Pain Meds

[Guest guest]

Thanks Carol:

Thanks for your response. I am doing okay, hope all is well with you too.

Sincerely,

[Guest guest]

Hi ,

How are you doing? You're right about finding another doctor to help with

her pain. Nobody should have to suffer needlessly, especially after the Dr.

had been prescribing it all that time.

It's good to see you!

Love and hugs,

Carol

[ ] Pain Meds

Hi Everyone:

This is Colletti. I think I found the answer out that everyone is

wondering about. Yesterday I went to my DR and I asked him if he had heard

anything about Doctors not being able to write scripts for oxycontin and

etc.

He said there was a group of people (Doctors & , etc.) who were trying to get

oxycontin outlawed and brought it to Congress, because this drug is a drug

of

choice of drug addicts and many people have been dying from it. (People who

abuse it) They take too much of it or mainline it and it does kill them. So

this group brought it before Congress but they didn't succeed.

Also, scientists are trying to make the drug a slow release long acting

drug,

so this way the drug addicts wouldn't be able to overdose from it. It would

also then loose it's street value.

However, Doctors are still able to prescribe it. Maybe some of them became

afraid to when they heard the news about what some people were trying to do.

Someone should inform that DR who won't prescribe it that it is still legal

to prescribe it.

If not, maybe he is afraid for some odd reason. Any way there are plenty of

Doctors out there that will prescribe it. I hope someone will tell the

party

who had the problem with their DR to look for another Dr.

Have a happy pain free day.

Sincerely, Colletti

[Guest guest]

Hi ,

Thanks for the information, I have passed it along to my friend. It was so

nice of you to ask your doctor. I hope my friend can straighten this out as her

daughter goes to school soon. It would be a shame if she was in so much pain

she

couldn't go. Hope you are doing well.

Lynn (MeMom)

ANJILLAH@... wrote:

> Hi Everyone:

>

> This is Colletti. I think I found the answer out that everyone is

> wondering about. Yesterday I went to my DR and I asked him if he had heard

> anything about Doctors not being able to write scripts for oxycontin and etc.

> He said there was a group of people (Doctors & , etc.) who were trying to get

> oxycontin outlawed and brought it to Congress, because this drug is a drug of

> choice of drug addicts and many people have been dying from it. (People who

> abuse it) They take too much of it or mainline it and it does kill them. So

> this group brought it before Congress but they didn't succeed.

> Also, scientists are trying to make the drug a slow release long acting drug,

> so this way the drug addicts wouldn't be able to overdose from it. It would

> also then loose it's street value.

> However, Doctors are still able to prescribe it. Maybe some of them became

> afraid to when they heard the news about what some people were trying to do.

> Someone should inform that DR who won't prescribe it that it is still legal

> to prescribe it.

> If not, maybe he is afraid for some odd reason. Any way there are plenty of

> Doctors out there that will prescribe it. I hope someone will tell the party

> who had the problem with their DR to look for another Dr.

> Have a happy pain free day.

> Sincerely, Colletti

>

>

[Guest guest]

MSIR is Morphine Sulfate Immediate Release. It lasts 3-4 hours just like

your demerol or codeine would, it is just a step up in strength.

As far as wearing Duragesic Patch - the location that works well for me is my

uipper chest - on the flat area about six inches below the adams apple area

and then two inches to either side, This is high enough for me that it never

gets in the tub water and when or if I shower I make sure I put some saran

wrap with tape around the edges to cover over the patch for those ten minutes

I shower. It has NEVER BEEN A BIG DEAL to bathe with Duragesic Patch for

me or anyone else- otherwise they would not still be on the market for

heavens sake!! I definitely would pursue this further with a pain management

doc.

Don't forget to ask about the new long acting oral pain medication that was

discussed recently on the list as well. At this moment my mind is a blank

with it's name- I know that one of our moderators is taking it successfullu

as well! I am sure he will see this and pipe up to my rescue!!

I hope all this info has helped,

group founder

[Ed. Note: Hi . I believe takes OxyContin occasionally, could

that be what you're thinking of? Others have said that Methadone (Dolophine) is

long acting. By the way, I'm curious why you can't just remove the Duragesic

Patch while you shower or bathe, and then reapply it afterwards? If it doesn't

stick properly the second time around, you could always use some Duct Tape on it

- LOL! ;-) Ron]

[Guest guest]

, you were, I believe, referring to me, asking that I " pipe

up " in regard to the (sustained release) morphine question a member

(who will hopefully read this) asked.

