Pain Meds

[Guest guest]

Just an FYI... Norco aka Vicodin is very low on the opiate list. It's only one

up from Tylenol #3 aka tylenol with codeine. I It isn't very strong as far as

opiates go, so you shouldn't have too much trouble getting the docs to prescribe

it. Just try to take the least amount possible to take the edge off and make it

bearable. If you take enough to take the pain away completely, that's usually

when you will start to develop tolerance faster. If you keep an open dialogue

with your doc and tell him that you are only using the least amount necessary to

take edge off, they will HOPEFULLY see that you are being responsible with it

and will continue to prescribe it. ---

spinal problems

Sent: Thursday, September 25, 2008 10:33:40 PM

Subject: Re: pain meds

IF IF IF you are going to a dr you trust....tell the truth....if you

have to ask....change drs!!! seriously, a good pain dr hears what you

tell him/her and their job is to know what would work for your issue.

They are also willing to try something, know it doesn't work and try

something else. I have been on norco and tried other stuff that

didn't work for me. We just watch my norco intake as well as my

ambien (not CR...I personally didn't like the side

affects).... everyone is different and a pain dr knows that.

>

> Hi you all. I was the one who raised the question on Tramadol. I

found it horrible... nightmares. Now I am gonna go to a pain clinic on

Monday. errr do I tell them the truth??? or do I say my pain is worse

than it is???? It is pretty bad, I do not sleep at night very often,

but, golly gee....I can deal with it during the day, night... NOT. I

am getting old I guess.

>

> I had Transverse Myelitis. It is more of a nerve thing than a bone

thing. I had a bad flu virus that convinced my antibodies to attack

not only the flu bug but my " spine " as well. Had terrible back pain.

Woke up one morning and I was paralyzed from the waist down... oh

joy. Have recovered most of my functions. Pain re manins. You have

about a 1/ in 3000000 chance of getting this thing.... could I win the

lottery???? Got this " sucky " condition instead. It is not easy having

a condition like " Transverse Myelitis " . They (Docs) gotta leave the

" room " and go " look it up " ... just ask me.... I know all about it....

Just do not know about pain meds.

>

> in NH

>

>

>

[Guest guest]

I have been seeing my PM doc for almost 8 months now, He started me out on

vicodin, and has increased the strength every month now when I see him. If you

have a good PM that understands they will know to increase your meds without you

asking, I have yet only had to suggest a few times, some type of increase, he

just comes into the exam room, takes one look at me and knows what to do, I

respect him very highly.

I wouldn't be shy about asking if I was you, if they can't see what you are

going thru, seems to me he's not much of a good PM doc,'

Just my thought though.

geo

Re: pain meds

IF IF IF you are going to a dr you trust....tell the truth.....if you

have to ask....change drs!!! seriously, a good pain dr hears what you

tell him/her and their job is to know what would work for your issue.

They are also willing to try something, know it doesn't work and try

something else. I have been on norco and tried other stuff that

didn't work for me. We just watch my norco intake as well as my

ambien (not CR....I personally didn't like the side

affects).... everyone is different and a pain dr knows that.

>

> Hi you all. I was the one who raised the question on Tramadol. I

found it horrible... nightmares. Now I am gonna go to a pain clinic on

Monday. errr do I tell them the truth??? or do I say my pain is worse

than it is???? It is pretty bad, I do not sleep at night very often,

but, golly gee....I can deal with it during the day, night... NOT. I

am getting old I guess.

>

> I had Transverse Myelitis. It is more of a nerve thing than a bone

thing. I had a bad flu virus that convinced my antibodies to attack

not only the flu bug but my " spine " as well. Had terrible back pain.

Woke up one morning and I was paralyzed from the waist down... oh

joy. Have recovered most of my functions. Pain re manins. You have

about a 1/ in 3000000 chance of getting this thing.... could I win the

lottery???? Got this " sucky " condition instead. It is not easy having

a condition like " Transverse Myelitis " .. They (Docs) gotta leave the

" room " and go " look it up " ... just ask me..... I know all about it....

