(No subject)

[Guest guest]

HELLO TO ALL,

   JUST WANTED TO UPDATE EVERYONE ON PATRICK, HE WAS RELEASED FROM THE HOSPITAL

ON MONDAY AND HE HAS TO WEAR A MASK WHEN HE GOES OUT IN PUBLIC OR TO HIS DAY

PROGRAM BECAUSE HE IS STILL IMMUNIO-SUPRESSED DUE TO THE CML AND MRSA. HERE IS

ANOTHER CREEPY STORY, PAT AND I BOTH ARE ON FULL DISABILITY AND OUR MEDICARE

PART D INSURANCE IS WITH CIGNA, NOW THEY HAVE NOT GIVEN HIM ANY TROUBLE WITH

GETTING HIS GLEEVEC . GETTING HIS ANTIBIOTIC IS ANOTHER STORY ALTOGETHER.  THEY

FINALLY HAVE APPROVED HIS OVERIDE THIS AFTERNOON, SO HE HAS NOT HAD ANY IN HIS

SYSTEM SINCE HE LEFT THE HOSPITAL MONDAY AFTERNOON! HE IS SO TIRES THAT HE COMES

HOME AND JUST GOES TO HIS ROOM AND GOES TO SLEEP FOR ABOUT TWO HOURS AND GETS UP

FOR SUPPER . HE IS READY FOR BED BY NINE. THIS IS HARD ON HIM ,HE FEELS LIKE HE

IS NOT HELPING ME. I AM JUST GLAD HE IS HERE. WE GO BACK TO WINSTON ON WEDNESDAY

FOR HIS RESULTS. HOPE TO HAVE GOOD NEWS.LOVE TO ALL, ESPECIALLY TO THOSE WHO

HAVE ACHEIVED

THE WONDEROUS MIRACLE OF PCRU FOR YEARS, WE WHO AS PARENTS AND OTHER

''NEWBIES'' LIVE FOR YOUR MAIL AS YOU AND ALL THE WONDERFUL PEOPLE ON HERE ARE

KEEPING US GOING ON THOSE SCARY DAYS AND NIGHTS WHEN WE DON'T THINK ANYONE

UNDERSTANDS HOW ALONE WE FEEL.

 

                                                    PEGGY,MOM OF PATRICK

                                                    DX/AUG 17/2009