To that member:

First of all, has pretty well detailed the fentanyl issue;

those patches work quite well, and there is very little (if any)

uncontrolled release of the drug due to environmental factors. Simply

place the patch where instucted, being careful not to tear it. Vary

the site a bit, to prevent skin irritation (always a possibility with

psoriasis-prone patients). The amount of heat necessary to cause a

serious release of Duragesic would most likely have the wearer in

extreme discomfort (say, an inch or two from a 100-watt light bulb,

or the hottest water that comes out of your tap (actually, out of

your water heater; up to 150 degrees).

OK, here we go. Climbing the pain meds ladder: We start with codiene

(e.g., Tylenol 3, or 4--30 or 60 mg. codiene with 300 mg.

acetominophen) up to a maximum (generally speaking--some people would

have lower limits) of 13 tabs/24 hours. (The limit is due to

acetominophen toxicity, not the codiene.) Reported as roughly co-

equivalent in drug trials (although I disagree; I know many people

who report the codiene is more effective) is Darvocet-N (Darnon with

propoxyphene). Also in this group are low-dose hydrocodone with

aspirin or acetominophen combinations (Vicodin, Lortab, etc.) These

are all Schedule III narcotics (refills on one script are limited,

and other controls).

The next tier includes the Schedule II Narcotics. Some of the lesser

of these, the " entry levels' to the class, are Demerol (synthetic),

oxycodone and Percodan (pure opiate agonists, from papaver

somniferum, the opium poppy), and stronger (compounded) hydrocodone

combinations (say 60 mg. hydrocodone with 100 mg. acetominophen; you

$ your doc agree on a dosage).

The top of the ladder: Among synthetics, Fentanyl, very potent, but

short acting as immediate release and therefore useful post-surgery

or other acute need. The fentanyl transdermal (or " through the skin " )

patch (Duragesic) releases the drug steadily over (more than) 72

hours. There are some potent semi-synthetics (Dilaudid, etc.), but

they are not generally used in chronic pain management.

There is one sustained-release (12 hour) oral drug available for

severe pain: Oxycontin. It is fairly potent, and has had some

negative (i.e., abuse potential), yet is quite effective when used

appropriately.

Then we come to top of the line pure opiate agonsts, Morphine Sulfate

(MSIR). Morphine is the benchmark drug among potent narcotics, as is

reserved for severe, refractory pain in cancer, and certain other

debilitating, chronically extremely painful patients. The problem

with morphine immediate-release is the roller-coaster nature of the

relief: Due to its relatively short duration of action (4-6 hrs), you

have a more intense onset of action (making the patient drowsy, and

unsafe in some actions of daily living; causing euphoria, nausea,

etc.,), and also a relatively short plataeau period, where the relief

is level, and a quick elimination from the body--the pain bounces

back, and mood is depressed, and the feeling of need for more of the

drug intensifies well before the physical aspects of withdrawal show

up.

Not long ago, The FDA approved a 24 hour sustained-release form of

Morphine Sulfate called AVINZA, available in several strengths (120,

60, 30, and I think maybe a lesser-milligram strength). As noted,

AVINZA eliminates the roller coaster levels of the drug in the body,

providing a steady state of relief.I have been on AVINZA for nearly

three months (and Methadone for breakthrough pain, which I tend to

have in the evening, or during sleep).

What follows is my personal evaluation ONLY (we're all different):

AVINZA completely eliminated the roller-coaster problem; dealt with

the pain as effectively is if I were continually experiencing the

peak plasma level of immediate-release meds; and, in my case, codiene-

type meds had been causing serious nausea, acid reflux, and even not-

infrequent emesis. All of that has, quite surprisingly, COMPLETELY

disappeared. It's wonderful to have my stomach back!

With the one caveat that AVINZA doesn't work for the full 24 hours

(and so I fill in with the Methadone), I'd say AVINZA is Just What

The Doctor (not to mention, Patient) Ordered! Using AVINZA ( & a

little Methadone) has: Allowed me to perform better, and longer, at

work, and with a more positive attitude and outlook; stop being a

complete couch potato on days off & weekday-nights (giving me

strength to run errands and do chores (I live alone), and just in

general made life more pleasant.