Just do not know about pain meds.

>

> in NH

>

>

>

[Guest guest]

Its nice to have doctors like that, the one I have now and the one before him

was like that. But the reason I really like him the best , after all the things

we have tried he has yet to give up on finding some none medicine way to at

least help me get rid of some of the pain. Some of you that has been keeping up

knows how many things he has tried this year .Some of them didn¢t work and some

just backfired on us. But right now he is still, trying to find  ways to help me

, but during all this time he had made sure I get help with the pain. As you can

tell I really like him

rop patterson  ronpat0471@...

From: Lambert <glambert28@...>

Subject: Re: Re: pain meds

spinal problems

Date: Friday, September 26, 2008, 2:18 AM

I have been seeing my PM doc for almost 8 months now, He started me out on

vicodin, and has increased the strength every month now when I see him. If you

have a good PM that understands they will know to increase your meds without you

asking, I have yet only had to suggest a few times, some type of increase, he

just comes into the exam room, takes one look at me and knows what to do, I

respect him very highly.

I wouldn't be shy about asking if I was you, if they can't see what you are

going thru, seems to me he's not much of a good PM doc,'

Just my thought though.

geo

Re: pain meds

IF IF IF you are going to a dr you trust....tell the truth.....if you

have to ask....change drs!!! seriously, a good pain dr hears what you

tell him/her and their job is to know what would work for your issue.

They are also willing to try something, know it doesn't work and try

something else. I have been on norco and tried other stuff that

didn't work for me. We just watch my norco intake as well as my

ambien (not CR....I personally didn't like the side

affects).... everyone is different and a pain dr knows that.

>

> Hi you all. I was the one who raised the question on Tramadol. I

found it horrible... nightmares. Now I am gonna go to a pain clinic on

Monday. errr do I tell them the truth??? or do I say my pain is worse

than it is???? It is pretty bad, I do not sleep at night very often,

but, golly gee....I can deal with it during the day, night... NOT. I

am getting old I guess.

>

> I had Transverse Myelitis. It is more of a nerve thing than a bone

thing. I had a bad flu virus that convinced my antibodies to attack

not only the flu bug but my " spine " as well. Had terrible back pain.

Woke up one morning and I was paralyzed from the waist down... oh

joy. Have recovered most of my functions. Pain re manins. You have

about a 1/ in 3000000 chance of getting this thing.... could I win the

lottery???? Got this " sucky " condition instead. It is not easy having

a condition like " Transverse Myelitis " .. They (Docs) gotta leave the

" room " and go " look it up " ... just ask me..... I know all about it....

Just do not know about pain meds.

>

> in NH

>

>

>

[Guest guest]

I agree, it took me a long time to find this PM, very smart doc in my opinion.

I've had to deal with those that are more worried about their rep, than to be

treating their paitents properly and with dignity, I never saw my last PM, I was

seeing his assistant, which I caught her in a lie I might add, and she quickly

covered it up at my expense. He use to be the best before she came to work for

him, he was on the cutting edge of trigger point back then and very good at it,

but things change as usual.

geo

Re: pain meds

IF IF IF you are going to a dr you trust....tell the truth......if you

have to ask....change drs!!! seriously, a good pain dr hears what you

tell him/her and their job is to know what would work for your issue.

They are also willing to try something, know it doesn't work and try

something else. I have been on norco and tried other stuff that

didn't work for me. We just watch my norco intake as well as my

ambien (not CR.....I personally didn't like the side

affects).... everyone is different and a pain dr knows that.

>

> Hi you all. I was the one who raised the question on Tramadol. I

found it horrible... nightmares. Now I am gonna go to a pain clinic on

Monday. errr do I tell them the truth??? or do I say my pain is worse

than it is???? It is pretty bad, I do not sleep at night very often,

but, golly gee....I can deal with it during the day, night... NOT. I

am getting old I guess.

>

> I had Transverse Myelitis. It is more of a nerve thing than a bone

thing. I had a bad flu virus that convinced my antibodies to attack

not only the flu bug but my " spine " as well. Had terrible back pain.

