Guest guest Posted February 22, 2000 Report Share Posted February 22, 2000 Hi , and welcome to the group! Good for you in being proactive in your health care! Plaquenil scares me too, I'd be devastated if my eyes were affected. I get the pins and needles in my feet sometimes too, though not as bad lately. My doctor thinks it is pressure on the nerves as well, probably the spinal nerve roots in my case. Keep on the doctor about it if it doesn't improve, and try to keep the swelling down in that knee with ice, rest, and elevation. You might ask the doc if compression bandaging or bracing of the knee would be appropriate. Take care, Liz G. > Hi group, > My name is and I've only been subscribing for a short time. I have > had RA since '96 at that time my family dr. sent me to a rheumie. while I > was waiting for the day of my appointment I went to the library and found > a book called The Road Back. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2000 Report Share Posted February 22, 2000 Hi : I also get that pins and needles feeling, usually on the outside of my right foot. It comes and goes, and I've noticed it started with this RA. Though I never mentioned it to any dr., I assumed it was related. Also, I get these really intense/painful cramps in my arches that sometimes reduce me to tears. It was really bad and occurred daily (esp. when putting on shoes) before I started the AP. Now its only once in awhile. I thought of that today because this a.m. I had one that really surprised me - I had thought they were history but found myself writhing on the bed, clutching my foot and whimpering like a baby! Is your pain constant or does it come and go? Anybody else here have these arch pains? PS A big welcome to the list, !!!!!! :>) Babs RA 8/98, DX 4/99, AP 11/99 200 mg. Minocin 2.5 mg. Methotrexate 112 mcg. Synthroid 2 mg. Hytrin 10 mg. Lipitor Mestinon Vits. & Misc. Suplmts. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2000 Report Share Posted February 22, 2000 Yes, Charlie horses is the best way to describe the pain. I also had one in my calf 2 nights ago. Ow, wow! Babs RA 8/98, DX 4/99, AP 11/99 200 mg. Minocin 2.5 mg. Methotrexate 112 mcg. Synthroid 2 mg. Hytrin 10 mg. Lipitor Mestinon Vits. & Misc. Suplmts. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2000 Report Share Posted February 22, 2000 Hi, Guys, I began having terrible leg aches (like I was a kid and finally growing!) and terrible charlie horses in my feet prior to the AP. Guess I belong, too! Babs56p@... wrote: > From: Babs56p@... > > Hi : I also get that pins and needles feeling, usually on the outside > of my right foot. It comes and goes, and I've noticed it started with this > RA. Though I never mentioned it to any dr., I assumed it was related. Also, > I get these really intense/painful cramps in my arches that sometimes reduce > me to tears. It was really bad and occurred daily (esp. when putting on > shoes) before I started the AP. Now its only once in awhile. I thought of > that today because this a.m. I had one that really surprised me - I had > thought they were history but found myself writhing on the bed, clutching my > foot and whimpering like a baby! Is your pain constant or does it come and > go? Anybody else here have these arch pains? > > PS A big welcome to the list, !!!!!! :>) > > Babs > RA 8/98, DX 4/99, AP 11/99 > 200 mg. Minocin > 2.5 mg. Methotrexate > 112 mcg. Synthroid > 2 mg. Hytrin > 10 mg. Lipitor > Mestinon > Vits. & Misc. Suplmts. > > ------------------------------------------------------------------------ > @Backup-The Easiest Way to Protect and Access your files. > Automatic backups and off-site storage of your critical data. Install > your FREE trial today and have a chance to WIN a digital camera! > Click here. > 1/1830/0/_/_/_/951272725/ > ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2000 Report Share Posted February 22, 2000 I have had them hit in the middle of the night and come straight up to a sitting position with the pain and yelling where my husband would have to rub them out! Sorry you are having them but glad to know these are just another one of the symptoms. Boy, could we write a book about all these symptoms where IF a doctor would read, they might put two and two together and make a quick correct diagnosis! Babs56p@... wrote: > Yes, Charlie horses is the best way to describe the pain. I also had one in > my calf 2 nights ago. Ow, wow! > > Babs > RA 8/98, DX 4/99, AP 11/99 > 200 mg. Minocin > 2.5 mg. Methotrexate > 112 mcg. Synthroid > 2 mg. Hytrin > 10 mg. Lipitor > Mestinon > Vits. & Misc. Suplmts. