Guest guest Posted March 28, 2008 Report Share Posted March 28, 2008 Wow,.......You've been through a lot. I guess I'm lucky my rhuematologist has arthritis herself and understands what it's like to be in pain. It was a god send me finding her. After the first consultation she was more than willing to prescibe me pain meds to help deal with this. Celeste Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2008 Report Share Posted March 29, 2008 Celeste We are both lucky My rheumy actually has PA so I am double lucky. It is so great when the physician can truly relate to your problem. <msnancyanne@...> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 , I found her through my aunt who has severe fibromyalgia. I had went to one rheumatologist who basically told me he thought I had lupus but since I didn't show all the signs he wasn't sure. He offered no additional testing and blew me off telling me if the pain gets worse come back. I went to my PCP 6 weeks later and told him I was fed up with it all and really pissed about being blew off and I couldn't take the pain any longer. He suggest another opinion and I talked to my aunt about where she went and decided to try them. It's a specialty clinic that deals with a lot of cutting edge stuff and even does a lot of clinical testing. I am so thankful I haven't had to deal with all the crap that alot have it's just so sad that some have to go through such stuff. Celeste Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 Yes I know about the pain thing, all I get is some Hydrcodone and some Lyrica! I just want to feel half way normal again! Bill Middleton <middleton.bill@...> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2008 Report Share Posted March 31, 2008 Tracey - I used to take Ultram at night and sometimes during the day. It didn't make me as " looped " as Percocet and meds like it, and I could tolerate it better than most morphine-based drugs. I finally stopped using it because it gave me migraines. Go figure! Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2008 Report Share Posted August 18, 2008 Dr. Skip Lenz has said Darvocet is compatible with LDN. I believe Crystal will vouch for this. Art -- > > I spoke with a prescriber today that that is both a Naturopath and a MD he said he had good success with LDN on MS patients but that it was not as effective on lung cancer. My wife who has severe arthritis takes Vicadin and Hydrocodone this Doctor who is also trained in pain management said there is nothing that would replace these narcotics to relieve her pain and that LDN would not be best for her. He refered me to another Naturopath who specializes in cancer > Lon > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2008 Report Share Posted August 19, 2008 Yes thats true Art...I take Darvocet with LDN and Dr Skip had told me it was ok... Hugs & Blessings, Crystal LDN_Users Group Owner Diagnosed November 2004 with Secondary Progressive MS, Transverse Myelitis and an Advocate for LDN!! 2 years & 11 months on LDN with Skip's Pharmacy..... Crystal's MS,TM & LDN Website Crystal's LDN Gift Shop Crystal's LDN Support Group Skip's Compounding Pharmacy LDN Website [low dose naltrexone] Re: Pain meds Dr. Skip Lenz has said Darvocet is compatible with LDN. I believe Crystal will vouch for this.Art-->> I spoke with a prescriber today that that is both a Naturopath and a MD he said he had good success with LDN on MS patients but that it was not as effective on lung cancer. My wife who has severe arthritis takes Vicadin and Hydrocodone this Doctor who is also trained in pain management said there is nothing that would replace these narcotics to relieve her pain and that LDN would not be best for her. He refered me to another Naturopath who specializes in cancer> Lon> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2008 Report Share Posted August 19, 2008 I'm just curious. It's a relief to know there's a painkiller that we can take but, why is it okay to take Darvocet? Isn't it an opiate like Percocet,Vicodin, etc.? Thanks. Toni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2008 Report Share Posted August 19, 2008 If I'm not mistaken, Darvocet is a very weak opoid combined with Acetaminophen. [Tough to spell] That may be the reason it can be used/ [low dose naltrexone] Re: Pain meds I'm just curious. It's a relief to know there's a painkiller that we can take but, why is it okay to take Darvocet? Isn't it an opiate like Percocet,Vicodin, etc.?Thanks.Toni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2008 Report Share Posted August 19, 2008 That has always been my question. You should ask Skip Lenz. Art -- > > I'm just curious. It's a relief to know there's a painkiller that we > can take but, why is it okay to take Darvocet? Isn't it an opiate > like Percocet,Vicodin, etc.? > > Thanks. > Toni > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2008 Report Share Posted August 19, 2008 Excuse me but I had a bad reaction with darvon and LDN, I was on darvon (without the tylenol) for like 5 years or so daily and went off it for just 3 days as rec'd by pharmacist before LDN and I had a h@#ll of a ride after that, had to go off LDN and reapproach it later after more time had gone by. It must be a very individual thing, for me darvon was very potent, maybe the equivalent of someone else