Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 I am so sorry to hear of you problems with your surgery. How are you feeling other than the pain are you having any other symptoms still? I am not surprised that you are having healing issues, I feel that our immune systems have been so compromised by the implants that these things happen. Listen I got to get to bed now but I wanted you to know that I read your email and I am very concerned, please keep us posted dear girl. Hugs ----- Original Message ----- From: e Rene Sent: Tuesday, June 04, 2002 10:31 PM Subject: Bad news I had my cervical xrays done yesterday and got the results today. The result as read by the radiologist is just what I feared----another failed cervical fusion at C5-6 and C6-7. The fusion at C4-5 has taken, however. I am sending my films to my surgeon in Denver for review, as maybe he will interpret/read the films differently. Also, I'm hoping that perhaps since this is my second fusion at C5-7 that healing will just take longer. But I reviewed the films as well, and you can clearly see the open spaces where bone should have filled in. Also, I started having sharp, severe, debilitating hip pain (where my donor site is) last Thurs when I was working for J & J at one of the hospitals here. I initially attributed it to carrying too much weight, so I shifted some of the weight I was carrying, but the pain continued. It was only when I walked, and was fine when I was sitting or standing but not ambulating. So, I had hip/pelvic xrays done to see if perhaps I had suffered a small fracture around the donor site. Luckily, there is no fx, but there is a "bony defect" on one area of the donor site. I had the doc enlarge it on the computer, and it was several "spikes" which he said may have unnaturally attached to the muscle and that is what is causing the pain. But you can't see muscle on plain films, so there's really no way of telling. At any rate, a portion of the donor site has healed in a jagged way. The doc said that it could have just been the way my body healed, or it could be a postsurgical "problem" although it's not a problem per se, just a nuisance. But the rad felt that this was unusual and if this occurs, it's usually right after surgery, not this far out. I did call my neurosurgeon in Denver and left a msg about the reports/films, and his NP called me back and said that I just can't jump to conclusions until he has seen the films and drawn his own conclusions. I am fedexing the films to him for delivery Fri, so I should find out what he thinks Fri evening. I am convinced that the silicone that spilled into my chest cavity and/or possibly my blood is still to blame. I'm not quite sure that this crap is completely out of my system, and hence the poor healing, dental problems, CA, etc. Any input Dr. Kolb? Could this be a possibility? e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 I am feeling pretty good. I have constant pain in my neck and then the intermittent sharp pain in my hip, but other than that, I feel good. I have energy, am working 2 jobs, and I think I'm doing much better now than just 3 months ago. I'm constantly on the go, and most days I work 15-16 hrs, going from my regular FT job to my job with & . At the same time, my work is not extremely physical because I'm not involved in pt care anymore. I'm strictly doing management only in my main job, and with J & J, I am a clinical nurse consultant, so I do mostly sales and marketing. I feel that if I was doing pt care, I probably would be much worse off. On the other hand, now that I'm in management, I feel like I need to keep my skills up, so I'm looking at taking a third job in PACU (recovery room) at one of the hospitals here. It would only be per diem, so that usually means just 16 hrs/month. I also had a job interview this AM with Merck Pharmaceuticals for a sales rep position. I'm not too happy in my job, and want to get into something I really want to do. So, I'm not closing any doors simply because I have a FT job. I just haven't found my niche yet, and when I do, I will know it. Until then, I will keep looking until something becomes available. Which of course means another move, but hey, I'm a pro at it now!!! (Yeh right!) I'm also looking at possibilities with Abbott, and one position they have available is an infusion therapy nurse consultant in Denver! At any rate, I guess you could say I'm doing okay. Now if only my neck and hip would heal and the chronic pain would go away! e ----- Original Message ----- From: Heer Sent: Tuesday, June 04, 2002 9:58 PM Subject: Re: Bad news I am so sorry to hear of you problems with your surgery. How are you feeling other than the pain are you having any