Anything above 35 is considered normal.  > - okay, for all the readers of this list who still don't understand the significance of this test, first of all, MELANOCYTE-STIMULAT ING HORMONE is the following (take note of the three functions): > 1. it is a hypothalamic neuroregulatory hormone > 2. cytokine and mucus membrane regulatory hormone > 3. regulatory hormone of almost all other hormones > It is one of the hormones produced by the pituitary gland. > So, then if MSH is a normal part of our body, why are we testing MSH if we are in actuality wanting to get the level of biotoxin in our body? It's like this, neurotoxins and biotoxins are a bit hard to quantify, there are new tests that can show us the level in our body, but some of these are still under experimentation, so, we make use of MSH test. > How? Biotoxin Induced Diseases severely affect the pituitary gland and the hypothalamus, and since MSH is a pituitary gland hormone, insulting the pituitary gland with biotoxin will deplete the MSH in the body. > MSH deficiency then is an indicator of biotoxin level. > So, what are the effects of MSH levels? Well, I hope you took note of the functions of MSH a while ago, hence, under production would lead to the opposite of its functions which are: > > 1. it is a hypothalamic neuroregulatory hormone which regulates melatonin level (remember that melatonin is a sleep pattern regulator).. . and decreasing melatonin production causes a severe sleep disorder. Once detoxification is started, MSH will again rise and so will melatonin production and the patient now has a good night's sleep. > 2. MSH is a cytokine regulatory hormone, since cytokines are involved with the immune system and since mucus production is one of the defense mechanisms of the immune systems, there is mucus overproduction. Because of this, we can see the affected patients with symptoms of frequent cough and other mucous over-production. This is interesting. ..whenever I have had a colonic, the colon hydrotherapist mentions how she's surprised at the level of mucous. My sister has been told the same thing and she is dealing with Grave's Disease. As well, about a year after implantation I began having sinus problems. My allergist said I was 90% blocked. - there's your correlation! =)3. Since the pituitary gland is the " master gland " , MSH is a per sea  regulatory hormone of almost all other hormones. And having a low MSH will wreak havok all throughout the body. Do you know how to raise the MSH level...besides with sunlight or Vit D3? I briefly read > long ago that if MSH is low, the person doesn't stand a chance for regaining health. I don't want to believe that!! Not all of us have been tested for MSH, particularly the women who have already recovered. I would think based on their symptoms that they had low MSH as well.- I think the answer here is not to RAISE it, but rather to remove the things that LOWER it, detox and good nutrition will do that. > > > > After explant, I was in very bad shape. I had to quit a job I adored. I could no longer care for my children the way a mother should. I had to remind myself how to wash my own hands and iron...I used to work with autistic children and it reminded me of having to break down the tasks into minute steps so they could understand.. .I was much the same way at my worst. If I was doing a task, I didn't have the ability to think about anything other than that. I lost map skills and the ability to envision/dream. For 10 months I was dizzy/drunk- like to the point I only left my house to pick up my children from school and I'd pray the whole way that no one would be harmed from my brain's incapacity to function properly. > > - whoa > > I should also mention that I lost vision in my left eye. It's hard to describe but there were large portions of the day where the left side of my brain felt cold, blank, empty...as if someone had shot a hole in my brain. I had an MRI which was surpisingly normal and saw the top optic neurologists in the city. They were confused...they knew something wasn't right for a 37 year old to have glaucoma, but they had no explanation other than there was " no way that it was from my implants " . > - I guess they don't know the components of the silicone implants. > > For the past two years I have detoxed and slowly the level of confusion/brain fog has diminished. I am seeing a MD/ND who uses meridian testing. My liver/gallbladder meridian tested poorly every time. He said he wasn't surprised because vision problems are often related to the liver/gallbladder. He put me on Ivermectin and Alinia (for parasites which he says are related to most vision problems in his experience). He then had me do a series of liver flushes. I passed liver flukes and a tape worm.  > - Ok, Devil's Advocate time: Flukes and Tapeworm are parasites, where did you get them? Are these documented by lab confirmations, were they taenia solium (from pigs) or taenia saginata (cows)?  My doc, who is a MD/ND, said that we all have parasites in our body. His theory is that when I swallowed a piece of amalgam filling, the parasites in my gut fled to other parts of the body, creating an autoimmune response/MS- like symptoms. I realize the dangers of mercury/amalgam having worked with autistic children. I think most people could probably handle swallowing a filling but someone whose immune system is compromised from implants may not. Anyway, he said that I probably had the tapeworm from childhood. It wasn't documented by lab confirmations but there was no question about it when I passed it. The same with the liver flukes...we all have them and for most of us they don't create problems, but if the PH level of the body becomes too > acidic, they can overpopulate. > He has had a great deal of success curing MS and other illnesses (i.e. cancer, Parkinson's) by treating for parasites. He doesn't understand why humans rush to treat our dogs, cats or horses for parasites but think we are exempt from them.- As I have said, I was playing the Devil's Advocate, I totally agree with him. Everything that we eat contains seeds... spores... larvae... eggs... of things that are both good and bad. From the water to the juices to the food... so again, to follow the basic rule, instead of RAISING the body's health, why don't we remove first the ones that causes the LOWERING of our health, and parasite removal is a good start. > > My vision returned within a couple months! However, I still experience blurry vision. My head feels heavy and it's difficult to turn my head...everything seems hard to coordinate.. .eyes, brain...seems to be a central nervous thing. > The brain fog I currently experience feels like an infection and it seems to move around a great deal.  It literally feels as though I'm walking through fog sometimes.  Sometimes it feels as though it's in the brain stem but most of the time it feels as if it's in the frontal lobe.  > - do you wear eyeglasses? When was the last time you had your vision checked? Because we have what we call as a cluster headache, the most common cause is error of eye refraction. I just want to know your current visual status. I've seen probably 10 optometrists, retinologists, optic neurologists, opthamologists, etc. Yes, I wear glasses and contacts. There were various opinions...one said it was my contacts, one said it was ischemic neuropathy, one said possible toxicity, one said it was from my ceiling fan over my bed and the rest just patted me on the knee. I believe it is parasites because it was only when I was taking medication for them that my vision returned. My vision then became worse again and so I went on another round of medication and I could see again. - Then you have empiric evidence that your consideration is right.My current vision is back to where it was pre-implant but it's blurry from time to time and my eyes feel > pressure...similar to the feeling after crying...my eyes always feel that way now. My intraocular pressure is 40, unless I am on Xalatan and then they are 17 (10-20 is normal). I'd like to go off the Xalatan though and think I will be able to with further detox. I wonder if the glaucoma is mercury-related. I know many of the autistic kids I worked with had glaucoma. So far on this forum, I've only encountered one woman with glaucoma. She said hers went away after a year or two. Many women on here experience visual disturbances, eye pain and eye fatigue. - like I said on my previous post, patients will have different symptoms, based on their previous exposure to toxins. > Currently I don't feel completely debilitated as before. There was a point in time that it felt as though I was watching a movie of my life...as if I was detached in a strange, scary way. I also experienced proprioception problems to where if I touched my head, it didn't feel like part of my body...bizarre feeling. Currently, I just feel slow which is still very frustrating. I have a lot of memory loss. I used to be a " people person " who would never forget a name or face. Now, if someone passes me, I don't always remember what they looked like or if I spoke with someone I will forget what we have shared where before I was known for my attention to detail. I believe I will heal fully but it's been a slow, arduous process. > - Are you taking any Vitamin B complex? Could also partly be a vitamin B deficiency. Yes, I take a liquid B Complex as well as sublingual lozenges. I agree with you though...my symptoms do seem to reflect a deficiency. I believe it's due to the gut problems.- You have to clear the absorptive power of the gut before you can get the full dose of your supplements. >  Six months after implant, my gut began bloating after eating. I went to the GI and was told I had IBS and that I'd have to live with it. I asked if it could be related to the implants since prior to implant I had never had any gut issues. I was told no...yet many women on here have experienced the same digestive issues. I was diagnosed with small intestinal bowel overgrowth (SIBO) and told I was fructose-intolerant . I know I sound like a hypochondriac here with all these diagnoses at such a young age. It still feels foreign to me that I'm in this position as before implants, I was the picture of perfect health (hence my user name because I want it back)! I had never been hospitalized except for 2 c-sections and never had to go to a doc except for my annual physical that always came out great.