RE: hi-been a while

[Guest guest]

Hi ,

Thanks for the update. Let this be a message to all the newbies that you can

also achieve this level of remission.

is # 334 in the Zero Club.

Zavie

Zavie (age 71)

67 Shoreham Avenue

Ottawa, Canada, K2G 3X3

dxd AUG/99

INF OCT/99 to FEB/00, CHF

No meds FEB/00 to JAN/01

Gleevec since MAR/27/01 (400 mg)

CCR SEP/01. #102 in Zero Club

2.8 log reduction Sep/05

3.0 log reduction Jan/06

2.9 log reduction Feb/07

3.6 log reduction Apr/08

3.6 log reduction Sep/08

3.7 log reduction Jan/09

3.8 log reduction May/09

3.8 log reduction Aug/09

e-mail: zmiller@...

Tel: 613-726-1117

Fax: 613-482-4801

Cell: 613-282-0204

ID: zaviem

_____

From: [mailto: ] On Behalf Of G

Sent: October 14, 2009 5:33 AM

Subject: [ ] hi-been a while

hi all,

just checking in with my family. this is gina demase. cml 9 years. 7 yrs

pcru on gleevec. just went for

cbc,mamo,pap,cholesterol,thyroid,ca125,hormone check,all is good and in

normal range. my whites are 4.4, normally they are low in the 2's or 3's,

its nice not to be so low. i also went to my dermatologist for my yearly. i

do this every oct and get it all done in one month so the rest of the year i

can just chill and not see doctors for a while. i havent posted or went on

any cml sites for a while, i guess for 3 yrs straight every day, its nice to

get a normal life back from the panic we all have. its amazing i thought i

didnt have much time left, a long time ago, and still here i am, and doing

good. i am very thankful and think of you all often as you will always be a

part of me. so many of you were there for me, and helped me more than you

can ever know. lottie, you r still my sunshine. love you, gina xoxoxoxox

[Guest guest]

Hi , great hearing from you, and so glad you are still pcru all these

years.  You go girl!!!  Bobby

a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995

Interferon/9 weeks/hydroxyurea/5 years

02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 -

Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months

#840  -   Zavie's Zero Club 09/2006 -  out of CCR 04/29/08 - XL228 trial/U of

Michigan

01/09/ - PCR 5.69

02/13/09 - XL228 trial ended due to side effects

o4/13/09 - Ariad Trial U of Michigan

09/09/09 - PCR 0.017

04/13/09 - Ariad trial at U. of Michigan

09/09/09 - PCR 0.017

04/13/09 - Ariad trial, U. of Michigan

09/08/09 - PCR 0.017

From: G <ginademase@...>

Subject: [ ] hi-been a while

Date: Wednesday, October 14, 2009, 5:32 AM

 

hi all,

just checking in with my family. this is gina demase. cml 9 years. 7 yrs pcru on

gleevec. just went for cbc,mamo,pap, cholesterol, thyroid,ca125, hormone

check,all is good and in normal range. my whites are 4.4, normally they are low

in the 2's or 3's, its nice not to be so low. i also went to my dermatologist

for my yearly. i do this every oct and get it all done in one month so the rest

of the year i can just chill and not see doctors for a while. i havent posted or

went on any cml sites for a while, i guess for 3 yrs straight every day, its

nice to get a normal life back from the panic we all have. its amazing i thought

i didnt have much time left, a long time ago, and still here i am, and doing

good. i am very thankful and think of you all often as you will always be a part

of me. so many of you were there for me, and helped me more than you can ever

know. lottie, you r still my sunshine. love you, gina xoxoxoxox

[Guest guest]

>

> hi all,

> just checking in with my family. this is gina demase. cml 9 years. 7 yrs pcru

on gleevec.

____________________

Hi ,

Nice to see your check-in.......I am now 11 years post dx and remember the early

days on the cml lists. Glad you are doing so well.

C.