Woke up one morning and I was paralyzed from the waist down... oh

joy. Have recovered most of my functions. Pain re manins. You have

about a 1/ in 3000000 chance of getting this thing.... could I win the

lottery???? Got this " sucky " condition instead. It is not easy having

a condition like " Transverse Myelitis " .. They (Docs) gotta leave the

" room " and go " look it up " ... just ask me...... I know all about it....

Just do not know about pain meds.

>

> in NH

>

>

>

[Guest guest]

lol, I've never experienced birth pain, but I have experienced passing kidney

stones, with a stent to my kidney to keep the stone from blocking it off, also

the stone he had to crush was the size of a 25 cent peice, does this qualify?

I really do respect you women who give natural child birth though, I could'nt

ever imagine that kind of pain, and would not want to anyway, but I do have to

give women the up most respect, you have my vote ladies.

geo

pain meds

Hi you all. I was the one who raised the question on Tramadol. I found it

horrible.... nightmares. Now I am gonna go to a pain clinic on Monday. errr do I

tell them the truth??? or do I say my pain is worse than it is???? It is pretty

bad, I do not sleep at night very often, but, golly gee....I can deal with it

during the day, night... NOT. I am getting old I guess.

I had Transverse Myelitis. It is more of a nerve thing than a bone thing. I had

a bad flu virus that convinced my antibodies to attack not only the flu bug but

my " spine " as well. Had terrible back pain. Woke up one morning and I was

paralyzed from the waist down... oh joy. Have recovered most of my functions.

Pain re manins. You have about a 1/ in 3000000 chance of getting this thing....

could I win the lottery???? Got this " sucky " condition instead. It is not easy

having a condition like " Transverse Myelitis " . They (Docs) gotta leave the

" room " and go " look it up " ... just ask me.... I know all about it..... Just do

not know about pain meds.

in NH

[Guest guest]

what is your docs' background and training? --

I want a doc like that here in New England!

Re: pain meds

IF IF IF you are going to a dr you trust....tell the truth.....if you

have to ask....change drs!!! seriously, a good pain dr hears what you

tell him/her and their job is to know what would work for your issue.

They are also willing to try something, know it doesn't work and try

something else. I have been on norco and tried other stuff that

didn't work for me. We just watch my norco intake as well as my

ambien (not CR....I personally didn't like the side

affects).... everyone is different and a pain dr knows that.

>

> Hi you all. I was the one who raised the question on Tramadol. I

found it horrible... nightmares. Now I am gonna go to a pain clinic on

Monday. errr do I tell them the truth??? or do I say my pain is worse

than it is???? It is pretty bad, I do not sleep at night very often,

but, golly gee....I can deal with it during the day, night... NOT. I

am getting old I guess.

>

> I had Transverse Myelitis. It is more of a nerve thing than a bone

thing. I had a bad flu virus that convinced my antibodies to attack

not only the flu bug but my " spine " as well. Had terrible back pain.

Woke up one morning and I was paralyzed from the waist down... oh

joy. Have recovered most of my functions. Pain re manins. You have

about a 1/ in 3000000 chance of getting this thing.... could I win the

lottery???? Got this " sucky " condition instead. It is not easy having

a condition like " Transverse Myelitis " .. They (Docs) gotta leave the

" room " and go " look it up " ... just ask me..... I know all about it....

Just do not know about pain meds.

>

> in NH

>

>

>

[Guest guest]

LOL! Thanks ! My OB/GYN passed a kidney stone in the ER while I was

delivering my first child. He said he went through labor with me...I'm sure it

comes close, but are we looking at the size ratios here??? ---

pain meds

Hi you all. I was the one who raised the question on Tramadol. I found it

horrible.... nightmares. Now I am gonna go to a pain clinic on Monday. errr do I

tell them the truth??? or do I say my pain is worse than it is???? It is pretty

bad, I do not sleep at night very often, but, golly gee....I can deal with it

during the day, night... NOT. I am getting old I guess.