- Okay, granted that we know that silicone components cause damage to the cells it gets in contact with, and the other toxic components, which are > very toxic, considered carcinogens alter the genetic compositions of cells giving rise to mutations on a molecular level. Granted that we all believe the abovementioned premise, then it is very possible for other conditions to be " copied " .Read about this:  http://emedicine.medscape.com/article/171805-overview > - It is genetic, but should the silicone components alter the immunity, then the patient will show signs of this. > > > Regarding Vitamin B12, well, my comment on this would be, most B group vitamins are usually given for nerve-related problems. We usually prescribe, Vitamin-B complex to people with complaints of numbness, or the like. I wake up frequently numb on my left side. > - what is your sleeping position, do you sleep on your left side? If you have a partner / husband that you share a bed with, have you tried switching sides of the bed and noticing if the numbness shifts to the right side? We're trying to cover all possibilities. Yes, I always sleep on my left side. No, we haven't switched. I'll try that...thanks.- Oh, this is very interesting, please do give me feedback on the result of your switch. > > In patients who come to the hospital unconscious, usually from alcohol intoxication or " alcohol coma " , we just infuse and mix vitamin B complex on the IV fluids and everything goes well. > > In my opinion, the most important among the B group is the Vitamin B1, thiamine, you can read more about it at: > > http://en.wikipedia .org/wiki/ Thiamine Thank you, I will look at that. > > > > We usually advise our patients to take brown rice, instead of the over-polished rice... brown sugar, instead of the bleached white sugar. I have cut out all white foods, sugar, alcohol and gluten. Many of my symptoms are synonomous with gluten sensitivity, candida, mercury toxicity, leaky gut and hormonal imbalances.. .they seem to be inter-related. > - yes, making them very hard to distinguish from each other. > SIDE-COMMENT: I remember a time during med school when my consultant has a patient who had mercury poisoning symptoms, I was able to deduce all the symptoms of mercury toxicity, the patient had silver-mercury amalgams on 3/4 of his teeth, lived in a silver and ore mining area, etc... but my consultant dismissed my case and decided to diagnose it with a very common, easy to treat diagnosis. The patient didn't improve, until the patient was lost to follow-up. That case is one of my frustrations, some doctors do have close-minds, it's so frustrating. You're right...it is frustrating. We need more docs like you! > As a side note, my dad is a dentist and I spent many days after school in his office. I've wondered if I was exposed to mercury vapors that have accumulated over time.  - Do read my previous post... I explained this.  =) > I was told my levels are moderate. I'm not sure how to proceed. It seems that some who have recovered have done so through chelation while others were able to do it with diet alone. > > I remember a joke that goes like this: Patient calls his doctor, " Doc, I think I have a cold. " , then the doctor said, " Okay, go out of your house and stay there for an hour. " , then the patient said, " but doctor, it's raining outside, I'll get pneumonia... " , then the doctor said, " Good, because I now how to treat pneumonia, but not a cold. "  Ha ha!! > Lesson: Sometimes there are doctors who are so close-minded that they would rather forcibly fit symptoms in a disease which they know how to treat, rather than  actually treat the actual illness. What's worse is, they'd deny you have any illness and say that you are over-exaggerating or a hpochondriac. =(  Soooo true. I can't tell you how many times a doc has rolled his eyes or offered an antidepressant. I don't see how an antidepressant would make my vision return so I declined the offer. I do believe in the mind/body connection, but I also think that much more is at play when a " healthy " 37 year old who works out 3-5 times a week suddenly has gait problems, vision loss and other classic MS symptoms. > I was diagnosed with IBS and SIBO (small intestine bowel overgrowth). My theory is that the heavy metals and chemical toxins in implants are too much for some women (especially those with an APOE 3/4 gene) and over time the body becomes congested and unable to excrete all that is necessary. As a result bacterial, fungal and parasitic overgrowth occurs leading to digestive problems, liver problems, chronic fatigue, hormonal imbalances, etc. I'm sure more comes into play, but this has been my experience.  > - thank you for sharing. > > Not to generalize, but sometimes I wonder if all illness is really the same thing: toxicity with resulting vitamin/mineral/ hormonal deficiencies. > - well, what is health? Health is a balance...  it's a yin-yang, balance between all the vitamins... minerals... hormones needed by the body. The infections we have, merely, disrupt this balance, hence causing a " disease " . Rowdy cells that go haywire, disrupt the balance, producing cancers. > > I see it as a very quiet and behaved class in a school, then all of a sudden a bully comes along and disrupts the balance, as a result, everyone in the class are affected and have a hard time with study. Great analogy. > It seems that in my quest for an answer I seem to come across heavy metals/toxins playing a huge role in neurodegenerative disease. Dr. Kolb said that women with mercury amalgam fillings tend to get sick from implants, although there are also many on this forum who didn't have amalgams. Regardless, I have learned that heavy metals are implicated in many diseases. > - or that these are all separate entities which contribute to the level of biotoxins... maybe someone with amalgams has a near toxic dose of biotoxins already, then the implants just aggravates. Maybe others who don't have amalgams have other contributing factors like unhealthy diet. Again, it's a balance. > > > Do read the link and please email me the symptoms that you experience when you say fogginess... like when you experience that, are you able to do or not do the following: > > - drive- write the alphabets forwards and backwards- recite the alphabets forwards and > > backwards- count 20 to 1- recall and recite your SSS number- recall details like what color of dress you wore the previous days of the week In the beginning I had difficulty doing all of these. Just writing a check was an enormous mental task. Now I am able to do all but feel slow. If I could I'd sleep all day. I tend to shy away from reading as it's difficult (eye tracking problems) and I used to be an avid reader. One thing I notice frequently is that I transpose letters when I type. I rarely/never used to do this. Dr. Kolb said that women with salines tend to become ill with fungal infections. > - again, they could have already a near toxic dose from the implants and then the contributing factor was a fungal infection. > > I had a blood test for candida but the result was normal. When I went to the top infectious docs here they said it was impossible to have a systemic fungal infection... that if I did, I'd have a 105 degree temp and be bedridden... that they only see that in AIDS patients. > - they are almost right. The symptoms that they are pertaining at is what we call an " inflammatory response " , but then again, these are just seen if the infections reached the muscles or any area where the blood reaches (remember that the blood carries the white blood cells, the macrophages, etc... all the immune responses). We should take note that there have been cases where someone gets bitten by a rabid dog and is asymptomatic till years after. We should take note that blood has a hard time reaching the spaces between fat cells, and this is where some infections lie dormant, waiting for the right time for an infection. In some cases, the infectious agent, if in your case, let's assume is candida, might be lodged somewhere on the fat cells. Blood can't reach them, no inflammation occurs, but the candida gets nourishment through passive diffusion of nutrients via the intercellular spaces of fat cells, then the candida or any infectious agent, can > still excrete or emit their toxic wastes and still cause a build-up of biotoxins, while doing everything underthe radar so to speak since blood can't reach them. What do you think? Yes, that makes sense, which is unfortunate because then we have many sick people who have normal tests and are consequently unable to get the proper treatment. Perhaps this is why autism cannot be diagnosed through blood tests but through observation of symptoms/behaviors. Yet, children are recovering by treating the " probable " infections with diet and detox. The same holds true for us women...most blood tests are normal yet we can barely function. When we clean up our bodies through fasting, colonics, enemas, exercise and diet, we regain our health. > - We are all an interplay of genetic and environmental factors. There are just some people who are good at eliminating toxins, while there are those who don't. This latter condition then becomes a viscious cycle since the toxins are not eliminated fast enough, then build-up occurs which further plunges the capacity of the body to eliminate the toxins. > > I don't know what to believe because I have symptoms of candida yet zero proof. What are your thoughts about candida? > - see above. =) > > > Also if it is accompanied by the following: > > - headache  - location (entire head, forehead only, temporal, base of the skull, one side only  - is it continuous, stops every 15mins, stops when you take meds, etc  - it is aggravated by sunlight, eye strain, noise, a certain scent  - does it change its location or always on the same area- nausea- flushes- fainting spells- difficulty in breathing- cramps- hyperacidity Mine is mostly temporal and I think is associated with adrenal fatigue. I experienced it 24/7 until I went on progesterone. I still experience it occasionally. When first ill, I had the feeling as though my head was going to explode as the pressure was so intense. Dr. Kolb recommended craniosacral therapy which brough relief for an hour or two. I have become more senstive to sunlight and chemicals but it seems to have lessened in the last two years as I cleanse my body. I can now wear makeup again > and actually feel better outside in the light as long as I have sunglasses. > - SIDE-COMMENT: When I was a kid, when they'd ask me what I wanted to be when I grew up, since I still didn't have a complete sense of reality, I'd answer, VAMPIRE! > Till, of course, years later, I got disappointed when I knew that Vampires don't exist. > But I later found a condition which mimicked vampire-traits. It could be either genetic or acquired...ever heard of the condition called PORPHYRIA? Please do read about it: Yes, I had heard about it but didn't know much. I worked with an OT who suggested using a porphyrin test for her autistic clients...I didn't think about it in my own case. I do meet many of the criteria though. > http://en.wikipedia .org/wiki/ Porphyria > > - The symptoms from porphyria remind me of the symptoms that most of you have stated. Am just stating this as a consideration, I am not saying anything final. I just noted the similarities of the symptoms. The question could be, can one of the components of Silicone induce a porphyria-like state / condition? I think so. > > > Lets try to analyze all your symptoms one by one, so that we can find the symptoms that are all present on all implantees. Then we can find better ways of approaching the problem, and > > find a systematic way of getting a cure. > > I can guide all of you throughout your conditions and be there till we find that you are all well, and that all of your experiences would just be a thing of the past. I can't thank you enough for your willingness to help us figure this out!  