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2000 Report Share Posted February 23, 2000 I get cramps frequently but I think mine stems from bad circulation because of Phlebitis in the legs. Happens at night while I'm in bed and I usually have to just jump up and put some weight on the offending appendage. Once I am off the prednisone, I think the phlebitis will go away and then the cramps too....at least I hope so Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2000 Report Share Posted February 23, 2000 A thought: I wonder if there is some vitamin or supplement that will help alleviate these types of muscle cramping? Babs RA 8/98, DX 4/99, AP 11/99 200 mg. Minocin 2.5 mg. Methotrexate 112 mcg. Synthroid 2 mg. Hytrin 10 mg. Lipitor Mestinon Vits. & Misc. Suplmts. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2000 Report Share Posted February 23, 2000 Hi Babs, I am so sorry you have to suffer with those awful arch pains. I used to get them when I was a kid and remember how they hurt. They do bring you to tears. My mom told me to put my foot on the cold tile and that worked then. I don't get them now but I do get a cramp in my arm where it bends on the inside when I turn the steering wheel and I only get it in a certain part of town where there are a series of turns, a right then a quick left, and that's the spot I usually get it. If I straighten my arm out, it goes away. I have never had it til last year. I don't get the pins and needles but had a terrible time at first with numb feet and hands in the morning, which would go away. I used splints for my arms having started out with bowlers splints recommended by my RD and they are wonderful. I completely stopped the numbness and I rarely get it anymore. I have had some episodes since I have cut way back on the Minocin. If I awake during the night I find I have numb hands which goes away if I move the hands. I have noticed considerable lessening of the stiffness in my feet and wrists having cut way back from my 2 times a day Minocin regimen. Hope you feel better soon, Babs. If I can help with information, just post me. :>)) Bev > Hi : I also get that pins and needles feeling, usually on the outside > of my right foot. It comes and goes, and I've noticed it started with this > RA. Though I never mentioned it to any dr., I assumed it was related. Also, > I get these really intense/painful cramps in my arches that sometimes reduce > me to tears. It was really bad and occurred daily (esp. when putting on > shoes) before I started the AP. Now its only once in awhile. I thought of > that today because this a.m. I had one that really surprised me - I had > thought they were history but found myself writhing on the bed, clutching my > foot and whimpering like a baby! Is your pain constant or does it come and > go? Anybody else here have these arch pains? > > PS A big welcome to the list, !!!!!! :>) > > Babs > RA 8/98, DX 4/99, AP 11/99 > 200 mg. Minocin > 2.5 mg. Methotrexate > 112 mcg. Synthroid > 2 mg. Hytrin > 10 mg. Lipitor > Mestinon > Vits. & Misc. Suplmts. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2000 Report Share Posted February 23, 2000 , Sorry you are having these. I used to get them when I was a kid and it helped to put my foot flat on a cold floor but it was so painful to even move the foot. I never get them anymore. I think the AP will help you. I don't know what causes them but I know they hurt like the devil. Hope you don't get many more. :>)) Bev > > Hi, Guys, I began having terrible leg aches (like I was a kid and finally > growing!) and terrible charlie horses in my feet prior to the AP. Guess I > belong, too! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2000 Report Share Posted February 23, 2000 > From: Dan Hines <paperhanging@...> The problem I'm having now is something I haven't seen anyone else say > any thing about . > I have a foot that has the feeling of falling asleep. I was real worried > that it was circulation but when my dr checked he said it was the nerves > in that foot. I think that it is from the swelling in my knee. The pins > and needles feeling is not as bad as it has been but it's still there. > Sorry to be so long but this is my first time writing to the group. > I haven't had this problem in my foot, but I have had pins and needles and numbness in the 4th and 5th fingers in one hand. My doctor suspected pressure on the ulnar nerve in my elbow and nerve conduction tests confirmed it as well as the fact that there was no permanent damage. Sure enough, when there is no swelling in the elbow, the problem clears up. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2000 Report Share Posted February 23, 2000 Calcium supplements, drinking lots of water and walking are said to help. I've gotten them my whole life but they really increased when I was flaring badly and not moving around much. There's nothing quite like waking up with your leg or foot in a vice grip and trying to get out of bed with two frozen shoulders. I would be reduced to tears, howling and trying to walk the cramp off. My poor husband! It's the little things, isn't it?! >From: Babs56p@... > >A thought: I wonder if there is some vitamin or supplement that will help >alleviate these types of muscle cramping? > >Babs >RA 8/98, DX 4/99, AP 11/99 >200 mg. Minocin >2.5 mg. Methotrexate >112 mcg. Synthroid >2 mg. Hytrin >10 mg. Lipitor >Mestinon >Vits. & Misc. Suplmts. > >------------------------------------------------------------------------ >@Backup-The Easiest Way to Protect and Access your files. >Automatic backups and off-site storage of your critical data. Install >your FREE trial today and have a chance to WIN a digital camera! >Click here. >1/1830/0/_/_/_/951323574/ >------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2000 Report Share Posted February 23, 2000 , I had a terrible time with numbness also when I was first diagnosed which my RD said was carpel tunnel in the wrists. My feet would be numb in the morning when I first woke up, but I could wiggle them awake. Since the AP I rarely have it but since I have cut back on the Minocin I have less pain and stiffness but the numbness has come back in the morning. I'll take the numbness over stiffness any day. I am hoping it will ease up when I regulate the Minocin and get used to this new regimen. Bev > > I haven't had this problem in my foot, but I have had pins and needles and > numbness in the 4th and 5th fingers in one hand. My doctor suspected > pressure on the ulnar nerve in my elbow and nerve conduction tests confirmed > it as well as the fact that there was no permanent damage. Sure enough, > when there is no swelling in the elbow, the problem clears up. > > > > > ------------------------------------------------------------------------ > Shop the web for great deals. Save on Computers, > electronics, Home furnishings and more. > 1/1559/0/_/_/_/951313879/ > ------------------------------------------------------------------------ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2000 Report Share Posted February 23, 2000 Group, Sounds like you all need to increase your magnesium and calcium intake. Both very good for growing pains and charlie horses. Carol/Piney/Canada dm oct 94 ap jun98 Re: rheumatic pins and needles > From: Babs56p@... > > Yes, Charlie horses is the best way to describe the pain. I also had one in > my calf 2 nights ago. Ow, wow! > > Babs > RA 8/98, DX 4/99, AP 11/99 > 200 mg. Minocin > 2.5 mg. Methotrexate > 112 mcg. Synthroid > 2 mg. Hytrin > 10 mg. Lipitor > Mestinon > Vits. & Misc. Suplmts. > > ------------------------------------------------------------------------ > FREE ADVICE FROM REAL PEOPLE! Xpertsite has thousands of experts who > are willing to answer your questions for FREE. Go to Xpertsite today and > put your mind to rest. > 1/1404/0/_/_/_/951279375/ > ------------------------------------------------------------------------ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2000 Report Share Posted February 23, 2000 , Makes you wonder, doesn't it. We'd all make wonderful RD's, wouldn't we? :>)) Almost every symptom I rhymed off to my RD he told me something else was going on. The sweats at night were bugging me and the fevers which I rarely have now. I wonder too if they ever read the text books or maybe they just don't want us to know too much. Glad I fired mine. Bev > Bev it amazes me that so many including the rheumy I saw dont associate > low grade fevers with it. The medical textbooks as well as the ones for > rheumatology all say that its a systemic illness effecting whole system > ofton with low grade fevers, and flu like feelings. Makes you wonder if > they ever read. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2000 Report Share Posted February 23, 2000 I have read that some people are helped by calcium supplements. > From: Babs56p@... > > A thought: I wonder if there is some vitamin or supplement that will help > alleviate these types of muscle cramping? > > Babs > RA 8/98, DX 4/99, AP 11/99 > 200 mg. Minocin > 2.5 mg. Methotrexate > 112 mcg. Synthroid > 2 mg. Hytrin > 10 mg. Lipitor > Mestinon > Vits. & Misc. Suplmts. > > ------------------------------------------------------------------------ > @Backup-The Easiest Way to Protect and Access your files. > Automatic backups and off-site storage of your critical data. Install > your FREE trial today and have a chance to WIN a digital camera! > Click here. > 1/1830/0/_/_/_/951323574/ > ------------------------------------------------------------------------ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2000 Report Share Posted February 23, 2000 : Re: magnesium for muscle spasms, I avoid magnesium as it is contraindicated for my Myasthenia Gravis (muscular dystrophy). Babs RA 8/98, DX 4/99, AP 11/99 200 mg. Minocin 2.5 mg. Methotrexate 112 mcg. Synthroid 2 mg. Hytrin 10 mg. Lipitor Mestinon Vits. & Misc. Suplmts. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2000 Report Share Posted February 23, 2000 > Speaking of low grade fevers, I had them a lot the first year or two with > mycoplasma incognitus infection. I kept having doctors tell me that a temp > of 99 or 101 even was not that high - really strange when you consider they > were also telling me that my average daily body temp of 97.0 was also > normal. Duh! I think I missed something here, or did they???? > a Carnes I vote for " they " : ) Been there and done that too. Ran low fevers a lot, up to 100.4 to 101 usually, and had unexplained high fevers as a child that would spike in the afternon, and be gone by suppertime or down to 99.something. Stopped believing the doctors when I noticed a pattern develop that the fevers went away in times when I felt good. I nearly cried when I read " The Road Back " , and read Dr. Brown's discussion of the low fevers as an indication of the disease, and how he could tell that the patient was respnding to the treatment by the low fever going down. I no longer believed that I was being hypochondriacal at that point, but it felt so good to be vindicated in black and white. The low fever/low temp fluctuations could be related to thyroid fluctuations too. I don't get them so often now as I used to. They can really add to the fatigue. Liz G Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2000 Report Share Posted February 23, 2000 Liz, I'm glad you don't get the fevers any more, especially when they were accompanied by fatigue. Mine weren't. It is so weird that they just sort of washed over me and sometimes stayed for up to ten minutes and were gone. Other times, just like someone threw a bucket of hot water over me and was gone, like a flush. I used to get the night sweats with them but they ended after about 10 months on AP. I hate it when we are looked upon like we are hypochondriacs because some doctors aren't educated enuf to properly diagnose us. I had that too for years and it turned out to be overactive thyroid. I changed doctors and the new lady doc had Graves Disease so recognized my symptoms. What a relief. I know how you felt. :>)) Bev , > up to 100.4 to 101 usually, and had unexplained high fevers as a child that > would spike in the afternon, and be gone by suppertime or down to > 99.something. Stopped believing the doctors when I noticed a pattern develop > that the fevers went away in times when I felt good. I nearly cried when I > read " The Road Back " , and read Dr. Brown's discussion of the low fevers as > an indication of the disease, and how he could tell that the patient was > respnding to the treatment by the low fever going down. I no longer > believed that I was being hypochondriacal at that point, but it felt so good > to be vindicated in black and white. The low fever/low temp fluctuations > could be related to thyroid fluctuations too. I don't get them so often now > as I used to. They can really add to the fatigue. Liz G > > > ------------------------------------------------------------------------ > Get what you deserve with NextCard Visa! Rates as low as 2.9% > Intro or 9.9% Fixed APR, online balance transfers, Rewards Points, > no hidden fees, and much more! Get NextCard today and get the > credit youdeserve! Apply now! Get your NextCard Visa at: > 1/912/0/_/_/_/951340582/ > ------------------------------------------------------------------------ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2000 Report Share Posted February 23, 2000 Carol, If you had a charlie horse, you'd know it. I'm sure you've had em. You know that excrutiating cramp you get in your calf that you can't get relief from. They usually come at night when you are in bed, at least with me they did. Haven't had one in years but remember them well. Bev > > Sorry, ignorant Brit. here - what are 'charlie horses'. (Sounds like > cockney rhyming slang for 'armed forces' - ie apples and pears = stairs, > trouble & strife = wife!). > Bye > Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2000 Report Share Posted February 23, 2000 Interesting