I had Transverse Myelitis. It is more of a nerve thing than a bone thing. I had

a bad flu virus that convinced my antibodies to attack not only the flu bug but

my " spine " as well. Had terrible back pain. Woke up one morning and I was

paralyzed from the waist down... oh joy. Have recovered most of my functions.

Pain re manins. You have about a 1/ in 3000000 chance of getting this thing....

could I win the lottery???? Got this " sucky " condition instead. It is not easy

having a condition like " Transverse Myelitis " . They (Docs) gotta leave the

" room " and go " look it up " ... just ask me.... I know all about it..... Just do

not know about pain meds.

in NH

[Guest guest]

>

Clora,

I'm the same way. I only take meds, when I need them. It would be nice to go

without all these meds, but its not going to happen. It's just strange when

your family and friends hears another one passed, from overdose of prescription

drugs.

I feel its going to get worse, trying to get pain meds. It will be like getting

blood out of a turnip, not going to happen.

My two cents,

Tawny

> Tawny and WeaverWoman.......Thank you so much for those kind words Tawny. I

thinnk I have taken every kind of pain meds there is. I have taken morphine,

vicoden, darvacet, never got hooked. Feornal w/codeine, And yes steroids are

like heaven.

>

> I can't take the steroids they make me eat like a horse lol.key word is

doctor's scrips only. I took my meds as prescribed from my doctor. I think

hydrocodone is morphine. Never take someone elses meds. A doctor knows how to

prescribe their meds to the patient, so they don't get addicted, at least I hope

they do.

>

> I am on 4 darvacets a day. They work great. Seems like all meds have some side

affects. The darvacets will constapate ya. I use a vegetable powder. It helps

real good. I hope this helps Weaver. I guess it can depend on the person to

become addicted to pain pills. I took pain pills for pain, maybe thats the idea,

take pain pills for pain. Some people like the high feeling they get from pain

pills. I never liked the high feeling. Good luck on your pain

meds............Clora

>

[Guest guest]

Clora, Tawny,

Thank You for your opinion, when my DH heard the Rheumy prescribe Darvocet, I

got an earful (he comes from a family with Alchohol problems).

I am in the position that my family does not take the pain angle seriously,

(after 25 years of martial arts they think I am superwoman). I do not have the

noticeable swelling although I do get the stiffness and pain.

The problem I am having is I am getting no sleep due to the pain waking me up at

night ( for instance I couldn't have my knee tough the bed last night as it was

painful). I have been trying to hold off on the pain meds, but the arthritis

acetaminophen (650 mg x 2)is not cutting it anymore. I have a high threshold for

pain, but this is hard to do on no sleep.

Hate to be a complainer....

WeaverWoman

[Guest guest]

Weaver woman

you do what is right for you, the heck with anyone else.

No one needs to know, what you do for your sanity

Kathy

----- Original Message -----

[Guest guest]

Clora,

I take MS Contin and percocet for my pain. I do not deal well w/ pain. I rarely

get a " high " from my meds, but I would be lost w/o them. It helps me function

on a daily basis. My husband worries that I am addicted, but he doesn't

understand the contant pain that I deal w/ on a daily basis. I take my meds as

they are prescribed. The only thing that I worry about is builing up a tolerance

and having to up my meds.

Yeah, we deal with pain, but it's not what defines us. Pain is not who you are.

Feel better

>

> Tawny and WeaverWoman.......Thank you so much for those kind words Tawny. I

thinnk I have taken every kind of pain meds there is. I have taken morphine,

vicoden, darvacet, never got hooked. Feornal w/codeine, And yes steroids are

like heaven.

>

> I can't take the steroids they make me eat like a horse lol.key word is

doctor's scrips only. I took my meds as prescribed from my doctor. I think

hydrocodone is morphine. Never take someone elses meds. A doctor knows how to

prescribe their meds to the patient, so they don't get addicted, at least I hope

they do.

