Guest guest Posted November 11, 2009 Report Share Posted November 11, 2009 Hello to all. I have been reading everyone's posts for a few weeks now and I want to thank everyone for validating my side effects. I no longer feel like I am crazy or the only one. I have not read anyone talk about hot burning feet. I don't know if this is a side effect of Gleevec, or something else. It comes and goes, but it is bad when it comes! Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2009 Report Share Posted November 11, 2009 I had the burning feet prior Dx of CML was very painful. It went away a couple months after taking the chemo. It is nice to know you are not alone facing the side effects. Anita ________________________________ From: phantom_89108 <phantom_89108@...> Sent: Wed, November 11, 2009 7:54:42 AM Subject: [ ] hot feet Hello to all. I have been reading everyone's posts for a few weeks now and I want to thank everyone for validating my side effects. I no longer feel like I am crazy or the only one. I have not read anyone talk about hot burning feet. I don't know if this is a side effect of Gleevec, or something else. It comes and goes, but it is bad when it comes! Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2009 Report Share Posted November 11, 2009 Hi, this is what I remember when I was first being treated for CML. I told my doctor my feet seemed to be burning, and she said my platelets were high, the hot feet was an indication of this. check it out, she put me on Agrylin. Bobby ps, Gleevec had not been discovered at that time, I was on Hydroxyurea. a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 Interferon/9 weeks/hydroxyurea/5 years 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 -  Zavie's Zero Club 09/2006 - out of CCR 04/29/08 - XL228 trial/U of Michigan 01/09/ - PCR 5.69 02/13/09 - XL228 trial ended due to side effects o4/13/09 - Ariad Trial U of Michigan 09/09/09 - PCR 0.017 From: phantom_89108 <phantom_89108@...> Subject: [ ] hot feet Date: Wednesday, November 11, 2009, 8:54 AM  Hello to all. I have been reading everyone's posts for a few weeks now and I want to thank everyone for validating my side effects. I no longer feel like I am crazy or the only one. I have not read anyone talk about hot burning feet. I don't know if this is a side effect of Gleevec, or something else. It comes and goes, but it is bad when it comes! Thanks. Quote Link to comment Share on other sites More sharing options...
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