Home again

[Guest guest]

Hi ,

I wondered where you'd gone. Glad you are doing so well. I am so weak I can barely walk. I hope to get down to see Dr. A. shortly. I have lost more weight and am getting very concerned. Hope she can help me.

My sister came down from North Bay 4 hour drive and cleaned my house and helped me out a lot and my other sister and brother in law took us all out to the Casino for a change of scenery. I'd never been before and had a ball.

Don't know if I'd go again tho.

Still don't have a lot of energy and still having trouble with my voice and losing weight. Just doing odd bits around the house. So nice to have it tidy again.

Take care, .

Hugs,

Bev

[Guest guest]

Hi Audrey,

I am glad you are through your surgery. That is good new regarding having

no c-tom recurrence. Hopefully you will feel better soon. It is a nice

bonus to get some hearing back too.

Do they actually put crocodile meat on the pizza?

Sounds yummy... LOL

Lynn

PS: after my stictches came out I started using Emu Oil on my insision, and

it seems to have made it heal very nicely. I also had a burn on my ear from

my previous surgery and have been using the oil on that too. It seems to

really help.

Home again

> Hi all,

> Well I had my surgery (4th) on Thursday and got home Friday evening.

> I have been really exhausted and have the worst headache. It's now

> Sunday here and I still have it and continue to take painkillers and

> rest. Not much else to do! On a positive note the doctor discovered

> NO SIGN of C-toma and has repositioned the bone (Iforget which one)

> that had slipped and lodged itself into the wall of my ear canal,

> they had to cut it out!! I am not sure but I do think I can hear

> slightly better. I had almost zero hearing in my left ear before...so

> any improvement is a bonus. This is the last time they will try as if

> this fails it means the nerves are too badly damaged to do any more.

> The most important thing for me was no sign of C-toma. I have read

> the posts re shaving hair.... in my first op which was a radical

> matsoidectomy...they shaved about two inches around my ear. I was not

> aware they would do this but to be honest considering the op most

> likely saved my life I did not mind at all!! Being alive outweighs

> vanity I think!!! I won't get to see my specialist for three months

> now so I will be looking after myself. No nose blowing and no lifting

> they say. It's the first time they have bothered to tell me anything.

> I have learnt more from this site than anywhere. Thanks to you all

> for being here.

> Audrey

> p.s. My daughter is looking after me and last night we ordered pizza

> and noticed they have added crocodile pizza to the menu!! Only in

> Aussie land I guess!!

>

>

>

>

[Guest guest]

Hi

Good to hear that you are home. Hope each day finds you better and better.

in Houston-

-- In achalasia@y..., cmjfriary@a...

wrote:

> Hi there!

>

> I'm home again after my second dilatation and whilst I can drink slightly

> more easily than 48 hours ago I was encouraged to try something slightly

> thicker (porridge!!) and instantly had the same pain and coughing, etc. that

> I had had before going in this time. So whether or not its worked remains to

> be seen yet again!!

> Welcome to all the new members. It seems to be an ever expanding group

> nowadays. That's great because people are finding us but is it really such a

> " rare " disease after all?!

> Chris

> (Plymouth UK)

[Guest guest]

Hi -

Too bad about your poor results from the dilation. Could still be

swelling though - don't be discouraged. Hope you feel better soon!

Regarding the rare-ness of this disease I've been long wondering if

the incidence is higher than the doctor say. True, when you're aware

of something you tend to notice it more, but we are getting new

members pretty quickly and I see more and more studies and references

to it on the Internet.

My co-worker recently found out his father had been diagnosed with it

as well. My aunt says she has it as well.

I would really like to see some kind of new study on the incidence

rate.

> Hi there!

>

> I'm home again after my second dilatation and whilst I can drink

slightly

> more easily than 48 hours ago I was encouraged to try something

slightly

> thicker (porridge!!) and instantly had the same pain and coughing,

etc. that

> I had had before going in this time. So whether or not its worked

remains to

> be seen yet again!!

