Guest guest Posted September 5, 2009 Report Share Posted September 5, 2009 http://www.cancer.org/docroot/CRI/content/CRI_2_4_1x_What_Is_Castleman_Disease.a\ sp here is some of the article What Is Castleman Disease? Castleman disease (CD) is a disease of lymph nodes and related tissues. It was first described by Dr. Castleman in Boston in 1956. It was previously called Castleman's disease. CD is also known as giant lymph node hyperplasia and angiofollicular lymph node hyperplasia. Although CD is not officially a cancer, the multicentric form of this disease acts very much like lymphoma (cancer of lymph nodes). In fact, many people with this disease eventually develop lymphomas. This is why it is included in the American Cancer Society's cancer information database. (For information about lymphoma, see the American Cancer Society documents, Hodgkin Disease and Non-Hodgkin Lymphoma.) Instead of being called a cancer, CD is often called a lymphoproliferative disorder -- meaning there is an abnormal overgrowth of lymph nodes -- similar in many ways to lymphomas. Like lymphoma, CD is frequently treated with chemotherapy or radiation therapy. ________________________________ From: ROBERTA DOYLE <rcd1929@...> < > Sent: Saturday, September 5, 2009 2:05:51 PM Subject: [ ] castlemen's disease Hi everyone , do any of you know anything about Castlemen's disease? Any support groups? A friend of mine has been dx with it, is also in remission with prostate cancer and another one, not sure of that one. Thanks, Bobby a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR 04/29/08 - XL228 Trial/ U.of Michigan 06/02/08 - CCR ( in 4 weeks) 02/13/09 - XL trial ended due to side effects 04/13/09 - New Trial, Ariad / U. of Mich./ Dr. Talpaz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2009 Report Share Posted September 5, 2009 Thanks Anita, very informative. I wonder if there are support groups for CD, like we have. Not sure my friend would go to one, but it would be worth a try. Bobby a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR 04/29/08 - XL228 Trial/ U.of Michigan 06/02/08 - CCR ( in 4 weeks) 02/13/09 - XL trial ended due to side effects 04/13/09 - New Trial, Ariad / U. of Mich./ Dr. Talpaz From: anita <awristen1@...> Subject: Re: [ ] castlemen's disease Date: Saturday, September 5, 2009, 3:15 PM http://www.cancer. org/docroot/ CRI/content/ CRI_2_4_1x_ What_Is_Castlema n_Disease. asp here is some of the article What Is Castleman Disease? Castleman disease (CD) is a disease of lymph nodes and related tissues. It was first described by Dr. Castleman in Boston in 1956. It was previously called Castleman's disease. CD is also known as giant lymph node hyperplasia and angiofollicular lymph node hyperplasia. Although CD is not officially a cancer, the multicentric form of this disease acts very much like lymphoma (cancer of lymph nodes). In fact, many people with this disease eventually develop lymphomas. This is why it is included in the American Cancer Society's cancer information database. (For information about lymphoma, see the American Cancer Society documents, Hodgkin Disease and Non-Hodgkin Lymphoma.) Instead of being called a cancer, CD is often called a lymphoproliferative disorder -- meaning there is an abnormal overgrowth of lymph nodes -- similar in many ways to lymphomas. Like lymphoma, CD is frequently treated with chemotherapy or radiation therapy. ____________ _________ _________ __ From: ROBERTA DOYLE <rcd1929sbcglobal (DOT) net> <groups (DOT) com> Sent: Saturday, September 5, 2009 2:05:51 PM Subject: [ ] castlemen's disease Hi everyone , do any of you know anything about Castlemen's disease? Any support groups? A friend of mine has been dx with it, is also in remission with prostate cancer and another one, not sure of that one. Thanks, Bobby a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR 04/29/08 - XL228 Trial/ U.of Michigan 06/02/08 - CCR ( in 4 weeks) 02/13/09 - XL trial ended due to side effects 04/13/09 - New Trial, Ariad / U. of Mich./ Dr. Talpaz Quote Link to comment Share on other sites More sharing options...
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