RE: Introduction Margie Nance

[Guest guest]

Margie:

We are glad to have you, in a manner of

speaking. So welcome.

With the warmest regards,

Matt

CML of Florida

Dx January of 2005

Gleevec March of 2005

Tasigna November of 2007

Number 1078 in the Esteemed Zavie Zero Club

This message (including any attachments) contains confidential information

intended for a specific individual and purpose, and is protected by law.

If you are not the intended recipient, you should delete this message, and

please advise me of your receipt. Any disclosure, copying, or distribution

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prohibited.

In a message dated 11/21/2009 4:40:18 P.M. Eastern Standard Time,

margie@... writes:

Hello,

My name is Margie Nance and I am new to the group and pretty new to the

world of CML. I was diagnosed in Sept of this year. It has taken me a few

months to venture out into the internet to learn more about this disease.

That's how I found this group.

I am currently on Gleevec and was taken off of it for two weeks due to a

round with the flu and extremely low white cell count. I'm back on it again

and still having peaks and crashes with test results. My doc says not to

worry at this point. Just need to find the right dosage. I hope to learn more

about the drugs, treatments and side effects from those who have been

battling this for awhile. I'm glad to have found you all.

margie nance

_http://www.carringbhttp://wwwhttp://www.carrih_

(http://www.carringbridge.org/visit/margienance)

[Guest guest]

Welcome, Margie! Glad you found the group. You couldn't want to meet better

folks.

in San Francisco

On Sat, Nov 21, 2009 at 2:24 PM, <mtmaynor@...> wrote:

>

>

> Margie:

>

> We are glad to have you, in a manner of

> speaking. So welcome.

>

>

> With the warmest regards,

>

> Matt

> CML of Florida

> Dx January of 2005

> Gleevec March of 2005

> Tasigna November of 2007

> Number 1078 in the Esteemed Zavie Zero Club

>

> This message (including any attachments) contains confidential information

> intended for a specific individual and purpose, and is protected by law.

> If you are not the intended recipient, you should delete this message, and

> please advise me of your receipt. Any disclosure, copying, or distribution

> of this message, or the taking of any action based on it, is strictly

> prohibited.

>

> In a message dated 11/21/2009 4:40:18 P.M. Eastern Standard Time,

> margie@... <margie%40chfschool.com> writes:

>

> Hello,

> My name is Margie Nance and I am new to the group and pretty new to the

> world of CML. I was diagnosed in Sept of this year. It has taken me a few

> months to venture out into the internet to learn more about this disease.

> That's how I found this group.

>

> I am currently on Gleevec and was taken off of it for two weeks due to a

> round with the flu and extremely low white cell count. I'm back on it again

>

> and still having peaks and crashes with test results. My doc says not to

> worry at this point. Just need to find the right dosage. I hope to learn

> more

> about the drugs, treatments and side effects from those who have been

> battling this for awhile. I'm glad to have found you all.

>

> margie nance

>

> _http://www.carringbhttp://wwwhttp://www.carrih_

> (http://www.carringbridge.org/visit/margienance)

>

>

[Guest guest]

Hi Margie: So glad to have you join our group. That probably sounds weird

being its a group for Leukemia Patients. When you first join, you do not know

what to expect. Your so new to all of this, and we have quite a few new people

who have joined in the past few months.

We share so much,so we can get to know each other better.

As you read the posts, you will see that a lot of us have been fighting this

battle for many years. We have some real oldies on here, and it will be 11

years for me on Dec. 12th.

Just keep in mind that treatment has come a long way since the late 90's. Hope

to continue to hear from you.

A

>

> Hello,

> My name is Margie Nance and I am new to the group and pretty new to the world

of CML. I was diagnosed in Sept of this year. It has taken me a few months to

venture out into the internet to learn more about this disease. That's how I

found this group.

>

> I am currently on Gleevec and was taken off of it for two weeks due to a round

with the flu and extremely low white cell count. I'm back on it again and still

having peaks and crashes with test results. My doc says not to worry at this

point. Just need to find the right dosage. I hope to learn more about the drugs,

treatments and side effects from those who have been battling this for awhile.

I'm glad to have found you all.

>

> margie nance

>

> http://www.carringbridge.org/visit/margienance

>

[Guest guest]

Hi ,

Welcome to the club that nobody really wants to be a member of.

I was wondering how low your WBC dropped to and did all your other counts

remain stable.

The normal dose of Gleevec is 400 mg daily. Any change at this early stage

should only be done by a CML expert. Do you know if he did a serum level

test to determine if the dose needs to be altered?

You have come to the right CML site to get answers to your CML questions.

I tried to get on to your Caringbridge site but the link didn't work.

Zavie

Zavie (age 71)

67 Shoreham Avenue

Ottawa, Canada, K2G 3X3

dxd AUG/99

INF OCT/99 to FEB/00, CHF

No meds FEB/00 to JAN/01

Gleevec since MAR/27/01 (400 mg)

CCR SEP/01. #102 in Zero Club

2.8 log reduction Sep/05

3.0 log reduction Jan/06

2.9 log reduction Feb/07

3.6 log reduction Apr/08

3.6 log reduction Sep/08

3.7 log reduction Jan/09

3.8 log reduction May/09

3.8 log reduction Aug/09

e-mail: zmiller@...

Tel: 613-726-1117

Fax: 613-482-4801

Cell: 613-282-0204

ID: zaviem

_____

From: [mailto: ] On Behalf Of Margie

Nance

Sent: November 21, 2009 3:56 PM

Subject: [ ] Introduction Margie Nance

Hello,

My name is Margie Nance and I am new to the group and pretty new to the

world of CML. I was diagnosed in Sept of this year. It has taken me a few

months to venture out into the internet to learn more about this disease.

That's how I found this group.

I am currently on Gleevec and was taken off of it for two weeks due to a

round with the flu and extremely low white cell count. I'm back on it again

and still having peaks and crashes with test results. My doc says not to

worry at this point. Just need to find the right dosage. I hope to learn

more about the drugs, treatments and side effects from those who have been

battling this for awhile. I'm glad to have found you all.

margie nance

http://www.carringb <http://www.carringbridge.org/visit/margienance>

ridge.org/visit/margienance