> Welcome to all the new members. It seems to be an ever expanding

group

> nowadays. That's great because people are finding us but is it

really such a

> " rare " disease after all?!

> Chris

> (Plymouth UK)

[Guest guest]

Geez, Bev! You're making me blush.

(Where do I send the check?)

Margaret

> Hi Everyone:

>

> I had surgery July 9 and got back to STL late

> last night. All of you probably know the feeling

> I am experiencing right now! I feel like I have

> a new lease on life...a second chance! My

> recovery has been fantastic and I want to shout

> from a mountain top that I FEEL GOOD...NO

> PAIN...NO NAUSEA!!!!!!!!

>

> I want to extend my wholehearted thanks to one

> very special person who has impacted my life the

> most over the last two months...Margaret Bell!

> For those of you who know Margaret, you are

> already aware of the time and energy she puts

> into helping others get ready for MGB surgery and

> the compassion and sincerity she affords everyone

> afterwards. I have never met a person quite like

> Margaret.

>

> She knows the heart of the obese person and will

> never let go of that touchstone. Her methodical

> approach to problem solving, knowing the rules,

> and following the rules are impeccable. If I

> didn't know better, I'd think Margaret had some

> monetary stake in the MGB biz...but I know it is

> because she is so passionate about this wonderful

> surgery, Dr. R. and the experience afterwards.

>

> Thanks, Margaret. You are terrific.

>

> Sincerely,

> Beverly Best

> July 9, 2002

>

> =====

> I am only one, but I am one.

> I cannot do everything, but I can do something.

> What I can do, I should do and

> With your help, I will do.

>

> __________________________________________________

>

[Guest guest]

Alia,

OMG! I am so glad you are ok and how scarey that must have been for you and

your family.You just rest and take it easy and give Miss C a hug from me.

Love and hugs

Becki and 6systemic

[Guest guest]

-OMG Alia..

I am so sorry to read what you have just gone though.. how totaly

scary for you and your family. I was just scanning the list (ive not

been keeping up) to see any posts concerning your surgery and was

about to ask when i found this post.

PLEASE take it easy and heal soon. I hope someone is around to help

with Miss C too....

thinking of you

Hugs Helen and (7,systemic)

p.s I cant take vicodin either, it does some pretty strange things

to me too..

-- In , " Alia Pranke " <Alia.Pranke@t...>

wrote:

> Hey everyone. I haven't had a chance to read any posts, but I will

> get to them soon! I had my surgery on Thursday and all did not go

> well for me. I had a severe reaction to the anesthesia and went

into

> seizures for two days. After I came out of that I sort of slipped

> into a catatonic state for another two days until the finally

figured

> out I am allergic to the vicadin they had been pumping through me!

> Ugh!! I finally came to on Sunday and they have let me come home.

> Now, I just have this bum knee that is super sore because I won't

> take any of the drugs they gave me. I am taking an anti-biotic and

> Vioxx (ironic on this board!), but no pain meds...

>

> Caroline is doing great too. We started her final (hopefully)

> prednison taper and she is so far handling it..

>

> Hope all is well. I will catch up soon!

>

> Alia and Caroline, age 2, poly and uveitis

[Guest guest]

Oh my goodness Alia. How scary for you and your family. Had you ever had

general anesthesia before?

When I got sick from the pain meds from my surgery in June, I switched to

Tylenol and Motrin. I figured it would take the edge off. I hate the feeling

off being nauseated!

Good luck with Caroline's reduction in Prednisone! I hope you are feeling

better ASAP! Is hubby able to take time off to help you at home?

Take care.

Patty

[Guest guest]

Thanks Stacia. The knee surgery went well. I am getting the stiches out this

week so hopefully it healed up nicely!

Alia

Re: Home Again

Oh Alia,

what a horrible experience and probably way more serious than you

are letting on. At least I hope the knee part of the surgery was

successful!!