taking oxycontin. I have chemically sensitivity cfs/fm and am sensitive to all meds, but darvon was one thing I could tolerate and take for pain. For some people it might seem lightweight or uneffective for me it really worked, and I had more than one pharmacist try to argue with me about that because for some reason I dont know if it was based on good research or normies who can handle lots of drugs easily, but mainstream word is that darvon isnt that effective for pain-UNTRUE for me, it worked as well as vicodan and better than neurotin and ultram or ssris etc for me none of which I could tolerate. I think it really depends on the person and their physiology. I would recommend trying darvon with caution with LDN because if you are sensitive like me you might feel horrible, of course trying it once isnt the same as coming off it after years of daily use. If LDN doesnt work out for me though I would go back on darvon, I didnt build the tolerance and it helped my pain and fatigue. I just want to see if there is something more curative, LDN, than regular pain meds. The thing about old school pain meds like darvon/propoxyphene, they are easier for the body to break down it doesnt effect p450 system like so many of the newer meds, its a shame what pharmaceuticals do for me money but i digress. > > > > I'm just curious. It's a relief to know there's a painkiller that we > > can take but, why is it okay to take Darvocet? Isn't it an opiate > > like Percocet,Vicodin, etc.? > > > > Thanks. > > Toni > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2008 Report Share Posted August 19, 2008 thats cool you can handle it crystal, must be tht individul difference, when I did my initial research I saw there was one person tht felt it potentiated small dose of pain med. Its hard for me to beleive there is that big of a difference between darvon and darvocet, I was on darvocet for most of the last 5 years and switched to darvon a couple year ago because tylenol does nothing for me and I had hit the maximum lifetime exposure of tylenol, acute exposure to tylenol isnt the only danger, be careful with how many years you take it. I am still abit cranky at times though from going off the darvon haha sort of like jack black in tropic thunder. The LDN is gettin easier to tolerate though and works just as well on pain for me most of the time as the darvon did. > > > > > > I'm just curious. It's a relief to know there's a painkiller that we > > > can take but, why is it okay to take Darvocet? Isn't it an opiate > > > like Percocet,Vicodin, etc.? > > > > > > Thanks. > > > Toni > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2008 Report Share Posted August 19, 2008 Darvon and Darvocet are two different pain medications. Art -- -- In low dose naltrexone , " kim.doll70 " <kim.doll70@...> wrote: > > Excuse me but I had a bad reaction with darvon and LDN, I was on > darvon (without the tylenol) for like 5 years or so daily and went off > it for just 3 days as rec'd by pharmacist before LDN and I had a h@#ll > of a ride after that, had to go off LDN and reapproach it later after > more time had gone by. > It must be a very individual thing, for me darvon was very potent, > maybe the equivalent of someone else taking oxycontin. I have > chemically sensitivity cfs/fm and am sensitive to all meds, but darvon > was one thing I could tolerate and take for pain. For some people it > might seem lightweight or uneffective for me it really worked, and I > had more than one pharmacist try to argue with me about that because > for some reason I dont know if it was based on good research or > normies who can handle lots of drugs easily, but mainstream word is > that darvon isnt that effective for pain-UNTRUE for me, it worked as > well as vicodan and better than neurotin and ultram or ssris etc for > me none of which I could tolerate. > I think it really depends on the person and their physiology. > > I would recommend trying darvon with caution with LDN because if you > are sensitive like me you might feel horrible, of course trying it > once isnt the same as coming off it after years of daily use. > > If LDN doesnt work out for me though I would go back on darvon, I > didnt build the tolerance and it helped my pain and fatigue. I just > want to see if there is something more curative, LDN, than regular > pain meds. The thing about old school pain meds like > darvon/propoxyphene, they are easier for the body to break down it > doesnt effect p450 system like so many of the newer meds, its a shame > what pharmaceuticals do for me money but i digress.--- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2008 Report Share Posted August 20, 2008 Yes because Dr Skip explained to me that Darvocet is pretty much like taking Tylenol but a little stronger. Hugs & Blessings, Crystal LDN_Users Group Owner Diagnosed November 2004 with Secondary Progressive MS, Transverse Myelitis and an Advocate for LDN!! 2 years & 10 months on LDN with Skip's Pharmacy..... Crystal's MS,TM & LDN Website Crystal's LDN Gift Shop Crystal's LDN Support Group Skip's Compounding Pharmacy LDN Website [low dose naltrexone] Re: Pain meds I'm just curious. It's a relief to know there's a painkiller that we can take but, why is it okay to take Darvocet? Isn't it an opiate like Percocet,Vicodin, etc.?Thanks.Toni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2008 Report Share Posted August 20, 2008 Crystal how much can you take of the darvocet with LDN if you don't mind saying doses (and how much LDN?) for me 60mg of darvon is no stronger than 100mg of darvocet. The amount of darvon in the darvocet is about the same as one 60mg darvon so I don't see what dif it would make.......I used them interchangeably. I know Skip doesnt think highly of darvocet or darvon for pain, he thinks tylenol just as good. Like I said though I can vouch for there being a big differene for me, if I would have had tpo rely on tylenol for my pain help in the past, well I would have been SOL. > > Yes because Dr Skip explained to me that Darvocet is pretty much like taking Tylenol but a little stronger. > > > Hugs & Blessings, > Crystal > LDN_Users Group Owner > > Diagnosed November 2004 with Secondary Progressive MS, Transverse Myelitis and an Advocate for LDN!! 2 years & 10 months on LDN with Skip's Pharmacy..... > > > Crystal's MS,TM & LDN Website > > Crystal's LDN Gift Shop > Crystal's LDN Support Group > > > > [low dose naltrexone] Re: Pain meds > > I'm just curious. It's a relief to know there's a painkiller that we > can take but, why is it okay to take Darvocet? Isn't it an opiate > like Percocet,Vicodin, etc.? > > Thanks. > Toni > > > > Skip's Compounding Pharmacy > > LDN Website > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2008 Report Share Posted August 31, 2008 Dorothy, Thank you for your story, if one person is helped with your information what an acomplishment that will be. I admire you. in PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2008 Report Share Posted August 31, 2008 Thanks, . It's not a story that I share without a great deal of thought and my hope is that someone will see a similar pattern and question their course of treatment. I appreciate your post. Dorothy _____ From: [mailto: ] On Behalf Of McNally Sent: Sunday, August 31, 2008 3:15 PM Subject: Re: [ ] Pain Meds Dorothy, Thank you for your story, if one person is helped with your information what an acomplishment that will be. I admire you. in PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2008 Report Share Posted August 31, 2008 I'm new to this group. I was just diagnosed with RA and fibromyalgia. Though my doc had suspected the RA it was confirmed with an MRI. My pain doctor has been trying out different meds for a while. I appreciate your story because that's how I felt for awhile. I hated going to my pain doc and telling him the meds weren't working. I felt like he thought I was lying just to get more meds or stronger ones. I started exercising and eating better and I noticed that when I changed my lifestyle I started to feel better. I still take Lortab and Darvocat but I don't get anxious at the end of the month like I used to. > > , I started to worry as soon as I filled my RX that I would run out too > soon. I was taking Vicoprofen and Combunox (oxycodone) for a little over 2 > years. > > > > I started on the Vics and when they weren't working all that well any more, > the Combunox was added for " breakthrough " pain. Well, I was then taking > both of them every day and as we all know, after a while, you just need more > and more to get the same relief. > > > > I became a wreck. As I said, I knew that as the month wore on, I'd start > running out. My insurance company wouldn't approve renewals before 30 days > and the doctor did increase dosages a few times, but it was evident that I > had a problem. I started scheduling my life around my prescriptions! If it > was the end of the month, I knew I probably couldn't go to that birthday > party coming up or plan an outing with friends. > > > > My doctor started cracking down. Although I was prescribed a 30- day supply, > if the RX was filled on the 15th of the month, he would not give me another > RX until the 16th of the next month even if that was actually 31 or 32 days > for instance. I was told...you have to make do. That put me into a panic. > > > > When I got to the point where I was becoming confused and had trouble > thinking, I knew that I had to do something. I contacted a friend's > therapist and asked for help. He referred me to an MD that handled > addiction. I felt that I wasn't a " drug addict, " but knew I had a serious > problem that was only getting worse every month. > > > > I saw the doctor and explained my situation. He put me on a medication, > Suboxone, that is used to treat addicts. He told me that I would feel > better than I have in a long, long time. Well, he was right! I can't say > enough good things about this medication and if there's anyone here who > finds themselves in a similar situation, please look into it. Within a day > of switching from the pain meds to Suboxone, I felt like a new person. My > friends saw the difference immediately. > > > > This medication has some pain relieving properties and I still struggle with > pain. Many days, I take Ibuprofen several times during the day. But the > change in my mental and emotional balance is amazing. As I said, I am so > thankful to be able to live normally again. > > > > Suboxone is addicting, just as the pain meds are; however, it doesn't have > the same effect and there is a point (32 mg I think) where taking more has > no more effect. I only