Guest guest Posted October 31, 1999 Report Share Posted October 31, 1999 My son did this at age 2: he would cry when urinating--the urologist said it was possibly a yeast infection and recommended anti fungal cream to be applied topically---we did this, and it helped. We then put our son on first nystatin, then nizoral, limited his sugar intake, and he never had this problem again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 1999 Report Share Posted October 31, 1999 If you're following Dr. G's recommendations, you can't go to regular pop because it is so loaded with sugar; Dr. G suspects yeast overgrowth in this child (hence the antifungal), and he would recommend low sugar intake. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 1999 Report Share Posted November 1, 1999 Tom, Maybe he is allergic to the anti-fungal or to something in the diet pop? Or he has a yeast infection? Lois (JJsmom) Tom DeWitt wrote: > From: Tom DeWitt <dewitts@...> > > My eight year old autistic son has started to complain of some kind of pain > after urination. He grabs himself and cries. Since he is basically > non-verbal, he can't tell us what the problem is. We have had the urine > tested, and everything comes up fine. The only thing we are doing different > (per Dr. G) is an anti-fungal and we switched him from regular pop to diet. > The only thing that seems to offer any comfort is taking a bath. Any > idea's? Tom > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 1999 Report Share Posted November 1, 1999 Is it possible that he has a cold or flu? I remember when I was a boy, urinating was sometimes hard to start and very uncomfortable when I had a virus. (Maybe from some lymphoid tissue swelling somewhere -- Who knows.) How long has it been going on? Can anyone help? > From: Tom DeWitt <dewitts@...> > > My eight year old autistic son has started to complain of some kind of pain > after urination. He grabs himself and cries. Since he is basically > non-verbal, he can't tell us what the problem is. We have had the urine > tested, and everything comes up fine. The only thing we are doing different > (per Dr. G) is an anti-fungal and we switched him from regular pop to diet. > The only thing that seems to offer any comfort is taking a bath. Any > idea's? Tom > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 1999 Report Share Posted November 1, 1999 Your diet pop probably contains aspartame (nutrasweet) as an artificial sweetener. I know that I (who suffers from a gluten allergy) always had problems with aspartame. I avoid it now. You might try switching him back to regular pop and seeing if the problem goes away. Can anyone help? >From: Tom DeWitt <dewitts@...> > >My eight year old autistic son has started to complain of some kind of pain >after urination. He grabs himself and cries. Since he is basically >non-verbal, he can't tell us what the problem is. We have had the urine >tested, and everything comes up fine. The only thing we are doing different >(per Dr. G) is an anti-fungal and we switched him from regular pop to diet. >The only thing that seems to offer any comfort is taking a bath. Any >idea's? Tom > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 1999 Report Share Posted November 1, 1999 Tom, It could be that the pop is making his urine to acidic.It could also be the aspartame or whatever is in the diet pop.Not sure how old you child is or anything,but there is an otc med called azostandard that helps with burning on urination.Also ASO something can be bought otc. Re: Can anyone help? >From: lois noland <jlois@...> > >Tom, > Maybe he is allergic to the anti-fungal or to something in the diet pop? Or he >has a yeast infection? Lois (JJsmom) > >Tom DeWitt wrote: > >> From: Tom DeWitt <dewitts@...> >> >> My eight year old autistic son has started to complain of some kind of pain >> after urination. He grabs himself and cries. Since he is basically >> non-verbal, he can't tell us what the problem is. We have had the urine >> tested, and everything comes up fine. The only thing we are doing different >> (per Dr. G) is an anti-fungal and we switched him from regular pop to diet. >> The only thing that seems to offer any comfort is taking a bath. Any >> idea's? Tom >> >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 1999 Report Share Posted November 1, 1999 I would definately lean towards the diet soda. I myself and several family members have problems with the aspartame that is in it. Take him off then also try giving him either Northland or Ocean Spray 100% cranberry juice blends, my son loves cranberry/blackberry. The cranberry juice helps with the urinary system. If he can't have juice try cranberry supplements from the health food store. Hope this helps Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 1999 Report Share Posted November 1, 1999 Pain after urination can also mean a urinary tract infection. Although this is not as common in boys it certainly can happen. There are also other things that can go wrong with the urinary tract other than infection that could also cause the same symptom. If this were my child I would be seeking medical advice. All of the responses that you received were interesting and possibly one was the answer but if it is an infection you are risking damage not to mention on going discomfort. Children do not have to appear sick to have a urinary tract infection. Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 1999 Report Share Posted November 1, 1999 Tom, When we first put my son on an anti-fungal, he had a similar reaction. The tip of his penis was alos red. We applied nystatin topically and loaded him with as much water and other liquids that we could, to help flush out the toxins. We have done this a couple times with our son, and I have used charcoal pills when die-off symptons seem real bad. Although it hard to do so, when my son goes through these difficult periods due to yeast and other toxin die-off, I try to remember that it is a good sign. There's light at the end of the tunnel. I hope this helps. >>> " Rohrer " <tomandmary@...