Stacia

[Guest guest]

Hey Patty. I did have general with my gallbladder surgery. I actually had an

epidural with this surgery. They also did a block on my leg to numb it and

they gave me something to make me a little sleepy. I think it was whatever

they gave me to make me sleepy that did me it. I had an epidural with

Caroline and did just fine...

I am feeling really great now though... Yeah!

Alia and Caroline, age 2, poly and uveitis

Re: Home Again

Oh my goodness Alia. How scary for you and your family. Had you ever had

general anesthesia before?

When I got sick from the pain meds from my surgery in June, I switched to

Tylenol and Motrin. I figured it would take the edge off. I hate the

feeling

off being nauseated!

Good luck with Caroline's reduction in Prednisone! I hope you are feeling

better ASAP! Is hubby able to take time off to help you at home?

Take care.

Patty

[Guest guest]

keep me posted on your progress. was it difficult walking in the air port or did

you need help?

home again

Hi everyone I got back to NY today and I am really feeling well. Just

a horrible pain in my left shoulder (strange) Dr. Aceves is probably

one of the kindest Drs I have ever met in my life.Everything he said

was going to happen went exactly as he said. Nina ofcourse is so

sweet anything I needed or wanted she took care of right away. well I

am going to bed now talk to you all soon.

ps thanks for all your kind words

[Guest guest]

Hi Jackie,

I said I'd get back to your message and I never forget a promise.

I'm so glad you had fun in Vegas and I certainly can picture you going up to the

table with the women who were blind. You have a golden heart and it rings out

with every post from you. Your messages are always so caring and supportive. I

enjoy every one of them. I just wanted to come back and tell you that I

appreciate your warm and gracious spirit. Even though, you still work hard to

make your own CI hearing more acceptable, you never forget to give of yourself

to others here. There just aren't many like you, Jackie and I'm very glad I got

to know you thru the Hearing Exchange Chats and of course right here on CI Hear.

Thank you so much for being you. Please - never change. You are a light of joy

for all of us.

Alice

[Guest guest]

Jackie,

I gotta chime in with Alice. You really do make things look great no

matter what. And you have such a way of maiking one's day brighter. So

next time you come out west, try to stop in Portland, ok? I will arrange

for you to talk to lots of blind peeps with gorgeous guide dogs too. LOL

They will love it.

*---* *---* *---* *---* *---*

Dogs are not our whole life, but they make our lives whole.

-- Caras

& Gimlet (Guide Dawggie)

Portland, Oregon

N24C 3G 8/2000 Hookup

rlclark77@...

http://home.comcast.net/~rlclark77/

[Guest guest]

<<Thank you so much for being you. Please - never change. You are a light

of joy for all of us.>>

Jackie,

I echo Alice's thoughts. You have a wonderful sense of humor and a positive

attitude which make your posts a pleasure to read.

Surgery date: 12/22/04 (11 days and counting!)

Activation date: 1/18/05

[Guest guest]

Dear ,

I'm so sorry your turn of events have been so rough, and I feel through your words just how tough this has been on you. I felt like when I got home" What the hell have I done to myself", and I haven't been through half of what you have been through. My saddest moment was my six month check-up following my first revision, and Kumar was looking at my x-rays and measuring, and I knew something was awfully wrong, I had cracked my Harrington Rod fusion mass and would need another revision. Boy that sure was a shake your fist at God and say "why me" moment.So unfortunately it just felt like here we go again, and it was. I just went ahead and got it done, and my recovery from that second revision surgery had it's challenges. First when I woke up my chest was a mess, looked like I had been beaten with a 2x4, I guess from being on my chest during surgery for 10 plus hours. I was black and blue, and skin sluffing off, it was awful and hurt worse than my back. Then I was vomitting all the time, that settled down and I got to go home and it resumed again, Fentanyl patches made me very ill, great pain control though. I know if someone had asked me at that moment if it was worth it I would have said a resounding " NO". And believe me till I got off the patches, my stomach and Bowels settled and my chest looked and felt better, and it took about six weeks, I would have still said no it wasn't worth it. But then there's the moment you turn the page, and you feel better for part of the day, and you get stronger, and it just seems to get better each day. Then I reached the three month mark and I realized the pain was gone, and I felt more like myself, and yes it was worth it. Please know we are all with you during this very hard time, we are pulling for you and your Hubby. I too was like you, standing and sitting for any period of time was hard, so we just set up a bed in the livingroom, and there I was so I could be a part of things with the kids, but still lay down. That bed was out there for about six weeks, and helped me be a part of things and not stowed away in the bedroom. Keep the faith dear, I know it's hard, and prayers and good thoughs are streaming your way.