take 8 mg a day. It also contains an opiate > antagonist which will make you ill if you take pain meds at the same > time...this obviously is to keep drug addicts from going back to drugs. > > > > I am telling this story since I would imagine that there is someone reading > this who may be in a situation much like mine. I am telling this story in > the hopes that it will help someone else get out of that life of anxiety. > If anyone wants to chat about this off-list, please feel free to e- mail me > at dorv@... and I'll be glad to discuss it. > > > > I am hoping that one day, the level of my pain will be such that I can > slowly stop using this medication. But until that time, I am not dependent > on meds that were controlling my life. I am now in control of my life and > that's how it should be for everyone. > > > > , glad to hear that you're out of the way of Gustav and hope everyone in > that area is safe and sound. > > > > Dorothy > > > > _____ > > From: [mailto:RA- SUPPORT ] On > Behalf Of bella_1180 > Sent: Friday, August 29, 2008 9:57 PM > > Subject: [ ] Dorothy & Dodge Re: Good Vibes and Prayers, Please? > > > > Hi you all.. > > I know I am a tad late in responding, but its been quite a week. Fay flooded > my house, so until repairs are made, I'm staying with my sister and her > family. Don't want to chance a flare. And then I had my fantastic picc line > put in yesterday and my rituxan treatment today. > > Anyhow, getting back to the post. I know what you mean about getting > nervous. Everytime, I've had to mention upping any med I get a major panic > attack and my bp sky rockets. One of my past gp told me when I asked for a > refill on my lortab, that he just gave me plenty the month and a half prior. > Ever since then, I have been a wreck and lots of times I used to just suffer > so I didnt have to ask for anymore. My rhuemy is very good to me, so I don't > have that problem. But I still do get nervous. > > > Central FL > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2008 Report Share Posted August 31, 2008 That's terrific! Lifestyle has so much to do with how we feel and can make a huge difference in our health. More power to you! I hope you might inspire some of us..me included...to make some positive changes. _____ From: [mailto: ] On Behalf Of Joanna Sent: Sunday, August 31, 2008 4:45 PM Subject: [ ] Re: Pain Meds I'm new to this group. I was just diagnosed with RA and fibromyalgia. Though my doc had suspected the RA it was confirmed with an MRI. My pain doctor has been trying out different meds for a while. I appreciate your story because that's how I felt for awhile. I hated going to my pain doc and telling him the meds weren't working. I felt like he thought I was lying just to get more meds or stronger ones. I started exercising and eating better and I noticed that when I changed my lifestyle I started to feel better. I still take Lortab and Darvocat but I don't get anxious at the end of the month like I used to. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2008 Report Share Posted August 31, 2008 I think the change in my lifestyle has actually changed my mood. I feel better by doing these things because I have the control to do something about RA. Sounds silly but it's helped. I still rely on medications but not as much as before. I was pretty down for a while before the DX because nobody seemed to know what was wrong or how I felt. I felt defeated but now I have a better outlook. > > That's terrific! Lifestyle has so much to do with how we feel and can make > a huge difference in our health. > > > > More power to you! I hope you might inspire some of us..me included...to > make some positive changes. > > > > _____ > > From: [mailto:RA- SUPPORT ] On > Behalf Of Joanna > Sent: Sunday, August 31, 2008 4:45 PM > > Subject: [ ] Re: Pain Meds > > > > I'm new to this group. I was just diagnosed with RA and fibromyalgia. > Though my doc had suspected the RA it was confirmed with an MRI. My > pain doctor has been trying out different meds for a while. I > appreciate your story because that's how I felt for awhile. I hated > going to my pain doc and telling him the meds weren't working. I felt > like he thought I was lying just to get more meds or stronger ones. I > started exercising and eating better and I noticed that when I > changed my lifestyle I started to feel better. I still take Lortab > and Darvocat but I don't get anxious at the end of the month like I > used to. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2008 Report Share Posted August 31, 2008 Joanna; Welcome to the group. I am so glad to hear someone doing better with RA. It is such a debilitating disease. I promise if I could move I would be glad to exercise. I promise myeself that. I am in so much pain I cant walk or do anything. I am ok as long as I sit still. I am taking prednisone among other meds to help. Nothing helps but the prednisone. I start humira injections soon. I hope it works out for me to stop being in so much pain. gentle hugs Clora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2008 Report Share Posted September 25, 2008 I have been on Tramadol now for about 6 years along with some other pain meds. Tramadol is great for nerve pain but the time release pills is what messes most people up. If you are using the band name version see if you can get him to let you try the generic version its a lot better From: @B & B <bbhorsetack@...