> 10/31/99 08:50PM >>> From: " Rohrer " <tomandmary@...> Tom, It could be that the pop is making his urine to acidic.It could also be the aspartame or whatever is in the diet pop.Not sure how old you child is or anything,but there is an otc med called azostandard that helps with burning on urination.Also ASO something can be bought otc. Re: Can anyone help? >From: lois noland <jlois@...> > >Tom, > Maybe he is allergic to the anti-fungal or to something in the diet pop? Or he >has a yeast infection? Lois (JJsmom) > >Tom DeWitt wrote: > >> From: Tom DeWitt <dewitts@...> >> >> My eight year old autistic son has started to complain of some kind of pain >> after urination. He grabs himself and cries. Since he is basically >> non-verbal, he can't tell us what the problem is. We have had the urine >> tested, and everything comes up fine. The only thing we are doing different >> (per Dr. G) is an anti-fungal and we switched him from regular pop to diet. >> The only thing that seems to offer any comfort is taking a bath. Any >> idea's? Tom >> >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 1999 Report Share Posted November 3, 1999 Just don't let it be a bath with Mr. Bubble or something like that. Those kinds of products can be very irritating to sensitive skin (particularly if the child is a boy). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 1999 Report Share Posted November 3, 1999 Has anybody mentioned giving him cranberry juice? MBC >>Tom DeWitt wrote: >> >>> From: Tom DeWitt <dewitts@...> >>> >>> My eight year old autistic son has started to complain of some kind of >pain >>> after urination. He grabs himself and cries. Since he is basically >>> non-verbal, he can't tell us what the problem is. We have had the urine >>> tested, and everything comes up fine. The only thing we are doing >different >>> (per Dr. G) is an anti-fungal and we switched him from regular pop to >diet. >>> The only thing that seems to offer any comfort is taking a bath. Any >>> idea's? Tom --- Free computers. Free Internet access. I don't pay -- why should you? Click on www.free-pc.com to get started today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2001 Report Share Posted February 21, 2001 "I am getting discouraged because he is suppose to be getting speech at school 3 times per week, 2 times in a group, and 1 time individual. He is getting the group speech, but not the individual. I have talked to the Director of Special Services about a week ago, and I receive no response." I would recommend getting a copy of the Special Education Administrative Code from the Special Services Department at your school, they have to give it to you if you request it. Read it, it's boring and confusing as ---- but gives you all the deadlines they have to stand by. Put any requests in writing, and if possible mail them certified, then they have to respond in,I believe, 20 days. Also if his IEP states that he is to receive 1 individual therapy session, you can fight for the school system to pay for sessions, privately, to include those he has 'missed' since the beginning of the school year. Good Luck, Lyn (Max's Mom, 5.4 with apraxia?) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2001 Report Share Posted February 26, 2001 Hi Dawn, Most people on the list that I read about are from the NY and NJ areas. They have the help they have because of the hard work of the mothers like Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2001 Report Share Posted February 27, 2001 I agree with Patty that it is important for each of us to find local support-while using whatever you need from what we have started here in the NJ/NY area of the USA as a base to go on. Keep in mind that technology brings us all closer, and I'll be more than happy to make calls, send emails or faxes or even snail mail for anyone starting a support source in their area. So will many of our members who are professionals or parents. Our goals are the same in that we all want to help the children. If we all stay together, we will have a much louder voice to help our children. We are happy that the hospitals offer to tape our meetings for us! For our partner support groups, I spoke to a film professional who will be editing the meetings and the Inside Edition (and other media film coverage) together so that one video will be useful for at least 2 meetings. We are doing this for cost reasons, and once we receive some of the money from the competitive grant we just won from Seton Hall University, (post # 513) we can use some of that to pay for the cost of tapes, copies and mailing to our partner support groups. Please know that you can search your questions at our archives by just putting in key words (so cool!) For example-my post on " how to start a support source " is number 467. So for MW looking for a support source in Nashville Tenn., or for Diane looking for a support source in NYC, or for anyone else, we are here for you to help you start one! JOHNSONCAMEO@... mwdiscovery2001@... Once the brochure to pediatricians is complete, that will be great to also show to the professionals in your area. All of our distinguished board members will be listed, and for surprise reasons, most of the identities of our CHERAB Foundation's board members will not be revealed until the brochure goes out. (OK, here is one...For those of you in Michigan, Kaufman http://www.kidspeech.com is one of the board members for the CHERAB Foundation. ssshhhhh!) Best, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2002 Report Share Posted February 16, 2002 Would love to find the same situation out here, Los Angeles, Calif. My 7yr. old daughter sounds like a carbon copy of your little one. I did a request like this a few years ago, but not on the net. Just local offices and colleges, no takers though. Never hurts to try again! :^) Subject: [ ] can anyone help? Subj: Speech Sessions for HFA child in Bergen County I am looking for a speech pathologist to work with my 4 year old high functioning autistic son. We really need someone who is specialized in the area of