Colorado Springs

[ ] home again

hi, don't know how you all dealt with this, but I am havving a horrible time. cannnot stand or sit for any length of time this time home. am exhausted. only goood thing is I am eating like a pig. I cannot wait for weeks to go by. I have already decided as of right now, Iam so sorry Iwent ahead with this revisision surgery.one sad puppy,

[Guest guest]

,

I am so sorry your recovery has been such a bear. I can only guess how

discouraging it must feel. I can't compare our experiences since you

had this infection crop up...and you had more extensive surgery than I,

but I was terribly tierd for the first few months home...really, all I

did was sleep...I didn't have much stamina...I couldn't really even sit

through dinner the first few weeks home.

You west coast girls seem to have had a slow start at healing, but take

heart...even with all the problems , Val and Lorrie had, they are

both now saying they are glad they did what they did. Don't discount

the sour effect the meds you are on can have on your mood.

I am hoping the next few weeks will bring you some new bursts of energy

and a tiny bit of optimism about your future.

Take Care, Cam

[Guest guest]

Hi ,

I am so sorry you're having such a rough time. I didn't have the complications you do, but I remember that at your stage of recovery I could not imagine feeling really good ever again. It can be a very long, very difficult road even without your complications, which only make it more difficult to feel better sooner rather than later. But, you will get there, and that is the key. There is a light at the end of tunnel; a pot of gold at the end of the rainbow. No matter how badly you feel now. I'll bet that, in the long run, you actually will be very glad you had this surgery. For now, just rest as much a your body wants you to. That's your job right now, so no feeling guilty or badly that you're laid up in bed and not accomplishing much. You really are accomplishing plenty. You are getting well again. Really.

Bonnie

[ ] home again

hi, don't know how you all dealt with this, but I am havving a horrible time. cannnot stand or sit for any length of time this time home. am exhausted. only goood thing is I am eating like a pig. I cannot wait for weeks to go by. I have already decided as of right now, Iam so sorry Iwent ahead with this revisision surgery.one sad puppy,

[Guest guest]

Hey,

Sorry to hear you have had such a rough time of it. Maybe instead of

trying to stand or sit, you should try to sleep through the first month

of healing?

I know it is in no way comparable, but I was surprised just how badly I

hurt after having my ovaries and tubes removed in November. I was

happy to take my pain medication and sleep for the first several weeks

and I plan to do the same after revision surgery.

>

> hi, don't know how you all dealt with this, but I am havving a

> horrible time. cannnot stand or sit for any length of time this time

> home. am exhausted. only goood thing is I am eating like a pig. I

> cannot wait for weeks to go by. I have already decided as of right

> now, Iam so sorry Iwent ahead with this revisision surgery.

> one sad puppy,

>

[Guest guest]

thank you for sharing, . I have been feeling very nervous about

whether or not I am doing the right thing.