You are ahead of your game as most doctors are reluctant to come forward or be open-minded to the reality of the effects of implants on the body.  > - You only stop learning when you think you already know everything.. . and I know I don't. So as Rudyard Kipling stated, " My best teachers are How, What, When, Where, and Why... " . I am also learning a lot from all of you, thank you also! =) Ditto...seems to be a mutually beneficial relationship here. So glad you came on board. Also, thanks for sharing Our Daily Muffin site...love it! ~PH > - Glad you like it. =) > > > - > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2009 Report Share Posted May 30, 2009 > > > > > > Ok, my dear, " list-mates " (humm, do you already have a group name that is pertaining to the " members " of the list? Like, Ex-Saliners? Or Saline-Xers? Am thinking of a term that would depict a sense of belongingness to the group. Anyway, do suggest if there's still none.) lol...no, we don't have a collective name. Some women call themselves Saline or Silicone Survivors. > > - but what would you call me, haha, I was actually looking for a term that would signify me also as a member of the group, some sort of a sense of belongingness. hmmm...maybe Truth Seekers??? - Sure, why not, Truth Seekers it is (though sounds like Power Rangers or the like... or Indiana ...LOL.). > > > Anyway, back to the topic at hand, can anyone describe exactly what you feel when you use the term " fogginess " , help me figure out first the exact description of what you feel. Maybe others are using the term incorrectly, that way, we can all agree on the same symptom when we are talking about it. This is difficult to convey. I've noticed in my own experience it changes daily, minute to minute. Before implant, I was in graduate school and had a quick, sharp mind with an IQ in the very superior range (whatever that means!)... > > - you're too humble.. =) lol...maybe that did sound somewhat arrogant...just trying to convey how easy comprehension was pre-implant versus my current situation. I think that's what has been difficult for many of us women...we look " normal " , can carry on an intelligent conversation for a brief moment, but no one knows how it feels in our brains.  I feel disabled, yet I know if I had to take a written exam of some type, I could pass...sort of like a drunk feeling...you' re aware of what's going on but your brain doesn't respond as quickly. > > - I understand how you feel. > > > > my point being that my mind/brain was one of my greatest assets. Looking back, there were a few times that after implantation I " spaced out " briefly, sort of an ADD-like feeling, but I chalked it up to a very busy life-style with so many things on my plate. > > - so maybe what you are saying is that you felt that " you were in your own little world? " Locked in? Because that is usually how ADD patients are described. Definitely. Honestly, I have wondered if I am experiencing what many children on the autism spectrum feel because when I was at my worst, I lost peripheral vision and had difficulty looking people in the eye...and this is coming from a woman who was very social and made it a point to look others in the eye. It was strange...my body just wouldn't let me even though the desire was there. It is a trapped feeling. I can tell through cleansing that I am " coming back into my body/the world " ...I know that sounds weird but when I was really ill, it seemed nothing else in the world mattered...I no longer noticed details...my focus was horrendous. > > - Cheer up, your little world just got bigger with all of us, understanding what you are going through with the single most objective of making everyone go back to the Perfect Health. > > > > By the time the fatigue set in after having implants for 5 years, confusion began (along with digestive issues and fatigue). Once I made it to Dr. Kolb for explant, I was really scared as I was forgetting to pick up my children, doing crazy things such as going out to the car with the oven mitt still on, forgetting that I had made plans to do something. At the same time I had splitting headaches and my vision was deteriorating. > > - forgive me if during the cause of looking for answers I may be acting like a devil's advocate, I will intentionally doubt some of the symptoms that you will all tell me, the reason for that is for you to dig deeper and to be sure of your exact symptoms. I hope you will understand, but unlike the other doctors, my doubts are just to help you make sure of your answers... while other doctors will doubt you just because they believe in the saying " We destroy what we don't understand. " The big difference would be, I am here to stay. I completely understand and I appreciate your willingness to dig deeper and stick around. Too many of us have experienced doctors not knowing the answers...which I empathize... they/we are only human...we don't know the answers to everything. However, some docs, instead of admitting they don't know, tend to turn it on the patient and offer an antidepressant and/or infer it is all in our heads as a way to boost their own > > self-esteem rather than confessing it's an unknown. > > - We call it IDIOPATHIC... and for some of us, we interpret it as the doctor who termed it is an IDIOT, while the patient becomes PATHETIC. I personally don't use the term, alot of doctors do use it to cover something they don't know though. > > > > Dr. Kolb tested me with a melanocyte stimulating hormone (MSH) test. I scored an 8, indicating neurotoxins. Anything above 35 is considered normal.  > > - okay, for all the readers of this list who still don't understand the significance of this test, first of all, MELANOCYTE-STIMULAT ING HORMONE is the following (take note of the three functions): > > 1. it is a hypothalamic neuroregulatory hormone > > 2. cytokine and mucus membrane regulatory hormone > > 3. regulatory hormone of almost all other hormones > > It is one of the hormones produced by the pituitary gland. > > So, then if MSH is a normal part of our body, why are we testing MSH if we are in actuality wanting to get the level of biotoxin in our body? It's like this, neurotoxins and biotoxins are a bit hard to quantify, there are new tests that can show us the level in our body, but some of these are still under experimentation, so, we make use of MSH test. > > How? Biotoxin Induced Diseases severely affect the pituitary gland and the hypothalamus, and since MSH is a pituitary gland hormone, insulting the pituitary gland with biotoxin will deplete the MSH in the body. > > MSH deficiency then is an indicator of biotoxin level. > > So, what are the effects of MSH levels? Well, I hope you took note of the functions of MSH a while ago, hence, under production would lead to the opposite of its functions which are: > > > > 1. it is a hypothalamic neuroregulatory hormone which regulates melatonin level (remember that melatonin is a sleep pattern regulator).. . and decreasing melatonin production causes a severe sleep disorder. Once detoxification is started, MSH will again rise and so will melatonin production and the patient now has a good night's sleep. > > 2. MSH is a cytokine regulatory hormone, since cytokines are involved with the immune system and since mucus production is one of the defense mechanisms of the immune systems, there is mucus overproduction. Because of this, we can see the affected patients with symptoms of frequent cough and other mucous over-production. This is interesting. ..whenever I have had a colonic, the colon hydrotherapist mentions how she's surprised at the level of mucous. My sister has been told the same thing and she is dealing with Grave's Disease. As well, about a year after implantation I began having sinus problems. My allergist said I was 90% blocked. - there's your correlation! =)3. Since the pituitary gland is the " master gland " , MSH is a per sea  regulatory hormone of almost all other hormones. And having a low MSH will wreak havok all throughout the body. Do you know how to raise the MSH level...besides with sunlight or Vit D3? I briefly read > > long ago that if MSH is low, the person doesn't stand a chance for regaining health. I don't want to believe that!! Not all of us have been tested for MSH, particularly the women who have already recovered. I would think based on their symptoms that they had low MSH as well.- I think the answer here is not to RAISE it, but rather to remove the things that LOWER it, detox and good nutrition will do that. > > > > > > > > After explant, I was in very bad shape. I had to quit a job I adored. I could no longer care for my children the way a mother should. I had to remind myself how to wash my own hands and iron...I used to work with autistic children and it reminded me of having to break down the tasks into minute steps so they could understand.. .I was much the same way at my worst. If I was doing a task, I didn't have the ability to think about anything other than that. I lost map skills and the ability to envision/dream. For 10 months I was dizzy/drunk- like to the point I only left my house to pick up my children from school and I'd pray the whole way that no one would be harmed from my brain's incapacity to function properly. > > > > - whoa > > > > I should also mention that I lost vision in my left eye. It's hard to describe but there were large portions of the day where the left side of my brain felt cold, blank, empty...as if someone had shot a hole in my brain. I had an MRI which was surpisingly normal and saw the top optic neurologists in the city. They were confused...they knew something wasn't right for a 37 year old to have glaucoma, but they had no explanation other than there was " no way that it was from my implants " . > > - I guess they don't know the components of the silicone implants. > > > > For the past two years I have detoxed and slowly the level of confusion/brain fog has diminished. I am seeing a MD/ND who uses meridian testing. My liver/gallbladder meridian tested poorly every time. He said he wasn't surprised because vision problems are often related to the liver/gallbladder. He put me on Ivermectin and Alinia (for parasites which he says are related to most vision problems in his experience). He then had me do a series of liver flushes. I passed liver flukes and a tape worm.  > > - Ok, Devil's Advocate time: Flukes and Tapeworm are parasites, where did you get them? Are these documented by lab confirmations, were they taenia solium (from pigs) or taenia saginata (cows)?  My doc, who is a MD/ND, said that we all have parasites in our body. His theory is that when I swallowed a piece of amalgam filling, the parasites in my gut fled to other parts of the body, creating an autoimmune response/MS- like symptoms. I realize the dangers of mercury/amalgam having worked with autistic children. I think most people could probably handle swallowing a filling but someone whose immune system is compromised from implants may not. Anyway, he said that I probably had the tapeworm from childhood. It wasn't documented by lab confirmations but there was no question about it when I passed it. The same with the liver flukes...we all have them and for most of us they don't create problems, but if the PH level of the body becomes too > > acidic, they can overpopulate. > > He has had a great deal of success curing MS and other illnesses (i.e. cancer, Parkinson's) by treating for parasites. He doesn't understand why humans rush to treat our dogs, cats or horses for parasites but think we are exempt from them.- As I have said, I was playing the Devil's Advocate, I totally agree with him. Everything that we eat contains seeds... spores... larvae... eggs... of things that are both good and bad. From the water to the juices to the food... so again, to follow the basic rule, instead of RAISING the body's health, why don't we remove first the ones that causes the LOWERING of our health, and parasite removal is a good start. > > > > My vision returned within a couple months! However, I still experience blurry vision. My head feels heavy and it's difficult to turn my head...everything seems hard to coordinate.. .eyes, brain...seems to be a central nervous thing. > > The brain fog I currently experience feels like an infection and it seems to move around a great deal.  It literally feels as though I'm walking through fog sometimes.  Sometimes it feels as though it's in the brain stem but most of the time it feels as if it's in the frontal lobe.  > > - do you wear eyeglasses? When was the last time you had your vision checked? Because we have what we call as a cluster headache, the most common cause is error of eye refraction. I just want to know your current visual status. I've seen probably 10 optometrists, retinologists, optic neurologists, opthamologists, etc. Yes, I wear glasses and contacts. There were various opinions...one said it was my contacts, one said it was ischemic neuropathy, one said possible toxicity, one said it was from my ceiling fan over my bed and the rest just patted me on the knee. I believe it is parasites because it was only when I was taking medication for them that my vision returned. My vision then became worse again and so I went on another round of medication and I could see again. - Then you have empiric evidence that your consideration is right.My current vision is back to where it was pre-implant but it's blurry from time to time and my eyes feel > > pressure...similar to the feeling after crying...my eyes always feel that way now. My intraocular pressure is 40, unless I am on Xalatan and then they are 17 (10-20 is normal). I'd like to go off the Xalatan though and think I will be able to with further detox. I wonder if the glaucoma is mercury-related. I know many of the autistic kids I worked with had glaucoma. So far on this forum, I've only encountered one woman with glaucoma. She said hers went away after a year or two. Many women on here experience visual disturbances, eye pain and eye fatigue. - like I said on my previous post, patients will have different symptoms, based on their previous exposure to toxins. > > Currently I don't feel completely debilitated as before. There was a point in time that it felt as though I was watching a movie of my life...as if I was detached in a strange, scary way. I also experienced proprioception problems to where if I touched my head, it didn't feel like part of my body...bizarre feeling. Currently, I just feel slow which is still very frustrating. I have a lot of memory loss. I used to be a " people person " who would never forget a name or face. Now, if someone passes me, I don't always remember what they looked like or if I spoke with someone I will forget what we have shared where before I was known for my attention to detail. I believe I will heal fully but it's been a slow, arduous process. > > - Are you taking any Vitamin B complex? Could also partly be a vitamin B deficiency. Yes, I take a liquid B Complex as well as sublingual lozenges. I agree with you though...my symptoms do seem to reflect a deficiency. I believe it's due to the gut problems.- You have to clear the absorptive power of the gut before you can get the full dose of your supplements. > >  Six months after implant, my gut began bloating after eating. I went to the GI and was told I had IBS and that I'd have to live with it. I asked if it could be related to the implants since prior to implant I had never had any gut issues. I was told no...yet many women on here have experienced the same digestive issues. I was diagnosed with small intestinal bowel overgrowth (SIBO) and told I was fructose-intolerant . I know I sound like a hypochondriac here with all these diagnoses at such a young age. It still feels foreign to me that I'm in this position as before implants, I was the picture of perfect health (hence my user name because I want it back)! I had never been hospitalized except for 2 c-sections and never had to go to a doc except for my annual physical that always came out great.- Okay, granted that we know that silicone components cause damage to the cells it gets in contact with, and the other toxic components, which are > > very toxic, considered carcinogens alter the genetic compositions of cells giving rise to mutations on a molecular level. Granted that we all believe the abovementioned premise, then it is very possible for other conditions to be " copied " .Read about this:  http://emedicine.medscape.com/article/171805-overview > > - It is genetic, but should the silicone components alter the immunity, then the patient will show signs of this. > > > > > Regarding Vitamin B12, well, my comment on this would be, most B group vitamins are usually given for nerve-related problems. We usually prescribe, Vitamin-B complex to people with complaints of numbness, or the like. I wake up frequently numb on my left side. > > - what is your sleeping position, do you sleep on your left side? If you have a partner / husband that you share a bed with, have you tried switching sides of the bed and noticing if the numbness shifts to the right side? We're trying to cover all possibilities. Yes, I always sleep on my left side. No, we haven't switched. I'll try that...thanks.- Oh, this is very interesting, please do give me feedback on the result of your switch. > > > In patients who come to the hospital unconscious, usually from alcohol intoxication or " alcohol coma " , we just infuse and mix vitamin B complex on the IV fluids and everything goes well. > > > In my opinion, the most important among the B group is the Vitamin B1, thiamine, you can read more about it at: > > > http://en.wikipedia .org/wiki/ Thiamine Thank you, I will look at that. > > > > > > We usually advise our patients to take brown rice, instead of the over-polished rice... brown sugar, instead of the bleached white sugar. I have cut out all white foods, sugar, alcohol and gluten. Many of my symptoms are synonomous with gluten sensitivity, candida, mercury toxicity, leaky gut and hormonal imbalances.. .they seem to be inter-related. > > - yes, making them very hard to distinguish from each other. > > SIDE-COMMENT: I remember a time during med school when my consultant has a patient who had mercury poisoning symptoms, I was able to deduce all the symptoms of mercury toxicity, the patient had silver-mercury amalgams on 3/4 of his teeth, lived in a silver and ore mining area, etc... but my consultant dismissed my case and decided to diagnose it with a very common, easy to treat diagnosis. The patient didn't improve, until the patient was lost to follow-up. That case is one of my frustrations, some doctors do have close-minds, it's so frustrating. You're right...it is frustrating. We need more docs like you! > > As a side note, my dad is a dentist and I spent many days after school in his office. I've wondered if I was exposed to mercury vapors that have accumulated over time.  - Do read my previous post... I explained this.  =) > > I was told my levels are moderate. I'm not sure how to proceed. It seems that some who have recovered have done so through chelation while others were able to do it with diet alone. > > > > I remember a joke that goes like this: Patient calls his doctor, " Doc, I think I have a cold. " , then the doctor said, " Okay, go out of your house and stay there for an hour. " , then the patient said, " but doctor, it's raining outside, I'll get pneumonia... " , then the doctor said, " Good, because I now how to treat pneumonia, but not a cold. "  Ha ha!! > > Lesson: Sometimes there are doctors who are so close-minded that they would rather forcibly fit symptoms in a disease which they know how to treat, rather than  actually treat the actual illness. What's worse is, they'd deny you have any illness and say that you are over-exaggerating or a hpochondriac. =(  Soooo true. I can't tell you how many times a doc has rolled his eyes or offered an antidepressant. I don't see how an antidepressant would make my vision return so I declined the offer. I do believe in the mind/body connection, but I also think that much more is at play when a " healthy " 37 year old who works out 3-5 times a week suddenly has gait problems, vision loss and other classic MS symptoms. > > I was diagnosed with IBS and SIBO (small intestine bowel overgrowth). My theory is that the heavy metals and chemical toxins in implants are too much for some women (especially those with an APOE 3/4 gene) and over time the body becomes congested and unable to excrete all that is necessary. As a result bacterial, fungal and parasitic overgrowth occurs leading to digestive problems, liver problems, chronic fatigue, hormonal imbalances, etc. I'm sure more comes into play, but this has been my experience.  > > - thank you for sharing. > > > > Not to generalize, but sometimes I wonder if all illness is really the same thing: toxicity with resulting vitamin/mineral/ hormonal deficiencies. > > - well, what is health? Health is a balance...  it's a yin-yang, balance between all the vitamins... minerals... hormones needed by the body. The infections we have, merely, disrupt this balance, hence causing a " disease " . Rowdy cells that go haywire, disrupt the balance, producing cancers. > > > > I see it as a very quiet and behaved class in a school, then all of a sudden a bully comes along and disrupts the balance, as a result, everyone in the class are affected and have a hard time with study. Great analogy. > > It seems that in my quest for an answer I seem to come across heavy metals/toxins playing a huge role in neurodegenerative disease. Dr. Kolb said that women with mercury amalgam fillings tend to get sick from implants, although there are also many on this forum who didn't have amalgams. Regardless, I have learned that heavy metals are implicated in many diseases. > > - or that these are all separate entities which contribute to the level of biotoxins... maybe someone with amalgams has a near toxic dose of biotoxins already, then the implants just aggravates. Maybe others who don't have amalgams have other contributing factors like unhealthy diet. Again, it's a balance. > > > > > Do read the link and please email me the symptoms that you experience when you say fogginess... like when you experience that, are you able to do or not do the following: > > > - drive- write the alphabets forwards and backwards- recite the alphabets forwards and > > > backwards- count 20 to 1- recall and recite your SSS number- recall details like what color of dress you wore the previous days of the week In the beginning I had difficulty doing all of these. Just writing a check was an enormous mental task. Now I am able to do all but feel slow. If I could I'd sleep all day. I tend to shy away from reading as it's difficult (eye tracking problems) and I used to be an avid reader. One thing I notice frequently is that I transpose letters when I type. I rarely/never used to do this. Dr. Kolb said that women with salines tend to become ill with fungal infections. > > - again, they could have already a near toxic dose from the implants and then the contributing factor was a fungal infection. > > > > I had a blood test for candida but the result was normal. When I went to the top infectious docs here they said it was impossible to have a systemic fungal infection... that if I did, I'd have a 105 degree temp and be bedridden... that they only see that in AIDS patients. > > - they are almost right. The symptoms that they are pertaining at is what we call an " inflammatory response " , but then again, these are just seen if the infections reached the muscles or any area where the blood reaches (remember that the blood carries the white blood cells, the macrophages, etc... all the immune responses). We should take note that there have been cases where someone gets bitten by a rabid dog and is asymptomatic till years after. We should take note that blood has a hard time reaching the spaces between fat cells, and this is where some infections lie dormant, waiting for the right time for an infection. In some cases, the infectious agent, if in your case, let's assume is candida, might be lodged somewhere on the fat cells. Blood can't reach them, no inflammation occurs, but the candida gets nourishment through passive diffusion of nutrients via the intercellular spaces of fat cells, then the candida or any infectious agent, can > > still excrete or emit their toxic wastes and still cause a build-up of biotoxins, while doing everything underthe radar so to speak since blood can't reach them. What do you think? Yes, that makes sense, which is unfortunate because then we have many sick people who have normal tests and are consequently unable to get the proper treatment. Perhaps this is why autism cannot be diagnosed through blood tests but through observation of symptoms/behaviors. Yet, children are recovering by treating the " probable " infections with diet and detox. The same holds true for us women...most blood tests are normal yet we can barely function. When we clean up our bodies through fasting, colonics, enemas, exercise and diet, we regain our health. > > - We are all an interplay of genetic and environmental factors. There are just some people who are good at eliminating toxins, while there are those who don't. This latter condition then becomes a viscious cycle since the toxins are not eliminated fast enough, then build-up occurs which further plunges the capacity of the body to eliminate the toxins. > > > > I don't know what to believe because I have symptoms of candida yet zero proof. What are your thoughts about candida? > > - see above. =) > > > > > Also if it is accompanied by the following: > > > - headache  - location (entire head, forehead only, temporal, base of the skull, one side only  - is it continuous, stops every 15mins, stops when you take meds, etc  - it is aggravated by sunlight, eye strain, noise, a certain scent  - does it change its location or always on the same area- nausea- flushes- fainting spells- difficulty in breathing- cramps- hyperacidity Mine is mostly temporal and I think is associated with adrenal fatigue. I experienced it 24/7 until I went on progesterone. I still experience it occasionally. When first ill, I had the feeling as though my head was going to explode as the pressure was so intense. Dr. Kolb recommended craniosacral therapy which brough relief for an hour or two. I have become more senstive to sunlight and chemicals but it seems to have lessened in the last two years as I cleanse my body. I can now wear makeup again > > and actually feel better outside in the light as long as I have sunglasses. > > - SIDE-COMMENT: When I was a kid, when they'd ask me what I wanted to be when I grew up, since I still didn't have a complete sense of reality, I'd answer, VAMPIRE! > > Till, of course, years later, I got disappointed when I knew that Vampires don't exist. > > But I later found a condition which mimicked vampire-traits. It could be either genetic or acquired...ever heard of the condition called PORPHYRIA? Please do read about it: Yes, I had heard about it but didn't know much. I worked with an OT who suggested using a porphyrin test for her autistic clients...I didn't think about it in my own case. I do meet many of the criteria though. > > http://en.wikipedia .org/wiki/ Porphyria > > > > - The symptoms from porphyria remind me of the symptoms that most of you have stated. Am just stating this as a consideration, I am not saying anything final. I just noted the similarities of the symptoms. The question could be, can one of the components of Silicone induce a porphyria-like state / condition? I think so. > > > > > Lets try to analyze all your symptoms one by one, so that we can find the symptoms that are all present on all implantees. Then we can find better ways of approaching the problem, and > > > find a systematic way of getting a cure. > > > I can guide all of you throughout your conditions and be there till we find that you are all well, and that all of your experiences would just be a thing of the past. I can't thank you enough for your willingness to help us figure this out!  You are ahead of your game as most doctors are reluctant to come forward or be open-minded to the reality of the effects of implants on the body.  > > - You only stop learning when you think you already know everything.. . and I know I don't. So as Rudyard Kipling stated, " My best teachers are How, What, When, Where, and Why... " . I am also learning a lot from all of you, thank you also! =) Ditto...seems to be a mutually beneficial relationship here. So glad you came on board. Also, thanks for sharing Our Daily Muffin site...love it! ~PH > > - Glad you like it. =) > > > > > - > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2009 Report Share Posted June 1, 2009 Hi Sis, That was Kathy in Illinois (She posted as Mikat). YOu can maybe check out some of her previous posts. She did the low dose antibiotic therapy according to the protocol of something called " The Long Road Back " or some such thing. I don't believe she is still on it, but I just heard from her on Facebook, so perhaps you can write her and see if she will respond to you about it. Sorry to hear that you got bit by a tick! Lyme disease can be awful...hopefully that is not an issue for you. Thanks for writing! Patty > > > > > > Ok, my dear, " list-mates " (humm, do you already have a group name that is pertaining to the " members " of the list? Like, Ex-Saliners? Or Saline-Xers? Am thinking of a term that would depict a sense of belongingness to the group. Anyway, do suggest if there's still none.) lol...no, we don't have a collective name. Some women call themselves Saline or Silicone Survivors. > > - but what would you call me, haha, I was actually looking for a term that would signify me also as a member of the group, some sort of a sense of belongingness. hmmm...maybe Truth Seekers??? - Sure, why not, Truth Seekers it is (though sounds like Power Rangers or the like... or Indiana ...LOL.). > > > Anyway, back to the topic at hand, can anyone describe exactly what you feel when you use the term " fogginess " , help me figure out first the exact description of what you feel. Maybe others are using the term incorrectly, that way, we can all agree on the same symptom when we are talking about it. This is difficult to convey. I've noticed in my own experience it changes daily, minute to minute. Before implant, I was in graduate school and had a quick, sharp mind with an IQ in the very superior range (whatever that means!)... > > - you're too humble.. =) lol...maybe that did sound somewhat arrogant...just trying to convey how easy comprehension was pre-implant versus my current situation. I think that's what has been difficult for many of us women...we look " normal " , can carry on an intelligent conversation for a brief moment, but no one knows how it feels in our brains.  