Same side effects

[Guest guest]

Dear ,

I was so hoping that you had found your niche with Sprycel. I am on a

sub-optimal dose of SKI 606 and I am plugging along like an old mule pulling a

cart of firewood

and I am not doing too badly. I found a pill on the counter that must have

slipped through my fingers and while I had already taken my dose of 3 for the

day, I popped that one, too. Within hours, my shin bones were screaming. If I

am doing well enough on 300 mg., I don't know if I want to increase it and have

the least desirable side effects. When I started Sprycel, the dose was 140 mg.

a day. I could barely move from room to room and ended up in ER at MDACC with

chills and fever. After a month, my BMA showed that it was working, but I could

not function. If I could have slept my way through the ordeal, it may have

worked for me, but I don't sleep when I am ill or have a fever. When I began to

have pleural and pericadial effusions as well, I was on 20 mg. a day and the

trial was over for me. In a matter of moments I was switched from BMS to SKI.

I hope things work out better in time, there are many who do if they stick it

out, but I have never heard of anyone needing as much sleep as you do, it seems

to be an extreme case. Let's keep hoping that " this too shall pass " .

Hands & hearts,

Lottie Duthu

[Guest guest]

WOW. That's wild, Lottie -- scary too. Yes, indeed, here's hoping this will

pass. Thanks a million for your support.

From: lotajam@...

Date: Wed, 21 Oct 2009 00:15:27 -0500

Subject: [ ] Same side effects

Dear ,

I was so hoping that you had found your niche with Sprycel. I am on a

sub-optimal dose of SKI 606 and I am plugging along like an old mule pulling a

cart of firewood

and I am not doing too badly. I found a pill on the counter that must have

slipped through my fingers and while I had already taken my dose of 3 for the

day, I popped that one, too. Within hours, my shin bones were screaming. If I

am doing well enough on 300 mg., I don't know if I want to increase it and have

the least desirable side effects. When I started Sprycel, the dose was 140 mg.

a day. I could barely move from room to room and ended up in ER at MDACC with

chills and fever. After a month, my BMA showed that it was working, but I could

not function. If I could have slept my way through the ordeal, it may have

worked for me, but I don't sleep when I am ill or have a fever. When I began to

have pleural and pericadial effusions as well, I was on 20 mg. a day and the

trial was over for me. In a matter of moments I was switched from BMS to SKI.

I hope things work out better in time, there are many who do if they stick it

out, but I have never heard of anyone needing as much sleep as you do, it seems

to be an extreme case. Let's keep hoping that " this too shall pass " .

Hands & hearts,

Lottie Duthu