Across the Pond

[Guest guest]

Dear ,

I would love to be across the pond right now, I think it would be lovely to

visit the UK at this time of year, as I have always been there during the summer

and mostly on my birthday, as it falls exactly in the middle of the year. On

your thought of the drug for T315i, I think they should offer the drug as on

" orphan drug " to have available for people who do have the T315I mutation. This

is a very difficult part of the disease to treat. I know some big pharmas keep

a small stash of rare drugs for orphan diseases just for the few patients, and I

would hope they would extend it to everyone and not " shelve " it because it would

not generate income. I am thinking they would do it for humanitarian reasons

and not for profit.

As for the 3rd generation drugs, I think there will always be a need to improve

on the 1st and second generation formulas. They keep getting better and better

with fewer side effects, it's like the difference between riding a bus and

flying, the latter being much faster. Maybe we should start a petition for all

CMLers to sign and send to the drug company you mentioned in your letter. If we

had a petition we could download and mail, it would be more effective than an

email. Besides, the post office needs the business. LOL. I'm sure LLS would

also furnish a copy of the petition to everyone, since most people are aware of

their organization and what they do for patients, while limiting the signatures

only to the group on this list would be less effective in numbers. We could be

a giant voice showing our strength and our voices will be heard.

Hands & hearts,

Lottie Duthu