Guest guest Posted November 24, 2009 Report Share Posted November 24, 2009 Hi Everyone This might seem a bit of an odd question, but can I ask how many of you are still with your original partners/husbands from when you were first diagnosed with CML? Or how many have found new partners/husbands? CML is not an easy disease to live with, psychologically or otherwise, nor the effects of medicine. I'm just wondering how many partners/husbands are strong or patient enough to cope with the day to day effects within a relationship. Thanking you all so much. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2009 Report Share Posted November 24, 2009 Excellent question Jackie... I'm still with my wife of 40 years. It has not been easy though. She is a polio survivor and our conflicting needs for a caregiver spouse have lead to some tough problems. Still hanging tough! Troxel On Mon, Nov 23, 2009 at 6:02 PM, Jackie Petropoulos <jackie@...>wrote: > > > Hi Everyone > > This might seem a bit of an odd question, but can I ask how many of you are > still with your original partners/husbands from when you were first > diagnosed with CML? Or how many have found new partners/husbands? > > CML is not an easy disease to live with, psychologically or otherwise, nor > the effects of medicine. > > I'm just wondering how many partners/husbands are strong or patient enough > to cope with the day to day effects within a relationship. > > Thanking you all so much. > > Jackie > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2009 Report Share Posted November 24, 2009 Actually CML made our relationship much closer (we have been together 10 years) I was DX'd 2007 Anita ________________________________ From: Jackie Petropoulos <jackie@...> Sent: Mon, November 23, 2009 8:02:16 PM Subject: RE: [ ] Relationships and CML Hi Everyone This might seem a bit of an odd question, but can I ask how many of you are still with your original partners/husbands from when you were first diagnosed with CML? Or how many have found new partners/husbands? CML is not an easy disease to live with, psychologically or otherwise, nor the effects of medicine. I'm just wondering how many partners/husbands are strong or patient enough to cope with the day to day effects within a relationship. Thanking you all so much. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2009 Report Share Posted November 24, 2009 I was dx late Aug 2007. I left our house in mid Sept 2007 and we got back together (late Nov.) Thanksgiving weekend 2007. The break was needed and helped each of us sort out priorities. We still have issues occasionally, related to his expectations and my actual abilities. Like, being very tired! So, I don't know about how strong we are, but we are still together. We have been doing some remodeling and we are living through that too. Tammy _____ From: Jackie Petropoulos [mailto:jackie@...] Sent: Monday, November 23, 2009 9:02 PM Subject: RE: [ ] Relationships and CML Hi Everyone This might seem a bit of an odd question, but can I ask how many of you are still with your original partners/husbands from when you were first diagnosed with CML? Or how many have found new partners/husbands? CML is not an easy disease to live with, psychologically or otherwise, nor the effects of medicine. I'm just wondering how many partners/husbands are strong or patient enough to cope with the day to day effects within a relationship. Thanking you all so much. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2009 Report Share Posted November 24, 2009 I think that's an excellent question! I assume I'm on my own from here on in. I was on my own when I was diagnosed, and found it awkward trying after that to share my life with someone else given some of the side effects. I miss the companionship of married life, but I'm grateful I don't have to think twice about it on the nights when I'm in my pajamas at 8 and conked out at 8:30! : - ) On Mon, Nov 23, 2009 at 6:02 PM, Jackie Petropoulos <jackie@...>wrote: > > > Hi Everyone > > This might seem a bit of an odd question, but can I ask how many of you are > still with your original partners/husbands from when you were first > diagnosed with CML? Or how many have found new partners/husbands? > > CML is not an easy disease to live with, psychologically or otherwise, nor > the effects of medicine. > > I'm just wondering how many partners/husbands are strong or patient enough > to cope with the day to day effects within a relationship. > > Thanking you all so much. > > Jackie > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2009 Report Share Posted November 24, 2009 Hi Jackie, I'm still with my wife. If it wasn't for her I wouldn't be here today. The Interferon side effects were disastrous to me, but the doctors insisted that it was simply side effects. The second time she brought me to emergency they again said take him home. She told them, " can't you see he is dying, I'm not taking him anywhere. Get someone who can figure it out. " One of the nasty side effects of Interferon is CHF (Congestive Heart Failure). An astute internist figured it out. Stopped the Interferon and I immediately improved. I know of many couples where one of the partners left soon after the CML diagnosis. Zavie Zavie (age 71) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 e-mail: zmiller@... Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 ID: zaviem _____ From: [mailto: ] On Behalf Of Jackie Petropoulos Sent: November 23, 2009 9:02 PM Subject: RE: [ ] Relationships and CML Hi Everyone This might seem a bit of an odd question, but can I ask how many of you are still with your original partners/husbands from when you were first diagnosed with CML? Or how many have found new partners/husbands? CML is not an easy disease to live with, psychologically or otherwise, nor the effects of medicine. I'm just wondering how many partners/husbands are strong or patient enough to cope with the day to day effects within a relationship. Thanking you all so much. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2009 Report Share Posted November 24, 2009 Zavie that is a completely amazing and rather terrifying story! On Mon, Nov 23, 2009 at 7:06 PM, Zavie <zmiller@...> wrote: > > > Hi Jackie, > > I'm still with my wife. If it wasn't for her I wouldn't be here today. The > Interferon side effects were disastrous to me, but the doctors insisted > that > it was simply side effects. The second time she brought me to emergency > they > again said take him home. She told them, " can't you see he is dying, I'm > not > taking him anywhere. Get someone who can figure it out. " > > One of the nasty side effects of Interferon is CHF (Congestive Heart > Failure). An astute internist figured it out. Stopped the Interferon and I > immediately improved. > > I know of many couples where one of the partners left soon after the CML > diagnosis. > > Zavie > > Zavie (age 71) > 67 Shoreham Avenue > Ottawa, Canada, K2G 3X3 > dxd AUG/99 > INF OCT/99 to FEB/00, CHF > No meds FEB/00 to JAN/01 > Gleevec since MAR/27/01 (400 mg) > CCR SEP/01. #102 in Zero Club > 2.8 log reduction Sep/05 > 3.0 log reduction Jan/06 > 2.9 log reduction Feb/07 > 3.6 log reduction Apr/08 > 3.6 log reduction Sep/08 > 3.7 log reduction Jan/09 > 3.8 log reduction May/09 > 3.8 log reduction Aug/09 > e-mail: zmiller@... <zmiller%40sympatico.ca> > Tel: 613-726-1117 > Fax: 613-482-4801 > Cell: 613-282-0204 > ID: zaviem > > _____ > > From: <%40> [mailto: > <%40>] On Behalf Of Jackie > Petropoulos > Sent: November 23, 2009 9:02 PM > > <%40> > Subject: RE: [ ] Relationships and CML > > > Hi Everyone > > This might seem a bit of an odd question, but can I ask how many of you are > still with your original partners/husbands from when you were first > diagnosed with CML? Or how many have found new partners/husbands? > > CML is not an easy disease to live with, psychologically or otherwise, nor > the effects of medicine. > > I'm just wondering how many partners/husbands are strong or patient enough > to cope with the day to day effects within a relationship. > > Thanking you all so much. > > Jackie > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2009 Report Share Posted November 24, 2009 I think how our spouses deal with our illness has more to do with how we deal with it than anything else. If it becomes a heavy burden to us, it'll be a heavy burden to them. For me personally, I don't think it's effected my marriage at all, neither for the better or the worse. Conversely, it hasn't really effected my life either, not in the grand scheme of things. I'm pretty much the same person I was before I got it. If anything, I'd say that I've actually become a happier person than I was before diagnosis since I've come to appreciate every moment I wake up on this side of the ground. When I think of the early days when members were dying left and right, either from the disease, or the post transplant effects, I can't help but count my blessings. Even when those blessings include diarrhea, nausea, puffy eyes, fatigue, muscle cramps and constant brain fog. I'm alive and I'm able to watch my kids grow up. That's all I could ever have hoped for 8 years ago when I was diagnosed. Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2009 Report Share Posted November 24, 2009 Well said Tracey! ~Romero~ Sent while on the road! [ ] Re: Relationships and CML I think how our spouses deal with our illness has more to do with how we deal with it than anything else. If it becomes a heavy burden to us, it'll be a heavy burden to them. For me personally, I don't think it's effected my marriage at all, neither for the better or the worse. Conversely, it hasn't really effected my life either, not in the grand scheme of things. I'm pretty much the same person I was before I got it. If anything, I'd say that I've actually become a happier person than I was before diagnosis since I've come to appreciate every moment I wake up on this side of the ground. When I think of the early days when members were dying left and right, either from the disease, or the post transplant effects, I can't help but count my blessings. Even when those blessings include diarrhea, nausea, puffy eyes, fatigue, muscle cramps and constant brain fog. I'm alive and I'm able to watch my kids grow up. That's all I could ever have hoped for 8 years ago when I was diagnosed. Tracey Quote Link to comment Share on other sites More sharing options...
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