>

> I am on 4 darvacets a day. They work great. Seems like all meds have some side

affects. The darvacets will constapate ya. I use a vegetable powder. It helps

real good. I hope this helps Weaver. I guess it can depend on the person to

become addicted to pain pills. I took pain pills for pain, maybe thats the idea,

take pain pills for pain. Some people like the high feeling they get from pain

pills. I never liked the high feeling. Good luck on your pain

meds............Clora

>

[Guest guest]

Hi WeaverWoman,

You need to let your rheumy know. You just can't go on living in pain,

it will just make your life miserable. Trust me, we all go through, not

wanting to go on pain meds. I am doing a little better now, but you

just never know when Author will sneak up on you. I sure don't won't to

be without pain meds, when he visits.

Let your rheumy know all that is going on. He can also prescribe you

some sleep aid, if your having problems. I have Ambien, but I only take

it once in awhile. I spend many nights watching TV, and finally go to

bed in the early hours. The pain is always there, we just have to fight

it.

Your just not the same anymore, and your family will understand one day.

I was very strong, worked all the time, but its just not me anymore. My

family knows that now, and we can only do what our body allows us.

Take care, and keep moving,

Tawny

--- In , " s_knight2005 " <s_knight2005@...>

wrote:

>

> Clora, Tawny,

>

> Thank You for your opinion, when my DH heard the Rheumy prescribe

Darvocet, I got an earful (he comes from a family with Alchohol

problems).

>

> I am in the position that my family does not take the pain angle

seriously, (after 25 years of martial arts they think I am superwoman).

I do not have the noticeable swelling although I do get the stiffness

and pain.

>

> The problem I am having is I am getting no sleep due to the pain

waking me up at night ( for instance I couldn't have my knee tough the

bed last night as it was painful). I have been trying to hold off on the

pain meds, but the arthritis acetaminophen (650 mg x 2)is not cutting it

anymore. I have a high threshold for pain, but this is hard to do on no

sleep.

>

> Hate to be a complainer....

>

> WeaverWoman

>

[Guest guest]

Thanks Kathy,

I think I am going to do just that. If others can use this medication without

getting " hooked " I am sure I can too. Folks without this problem, just cannot

understand.

WeaverWoman

[Guest guest]

Thanks Tawny,

I really have appreciated your input,

WeaverWoman

[Guest guest]

Dear D Poirer,

I don't know your name, but am using your user name. You have come to the

right place and whomever said you need to see a doctor in pain management is

correct.

I think most of us feel pain in our joints and if we have fibromyalgia or

arthritis, it will be more difficult to deal with. That is a lot of pain

medication, but with an expert, you should be able to live a more normal life.

As for your doctor, it sounds like he should be brought up before the

Medical Board for your area. You just cannot abandon a patient as he has. I

had a doctor abandon me, but he was not my oncologist. There must be another

doctor who would see you to take care of your CML. There are agencies who

donate cancer meds, so there is no reason for you to be without your meds. Do

we have any patients on this list who could contact D and help her with her

problem - someone who lives in her area. You can contact her directly as well.

My dentist has a blood disease and from taking so many transfusions, he

suffers from iron overload. The doctors and nurses told him he was a drug

addict, that he couldn't be in that much pain. He had a conference with them

and told them more about his disease, as apparently he knew more than they did.

Have you considered acupunture. Some people swear by it, as well as hynoposis.

I don't know your solution, but these are merely suggestions. I hope you get

the help you need soon. You are not whining, I see it as a cry for help, but

since we are not doctors, we can only offer you our own experiences.

I had a lot of pain on Sprycel and perhaps you should change to something

else, something that is in a trial so you would not have the expense of paying

for the drugs for CML. There is an Ariad trial and also SKI 606, could you look

into those? Of course your local doctors may not be able to enroll you if they

are not specialist in CML. There drugs are normally obtained at research

hospitals until they are approved by the FDA and then anyone can prescribe them.

Once in a trial, your drugs would be furnished free as long as you took that

drug. I don't know if this helps you, but it is what I have experienced.

