Guest guest Posted November 5, 2009 Report Share Posted November 5, 2009 Dear Beverly, I remember those days when the news broke on STI 571, we all scrambled to get into that trial. All we heard was " no side effects " and that caught everyone's notice. For a long time we didn't hear anything about side effects, true, we were all glad that the first wave of CMLers to try it were all flourishing and raving about their remissions, while the rest of us struggled on INF. I can't say I regret having to go on INF, it kept me going until I could get Gleevec and I know a lot of people who survived INF feel the same way. It may also have paved the way for my longevity, even though I have never been to CCR. You brought back many memories and the spirit of gratitude. We all have different perspectives and side effects, but the one common thread is we all have CML or are a caregiver. As I ponder on the last 14 years, I know that I have been lucky. I can loose sight of the fact that I am not where I want to be, but I am not where I was. Knowledge and the support of a great bunch of soldiers in the CML army brought me to this place of acceptance and hope. Thanks a bunch. Hands & hearts, Lottie Duthu Quote Link to comment Share on other sites More sharing options...
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