I feel disabled, yet I know if I had to take a written exam of some type, I could pass...sort of like a drunk feeling...you' re aware of what's going on but your brain doesn't respond as quickly. > > - I understand how you feel. > > > > my point being that my mind/brain was one of my greatest assets. Looking back, there were a few times that after implantation I " spaced out " briefly, sort of an ADD-like feeling, but I chalked it up to a very busy life-style with so many things on my plate. > > - so maybe what you are saying is that you felt that " you were in your own little world? " Locked in? Because that is usually how ADD patients are described. Definitely. Honestly, I have wondered if I am experiencing what many children on the autism spectrum feel because when I was at my worst, I lost peripheral vision and had difficulty looking people in the eye...and this is coming from a woman who was very social and made it a point to look others in the eye. It was strange...my body just wouldn't let me even though the desire was there. It is a trapped feeling. I can tell through cleansing that I am " coming back into my body/the world " ...I know that sounds weird but when I was really ill, it seemed nothing else in the world mattered...I no longer noticed details...my focus was horrendous. > > - Cheer up, your little world just got bigger with all of us, understanding what you are going through with the single most objective of making everyone go back to the Perfect Health. > > > > By the time the fatigue set in after having implants for 5 years, confusion began (along with digestive issues and fatigue). Once I made it to Dr. Kolb for explant, I was really scared as I was forgetting to pick up my children, doing crazy things such as going out to the car with the oven mitt still on, forgetting that I had made plans to do something. At the same time I had splitting headaches and my vision was deteriorating. > > - forgive me if during the cause of looking for answers I may be acting like a devil's advocate, I will intentionally doubt some of the symptoms that you will all tell me, the reason for that is for you to dig deeper and to be sure of your exact symptoms. I hope you will understand, but unlike the other doctors, my doubts are just to help you make sure of your answers... while other doctors will doubt you just because they believe in the saying " We destroy what we don't understand. " The big difference would be, I am here to stay. I completely understand and I appreciate your willingness to dig deeper and stick around. Too many of us have experienced doctors not knowing the answers...which I empathize... they/we are only human...we don't know the answers to everything. However, some docs, instead of admitting they don't know, tend to turn it on the patient and offer an antidepressant and/or infer it is all in our heads as a way to boost their own > > self-esteem rather than confessing it's an unknown. > > - We call it IDIOPATHIC... and for some of us, we interpret it as the doctor who termed it is an IDIOT, while the patient becomes PATHETIC. I personally don't use the term, alot of doctors do use it to cover something they don't know though. > > > > Dr. Kolb tested me with a melanocyte stimulating hormone (MSH) test. I scored an 8, indicating neurotoxins. Anything above 35 is considered normal.  > > - okay, for all the readers of this list who still don't understand the significance of this test, first of all, MELANOCYTE-STIMULAT ING HORMONE is the following (take note of the three functions): > > 1. it is a hypothalamic neuroregulatory hormone > > 2. cytokine and mucus membrane regulatory hormone > > 3. regulatory hormone of almost all other hormones > > It is one of the hormones produced by the pituitary gland. > > So, then if MSH is a normal part of our body, why are we testing MSH if we are in actuality wanting to get the level of biotoxin in our body? It's like this, neurotoxins and biotoxins are a bit hard to quantify, there are new tests that can show us the level in our body, but some of these are still under experimentation, so, we make use of MSH test. > > How? Biotoxin Induced Diseases severely affect the pituitary gland and the hypothalamus, and since MSH is a pituitary gland hormone, insulting the pituitary gland with biotoxin will deplete the MSH in the body. > > MSH deficiency then is an indicator of biotoxin level. > > So, what are the effects of MSH levels? Well, I hope you took note of the functions of MSH a while ago, hence, under production would lead to the opposite of its functions which are: > > > > 1. it is a hypothalamic neuroregulatory hormone which regulates melatonin level (remember that melatonin is a sleep pattern regulator).. . and decreasing melatonin production causes a severe sleep disorder. Once detoxification is started, MSH will again rise and so will melatonin production and the patient now has a good night's sleep. > > 2. MSH is a cytokine regulatory hormone, since cytokines are involved with the immune system and since mucus production is one of the defense mechanisms of the immune systems, there is mucus overproduction. Because of this, we can see the affected patients with symptoms of frequent cough and other mucous over-production. This is interesting. ..whenever I have had a colonic, the colon hydrotherapist mentions how she's surprised at the level of mucous. My sister has been told the same thing and she is dealing with Grave's Disease. As well, about a year after implantation I began having sinus problems. My allergist said I was 90% blocked. - there's your correlation! =)3. Since the pituitary gland is the " master gland " , MSH is a per sea  regulatory hormone of almost all other hormones. And having a low MSH will wreak havok all throughout the body. Do you know how to raise the MSH level...besides with sunlight or Vit D3? I briefly read > > long ago that if MSH is low, the person doesn't stand a chance for regaining health. I don't want to believe that!! Not all of us have been tested for MSH, particularly the women who have already recovered. I would think based on their symptoms that they had low MSH as well.- I think the answer here is not to RAISE it, but rather to remove the things that LOWER it, detox and good nutrition will do that. > > > > > > > > After explant, I was in very bad shape. I had to quit a job I adored. I could no longer care for my children the way a mother should. I had to remind myself how to wash my own hands and iron...I used to work with autistic children and it reminded me of having to break down the tasks into minute steps so they could understand.. .I was much the same way at my worst. If I was doing a task, I didn't have the ability to think about anything other than that. I lost map skills and the ability to envision/dream. For 10 months I was dizzy/drunk- like to the point I only left my house to pick up my children from school and I'd pray the whole way that no one would be harmed from my brain's incapacity to function properly. > > > > - whoa > > > > I should also mention that I lost vision in my left eye. It's hard to describe but there were large portions of the day where the left side of my brain felt cold, blank, empty...as if someone had shot a hole in my brain. I had an MRI which was surpisingly normal and saw the top optic neurologists in the city. They were confused...they knew something wasn't right for a 37 year old to have glaucoma, but they had no explanation other than there was " no way that it was from my implants " . > > - I guess they don't know the components of the silicone implants. > > > > For the past two years I have detoxed and slowly the level of confusion/brain fog has diminished. I am seeing a MD/ND who uses meridian testing. My liver/gallbladder meridian tested poorly every time. He said he wasn't surprised because vision problems are often related to the liver/gallbladder. He put me on Ivermectin and Alinia (for parasites which he says are related to most vision problems in his experience). He then had me do a series of liver flushes. I passed liver flukes and a tape worm.  > > - Ok, Devil's Advocate time: Flukes and Tapeworm are parasites, where did you get them? Are these documented by lab confirmations, were they taenia solium (from pigs) or taenia saginata (cows)?  My doc, who is a MD/ND, said that we all have parasites in our body. His theory is that when I swallowed a piece of amalgam filling, the parasites in my gut fled to other parts of the body, creating an autoimmune response/MS- like symptoms. I realize the dangers of mercury/amalgam having worked with autistic children. I think most people could probably handle swallowing a filling but someone whose immune system is compromised from implants may not. Anyway, he said that I probably had the tapeworm from childhood. It wasn't documented by lab confirmations but there was no question about it when I passed it. The same with the liver flukes...we all have them and for most of us they don't create problems, but if the PH level of the body becomes too > > acidic, they can overpopulate. > > He has had a great deal of success curing MS and other illnesses (i.e. cancer, Parkinson's) by treating for parasites. He doesn't understand why humans rush to treat our dogs, cats or horses for parasites but think we are exempt from them.- As I have said, I was playing the Devil's Advocate, I totally agree with him. Everything that we eat contains seeds... spores... larvae... eggs... of things that are both good and bad. From the water to the juices to the food... so again, to follow the basic rule, instead of RAISING the body's health, why don't we remove first the ones that causes the LOWERING of our health, and parasite removal is a good start. > > > > My vision returned within a couple months! However, I still experience blurry vision. My head feels heavy and it's difficult to turn my head...everything seems hard to coordinate.. .eyes, brain...seems to be a central nervous thing. > > The brain fog I currently experience feels like an infection and it seems to move around a great deal.  It literally feels as though I'm walking through fog sometimes.  Sometimes it feels as though it's in the brain stem but most of the time it feels as if it's in the frontal lobe.  > > - do you wear eyeglasses? When was the last time you had your vision checked? Because we have what we call as a cluster headache, the most common cause is error of eye refraction. I just want to know your current visual status. I've seen probably 10 optometrists, retinologists, optic neurologists, opthamologists, etc. Yes, I wear glasses and contacts. There were various opinions...one said it was my contacts, one said it was ischemic neuropathy, one said possible toxicity, one said it was from my ceiling fan over my bed and the rest just patted me on the knee. I believe it is parasites because it was only when I was taking medication for them that my vision returned. My vision then became worse again and so I went on another round of medication and I could see again. - Then you have empiric evidence that your consideration is right.My current vision is back to where it was pre-implant but it's blurry from time to time and my eyes feel > > pressure...similar to the feeling after crying...my eyes always feel that way now. My intraocular pressure is 40, unless I am on Xalatan and then they are 17 (10-20 is normal). I'd like to go off the Xalatan though and think I will be able to with further detox. I wonder if the glaucoma is mercury-related. I know many of the autistic kids I worked with had glaucoma. So far on this forum, I've only encountered one woman with glaucoma. She said hers went away after a year or two. Many women on here experience visual disturbances, eye pain and eye fatigue. - like I said on my previous post, patients will have different symptoms, based on their previous exposure to toxins. > > Currently I don't feel completely debilitated as before. There was a point in time that it felt as though I was watching a movie of my life...as if I was detached in a strange, scary way. I also experienced proprioception problems to where if I touched my head, it didn't feel like part of my body...bizarre feeling. Currently, I just feel slow which is still very frustrating. I have a lot of memory loss. I used to be a " people person " who would never forget a name or face. Now, if someone passes me, I don't always remember what they looked like or if I spoke with someone I will forget what we have shared where before I was known for my attention to detail. I believe I will heal fully but it's been a slow, arduous process. > > - Are you taking any Vitamin B complex? Could also partly be a vitamin B deficiency. Yes, I take a liquid B Complex as well as sublingual lozenges. I agree with you though...my symptoms do seem to reflect a deficiency. I believe it's due to the gut problems.