other symptoms still? I am not surprised that you are having healing issues, I feel that our immune systems have been so compromised by the implants that these things happen. Listen I got to get to bed now but I wanted you to know that I read your email and I am very concerned, please keep us posted dear girl. Hugs ----- Original Message ----- From: e Rene Sent: Tuesday, June 04, 2002 10:31 PM Subject: Bad news I had my cervical xrays done yesterday and got the results today. The result as read by the radiologist is just what I feared----another failed cervical fusion at C5-6 and C6-7. The fusion at C4-5 has taken, however. I am sending my films to my surgeon in Denver for review, as maybe he will interpret/read the films differently. Also, I'm hoping that perhaps since this is my second fusion at C5-7 that healing will just take longer. But I reviewed the films as well, and you can clearly see the open spaces where bone should have filled in. Also, I started having sharp, severe, debilitating hip pain (where my donor site is) last Thurs when I was working for J & J at one of the hospitals here. I initially attributed it to carrying too much weight, so I shifted some of the weight I was carrying, but the pain continued. It was only when I walked, and was fine when I was sitting or standing but not ambulating. So, I had hip/pelvic xrays done to see if perhaps I had suffered a small fracture around the donor site. Luckily, there is no fx, but there is a "bony defect" on one area of the donor site. I had the doc enlarge it on the computer, and it was several "spikes" which he said may have unnaturally attached to the muscle and that is what is causing the pain. But you can't see muscle on plain films, so there's really no way of telling. At any rate, a portion of the donor site has healed in a jagged way. The doc said that it could have just been the way my body healed, or it could be a postsurgical "problem" although it's not a problem per se, just a nuisance. But the rad felt that this was unusual and if this occurs, it's usually right after surgery, not this far out. I did call my neurosurgeon in Denver and left a msg about the reports/films, and his NP called me back and said that I just can't jump to conclusions until he has seen the films and drawn his own conclusions. I am fedexing the films to him for delivery Fri, so I should find out what he thinks Fri evening. I am convinced that the silicone that spilled into my chest cavity and/or possibly my blood is still to blame. I'm not quite sure that this crap is completely out of my system, and hence the poor healing, dental problems, CA, etc. Any input Dr. Kolb? Could this be a possibility? e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 Ditto, e. . .and a "sort-of" schedule helps the body know what to expect. Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 e: I would suggest a natural killer T cell test to see what your immune system is doing. . -----Original Message-----From: e Rene [mailto:e_Rene@...]Sent: Wednesday, June 05, 2002 12:31 AM Subject: Bad news I had my cervical xrays done yesterday and got the results today. The result as read by the radiologist is just what I feared----another failed cervical fusion at C5-6 and C6-7. The fusion at C4-5 has taken, however. I am sending my films to my surgeon in Denver for review, as maybe he will interpret/read the films differently. Also, I'm hoping that perhaps since this is my second fusion at C5-7 that healing will just take longer. But I reviewed the films as well, and you can clearly see the open spaces where bone should have filled in. Also, I started having sharp, severe, debilitating hip pain (where my donor site is) last Thurs when I was working for J & J at one of the hospitals here. I initially attributed it to carrying too much weight, so I shifted some of the weight I was carrying, but the pain continued. It was only when I walked, and was fine when I was sitting or standing but not ambulating. So, I had hip/pelvic xrays done to see if perhaps I had suffered a small fracture around the donor site. Luckily, there is no fx, but there is a "bony defect" on one area of the donor site. I had the doc enlarge it on the computer, and it was several "spikes" which he said may have unnaturally attached to the muscle and that is what is causing the pain. But you can't see muscle on plain films, so there's really no way of telling. At any rate, a portion of the donor site has healed in a jagged way. The doc said that it could have just been the way my body healed, or it could be a postsurgical "problem" although it's not a problem per se, just a nuisance. But the rad felt that this was unusual and if this occurs, it's usually right after