There are trials going on in San Francisco and Los Angeles, so you might

want to contact those medical centers, also you may want to contact the City of

Hope, but the last time I looked at their website, the doctors I saw were all

trained in transplants. I don't know which is closer to you or if you are able

to travel. There are also pilots who fly patients to their destination if they

are cancer patients. Corporate Angels also fly patients if you can make your

appointments at the same time as their flights. Just Google " aviation

charities " and you will come up with several avenues.

http://www.flyingmag.com/contactus/584/aviation-charities.html

Good luck and best wishes, we will keep the light on for you if you need

help.

Hands & hearts,

Lottie Duthu

[Guest guest]

wow thank you Lottie, My name is Dana I am sorry if i forgot that part. I will

happily try some of the suggestions you offered. I am at a loss at the doctor

situation but i figure if I sit here as long as i can and tolirate as much as i

can without the meds I will get sick enough to go through the R.R.and then maybe

I could get a little help. I saw a new GP a few days ago and I had never been

treated so bad in life! I didnt get through the door five min. and the nurse

came in asked me why i was there, I told her about my disease as much as she

would let me get out i told her all the meds I was coming off of told her I had

been peeing blood for a week and belived my liver to be enlarged and that point

she looked at me in disgust and left the room, my 14 year old daughter looked at

me and asked me why she treated me like that at that point i wasnt asking for

anything but alittle advise as what to do about all the things going on . the

doctor comes in tells me that she had no idea what i was tring to get away with

and that i didnt belong in her office that i needed to go check myself into a

rehab and went on and on how i was a bad person and and how this wasnt the place

for me. Ii ddidnt even ask her for anything. I had never felt \t as low as i

did at that moment. its was like someone decided I was no longer sick that i was

some pill seeking addict! that they made me into i never abused my meds i took

what was perscribed to me as I was supposed to. I just dont know what i did to

cause this. I have been in bed since at a loss. I have activly searched to help

myself and do to the lack of knowledg from the health care professionals in my

area I will not live out the rest of my life as long as most patients with cml

but maybe that was my purpose. Anyway that you for all the support and care i

hope to talk to you again soon love dana

>

> Dear D Poirer,

> I don't know your name, but am using your user name. You have come to the

right place and whomever said you need to see a doctor in pain management is

correct.

> I think most of us feel pain in our joints and if we have fibromyalgia or

arthritis, it will be more difficult to deal with. That is a lot of pain

medication, but with an expert, you should be able to live a more normal life.

> As for your doctor, it sounds like he should be brought up before the

Medical Board for your area. You just cannot abandon a patient as he has. I

had a doctor abandon me, but he was not my oncologist. There must be another

doctor who would see you to take care of your CML. There are agencies who

donate cancer meds, so there is no reason for you to be without your meds. Do

we have any patients on this list who could contact D and help her with her

problem - someone who lives in her area. You can contact her directly as well.

> My dentist has a blood disease and from taking so many transfusions, he

suffers from iron overload. The doctors and nurses told him he was a drug

addict, that he couldn't be in that much pain. He had a conference with them

and told them more about his disease, as apparently he knew more than they did.

Have you considered acupunture. Some people swear by it, as well as hynoposis.

I don't know your solution, but these are merely suggestions. I hope you get

the help you need soon. You are not whining, I see it as a cry for help, but

since we are not doctors, we can only offer you our own experiences.

> I had a lot of pain on Sprycel and perhaps you should change to something

else, something that is in a trial so you would not have the expense of paying

for the drugs for CML. There is an Ariad trial and also SKI 606, could you look

into those? Of course your local doctors may not be able to enroll you if they

are not specialist in CML. There drugs are normally obtained at research

hospitals until they are approved by the FDA and then anyone can prescribe them.

Once in a trial, your drugs would be furnished free as long as you took that

drug. I don't know if this helps you, but it is what I have experienced.

