Guest guest Posted October 9, 2009 Report Share Posted October 9, 2009 sorry it has been some time since i have posted. patrick has been to see a new doctor, her name is dr. ellis, and she is at wake forest baptist hospital comprenshive cancer center. he had a bma/bmb plus assorted and various bloodlettings. it was so difficult getting his marrow that they actually bent the trocanter into a ''c'' ,tough bones has my kid. _________________________________ Dear Peggy, Sorry this is happening to your son. My husband and me both had MRSA at the same time. He was isolated and in quarantine in the hospital for 29 days. We had the same precautions for him. He nearly went crazy in that room, the only thing that held him down was he was too weak to get out. This is a crazy disease and a crazy world. The doctor would tell him to get out and walk in the hallway and as soon as he opened his door there was nurse to push him back in. Jim's was in his lung, along with pneumonia and an abcess. I was at MDACC in Houston. I had MRSA in my sinuses of all places. As soon as the oncology nurse found out I had MRSA, she left the office in a huff and came back with the doctor. They were suited up and suited me up and told me not to go anywhere, but to leave by the side door so I wouldn't encounter anyone, that I could infect the entire waiting room. It was too late, I had been all over that clinic. Strange, but my local doctor never told me I was contagious, so I flew to Houston. One of my old doctors ignored the warning and came over and hugged me as he always did. This was a nightmare, but I never had time to stop and think about the consequences. I was concentrating on keeping my husband alive. His own doctor ignored the symptoms and never found anything wrong with him. I brought him to the office and had a bru ha ha in the office and demanded to see the doctor. He sheepisly came out and couldn't find anything wrong with him. I brought him to a pulmonogist and said if he wasn't hospitalized, I would leave him on the front steps of the hospital. I didn't have to, the doctor's eyes nearly dropped out of his head and said my Jim was losing his vital signs and had to be hospitalized immediately. I immediately had him admitted while they brought him up to a room to start treatment. Remember they didn't know at that time about the MRSA. It was only after the culture was grown in the lab. Then the s***hit the fan and the entire hospital was on pins and needles. I was never hospitalized for MRSA, I was treated at home while my husband was in the hospital, with 3 antibiotics and had to inhale vapors for another one and buy a compressor to do that. If it had to be my time to go, that was it, but I survived it and c-difficile over the last Christmas holidays in the hospital in isolation for that one. Most MRSA's begin with a skin infection like a boil and if anyone has CML or a compromised immune system, that is the time to work ASAP. I had one on my hand when they removed the needle from my hand and sent me home. It wasn't over, I went to a dermatologist who had to treat me for both the MRSA on my hand and a yeast infection on top of the MRSAm same place. I am now a germaphobe, washing my hands constantly, staying away from people and staying inside most of the time. It takes due diligence, but you can overcome it. I have no doubt that hundreds of people will be praying for you son, including me, as I know first hand what you must be going through. Just hold on to your faith, Peggy and continue to tell your son he will be fine, he can't lose hope. When adversity strikes, we fight back and I think you have the spirit to do that, any mother who loves her child would move heaven and earth. Some people do have tough bones, but also their marrow become cellular, so it becomes difficult to get a good slide. Some CML drugs contribute to the cellular marrow, as I have experienced that, too. I am telling you this, Peggy, so you will know that things can and will get better. If an old lady like me can survive, a young man like your son can, too. Hang in there, too, Peggy, we are here for you and your son. Just keep us informed. Hearts & hands. Lottie Duthu Quote Link to comment Share on other sites More sharing options...
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