That's long-winded enough, I believe. I wanted to give you the full

picture, and also spread the word on AVINZA (and No, I don't have any

stock in the company making it. :-)

D.]

[Guest guest]

,

Is Avinza a pill or a patch. Right now, I take 2 5mg of Methadone in the

morning and up to 4 Vicodin, the regular kind, not the ex kind (I actually

didn't know there was an ex kind till I read about it on this list). It seems

to be working ok, but I would like to try other things that will let me feel

like you do. Hopefully my new rheumy and pain med doc will be open to trying

other things for pain management. What I'm taking works ok, but its just ok, I

don't feel like " my old self " one bit.

[Guest guest]

I was on Darvocet for about 3 years....at the end, I didn't seem to be

getting much relief from it at all, so I was put on Vicodine. I did notice

that the Vicodine I took in the morning seemed to work a bit better than the

ones I too during the day. Keep in mind that I can't stomach breakfast, but

take these at meal time the rest of the day. After about a 6 months on the

Vicodine, I reread the " description " paper that I get with my meds. Seems

the Vicodine doesn't work very well on a full stomach. Could that be what

is happening with your Darvocet?

Some days it is soooo frustrating trying to remember what pill needs food

and what pill doesn't.

in Ct.

Re: [ ] pain meds

i take darvocet for pain but it always seems to take a long time to work so

I was advised to take it before the pain gets too bad....I have taken it for

years......

[Guest guest]

In a message dated 28/04/2004 19:51:18 Central Standard Time,

heinscsf@... writes:

> ULTRACET FOR PAIN. I

> DO NOT GET ANY PAIN RELIEF UNTIL AROUND 3:00 IN THE AFTERNOON. I

> HAVE HEARD THAT SOME OF YOU OUT THERE ARE ON DARVOCET

Usually, Ultracet is considered to be a " stronger " pain med than Darvocet.

Then again, everyone is different......Cary

[Guest guest]

I'm on Darvocet, but frankly, it does nothing for me. I've heard a lot

of people get some relief from Darvocet or even just takes the edge off,

any relief is better then none.

Rick

www.whosyomama.com

Re: [ ] pain meds

In a message dated 28/04/2004 19:51:18 Central Standard Time,

heinscsf@... writes:

> ULTRACET FOR PAIN. I

> DO NOT GET ANY PAIN RELIEF UNTIL AROUND 3:00 IN THE AFTERNOON. I

> HAVE HEARD THAT SOME OF YOU OUT THERE ARE ON DARVOCET

Usually, Ultracet is considered to be a " stronger " pain med than

Darvocet.

Then again, everyone is different......Cary

[Guest guest]

Rick I was on Darvocet for a while. It worked at the beginning and just

wouldn't take the edge off after a few months. I was then put on Vicodine.

I got better relief, and my head is a little clearer with it. I know the

Vicodine will poop out on me and I don't know what I will be given next, but

for now, it works. Just wish is would work all day instead of having to

choke those horse pills down every 4 hours.

in Ct.

[Guest guest]

Hi, Connie. Welcome to the group!

This is a question that you should ask your physician. It's great that,

given enough time, the Ultram is working. Sometimes half the battle is

finding something that is effective.

Also, what the main source of your pain is, the nature of the pain, how

often you have pain, and how long it lasts is are important factors in

deciding what analgesic or combination of them to use.

Please give you doctor a call.

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Pain Meds

> Hi everyone!

>

> I have a questions about pain control. I am newly

> diagnosed and currently being treated with prednisone

> (10mg daily) and plaquenil (400mg daily). I have been

> given Ultram (50-100mg as needed) for pain. I find

> that it works great once it starts working...but thats

> the problem....it takes about 2 hrs to " kick in " after

> I take it. Then its great....the pain is almost

> totally gone.

>

> Does anyone else take Ultram? and if so do you find

> that it takes that long to work for you? Does anyone

> have suggestions for something that might work faster?

> I try to be alert and take it at the first sign that

> the pain is getting " bad " but often I am in agony

> waiting for it to kick in.

>

> Thanks for any advice

>

> Connie -Michigan

[Guest guest]

Connie...Ultram wasn't doing it for me so the doctor gave me the newer

ultracet which is ultram with acetaminophen. I take 2 tablets and am quite happy

with them. I haven't found it to take long to work. Judy

[Guest guest]

Connie, no harm in asking what results others have had with their meds.

