Guest guest Posted November 21, 2009 Report Share Posted November 21, 2009 Hi all, I spoke with Skip this morning and he asked me report on how he is doing. When I spoke to him a couple of weeks ago he was in really bad shape. I didn't think he was going to make it. Today sounded well and back to his old self. At the moment he is off all medications waiting for what is left of his marrow to recover. It turned out that it was the Exjade side effects that were causing him most of his problems. Here are some of his current counts. They are not in error. WBC = 0.5, Platelets, 4.0 and Hemoglobin=80. He is still transfusion dependent, but not as often as the past couple of months. His case was presented to a panel doctors with Dr. Marin from Hammersmith moderating the session. One of the doctor's opinion was that this patient should be dead. Dr. Marin has suggested that he go off all treatment to give his blood and marrow a chance to recover. This has helped dramatically and we will see what the future brings. Dr. Marin doesn't think he should be subjected to any of the CML drugs. Skip has had CML for over 32 years. Zavie Zavie (age 71) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 e-mail: zmiller@... Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 ID: zaviem Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2009 Report Share Posted November 21, 2009 Zavie- Thank you for keeping us posted. Skip gives us all hope. Sending lots of prayers and love up North. I remember I asked him how he was able to survive so long. If my chemo brain remembers he said something about positive attitude and a pint- smile. ________________________________ From: Zavie <zmiller@...> ; CMLHopegooglegroups Sent: Sat, November 21, 2009 10:09:29 AM Subject: [ ] Skip Duffie Hi all, I spoke with Skip this morning and he asked me report on how he is doing. When I spoke to him a couple of weeks ago he was in really bad shape. I didn't think he was going to make it. Today sounded well and back to his old self. At the moment he is off all medications waiting for what is left of his marrow to recover. It turned out that it was the Exjade side effects that were causing him most of his problems. Here are some of his current counts. They are not in error. WBC = 0.5, Platelets, 4.0 and Hemoglobin=80. He is still transfusion dependent, but not as often as the past couple of months. His case was presented to a panel doctors with Dr. Marin from Hammersmith moderating the session. One of the doctor's opinion was that this patient should be dead. Dr. Marin has suggested that he go off all treatment to give his blood and marrow a chance to recover. This has helped dramatically and we will see what the future brings. Dr. Marin doesn't think he should be subjected to any of the CML drugs. Skip has had CML for over 32 years. Zavie Zavie (age 71) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 e-mail: zmillersympatico (DOT) ca Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 ID: zaviem Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2009 Report Share Posted November 22, 2009 Zavie: Do we have any one who has lived longer with CML than Skip? Matt Florida Sent from my iPhone On Nov 21, 2009, at 1:09 PM, " Zavie " <zmiller@...> wrote: > Hi all, > > I spoke with Skip this morning and he asked me report on how he is > doing. > When I spoke to him a couple of weeks ago he was in really bad > shape. I > didn't think he was going to make it. Today sounded well and back to > his old > self. > > At the moment he is off all medications waiting for what is left of > his > marrow to recover. It turned out that it was the Exjade side effects > that > were causing him most of his problems. > > Here are some of his current counts. They are not in error. WBC = 0.5, > Platelets, 4.0 and Hemoglobin=80. He is still transfusion dependent, > but not > as often as the past couple of months. > > His case was presented to a panel doctors with Dr. Marin from > Hammersmith moderating the session. One of the doctor's opinion was > that > this patient should be dead. > > Dr. Marin has suggested that he go off all treatment to give his > blood and > marrow a chance to recover. This has helped dramatically and we will > see > what the future brings. Dr. Marin doesn't think he should be > subjected to > any of the CML drugs. > > Skip has had CML for over 32 years. > > Zavie > > > > Zavie (age 71) > 67 Shoreham Avenue > Ottawa, Canada, K2G 3X3 > dxd AUG/99 > INF OCT/99 to FEB/00, CHF > No meds FEB/00 to JAN/01 > Gleevec since MAR/27/01 (400 mg) > CCR SEP/01. #102 in Zero Club > 2.8 log reduction Sep/05 > 3.0 log reduction Jan/06 > 2.9 log reduction Feb/07 > 3.6 log reduction Apr/08 > 3.6 log reduction Sep/08 > 3.7 log reduction Jan/09 > 3.8 log reduction May/09 > 3.8 log reduction Aug/09 > e-mail: zmiller@... > Tel: 613-726-1117 > Fax: 613-482-4801 > Cell: 613-282-0204 > ID: zaviem > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2009 Report Share Posted November 22, 2009 I don't know of anyone close to Skip's 32 year history. Zavie Zavie (age 71) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 e-mail: zmiller@... Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 ID: zaviem _____ From: [mailto: ] On Behalf Of mtmaynor@... Sent: November 21, 2009 11:07 PM Subject: Re: [ ] Skip Duffie Zavie: Do we have any one who has lived longer with CML than Skip? Matt Florida Sent from my iPhone On Nov 21, 2009, at 1:09 PM, " Zavie " <zmillersympatico (DOT) <mailto:zmiller%40sympatico.ca> ca> wrote: > Hi all, > > I spoke with Skip this morning and he asked me report on how he is > doing. > When I spoke to him a couple of weeks ago he was in really bad > shape. I > didn't think he was going to make it. Today sounded well and back to > his old > self. > > At the moment he is off all medications waiting for what is left of > his > marrow to recover. It turned out that it was the Exjade side effects > that > were causing him most of his problems. > > Here are some of his current counts. They are not in error. WBC = 0.5, > Platelets, 4.0 and Hemoglobin=80. He is still transfusion dependent, > but not > as often as the past couple of months. > > His case was presented to a panel doctors with Dr. Marin from > Hammersmith moderating the session. One of the doctor's opinion was > that > this patient should be dead. > > Dr. Marin has suggested that he go off all treatment to give his > blood and > marrow a chance to recover. This has helped dramatically and we will > see > what the future brings. Dr. Marin doesn't think he should be > subjected to > any of the CML drugs. > > Skip has had CML for over 32 years. > > Zavie > > > > Zavie (age 71) > 67 Shoreham Avenue > Ottawa, Canada, K2G 3X3 > dxd AUG/99 > INF OCT/99 to FEB/00, CHF > No meds FEB/00 to JAN/01 > Gleevec since MAR/27/01 (400 mg) > CCR SEP/01. #102 in Zero Club > 2.8 log reduction Sep/05 > 3.0 log reduction Jan/06 > 2.9 log reduction Feb/07 > 3.6 log reduction Apr/08 > 3.6 log reduction Sep/08 > 3.7 log reduction Jan/09 > 3.8 log reduction May/09 > 3.8 log reduction Aug/09 > e-mail: zmillersympatico (DOT) <mailto:zmiller%40sympatico.ca> ca > Tel: 613-726-1117 > Fax: 613-482-4801 > Cell: 613-282-0204 > ID: zaviem > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2009 Report Share Posted November 22, 2009 I guess we're all trying to beat his record! Sent from my iPhone On Nov 21, 2009, at 11:58 PM, " Zavie " <zmiller@...> wrote: I don't know of anyone close to Skip's 32 year history. Zavie Zavie (age 71) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 e-mail: zmiller@... Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 ID: zaviem _____ From: [mailto: ] On Behalf Of mtmaynor@... Sent: November 21, 2009 11:07 PM Subject: Re: [ ] Skip Duffie Zavie: Do we have any one who has lived longer with CML than Skip? Matt Florida Sent from my iPhone On Nov 21, 2009, at 1:09 PM, " Zavie " <zmillersympatico (DOT) <mailto:zmiller%40sympatico.ca> ca> wrote: > Hi all, > > I spoke with Skip this morning and he asked me report on how he is > doing. > When I spoke to him a couple of weeks ago he was in really bad > shape. I > didn't think he was going to make it. Today sounded well and back to > his old > self. > > At the moment he is off all medications waiting for what is left of > his > marrow to recover. It turned out that it was the Exjade side effects > that > were causing him most of his problems. > > Here are some of his current counts. They are not in error. WBC = 0.5, > Platelets, 4.0 and Hemoglobin=80. He is still transfusion dependent, > but not > as often as the past couple of months. > > His case was presented to a panel doctors with Dr. Marin from > Hammersmith moderating the session. One of the doctor's opinion was > that > this patient should be dead. > > Dr. Marin has suggested that he go off all treatment to give his > blood and > marrow a chance to recover. This has helped dramatically and we will > see > what the future brings. Dr. Marin doesn't think he should be > subjected to > any of the CML drugs. > > Skip has had CML for over 32 years. > > Zavie > > > > Zavie (age 71) > 67 Shoreham Avenue > Ottawa, Canada, K2G 3X3 > dxd AUG/99 > INF OCT/99 to FEB/00, CHF > No meds FEB/00 to JAN/01 > Gleevec since MAR/27/01 (400 mg) > CCR SEP/01. #102 in Zero Club > 2.8 log reduction Sep/05 > 3.0 log reduction Jan/06 > 2.9 log reduction Feb/07 > 3.6 log reduction Apr/08 > 3.6 log reduction Sep/08 > 3.7 log reduction Jan/09 > 3.8 log reduction May/09 > 3.8 log reduction Aug/09 > e-mail: zmillersympatico (DOT) <mailto:zmiller%40sympatico.ca> ca > Tel: 613-726-1117 > Fax: 613-482-4801 > Cell: 613-282-0204 > ID: zaviem > > > Quote Link to comment Share on other sites More sharing options...
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