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sorry it has been some time since i have posted. patrick has been to see a new

doctor, her name is dr. ellis, and she is at wake forest baptist hospital

comprenshive cancer center. he had a bma/bmb plus assorted and various

bloodlettings. it was so difficult getting his marrow that they actually bent

the trocanter into a ''c'' ,tough bones has my kid.

_________________________________

Dear Peggy,

Sorry this is happening to your son. My husband and me both had MRSA at the

same time. He was isolated and in quarantine in the hospital for 29 days. We

had the same precautions for him. He nearly went crazy in that room, the only

thing that held him down was he was too weak to get out. This is a crazy

disease and a crazy world. The doctor would tell him to get out and walk in the

hallway and as soon as he opened his door there was nurse to push him back in.

Jim's was in his lung, along with pneumonia and an abcess. I was at MDACC

in Houston. I had MRSA in my sinuses of all places. As soon as the oncology

nurse found out I had MRSA, she left the office in a huff and came back with the

doctor. They were suited up and suited me up and told me not to go anywhere,

but to leave by the side door so I wouldn't encounter anyone, that I could

infect the entire waiting room. It was too late, I had been all over that

clinic. Strange, but my local doctor never told me I was contagious, so I flew

to Houston. One of my old doctors ignored the warning and came over and hugged

me as he always did. This was a nightmare, but I never had time to stop and

think about the consequences. I was concentrating on keeping my husband alive.

His own doctor ignored the symptoms and never found anything wrong with him. I

brought him to the office and had a bru ha ha in the office and demanded to see

the doctor. He sheepisly came out and couldn't find anything wrong with him. I

brought him to a pulmonogist and said if he wasn't hospitalized, I would leave

him on the front steps of the hospital. I didn't have to, the doctor's eyes

nearly dropped out of his head and said my Jim was losing his vital signs and

had to be hospitalized immediately. I immediately had him admitted while they

brought him up to a room to start treatment. Remember they didn't know at that

time about the MRSA. It was only after the culture was grown in the lab. Then

the s***hit the fan and the entire hospital was on pins and needles.

I was never hospitalized for MRSA, I was treated at home while my husband

was in the hospital, with 3 antibiotics and had to inhale vapors for another

one and buy a compressor to do that. If it had to be my time to go, that was

it, but I survived it and c-difficile over the last Christmas holidays in the

hospital in isolation for that one. Most MRSA's begin with a skin infection

like a boil and if anyone has CML or a compromised immune system, that is the

time to work ASAP. I had one on my hand when they removed the needle from my

hand and sent me home. It wasn't over, I went to a dermatologist who had to

treat me for both the MRSA on my hand and a yeast infection on top of the MRSAm

same place. I am now a germaphobe, washing my hands constantly, staying away

from people and staying inside most of the time. It takes due diligence, but

you can overcome it. I have no doubt that hundreds of people will be praying

for you son, including me, as I know first hand what you must be going through.

Just hold on to your faith, Peggy and continue to tell your son he will be fine,

he can't lose hope. When adversity strikes, we fight back and I think you have

the spirit to do that, any mother who loves her child would move heaven and

earth.

Some people do have tough bones, but also their marrow become cellular, so

it becomes difficult to get a good slide. Some CML drugs contribute to the

cellular marrow, as I have experienced that, too. I am telling you this, Peggy,

so you will know that things can and will get better. If an old lady like me

can survive, a young man like your son can, too. Hang in there, too, Peggy, we

are here for you and your son. Just keep us informed.

Hearts & hands.

Lottie Duthu

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