> There are trials going on in San Francisco and Los Angeles, so you might

want to contact those medical centers, also you may want to contact the City of

Hope, but the last time I looked at their website, the doctors I saw were all

trained in transplants. I don't know which is closer to you or if you are able

to travel. There are also pilots who fly patients to their destination if they

are cancer patients. Corporate Angels also fly patients if you can make your

appointments at the same time as their flights. Just Google " aviation

charities " and you will come up with several avenues.

http://www.flyingmag.com/contactus/584/aviation-charities.html

> Good luck and best wishes, we will keep the light on for you if you need

help.

> Hands & hearts,

> Lottie Duthu

>

>

[Guest guest]

Dana, my name is Peggy! I am so sorry to hear the way the nurse and doctor

treated you. I think sometimes people look @ us and just assume since we have

no visible handicaps that we are fine, but since my diagnosis of CML 16 months

ago I have learned never to judge people! What we go through is very real, and

although I am prescribed perocet for pain(!bone) pain my Onc is not a very

compassionate man. He tries to make me feel like there is something wrong with

me for having so many side effects for the very medicine that keeps us alive.

It's no wonder I take depression medicine. I just try and count my blessings

everyday. Hang in there because there is a lot of support out there. Best of

luck to you. Love. Peggy

Sent via BlackBerry from T-Mobile

[ ] Re: Pain Meds

wow thank you Lottie, My name is Dana I am sorry if i forgot that part. I will

happily try some of the suggestions you offered. I am at a loss at the doctor

situation but i figure if I sit here as long as i can and tolirate as much as i

can without the meds I will get sick enough to go through the R.R.and then maybe

I could get a little help. I saw a new GP a few days ago and I had never been

treated so bad in life! I didnt get through the door five min. and the nurse

came in asked me why i was there, I told her about my disease as much as she

would let me get out i told her all the meds I was coming off of told her I had

been peeing blood for a week and belived my liver to be enlarged and that point

she looked at me in disgust and left the room, my 14 year old daughter looked at

me and asked me why she treated me like that at that point i wasnt asking for

anything but alittle advise as what to do about all the things going on . the

doctor comes in tells me that she had no idea what i was tring to get away with

and that i didnt belong in her office that i needed to go check myself into a

rehab and went on and on how i was a bad person and and how this wasnt the place

for me. Ii ddidnt even ask her for anything. I had never felt \t as low as i

did at that moment. its was like someone decided I was no longer sick that i was

some pill seeking addict! that they made me into i never abused my meds i took

what was perscribed to me as I was supposed to. I just dont know what i did to

cause this. I have been in bed since at a loss. I have activly searched to help

myself and do to the lack of knowledg from the health care professionals in my

area I will not live out the rest of my life as long as most patients with cml

but maybe that was my purpose. Anyway that you for all the support and care i

hope to talk to you again soon love dana

>

> Dear D Poirer,

> I don't know your name, but am using your user name. You have come to the

right place and whomever said you need to see a doctor in pain management is

correct.

> I think most of us feel pain in our joints and if we have fibromyalgia or

arthritis, it will be more difficult to deal with. That is a lot of pain

medication, but with an expert, you should be able to live a more normal life.

> As for your doctor, it sounds like he should be brought up before the

Medical Board for your area. You just cannot abandon a patient as he has. I

had a doctor abandon me, but he was not my oncologist. There must be another

doctor who would see you to take care of your CML. There are agencies who

donate cancer meds, so there is no reason for you to be without your meds. Do

we have any patients on this list who could contact D and help her with her

problem - someone who lives in her area. You can contact her directly as well.

> My dentist has a blood disease and from taking so many transfusions, he

suffers from iron overload. The doctors and nurses told him he was a drug

addict, that he couldn't be in that much pain. He had a conference with them

and told them more about his disease, as apparently he knew more than they did.

Have you considered acupunture. Some people swear by it, as well as hynoposis.

I don't know your solution, but these are merely suggestions. I hope you get

the help you need soon. You are not whining, I see it as a cry for help, but

since we are not doctors, we can only offer you our own experiences.