- You have to clear the absorptive power of the gut before you can get the full dose of your supplements. > >  Six months after implant, my gut began bloating after eating. I went to the GI and was told I had IBS and that I'd have to live with it. I asked if it could be related to the implants since prior to implant I had never had any gut issues. I was told no...yet many women on here have experienced the same digestive issues. I was diagnosed with small intestinal bowel overgrowth (SIBO) and told I was fructose-intolerant . I know I sound like a hypochondriac here with all these diagnoses at such a young age. It still feels foreign to me that I'm in this position as before implants, I was the picture of perfect health (hence my user name because I want it back)! I had never been hospitalized except for 2 c-sections and never had to go to a doc except for my annual physical that always came out great.- Okay, granted that we know that silicone components cause damage to the cells it gets in contact with, and the other toxic components, which are > > very toxic, considered carcinogens alter the genetic compositions of cells giving rise to mutations on a molecular level. Granted that we all believe the abovementioned premise, then it is very possible for other conditions to be " copied " .Read about this:  http://emedicine.medscape.com/article/171805-overview > > - It is genetic, but should the silicone components alter the immunity, then the patient will show signs of this. > > > > > Regarding Vitamin B12, well, my comment on this would be, most B group vitamins are usually given for nerve-related problems. We usually prescribe, Vitamin-B complex to people with complaints of numbness, or the like. I wake up frequently numb on my left side. > > - what is your sleeping position, do you sleep on your left side? If you have a partner / husband that you share a bed with, have you tried switching sides of the bed and noticing if the numbness shifts to the right side? We're trying to cover all possibilities. Yes, I always sleep on my left side. No, we haven't switched. I'll try that...thanks.- Oh, this is very interesting, please do give me feedback on the result of your switch. > > > In patients who come to the hospital unconscious, usually from alcohol intoxication or " alcohol coma " , we just infuse and mix vitamin B complex on the IV fluids and everything goes well. > > > In my opinion, the most important among the B group is the Vitamin B1, thiamine, you can read more about it at: > > > http://en.wikipedia .org/wiki/ Thiamine Thank you, I will look at that. > > > > > > We usually advise our patients to take brown rice, instead of the over-polished rice... brown sugar, instead of the bleached white sugar. I have cut out all white foods, sugar, alcohol and gluten. Many of my symptoms are synonomous with gluten sensitivity, candida, mercury toxicity, leaky gut and hormonal imbalances.. .they seem to be inter-related. > > - yes, making them very hard to distinguish from each other. > > SIDE-COMMENT: I remember a time during med school when my consultant has a patient who had mercury poisoning symptoms, I was able to deduce all the symptoms of mercury toxicity, the patient had silver-mercury amalgams on 3/4 of his teeth, lived in a silver and ore mining area, etc... but my consultant dismissed my case and decided to diagnose it with a very common, easy to treat diagnosis. The patient didn't improve, until the patient was lost to follow-up. That case is one of my frustrations, some doctors do have close-minds, it's so frustrating. You're right...it is frustrating. We need more docs like you! > > As a side note, my dad is a dentist and I spent many days after school in his office. I've wondered if I was exposed to mercury vapors that have accumulated over time.  - Do read my previous post... I explained this.  =) > > I was told my levels are moderate. I'm not sure how to proceed. It seems that some who have recovered have done so through chelation while others were able to do it with diet alone. > > > > I remember a joke that goes like this: Patient calls his doctor, " Doc, I think I have a cold. " , then the doctor said, " Okay, go out of your house and stay there for an hour. " , then the patient said, " but doctor, it's raining outside, I'll get pneumonia... " , then the doctor said, " Good, because I now how to treat pneumonia, but not a cold. "  Ha ha!! > > Lesson: Sometimes there are doctors who are so close-minded that they would rather forcibly fit symptoms in a disease which they know how to treat, rather than  actually treat the actual illness. What's worse is, they'd deny you have any illness and say that you are over-exaggerating or a hpochondriac. =(  Soooo true. I can't tell you how many times a doc has rolled his eyes or offered an antidepressant. I don't see how an antidepressant would make my vision return so I declined the offer. I do believe in the mind/body connection, but I also think that much more is at play when a " healthy " 37 year old who works out 3-5 times a week suddenly has gait problems, vision loss and other classic MS symptoms. > > I was diagnosed with IBS and SIBO (small intestine bowel overgrowth). My theory is that the heavy metals and chemical toxins in implants are too much for some women (especially those with an APOE 3/4 gene) and over time the body becomes congested and unable to excrete all that is necessary. As a result bacterial, fungal and parasitic overgrowth occurs leading to digestive problems, liver problems, chronic fatigue, hormonal imbalances, etc. I'm sure more comes into play, but this has been my experience.  > > - thank you for sharing. > > > > Not to generalize, but sometimes I wonder if all illness is really the same thing: toxicity with resulting vitamin/mineral/ hormonal deficiencies. > > - well, what is health? Health is a balance...  it's a yin-yang, balance between all the vitamins... minerals... hormones needed by the body. The infections we have, merely, disrupt this balance, hence causing a " disease " . Rowdy cells that go haywire, disrupt the balance, producing cancers. > > > > I see it as a very quiet and behaved class in a school, then all of a sudden a bully comes along and disrupts the balance, as a result, everyone in the class are affected and have a hard time with study. Great analogy. > > It seems that in my quest for an answer I seem to come across heavy metals/toxins playing a huge role in neurodegenerative disease. Dr. Kolb said that women with mercury amalgam fillings tend to get sick from implants, although there are also many on this forum who didn't have amalgams. Regardless, I have learned that heavy metals are implicated in many diseases. > > - or that these are all separate entities which contribute to the level of biotoxins... maybe someone with amalgams has a near toxic dose of biotoxins already, then the implants just aggravates. Maybe others who don't have amalgams have other contributing factors like unhealthy diet. Again, it's a balance. > > > > > Do read the link and please email me the symptoms that you experience when you say fogginess... like when you experience that, are you able to do or not do the following: > > > - drive- write the alphabets forwards and backwards- recite the alphabets forwards and > > > backwards- count 20 to 1- recall and recite your SSS number- recall details like what color of dress you wore the previous days of the week In the beginning I had difficulty doing all of these. Just writing a check was an enormous mental task. Now I am able to do all but feel slow. If I could I'd sleep all day. I tend to shy away from reading as it's difficult (eye tracking problems) and I used to be an avid reader. One thing I notice frequently is that I transpose letters when I type. I rarely/never used to do this. Dr. Kolb said that women with salines tend to become ill with fungal infections. > > - again, they could have already a near toxic dose from the implants and then the contributing factor was a fungal infection. > > > > I had a blood test for candida but the result was normal. When I went to the top infectious docs here they said it was impossible to have a systemic fungal infection... that if I did, I'd have a 105 degree temp and be bedridden... that they only see that in AIDS patients. > > - they are almost right. The symptoms that they are pertaining at is what we call an " inflammatory response " , but then again, these are just seen if the infections reached the muscles or any area where the blood reaches (remember that the blood carries the white blood cells, the macrophages, etc... all the immune responses). We should take note that there have been cases where someone gets bitten by a rabid dog and is asymptomatic till years after. We should take note that blood has a hard time reaching the spaces between fat cells, and this is where some infections lie dormant, waiting for the right time for an infection. In some cases, the infectious agent, if in your case, let's assume is candida, might be lodged somewhere on the fat cells. Blood can't reach them, no inflammation occurs, but the candida gets nourishment through passive diffusion of nutrients via the intercellular spaces of fat cells, then the candida or any infectious agent, can > > still excrete or emit their toxic wastes and still cause a build-up of biotoxins, while doing everything underthe radar so to speak since blood can't reach them. What do you think? Yes, that makes sense, which is unfortunate because then we have many