Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 Hi, I have been on Ariad since April 13, of this year, here are today's labs: wbc - 7.0; rbc 4.07; hgb - 1`1.8; plt - 152, neuts 5.0 So far so good with NO side effects, I remain on 15 mg once a day. I am pcr 0.017, and have never felt better. However, this is exactly how it went with Sprycel, with the exception of the great pcr, for 1 1/2 years, so I am praying nothing bad like PE will hit me. Hope all is well with everyone , a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 Interferon/9 weeks/hydroxyurea/5 years 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR 04/29/08 - XL228 trial/U of Michigan 01/09/ - PCR 5.69 02/13/09 - XL228 trial ended due to side effects o4/13/09 - Ariad Trial U of Michigan 09/09/09 - PCR 0.017 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 Hi Bobby, so glad to hear the good news you are almost there Esther > > Hi, I have been on Ariad since April 13, of this year, here are today's labs: > wbc - 7.0; rbc 4.07; hgb - 1`1.8; plt - 152, neuts 5.0 > So far so good with NO side effects, I remain on 15 mg once a day. I am pcr 0.017, and have never felt better. However, this is exactly how it went with Sprycel, with the exception of the great pcr, for 1 1/2 years, so I am praying nothing bad like PE will hit me. Hope all is well with everyone , > > a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 > Interferon/9 weeks/hydroxyurea/5 years > 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR 04/29/08 - XL228 trial/U of Michigan > 01/09/ - PCR 5.69 > 02/13/09 - XL228 trial ended due to side effects > o4/13/09 - Ariad Trial U of Michigan > 09/09/09 - PCR 0.017 > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2010 Report Share Posted May 2, 2010 I don't receive Aranesp because they want $1,700.00 a shot for it, I am anemic, and the iron seems to help. but it is always something, and always will be with us. I am keeping good thought that a bmt will not be the way to go for you, Bobby a ( Bobby ) Doyle, dob 12/17/29 DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.01 11/2009 PCR 0.034 02/2010 PCRU #840 Zavie's Zero Club From: jackie schneider <jschneider008> Subject: [ ] labs groups (DOT) com Date: Friday, April 30, 2010, 9:11 PM Just to let you know what's going on. I had labs today here at home and my hemoglobin has fallen to 7.1. I will be receiving a transfusion tomorrow morning. It will make me feel soooo much better. Have a great weekend. Jackie S. Quote Link to comment Share on other sites More sharing options...
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