> Subject: pain meds spinal problems Date: Thursday, September 25, 2008, 7:40 PM Hi you all. I was the one who raised the question on Tramadol. I found it horrible... nightmares. Now I am gonna go to a pain clinic on Monday. errr do I tell them the truth??? or do I say my pain is worse than it is???? It is pretty bad, I do not sleep at night very often, but, golly gee....I can deal with it during the day, night... NOT. I am getting old I guess. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2008 Report Share Posted September 25, 2008 ,  I regret not using a higher number on the pain scale to describe my pain. You see, I have felt incredibly excruciating pain in my short 30 years. Not only have I given birth three times with no drugs but I've had a horrible back since I was 15 including six surgeries and I've also had three spinal headaches and had the whole outside layer of my cornea scraped off completely. So, a 4 on the pain scale to me means something very different than to a man who's never given birth or experienced great pain. I was thinking that we should go by how much the pain limits or affects our lives. Sometimes I think that if I had given a pain scale number based on what a 4 is to them I would have gotten more meds. I would have probably said a seven. Also, since I worked with my current pain docs in the OR, they would see me at work limping around, but doing all sorts of work and keeping up. But that's me. I push myself. But to anesthesiologists who only started to do pain medecine because of the money, I doubt they were gonna give me much anyway. Though I know for a fact they prescribe some heavy duty stuff to other people. --- pain meds Hi you all. I was the one who raised the question on Tramadol. I found it horrible... nightmares. Now I am gonna go to a pain clinic on Monday. errr do I tell them the truth??? or do I say my pain is worse than it is???? It is pretty bad, I do not sleep at night very often, but, golly gee....I can deal with it during the day, night... NOT. I am getting old I guess. I had Transverse Myelitis. It is more of a nerve thing than a bone thing. I had a bad flu virus that convinced my antibodies to attack not only the flu bug but my " spine " as well. Had terrible back pain. Woke up one morning and I was paralyzed from the waist down... oh joy. Have recovered most of my functions. Pain re manins. You have about a 1/ in 3000000 chance of getting this thing.... could I win the lottery???? Got this " sucky " condition instead. It is not easy having a condition like " Transverse Myelitis " . They (Docs) gotta leave the " room " and go " look it up " ... just ask me.... I know all about it.... Just do not know about pain meds. in NH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2008 Report Share Posted September 25, 2008 Yeah, the generic is a lot cheaper too. Just no extended release which is fine with me because it lasts longer them percocet, usually I get about 5 hours, sometimes more. --- pain meds spinedisorderssuppo rtgroup@gro ups.com Date: Thursday, September 25, 2008, 7:40 PM Hi you all. I was the one who raised the question on Tramadol. I found it horrible... nightmares. Now I am gonna go to a pain clinic on Monday. errr do I tell them the truth??? or do I say my pain is worse than it is???? It is pretty bad, I do not sleep at night very often, but, golly gee....I can deal with it during the day, night... NOT. I am getting old I guess. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2008 Report Share Posted September 25, 2008 IF IF IF you are going to a dr you trust....tell the truth....if you have to ask....change drs!!! seriously, a good pain dr hears what you tell him/her and their job is to know what would work for your issue. They are also willing to try something, know it doesn't work and try something else. I have been on norco and tried other stuff that didn't work for me. We just watch my norco intake as well as my ambien (not CR...I personally didn't like the side affects)....everyone is different and a pain dr knows that. > > Hi you all. I was the one who raised the question on Tramadol. I found it horrible... nightmares. Now I am gonna go to a pain clinic on Monday. errr do I tell them the truth??? or do I say my pain is worse than it is???? It is pretty bad, I do not sleep at night very often, but, golly gee....I can deal with it during the day, night... NOT. I am getting old I guess. > > I had Transverse Myelitis. It is more of a nerve thing than a bone thing. I had a bad flu virus that convinced my antibodies to attack not only the flu bug but my " spine " as well. Had terrible back pain. Woke up one morning and I was paralyzed from the waist down... oh joy. Have recovered most of my functions. Pain re manins. You have about a 1/ in 3000000 chance of getting this thing.... could I win the lottery???? Got this " sucky " condition instead. It is not easy having a condition like " Transverse Myelitis " . They (Docs) gotta leave the " room " and go " look it up " ... just ask me.... I know all about it.... Just do not know about pain meds. > > in NH > > > Quote Link to comment Share on other sites More sharing options...
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