> I had a lot of pain on Sprycel and perhaps you should change to something

else, something that is in a trial so you would not have the expense of paying

for the drugs for CML. There is an Ariad trial and also SKI 606, could you look

into those? Of course your local doctors may not be able to enroll you if they

are not specialist in CML. There drugs are normally obtained at research

hospitals until they are approved by the FDA and then anyone can prescribe them.

Once in a trial, your drugs would be furnished free as long as you took that

drug. I don't know if this helps you, but it is what I have experienced.

> There are trials going on in San Francisco and Los Angeles, so you might

want to contact those medical centers, also you may want to contact the City of

Hope, but the last time I looked at their website, the doctors I saw were all

trained in transplants. I don't know which is closer to you or if you are able

to travel. There are also pilots who fly patients to their destination if they

are cancer patients. Corporate Angels also fly patients if you can make your

appointments at the same time as their flights. Just Google " aviation

charities " and you will come up with several avenues.

http://www.flyingmag.com/contactus/584/aviation-charities.html

> Good luck and best wishes, we will keep the light on for you if you need

help.

> Hands & hearts,

> Lottie Duthu

>

>

[Guest guest]

For people who are living with chronic moderate to severe pain addiction is

the least of their worries. Constant pain triggers an adrenal/cardiac

syndrome which causes heart attack and death. Gee, is it worse to be

physically dependent on pain meds or to be dead..... I guess if you choose

to stick it out and die you don't have to deal with the

character assassination that goes with treatment.

On Wed, May 26, 2010 at 11:30 PM, kyriezen <mjkzendyk@...> wrote:

>

>

> I feel quite angry and frustrated about the attitude so many docs here in

> the U.S. have toward pain meds. They worry TOO much about " addiction " . For

> Pete's sake, I only take from 1-3 in a week. Sometimes not even THAT many.

> They should be worried about folks who take 20 a day!!! Are there still docs

> out there who don't mind prescibing them for people who really need them? I

> can't take Ultram (too bad, I have a bottle of 60)because it makes me throw

> up and itch. Next day, I have flu-like symptoms. Plus...I have to take TWO

> of those to get the relief that ONE Vicodin gives me.

>

>

>

[Guest guest]

HI karen from/Louisiana here!

We have seen a lot of addicts here in La. that's why so many dr's had to quit

writing rx's.or go to drugs that do not work well enough for me to work,or do my

chores(i live alone)

So... I take as few as I can.I always have a few leftover from each visit,I

have proven to all doubters that I can w/ draw from meds, (so not addicted) but

the pain is so severe, I can't keep up the false face. and I've been thru it

all. pt,ot,tinge,massage,mri's,x-rays.etc.

Now the pain dr's insist that a patient have insurance so they can charge

more for visit, do un necessary stuff to bill ins co. with.like the stuff above.

which doesn't help me. and I'm not going to have surgery until they get a lot

better or I get a lot worse.

No one can quite tell where FM, pinched nerves from spine disks,or arthritis.

but I've had problems all my life w/ pain.

Before I had pain meds, I was headed quickly to alcoholism. Until a lovely dr

prescribed for me. he had 2 son's my boy's age, and he killed himself. They say

it was from addiction to p[ain meds, i don't know.

I'm not addicted, but sure wish I could get stronger ones, that would allow me

to stand up and do dishes, cook for myself or a hundred other things a person

has to do for themselves.They don't care about that! k/la

>

> >

> >

> > I feel quite angry and frustrated about the 

> attitude so many docs here in

> > the U.S. have toward pain meds. They  worry TOO

> much about " addiction " .

> For

> > Pete's sake, I only take from  1-3 in a week.

> Sometimes not even THAT

> many.

> > They should be worried  about folks who take 20 a

> day!!! Are there still

> docs

> > out there who  don't mind prescibing them for

> people who really need

> them? I

> > can't  take Ultram (too bad, I have a bottle of

> 60)because it makes me

> throw

> >  up and itch. Next day, I have flu-like symptoms.

> Plus...I have to take 

> TWO

> > of those to get the relief that ONE Vicodin

> gives  me.

> >

> > 

> >

>

>

> [Non-text portions of this  message have been 

> removed]

>

>

>

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