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Who did you try to interview? (I'm in your town) I'd like to know too about

Ped who are willing to work with our kids. Have you tried Dr Kaye Sykes? I hope

she's not the one who wouldn't be interviewed. I think she's great.

Thanks,

Rhonda in CA

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  • 8 months later...

Hi ,

Yes, I feel exactly the same. I am seeing a new rheumy next month too and I

dread breaking him in also. I'm nervous he won't believe that I have pa due

to lack of visible symptoms. I did just see a physiatrist at a pain clinic

and she was wonderful. She walked in and said... Oh, so young... I'm a young

looking 37 and she read about the pain and pa on my chart. That was a good

beginning. She agreed my back pain was inflamed tendons along the spine and

went

right to work giving me trigger point cortisone shots. She set me up for

weekly shots for 2 months to try to get the pain under control. Now my new

rheumy will have to deal with my fatigue, hand, feet, rib elbow wrist and

achiles

pain....

hang in there,

nancy

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  • 1 month later...
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-Does he have a website?

-- In , " Dave " <kidsxx5@y...> wrote:

>

> I found this article on the internet about the Dr. I am currently

> using for hypognadism. Only a brief phone consultation so far and

he

> ordered lots of lab work. He mentioned that he even treats

patients

> who are out of the country. I'll let you know how thing work our,

> sounds good so far.

>

> Dave

>

>

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  • 2 years later...
Guest guest

Rogene, Great news about the new Dr!!! Wonderful that she will be able to work with you and is agreemant on health issues hat you have dealt with or are currently dealing with! Katy:)Rogene S <saxony01@...> wrote: Thanks Katy, I'm managing EM quite well . . . and educating a bunch of doctors along the way. . . I had my physical today. . . A new physicians' assistant saw me. . . Outstanding doctor! . . . She was very interested in EM, implants, the kids issues, HLA typing, etc. . . She reviewed and approved all my supplements and recommended a couple new ones . . . including vinegar. . . and a small asprin daily. She approved of my using iodine and recommended yoga. Said that sugar makes FM worse . . . And that she wish we had time to talk a lot longer! She believes breast implants must be removed en bloc - or at least total capsulectomy! . . . Word is getting around! Rogene

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  • 2 years later...

sorry  it has been some time since i have posted. patrick has been to see a new

doctor, her name is dr. ellis, and she is at wake forest baptist hospital

comprenshive cancer center. he had a bma/bmb plus assorted and various

bloodlettings. it was so difficult getting his marrow that they actually bent

the trocanter into a ''c'' ,tough bones has my kid. well that is not all, we had

to fly ,not literally, back to our home town to admit him to the hospital here

as he has mrsa and he will have surgery  on his neck in the morning to excise

the infected area on his neck as the area is encapsulated and iv antibiotics

just aren't enough to get rid of ths bad boy. he is upset because he is on

precautions and he thought it was for the mrsa, but our family doc. is worried

about his compromised immune system due to the cml and so everyone has to wear a

mask and or gloves. so please keep him in your prayers he needs them now .

                                                                                \

                             

 

                                                                                

peggy

 

                                                             

 

 

 

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