pragmatics. My son is very verbal, but is still not using his “ vocabulary” appropriately. He is doing well with adults, but has a lot of trouble with children. We are looking for someone who may be able to go to the nursery school that our child attends M-F 12:30-3:00 or who could come to our home to work with and other children. This has been a very difficult search as you might know. I was hoping you could point me in the right direction. Thanks! Cyndie O’Keefe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2002 Report Share Posted June 11, 2002 DO NOT GIVE UP. First things first, have you seen a dermatoligst, pyroderm gangrenosum is treatable, you might start their. your skin prob should have noting to do with your RA,are you keeping your wounds clean, I mean are you cleaning them 3 to 4 xs a day. I know a great derm in Dallas and I do think he can help you or maybe work with your doc s to help you. Living with RA is one of the hardest things a person can do, the last 2 weeks have be hell for me , all i can do is sleep,so I do. you might want to talk to you doc about all the meds you are on, sounds like a lot to me,also sounds like they may not be working for you. metho is hard on the body and could be making your skin probs worst. be strong sometimes we let our doctors have to much control, start reading everything you can find and ask questions about the mixing of your meds.I tell everyone I know to remmber it is your body not theres' and you have a right to question what they are doing. Get back with me if you want the # for the drem in Dallas. Keep your chin up .Pam asiegel1114@... wrote: rememberheresNBS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2002 Report Share Posted June 12, 2002 Dear Asiegel, I am so sorry that your health is in such terrible state. I haven't any answers for you, but I do have a good listening ear. I pray you will find the doctor that you need. My children, too, are my main support (especially my daughter). Please vent when you need to, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2002 Report Share Posted June 12, 2002 Dear Asiegel, I know the pain you are suffering. I suffer from RA also but I never sought medical attention until my bones were already deformed. I know little of the other afflictions you have but I believe you when you say that you feel that you've reached your end. I am currently having Remicade infusions every six weeks along with a weekly dose of Methotrexate. Yes, sometimes it feels like there is no use in living if you have to suffer so through each and every day. Keep your head up. I am so lucky to have an understanding and sympathetic wife to lean on. I oftentimes think she would be better off without me weighing her down. If your daughter wants to help carry your burden, then let her. It only proves to you that she loves you. I am sorry but I live in California and know nothing of any doctors in Florida. Have faith and may God bless you. sincerely, Benny ----- Original Message ----- From: asiegel1114@... Sent: Wednesday, June 12, 2002 4:14 AM Rheumatoid Arthritis Subject: Can Anyone Help? I wrote awhile back and since then my health has turned even worse.I was diagnosed with RA after being admitted to the hospital last year with congestive heart failure. What my doc thoght was *in my head* after the battery of tests confirmed RA. On top of that I am suffering with a very painful illness called Pyroderma gangrenosum which is the failure of the immune system leaving me with both lower part of my legs with huge wounds that have not healed in well over 2 years now and that includes 3 surgeries and skin grafts. It drains as a steady flow and pardon me for phrasing it this way, the odor is sickening. I life on oxycontin, percocet, demerol, methotrexate which I inject into my thigh once a week, soma, flexeril, predisone as well as Remacade once every 3 weeks.Between the RA and pyroderma and now a asthma I am so often feeling overwhelmed, desperate, and so tired of it all. I know each of you understand when I say to live with pain takes a toll on us mentally as well as physically. AM I the only one who feels they reached their end? I am so tired of pain and hurting and I do not see any hope to help me at all. I have gone as far as to change my primary in hope a new doctor might have an idea others have over looked.If anyone knows of a doctor in south florida who treats and understands the hell we live with, e-mail me with his/her name. I am desperate. My family is suffering due to me and I do not want to do that to them. So often I feel I am a burden on them, especially my daughter who is 19, she is my backbone and I know she shouldn't have to be. I am sorry for the rambling but tonight I am in more pain than normal and am reaching for straws..GOD bless each and everyone of you and may you all wake pain free and thank you for listening to me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 Hi R, Here is another, very excellent website that is actually available for purchase on DVD. It is a documentary about breast implants and their dangers. It is called " Absolutely Safe " , which should draw in everybody on both sides of the controversy. http://www.absolutelysafe.com/ Patty > > HI, > I have joined this group because I have a sister in law that was just > diagnosed with Lupus(main symptoms being extreme fatigue and swollen > joints). She had saline implants put in one to two years ago and had > no previous history of immune system problems before that. She > believes her doctor when he says they are safe and have not contributed > to her issues. I have not said anything to her about a possible > connection between her failing health and her implants and am not sure > the best way to do it. I am wondering if anyone out there may know of > a good website or book or anything that I could give to her. Any help > would be appreciated as it has been very sad to see her with this > condition. > Thanks, > R > Quote Link to comment Share on other sites More sharing options...
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