Skip Duffie, et al

[Guest guest]

Dear Zavie,

I keep in touch with Skip and I knew he was off all meds for the time being.

What a bastion of faith that man is. He knows he is our hero and is a very

temperant, self-disciplined person.

To Leigh in wet London, I hope you have not been flooded out. Gosh,

that has not happened in 100 years. Don't tell Al Gore about it, he will be up

there with his junk science and blame it all on emissions and carbon footprints.

Wonder if he has measured his lately with his big jet he uses to cruise around

in.

To Margie Nance, welcome to the group. Sometimes a patient cannot tolerate

one drug and is switched to another. Sometimes you have to stop and start again

at a lower dose. We are all different in the way we absorb drugs. Good luck and

sending you an invitation to ask questions, there is always someone who will

have experienced something similiar. Sometimes we have to change doctors, as

well, so if you are dissatisfied with your doctor, you can always switch, there

are no hard and fast rules about sticking to the same doctor who does not meet

with your approval, or has your

best interest at hard. Yes, you will find that some doctors pay less attention

to you if your disease is rare because they don't know that much about it and

haven't done any research on it. Try to find a CML specialist as your main CML

doctor and an oncologist to do your blood work if you have to travel to see a

specialist. If you live in the same city as your specialist, then you have hit

pay dirt and won't need to see an oncologist. This is how I have done it for

the past 10 years, just remember you come first.

Hands & hearts,

Lottie Duthu