Since pain is such a complex phenomenon and people are so individual in

how they experience pain and respond to meds, it's wise to have your

doctor in on the discussion. Besides, we won't know about any

restrictions you may have - like not being able to try the COX-2s.

Good luck. I hope your rheumatologist returns your call very soon.

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Pain Meds

> Thanks for responding to my inquiry. I did have a

> call in to my rheumy but still haven't gotten a call

> back (grrrrrrrr). I am still taking the ultram

> because it does work. I can't take the COX-3

> inhibiters (Vioxx, Bextra, Celebrex) due to a platelet

> bleeding problem that I have.

>

> I was just curious what others experiences were with

> this. The prednisone has helped some and hopefully

> the Plaquenil will kick in soon.

>

> Thanks again,

> Connie

[Guest guest]

Hi ,

You could give DL Phenylalanine a try. It is over the counter. It may be of

no help at all, but you never know. My husband takes this twice a day on an

empty stomach. One of the enzymes is for pain, the other is for depression,

but they work very well together. They are 500mg per pill. This is

suggested by Dr. Bihari

for overall well being, helps with pain and lessens depression. Apparently

it will extend the

work that LDN does, more so through the whole day.

It is worth a try

Aletha

[low dose naltrexone] pain meds

> can anyone tell me what the strongest pain meds are that can be

> taken with LDN?

> I don't want to stop LDN but i need something strong for my bank

> pain. over the counter meds just don't do it for me. for

> instance, is darvocet ok? any suggestions will be appreciated.

>

> thanks,

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

I HAVE BEEN TRYING TO CANCEL MYSELF OF THE LIST HERE FOR 3 MONTHS.

IS ANYONE AT THE WHEEL???????????????????????????????????????????????

NOBODY IS RESPONDING TO CANCELLATION NOTICES.

I HAVE BEEN PLEASENT UNTIL NOW.

SOMEONE NEED TO GET OFF THEIR ASS.

AAGELOUL@... [low dose naltrexone] pain meds

can anyone tell me what the strongest pain meds are that can be taken with LDN?

I don't want to stop LDN but i need something strong for my bank pain. over the counter meds just don't do it for me. for instance, is darvocet ok? any suggestions will be appreciated.

thanks,

[Guest guest]

you have to go to your own '' and cancel

it yourself

--- aageloul@... wrote:

> I HAVE BEEN TRYING TO CANCEL MYSELF OF THE LIST HERE

> FOR 3 MONTHS.

> IS ANYONE AT THE

> WHEEL???????????????????????????????????????????????

> NOBODY IS RESPONDING TO CANCELLATION NOTICES.

> I HAVE BEEN PLEASENT UNTIL NOW.

> SOMEONE NEED TO GET OFF THEIR ASS.

> AAGELOUL@...

>

> [low dose naltrexone] pain meds

>

>

> can anyone tell me what the strongest pain meds

> are that can be

> taken with LDN?

> I don't want to stop LDN but i need something

> strong for my bank

> pain. over the counter meds just don't do it

> for me. for

> instance, is darvocet ok? any suggestions will be

> appreciated.

>

> thanks,

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

In a message dated 11/17/2005 5:57:56 P.M. Eastern Standard Time,

millie_miller@... writes:

Dr. does not even take Insurance and for me will not write Pain Meds.

My other local Doctor writes me one Viacoden 3x day. Oh Boy. Big whoop.

I use them like they are gold. Most of the time I just hurt like a

sonofagun.

That's a shame some doctors are not more sensitive ! Good grief ..I call

those kind of doctors 'pain nazis' ! I betcha if some of their loved ones or

themselves had pain they wouldn't be taking 'advil' or some such nonsense !

Just

my opinion on that subject ;-)

[Guest guest]

Dr. does not even take Insurance and for me will not write Pain Meds.

My other local Doctor writes me one Viacoden 3x day. Oh Boy. Big whoop.

I use them like they are gold. Most of the time I just hurt like a sonofagun.

KATL1957@... wrote:

In a message dated 11/17/2005 8:34:03 A.M. Eastern Standard Time,

swimmingwithfish@... writes:

Pain causes an unexpected brain drain, according to a new study in which the

brains of people with chronic backaches were up to 11 percent smaller than

those of non-sufferers.

