Guest guest Posted December 13, 2002 Report Share Posted December 13, 2002 I would ask at the next blood draw for the subclasses to be run. But the antibody titers to the pneumococcal bacterias are more important to me personally. You can have low IgG or subclasses and be healthy but if you don't mount antibodies to pneumococcal bacteria serotypes then your set up to catch alot more infections. Ursula Holleman Macey's mom (7 yr. old with CVID, asthma, sinus disease, GERD, Diabetes Insipidus, colonic inertia) http://members.cox.net/maceyh Immune Deficiency Foundation - Peer Contact for GA http://www.primaryimmune.org / Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2002 Report Share Posted December 14, 2002 I'm not sure I understood all of your message. If I remember right, is 2. And this IgG level was taken after IVIG. It is probably artificially high because of the treatment. So, I wouldn't trust the 815 number to be an accurate reflecting of his true IgG levels. I think that my immuno would disagree and say that the subclasses DO need to be checked. I know that my ped does not think that a low IgG subclass alone means that a patient needs IVIG, but I think the immuno would say that if a low subclass is combined with a history of infection, then the patient is experiencing a immune deficiency. Is your immuno primarily an immunologist or is he/she an allergist mostly? It might be time to get a second opinion from a different immunologist just to make sure that all the right tests are run at the right time so that you have the best information possible before you make decisions about IVIG treatments and vaccinations! Hang in there during these scary days and listen to you gut! Remember, you know better than anyone. I had to finally say to our ped that since we had excellent insurance, I wanted the other kids tested and be firm about the request. I added the appeal that I wanted to rule out any other problems rather than worry that one of the other kids was borderline PID. He understood that! Pam wife to (15 years) mother to , 9, Hannah, 6, Rebekah, 3, and Leah, 1 Rebekah, 3, CVID IG subclass question I have a question! Jonathon's test results came back and the Ig G was 815 which I think is Ok Right! But when I asked about the IgG subclasses the Immo said it didn't matter what the subclasses were? He said that because his IGA was low that it would not matter is that the case or not? Dr. Beasley said his subclasses were low. providing almost no protection from ear infections almost all of the pnemonia bugs? Should I be concered that the immo will not test the subclasses? Any Help would be appreciated _________________________________________________________________ MSN 8 helps eliminate e-mail viruses. Get 2 months FREE*. http://join.msn.com/?page=features/virus This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. To unsubscribe -unsubscribegroups (DOT) To search group archives go to: /messages Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2002 Report Share Posted December 14, 2002 Jonathon is 13 mths old and keep an ear infection, cold that turned into bronchotis and broncolitis. He has had pnemonia twice and was hospitalized for it when he was about 2 mths at that time he also had a staff infection I think of teh lungs. He has had a bad reaction to his baby shots each set of them. His Ped at the time diagnosised him as hypogammaglobbinemia (sp). But he also said that after 2 or 3 infusions he wouldn't be so sick. Boy was he WRONG. After the 3rd infusion he had Pnemonia and before he was off the antibodic for that he had tonsolitous so bad one of them had pus on it. After that I decided to take him to an immo but he is at an allergy clinic. Dr. Blaiss--the immo-- said that after 4 weeks of being off the IVIG that the test results would come back accurate. After reading more about it I realise HE was Wrong and when I called to ask about the subclasses He said It wouldn't make a difference one way or teh other. I think It is time to find another immo. On the other Hand Jonathon has been fairly well for the about a mth. And for him that is extremly well. However I keep waiting for teh other shoe to fall. Hope this clarifies things a bit Viriginia >From: " Pam Mork " <pmork@...> >Reply- >< > >Subject: RE: IG subclass question >Date: Sat, 14 Dec 2002 17:26:24 -0600 > >I'm not sure I understood all of your message. If I remember right, > is 2. And this IgG level was taken after IVIG. It is probably >artificially high because of the treatment. So, I wouldn't trust the 815 >number to be an accurate reflecting of his true IgG levels. > >I think that my immuno would disagree and say that the subclasses DO need >to >be checked. I know that my ped does not think that a low IgG subclass >alone >means that a patient needs IVIG, but I think the immuno would say that if a >low subclass is combined with a history of infection, then the patient is >experiencing a immune deficiency. > >Is your immuno primarily an immunologist or is he/she an allergist mostly? >It might be time to get a second opinion from a different immunologist just >to make sure that all the right tests are run at the right time so that you >have the best information possible before you make decisions about IVIG >treatments and vaccinations! > >Hang in there during these scary days and listen to you gut! Remember, you >know better than anyone. I had to finally say to our ped that >since we had excellent insurance, I wanted the other kids tested and be >firm >about the request. I added the appeal that I wanted to rule out any other >problems rather than worry that one of the other kids was borderline PID. >He understood that! > >Pam >wife to (15 years) >mother to , 9, Hannah, 6, Rebekah, 3, and Leah, 1 >Rebekah, 3, CVID > > > IG subclass question > > > > >I have a question! Jonathon's test results came back and the Ig G was 815 >which I think is Ok Right! But when I asked about the IgG subclasses the >Immo said it didn't matter what the subclasses were? He said that because >his IGA was low that it would not matter is that the case or not? Dr. >Beasley said his subclasses were low. providing almost no protection from >ear infections almost all of the pnemonia bugs? Should I be concered that >the immo will not test the subclasses? >Any Help would be appreciated > > > > > > >_________________________________________________________________ >MSN 8 helps eliminate e-mail viruses. Get 2 months FREE*. >http://join.msn.com/?page=features/virus > > >This forum is open to parents and caregivers of children diagnosed with a >Primary Immune Deficiency. Opinions or medical advice stated here are the >sole responsibility of the poster and should not be taken as professional >advice. > >To unsubscribe -unsubscribegroups (DOT) >To search group archives go to: >/messages > > Quote Link to comment Share on other sites More sharing options...
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