Guest guest Posted November 6, 2009 Report Share Posted November 6, 2009 Hi everyone. Haven't posted for a while, but I have a question. My last genetic blood test showed some of those nasty cellsreturning and a slight increase in my platelet count. I have been on 400mgs of Gleevec for 3 1/2 years since I was dx. In a month I was in Zavie's 0 club. Took a more indepth blood test 3 wks ago which he said would take about 2 wks to get the results. My 55th anniversary was Oct 24th. We went away on a cruise to celebrate so I told the doctor I would call him on our return. I called him on Tuesday Nov 3 and he told me to come in for a discussion of what was to be done. Told my husband at this pt. He doubled the Gleevec to 800mgs. since the platelet count zoomed up and my Coumadin numbers went south. I have to go back in 2 wks for another test to see if the 800 brings down the platelet count. My question is- Has anyone taken the 800 and seen an increase in side effects. My doctor said I may see an increase in fluid retention and since I get bone pain it may increase. If the increase does not bring the results he wants then we will move on to another drug. Thank heaven there other drugs. Am looking forward to your response. You all are such a wealth of information and comfort. Will try to get back in the 0 club soon. Sorry about the longwinded message but I am concerned. Ceil(76) NYC dx 6/06-400 mgs-started 800 today Quote Link to comment Share on other sites More sharing options...
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