[Guest guest]

I take Tramodol almost daily to help with the pain at this point,

particularly at night. I seem to get stiffer and stiffer (and sorer

and sorer) the longer I'm in bed. That helps without making me too

drowsy most of the time. When the pain is worse, I take Percocet.

But before I was on prednisone to take the inflamation down, it didn't

matter WHAT I took... 2 Percocet didn't begin to touch the pain. Now

the plan is to find maintenance drugs that can keep the inflamation

down and get me off the prednisone. It hasn't happened yet, and we're

working on drug combination #4, but my rheumatologist promises me we

will!<g>

>

>

> I am going to see my DR. tomorrow and I am going to ask him for some

> pain meds. Does anyone take a pain med that works? I take Darvocet

and

> it dose not work .

>

> Thanks

>

> Janet IN IL

>

>

>

>

[Guest guest]

Jan, You may already have seen your doc. but I take

Vicodin. I think it works for the pain better than

darvocet, which also tends to make me feel icky.

melanie

--- jan <smokey61080@...> wrote:

>

> I am going to see my DR. tomorrow and I am going to

> ask him for some

> pain meds. Does anyone take a pain med that works? I

> take Darvocet and

> it dose not work .

>

> Thanks

>

> Janet IN IL

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

>

[Guest guest]

From what I can find out, that's the $64,000 question! In the beginning,

Prednisone did the most good, but I've graduated from there. I've tried

Ultram, Vicodin, Lortab, and others I can't remember, and now MS Contin

(morphine sulphate). None of them really takes the pain away, some just take

the edge off and others don't do anything. I didn't think the MS Contin was

helping until I missed a dose. Boy, was it working! It still doesn't get all

the pain, but does make a big difference. When I saw the doc this week, I

tried for something to help, but was turned down flat. " Nothing is going to

get it all " , or so they say. Good luck with your quest. If you get any good

answers, I'd like to know.

Dennis

[ ] Pain meds

>

> I am going to see my DR. tomorrow and I am going to ask him for some

> pain meds. Does anyone take a pain med that works? I take Darvocet and

> it dose not work .

>

> Thanks

>

> Janet IN IL

[Guest guest]

>

> From what I can find out, that's the $64,000 question! In the

beginning,

> Prednisone did the most good, but I've graduated from there. I've

tried

> Ultram, Vicodin, Lortab, and others I can't remember, and now MS

Contin

> (morphine sulphate). None of them really takes the pain away, some

just take

> the edge off and others don't do anything. I didn't think the MS

Contin was

> helping until I missed a dose. Boy, was it working! It still

doesn't get all

> the pain, but does make a big difference. When I saw the doc this

week, I

> tried for something to help, but was turned down flat. " Nothing is

going to

> get it all " , or so they say. Good luck with your quest. If you get

any good

> answers, I'd like to know.

>

> Dennis

Looks like everyone has tried everything I will have to see what he

will give me tomorrow. let you all know. I have been on some of the

pain med that most of you have and they did not work for me alwell

but I will ask him aboutTramador and Talwin and I think Ultram I

have not tried them yet. again thanks everyone.

Janet IN IL

>

> [ ] Pain meds

>

>

> >

> > I am going to see my DR. tomorrow and I am going to ask him for

some

> > pain meds. Does anyone take a pain med that works? I take

Darvocet and

> > it dose not work .

> >

> > Thanks

> >

> > Janet IN IL

>

[Guest guest]

I take Vicoprofen, but when I got to 8 a day, I was moved to Combunox - now

I take 2 or 2 1/2 of the Combunox a day and about 3 1/2 Vicoprofen. I hate

the fact that these are narcotic medications, but they do help.

Re: [ ] Pain meds

Jan, You may already have seen your doc. but I take

Vicodin. I think it works for the pain better than

darvocet, which also tends to make me feel icky.

melanie

--- jan <smokey61080@...> wrote:

>

> I am going to see my DR. tomorrow and I am going to

> ask him for some

> pain meds. Does anyone take a pain med that works? I

> take Darvocet and

> it dose not work .

>

> Thanks

>

> Janet IN IL

[Guest guest]

try Oxycodone...it works for me, '

__________________________________________________

[Guest guest]

Oxycodone is one of the ingredients in several of the prescription pain

killers already mentioned. Percoset has it I believe. It's in the Combunox

that I take. Vicoden also.

Re: [ ] Pain meds

try Oxycodone...it works for me, '