that magnesium is bad for you. Those of us who have mycoplasma infections usually need to supplement magnesium. Garth Nicolson mentions this. Personally I tested low in magnesium and it helps me a lot when I take it. a Carnes > From: Babs56p@... > > : Re: magnesium for muscle spasms, I avoid magnesium as it is > contraindicated for my Myasthenia Gravis (muscular dystrophy). > > Babs > RA 8/98, DX 4/99, AP 11/99 > 200 mg. Minocin > 2.5 mg. Methotrexate > 112 mcg. Synthroid > 2 mg. Hytrin > 10 mg. Lipitor > Mestinon > Vits. & Misc. Suplmts. > > ------------------------------------------------------------------------ > Get what you deserve with NextCard Visa! ZERO! Rates as low as > 0.0% Intro APR, online balance transfers, Rewards Points, no > hidden fees, and much more! Get NextCard today and get the credit > you deserve! Apply now! Get your NextCard Visa at: > 1/966/0/_/_/_/951357019/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2002 Report Share Posted June 10, 2002 Hi Kate, I had that pins and needles and swellling and pain in my fingers. I now take two Cytopro a day.....have been doing this for YEARS. After three days of being on the Cytopro my swelling and pain were gone...(that is why I have stayed on it) and the pins and needles is gone also. Cytopro is a very powerful antioxidant. Trish http://www.herbals-unlimited.com/cytop.htm click on the link above for inf. on Cytopro > Message: 1 > Date: Fri, 7 Jun 2002 08:02:22 +1000 (EST) > From: Kate Buechner <katebuechner@...> > Subject: RE: Re: New member > > Daren > > When I first down the arthritis road, I would get > intense pain in my knee which would last for a > couple > of days & then go. It would be in my shoulders, > where > I couldn't live my arms, in my fingers so any kind > of > movement hurt. Over time the pain has changed. > > I know have swollen joints in my finger & toes all > the > time. But when I am having a flare I will get > intense > pain in a particular joint area for 2 days & then it > goes away. This can be anywhere, hip, ankle, knee, > shoulder, wrist, collar bone, lower back. > > With the pins & needles I mainly get this at night, > but I can get it at anytime of the day just not as > badly as at night. I normally wake up with intense > numbness in my fingers, but I can still feel the > sensation of the pins & needles. I have to move it > around to lessen the pain but this doesn't always > work. I just recently got a referral from my dr > because of the pins & needles to go to a rehab > centre, > & on the referral she has called it carpal tunnel > syndrome, but says that it is related to the > arthritis. > > hope this helps > > Kate __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2004 Report Share Posted June 16, 2004 >>The first I tied was Magnesium. It helped and I went to sleep easily, but woke up again with bad pins and needles in my arms. I initially thought this was due to taking too much Magnesium, but even if I took smaller doses some time later, I still got the pins and needles. This sounds like a negative reaction to one of the inactive ingredients in the supplements. Is there any additive that is the same for all these supplements? Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2004 Report Share Posted June 16, 2004 Could it possibly be connected with your upper back being mis-aligned? Just wondering. I have some of these feelings that come and go. When I get a back adjustment it gets fixed. Each person can experience different symptoms when the back isn't straight. I also feel anxiety and chest discomfort when the back between my shoulder blades are not aligned like it should. I have trouble sleeping with a pillow and have the flattest pillow ever. Also sleeping on my side can aggravate it or shove a fixed back out of place. : / Liz D. > [Original Message] > From: Dagmar <dagmarjahr@...> > < > > Date: 6/16/2004 6:13:21 AM > Subject: [ ] pins and needles > > I wanted to share an experience with supplements. > > I tend to get very anxious at times in the evenings and often find it very difficult to go to sleep then. I have therefore at times tried supplements to help me calm down and go to sleep. The first I tied was Magnesium. It helped and I went to sleep easily, but woke up again with bad pins and needles in my arms. I initially thought this was due to taking too much Magnesium, but even if I took smaller doses some time later, I still got the pins and needles. > > > Has anybody else got some thoughts/experiences to share on this subject? > > Dagmar. Quote Link to comment Share on other sites More sharing options...
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