>

> Dear ,

>

> I'm so sorry your turn of events have been so rough, and I feel

through your words just how tough this has been on you. I felt like

when I got home " What the hell have I done to myself " , and I haven't

been through half of what you have been through. My saddest moment

was my six month check-up following my first revision, and Kumar was

looking at my x-rays and measuring, and I knew something was awfully

wrong, I had cracked my Harrington Rod fusion mass and would need

another revision. Boy that sure was a shake your fist at God and

say " why me " moment.So unfortunately it just felt like here we go

again, and it was. I just went ahead and got it done, and my recovery

from that second revision surgery had it's challenges. First when I

woke up my chest was a mess, looked like I had been beaten with a

2x4, I guess from being on my chest during surgery for 10 plus hours.

I was black and blue, and skin sluffing off, it was awful and hurt

worse than my back. Then I was vomitting all the time, that settled

down and I got to go home and it resumed again, Fentanyl patches made

me very ill, great pain control though. I know if someone had asked

me at that moment if it was worth it I would have said a resounding "

NO " . And believe me till I got off the patches, my stomach and Bowels

settled and my chest looked and felt better, and it took about six

weeks, I would have still said no it wasn't worth it. But then

there's the moment you turn the page, and you feel better for part of

the day, and you get stronger, and it just seems to get better each

day. Then I reached the three month mark and I realized the pain was

gone, and I felt more like myself, and yes it was worth it. Please

know we are all with you during this very hard time, we are pulling

for you and your Hubby. I too was like you, standing and sitting for

any period of time was hard, so we just set up a bed in the

livingroom, and there I was so I could be a part of things with the

kids, but still lay down. That bed was out there for about six weeks,

and helped me be a part of things and not stowed away in the bedroom.

Keep the faith dear, I know it's hard, and prayers and good thoughs

are streaming your way.

>

>

> Colorado Springs

> [ ] home again

>

>

> hi, don't know how you all dealt with this, but I am havving a

> horrible time. cannnot stand or sit for any length of time this

time

> home. am exhausted. only goood thing is I am eating like a pig. I

> cannot wait for weeks to go by. I have already decided as of

right

> now, Iam so sorry Iwent ahead with this revisision surgery.

> one sad puppy,

>

[Guest guest]

Dear Friends,

I want to thank everyone who sent messages and cards of condolences during

my absence. It was a very trying and exhausting time. I normally avoid crowds,

but in this instance, could not and I picked up something that was floating

around the crowd. I have lost my voice for the most part, barely allowing for a

squeak now and again, sore throat, coughing and stomach distress. The only

thing I lack to call it the " flu bug " is fever. For that I am grateful. Since

my brother was in hospice care, he was allowed many visitors, even though he

could not respond to them, I'm sure he knew they were there.

We were also greeted by waves of people who came to pay their respects. It was

a full military funeral and so befitting for my brother who spent 55 years of

his life working for the government, in uniform and out. I met relatives by

marriage that I had not met in person before and that was interesting, though

sad, being brought together in a period of family berevement. Everyone was

anxious to meet each other, so we had a lot of catching up to do. I know it may

sound dysfunctional to some, but this is a military family who traveled

extensively in their stints with the US Air Force and some splintered by

divorce. We now have a third generation who is waiting to be sworn in the same

branch.

Please do know that I hold you all in high esteem for all of your warm thoughts

and prayers. I had 2 brothers who are now resting in peace and only my sister

and I left to carry on as family matriarchs. Unfortunately and inevitabaly , we

all face the loss of a loved one. You all have my gratitude and thanks.

Hands & hearts,

Lottie Duthu

[Guest guest]

In a message dated 12/23/2009 7:38:37 A.M. Eastern Standard Time, dereinke@... writes:

I have set January 5 as my re-start date. That is the day we will be home from all of our traveling.

Dacia safe travel and a Happy Holiday season. Starting fresh on Jan 5th sounds like a plan. Also when BL starts up again.

I just got a message from a friend from my childhood that her Aunt is not doing well. What do you say? I hope her suffering ends soon? that she goes peacefully? that she makes it threw the Holiday? I dont know what is appropriate. So I guess I am saying the same to you. Not sure of the words. BUT you are in my prayers and thoughts.

N.H.