surgery, not this far out. I did call my neurosurgeon in Denver and left a msg about the reports/films, and his NP called me back and said that I just can't jump to conclusions until he has seen the films and drawn his own conclusions. I am fedexing the films to him for delivery Fri, so I should find out what he thinks Fri evening. I am convinced that the silicone that spilled into my chest cavity and/or possibly my blood is still to blame. I'm not quite sure that this crap is completely out of my system, and hence the poor healing, dental problems, CA, etc. Any input Dr. Kolb? Could this be a possibility? e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 e, I'm thrilled to hear you are feeling good! . . . However, . . . (now this is the mother in me speaking) .. . . if you are working so many hours, you are not giving your body the rest it needs to repair itself! . .. . Please give you body what it needs . . . sleep, diet, good water, good attitude, etc. . . . and be patient. Your body sends pain signals for a reason. You've come a long way, but unless you have superhuman genes, your body has a way to go yet. The wonderful job, money and home will be there when you are well and can enjoy everything that comes with them. Hugs and prayers, Rogene __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 I am getting some new music and trying to get ready and my tummy is still aching a little, waa haa. ANyhow I am getting some eminem songs I told if they are too dirty I will not send them though. I am getting Sheryl Crow too but it is super slow. There was only one person that has all her new albumn oh well, it may never get here, I might have to leave it on. Gotta do my hair babe love ya ----- Original Message ----- From: Bos@... Sent: Wednesday, June 05, 2002 8:28 AM Subject: Re: Bad news Ditto, e. . .and a "sort-of" schedule helps the body know what to expect. Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 OOps I meant to send this to my husband ha ha! ----- Original Message ----- From: Heer Sent: Wednesday, June 05, 2002 8:47 AM Subject: Re: Bad news I am getting some new music and trying to get ready and my tummy is still aching a little, waa haa. ANyhow I am getting some eminem songs I told if they are too dirty I will not send them though. I am getting Sheryl Crow too but it is super slow. There was only one person that has all her new albumn oh well, it may never get here, I might have to leave it on. Gotta do my hair babe love ya ----- Original Message ----- From: Bos@... Sent: Wednesday, June 05, 2002 8:28 AM Subject: Re: Bad news Ditto, e. . .and a "sort-of" schedule helps the body know what to expect. Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2003 Report Share Posted February 6, 2003 Hello All, Well I just want y'all to know that I am not gonna be from early evening till sometime Saturday. My fiance and I are heading to Portland OR for the funeral of a lady who was like a second mom to him all through his formative years. I was up most of the night watching him because he was restless and I was in a major RA flare. I guess thats the maternal instinct in me, I know when he is in an FM crisis or about to go into one. Anyway, I have an appointment wih my GP this afternoon and will ask her about a mild sleep aid and also to refill my pain meds. I will see y'all when I return home sometine Saturday. Much Love, Rose Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2006 Report Share Posted March 23, 2006 That is good news Aletha [low dose naltrexone] Bad news > Another strike! Today I found out my GP won't prescribe LDN. He also > told me I should talk to my Neuro because he felt uncomfortable > prescribing it. My Neuro told me no last week. > > Now for the good news. My doctor agreed to write me a referral to see > another Neuro who I know prescribes LDN. I'll be making the > appointment tomorrow! Wish me luck. > > Thanks, > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2006 Report Share Posted March 24, 2006 I wish you the very Best of luck, . This is another reason that funding should be made available for the studies needed to either approve or disapprove of LDN. --- In low dose naltrexone , Vaccaro <jaynbeth@...> wrote: > > Another strike! Today I found out my GP won't prescribe LDN. He also > told me I should talk to my Neuro because he felt uncomfortable > prescribing it. My Neuro told me no last week. > > Now for the good news. My doctor agreed to write me a referral to see > another Neuro who I know prescribes LDN. I'll be making the > appointment tomorrow! Wish me luck. > > Thanks, > > > Quote Link to comment Share on other sites More sharing options...
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