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Re: New Trial -Tammy

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Tammy,

Wishing you well as you make your decision of whether or not to go on the peg

interferon & Gleevec trial. We're behind you 100% whichever you choose, of

course!

JoAnn

>

> ,

> Me too. :)

> I am planning on doing the trial with pegulated interferon and Gleevec. The

> goal is to become undetectable and then get off all meds. But, my hubby is

> pushing it! :) He'd really like to see me go off all the meds and be

> " healthy " again. All before I am 40. The two older kids would just be

> graduating high school... and the younger one in 6th grade. I am nervous. I

> REALLY don't want to feel worse... but the thought of getting off all drugs

> is worth it in my opinion.

> Perhaps, I'll see you at U of M someday!!

>

> Tammy

>

> _____

>

> From: Orenstein [mailto:scrappygirl123@...]

> Sent: Friday, September 04, 2009 4:31 PM

>

> Subject: [ ] New Trial

>

>

>

>

> I just got a call from Dr. Talpaz's office about the new trial to go

> off gleevec. You had to have been an Interferon user, and have done

> well, along with being on Gleevec and being undetectable for a certain

> length of time. so far, I seem to qualify. I need everyone's

> opinion. This is a big step. My husband feels that if it isn't

> broken, dont fix it. this is a big step. It makes me nervous, but I

> really do want to be able to get off all drugs. I have not contacted

> Dr. Mauro as yet about this. He knows of my desire, but isn't all

> that pleased with it.

>

> Thanks everyone.

>

>

>

> INF 2/2000 - 6/2001

> Gleevec 400 mg for 6 months

> Gleevec with INF for 1 1/2 years

> Gleevec 600 mg 11/2003 to present

> Undetectable for at least 4 years.

>

>

>

>

>

>

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