sick people who have normal tests and are consequently unable to get the proper treatment. Perhaps this is why autism cannot be diagnosed through blood tests but through observation of symptoms/behaviors. Yet, children are recovering by treating the " probable " infections with diet and detox. The same holds true for us women...most blood tests are normal yet we can barely function. When we clean up our bodies through fasting, colonics, enemas, exercise and diet, we regain our health. > > - We are all an interplay of genetic and environmental factors. There are just some people who are good at eliminating toxins, while there are those who don't. This latter condition then becomes a viscious cycle since the toxins are not eliminated fast enough, then build-up occurs which further plunges the capacity of the body to eliminate the toxins. > > > > I don't know what to believe because I have symptoms of candida yet zero proof. What are your thoughts about candida? > > - see above. =) > > > > > Also if it is accompanied by the following: > > > - headache  - location (entire head, forehead only, temporal, base of the skull, one side only  - is it continuous, stops every 15mins, stops when you take meds, etc  - it is aggravated by sunlight, eye strain, noise, a certain scent  - does it change its location or always on the same area- nausea- flushes- fainting spells- difficulty in breathing- cramps- hyperacidity Mine is mostly temporal and I think is associated with adrenal fatigue. I experienced it 24/7 until I went on progesterone. I still experience it occasionally. When first ill, I had the feeling as though my head was going to explode as the pressure was so intense. Dr. Kolb recommended craniosacral therapy which brough relief for an hour or two. I have become more senstive to sunlight and chemicals but it seems to have lessened in the last two years as I cleanse my body. I can now wear makeup again > > and actually feel better outside in the light as long as I have sunglasses. > > - SIDE-COMMENT: When I was a kid, when they'd ask me what I wanted to be when I grew up, since I still didn't have a complete sense of reality, I'd answer, VAMPIRE! > > Till, of course, years later, I got disappointed when I knew that Vampires don't exist. > > But I later found a condition which mimicked vampire-traits. It could be either genetic or acquired...ever heard of the condition called PORPHYRIA? Please do read about it: Yes, I had heard about it but didn't know much. I worked with an OT who suggested using a porphyrin test for her autistic clients...I didn't think about it in my own case. I do meet many of the criteria though. > > http://en.wikipedia .org/wiki/ Porphyria > > > > - The symptoms from porphyria remind me of the symptoms that most of you have stated. Am just stating this as a consideration, I am not saying anything final. I just noted the similarities of the symptoms. The question could be, can one of the components of Silicone induce a porphyria-like state / condition? I think so. > > > > > Lets try to analyze all your symptoms one by one, so that we can find the symptoms that are all present on all implantees. Then we can find better ways of approaching the problem, and > > > find a systematic way of getting a cure. > > > I can guide all of you throughout your conditions and be there till we find that you are all well, and that all of your experiences would just be a thing of the past. I can't thank you enough for your willingness to help us figure this out!  You are ahead of your game as most doctors are reluctant to come forward or be open-minded to the reality of the effects of implants on the body.  > > - You only stop learning when you think you already know everything.. . and I know I don't. So as Rudyard Kipling stated, " My best teachers are How, What, When, Where, and Why... " . I am also learning a lot from all of you, thank you also! =) Ditto...seems to be a mutually beneficial relationship here. So glad you came on board. Also, thanks for sharing Our Daily Muffin site...love it! ~PH > > - Glad you like it. =) > > > > > - > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2009 Report Share Posted June 5, 2009 Pleasure is all mine... =)From: DGRAHAMA@... <DGRAHAMA@...>Subject: Re: Thank you everyone! Date: Saturday, May 30, 2009, 3:00 AM Doc ~ You are definately an earth angel....... ..... Thank you for YOU ! ! We are very blessed to have you with us ! Dede************ **We found the real ‘Hotel California’ and the ‘Seinfeld’ diner. What will you find? Explore WhereItsAt.com. (http://www. whereitsat. com/#/music/ all-spots/ 355/47.796964/ -66.374711/ 2/Youve-Found- Where-Its- At?ncid=emlcntne w00000007) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2009 Report Share Posted October 31, 2009 : Very nice blog like that you were informative and enlightening to people who may not know much about CML or have not been touched by it....but my 10 year old wondered why you put in some questionable words, like sh*t. A couple of words of advice for your first few weeks of Gleevec. Please try and remember to wash your hands like a surgeon. wash the fronts, then the backs, then between the fingers and finally the fingertips and nails. It will help you avoid whatever is going around. If you have muscle cramps and bone pain, I have found that heat helps me the most. I am not a big fan of hot tubs (especially public ones that have multiple germs) but heating pads and the warming pads you put in the microwave work best for me. You may also find an unpleasant taste in your mouth and simple brushing or mouth refreshing gum would clear that up for me. I also found that I was more prone to smells and I put a simple diffuser I got at a home goods shop in my office to help. Always try and get plenty of rest and don't be scared to exercise as that will actually bring you some good benefits. Good luck and God Speed! With warm regards, Matt Florida This message (including any attachments) contains confidential information intended for a specific individual and purpose, and is protected by law. If you are not the intended recipient, you should delete this message, and please advise me of your receipt. Any disclosure, copying, or distribution of this message, or the taking of any action based on it, is strictly prohibited. In a message dated 10/31/2009 11:52:37 A.M. Eastern Daylight Time, ryan.romero@... writes: www.shootforthecurewww.shootfwww.s Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2009 Report Share Posted October 31, 2009 Hi everyone! Thank you all for your wonderful messages! This is the best thing ever! I feel at peace knowing I have friends to turn too if I have a question, comment or concern! Last night was my first night taking Gleevec. Not as bad as I had prepared for! When people ask " How are you? " I respond " Better than bad, I can't complain! " Most of the side effects are manageable. I cannot respond to all of your emails individually so I am writing to the group to say thank you! I am blessed to be a part of this group! Take care my friends, If you get bored and want to peak in my progress you can see the blog my friend put up for me. www.shootforthecure.blogspot.com Thanks again! Romero Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2009 Report Share Posted October 31, 2009 , Glad things are going ok for you..Hang in there.. SharonS > > Hi everyone! > > Thank you all for your wonderful messages! This is the best thing ever! I feel at peace knowing I have friends to turn too if I have a question, comment or concern! > > Last night was my first night taking Gleevec. Not as bad as I had prepared for! When people ask " How are you? " I respond " Better than bad, I can't complain! " > > Most of the side effects are manageable. I cannot respond to all of your emails individually so I am writing to the group to say thank you! > > I am blessed to be a part of this group! > > Take care my friends, > > If you get bored and want to peak in my progress you can see the blog my friend put up for me. www.shootforthecure.blogspot.com > > Thanks again! > Romero > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2009 Report Share Posted October 31, 2009 , I joined your followers on your blog..Not sure how to post a reply to messages though..I tried and it asks for some kind of sign in to an account to google or some other type thing and I don't have any of the options it listed.I am only on .I will read the posts but won't be able to comment..Hope you are doing well.. SharonS > > Thanks Matt! > > > > Tell your 10 year old that I apologize for the potty mouth. I will take > that out immediately. Thank you also for the info on the weird tastes. > I've noticed that lately. Good to know it's the drugs! > > > > Keep fighting! > > > > > > From: [mailto: ] On Behalf Of > mtmaynor@... > Sent: Saturday, October 31, 2009 11:57 AM > > Subject: Re: [ ] Thank you everyone! > > > > > > : > > Very nice blog like that you were informative and enlightening to people > > who > may not know much about CML or have not been touched by > it....but my 10 year old wondered why you put in > some questionable words, like sh*t. > > A couple of words of advice for your first few weeks of Gleevec. Please > try > and remember to wash your hands like a surgeon. wash the fronts, then > the backs, then between the fingers and finally the fingertips and > nails. > It > will help you avoid whatever is going around. > > If you have muscle cramps and bone pain, I have found that heat helps me > the most. I am not a big fan of hot tubs (especially public ones that > have > multiple germs) but heating pads and the warming pads you put in the > microwave work best for me. You may also find an unpleasant taste in > your > mouth and simple brushing or mouth refreshing gum would clear that up > for > me. I also found that I was more prone to smells and I put a simple > diffuser > I got at a home goods shop in my office to help. > > Always try and get plenty of rest and don't be scared to exercise as > that > will actually bring you some good benefits. > > Good luck and God Speed! > > With warm regards, > > Matt Florida > > This message (including any attachments) contains confidential > information > intended for a specific individual and purpose, and is protected by law. > > If you are not the intended recipient, you should delete this message, > and > please advise me of your receipt. Any disclosure, copying, or > distribution > of this message, or the taking of any action based on it, is strictly > prohibited. > > In a message dated 10/31/2009 11:52:37 A.M. Eastern Daylight Time, > ryan.romero@... <mailto:ryan.romero%40callfusion.com> > writes: > > www.shootforthecurewww.shootfwww.s > > Quote Link to comment Share on other sites More sharing options...
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