about your daughter

[Guest guest]

Hi , I know how hard it is to watch your little ones struggle so much, but you must listen to some of the stories of other parents here to fully understand what a lot of use have had to deal with prior to putting on the casts.

Santi has connective tissue disorder, thus he has hypotonia in all his muscles, he is built like a twig, skinny and weak. But, at 2 they applied his first cast, he wasn´t even walking or crawling yet. Not two months into the cast, he started to crawl. Then, on his second cast, he started to walk at a little over two years old. What I am trying to say is that it appears your daughter is mainly dealing solely with scoliosis, thus you will be amazed at how quickly she will learn how to move and manuver in her cast. The casts start to give a little around the edges as time goes by, its molded specifically to her curve applying pressure to maintain it straight. A brace will not mold and will not bend, it is made of a hard plastic, casts no. You will love the cast and you are lucky to be doing it early to take advantage of the flexability of her back. I know its hard, and I too cryed watching my child attempting everything, with no avail. There is

a light at the end of the tunnel, and she is only in a "phase", in a few months you will look back at it and be amazed at how far she will have gone since that time.Keep smiling and I am so happy you are on the right path with the casting, you will be amazed at how well it will work. Keep us up to date on the casting and how it all went.--- El lun, 18/10/10, heather@... <heather@...> escribió:

De: heather@... <heather@...>Asunto: Re: Hi from a new CAST group member!Para: infantile scoliosis treatment Fecha: lunes, 18 de octubre, 2010 10:16

Hi . Welcome to the CAST Support Group! I wanted to let you knowthat a properly applied series of EDF (elongation, derotation, flexion)plaster casts, will be more comfortable and more effective in treatingyour babes progressive infantile scoliosis than a brace. Please have yourdarling treated by a doc that has 1st hand experience with EarlyTreatment, EDF, and Dr. Mehtas principles.Please read "Growth as a corrective force in the Early Treatment ofprogressive infantile scoliosis," by Mehta. This published journal willteach you about the principles of ET and will show exactly what a Mehtacast should look like.Keep the questions coming!Sincerely,HRH> Hello,> Just wanted to say hi and to introduce myself and my daughter to the> group. My name is and I am the mom of a 14 month-old little girl> named Abby who has progressive ideopathic infantile scoliosis. her

curve> is 48 degrees. She is scheduled for her first cast to be applied on> November 9th. She is currently wearing a brace until her casting> procedure. I am new to all of this. We only found out in August about> her Scoliosis. And it is heartbreaking watching her trying to move around> and struggle to sit up and all of that. She was not yet walking before> the brace. Her physical therapist thinks that her walking delay is due to> her curve making her off balance. But, now I feel like she has lost all> of her other movements too. She used to crawl all over the house and pull> up on furniture and walk around the couch while holding on. She could go> anywhere she wanted to. Now, it is all she can do just to roll over from> her back to her belly. It makes me feel so helpless. I cry every day> watching her struggle. And I know that the cast will be no better. I> know

she will struggle. But, it is necessary. And I know that I am doing> what is best for her. It just breaks my heart to look into her big blue> eyes and see sadness because she wants to move around and play. Any words> of encouragement? Will she get better at moving around?>>