new to group looking for answer about cml pain

[Guest guest]

If you are feeling alone this is the best place to come to. We are all in the

same boat but just at different spots in our journey. It sounds like you have

had more than your share of medical issues. Some of us experience bone pain,

spleen pain, weight gain, dizziness you name it someone has had it. The worst

feeling is that you are alone in this. It must be very frustrating to have been

to so many doctors and not get help. What area do you live in I am sure you

could be directed towards a caring knowledgable doctor. The problem is not alot

of doctors are versed in CML. There are miracle drugs out there, if Gleevec

doesn't work there are now others that work just at well if not better. Gleevec

is the first line of defense but many of us, myself included could not tolerate

it. This group shouldn't give medical advice that only a physician can to but

we can tell our experience and let you know that you are not alone. God Bless

you.

Carolyn_Kuptz2000@...

dx 11-05

CML has been undetecable on

Sprycel 20 mg bid