Re: little pathetic cry for support

December 28, 2010

Heidi,First, I hope you had a wonderful Christmas. I am sure Bex had a blast. Secondly, I hear ya and wish I had tons of wisdom or words that would help. I remember the pre-cast emotions vividly and how we go through the pre-rod lengthening as well. Basically it sucks! I just feelLike I wanna run, take Matson and run away! I know, like that would accomplish anything, huh? Distorted mommy thought processes at work. This is such a long road no matter the treatment and it seems like to me the world just stops about 1-2 weeks before we are due to go back. I do want to let you know though, that as scary as rod surgery is....although I know that Bexon will probably not need it (hoping and praying) it isn't as bad as I thought it would be. So if you are scared for getting his numbers, at the thought that you may need to consider surgery someday...please know that I amBeing honest in that although the initial surgery was a nightmare, after that life has been pretty darn sweet. No daily life impacted by casts and thankfully not a lot of complications. I dont mean for this to sound like I am pro-surgery by any means, but just to let you and other parents know that surgery isn't as omninous as it may sound. Two years is a long time to go through the ups and downs of infantile scoliosis....it is definitely hardest on the mama bear for sure. I hope this next casting for Bex goes off without a hitch and he has great numbers and the trip is uneventful and succesful. He has come so very far and i think if you can hang on a bit longer you will have achieved the numbers he needs! Sometimes it is just so hard to see that light at the end of the tunnel.You have helped so very many people on his board, me and my family included, I wish had something to help you now. Please know that we will thinking of you and praying for you all. Take care and Happy New Year! FournierMom to Tyler (8), Matson (4)-5 casts, Dual Rod surgery 3/24/10 and one successful lengthening 10/13/10; next rod lengthening 4/25/11, and Lily (3).Sent from my iPhoneOn Dec 27, 2010, at 5:49 PM, NIck Guthe <nickguthe@...> wrote:

I'm so scared to go back to the hospital in less than a week. We just went in Dec. and were sent away without a cast because Bex was sick with a little cough. With the holiday fun/and family stress it just seems like we are going right back through this pre-cast week worry yet again and I'm kind of freaking out. I know some of you understand that it can be an emotional roller coaster each time. I know we're doing the right thing of course, the best possible thing for our boy, but it is coming up on 2 years of cast trips for us and I am on a low limb today.I could really use a pep talk or words of wisdom if anyone has a moment.Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast. You can read Bexon's Story on

www.GirltoMom.com)

December 28, 2010

In the words of Robbins-â€œYou're in the midst of a war: a battle

between the limits of a crowd seeking the surrender of your dreams, and

the power of your true vision to create and contribute. It is a fight between those who will tell you what you cannot do, and that part of you

that knows / and has always known / that we are more than our environment; and that a dream, backed by an unrelenting will to attain it, is truly a reality with an imminent arrival.â€This is how I view every day. It is a battle- a battle for me to not show the kids my worries for them. A battle for them to have as "normal" a childhood as possible. A battle to keep moving forward. And, it's a battle we all will win simply because losing is NOT an option.aMommy to Doc.From: NIck Guthe <nickguthe@...>infantile scoliosis treatment Cc: Montoya

<isop06@...>Sent: Mon, December 27, 2010 8:49:07 PMSubject: little pathetic cry for support

I'm so scared to go back to the hospital in less than a week. We just went in Dec. and were sent away without a cast because Bex was sick with a little cough. With the holiday fun/and family stress it just seems like we are going right back through this pre-cast week worry yet again and I'm kind of freaking out. I know some of you understand that it can be an emotional roller coaster each time. I know we're doing the right thing of course, the best possible thing for our boy, but it is coming up on 2 years of cast trips for us and I am on a low limb today.I could really use a pep talk or words of wisdom if anyone has a moment.Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast. You can read Bexon's Story on

www.GirltoMom.com)

December 28, 2010

Awwww Heidi, no words of wisdom or advice here, as I'm new to this whole deal.

Just wanted to send some cyber hugs your way and remind you you're a super

strong mama and can do this

(((hugs)))

le

>

> I'm so scared to go back to the hospital in less than a week. We just went in

Dec. and were sent away without a cast because Bex was sick with a little cough.

With the holiday fun/and family stress it just seems like we are going right

back through this pre-cast week worry yet again and I'm kind of freaking out.

> I know some of you understand that it can be an emotional roller coaster each

time. I know we're doing the right thing of course, the best possible thing for

our boy, but it is coming up on 2 years of cast trips for us and I am on a low

limb today.

> I could really use a pep talk or words of wisdom if anyone has a moment.

>

> Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners,

currently down from 62 degrees to 20 in cast. You can read Bexon's Story on

www.GirltoMom.com)

>

December 28, 2010

,You're an angel. Yes, yes, that is exactly how I feel, I want to run away with Bex! Your wisdom and experience means a lot to me, thank you so much, it really, really helps.Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast. You can read Bexon's Story on www.GirltoMom.com)--- On Mon, 12/27/10, Fournier <mattnsteph4nier@...> wrote:From: Fournier <mattnsteph4nier@...>Subject: Re: little pathetic cry for support"infantile scoliosis treatment " <infantile scoliosis treatment >Cc: "infantile scoliosis treatment "

<infantile scoliosis treatment >, " Montoya" <isop06@...>Date: Monday, December 27, 2010, 6:21 PM

Heidi,First, I hope you had a wonderful Christmas. I am sure Bex had a blast. Secondly, I hear ya and wish I had tons of wisdom or words that would help. I remember the pre-cast emotions vividly and how we go through the pre-rod lengthening as well. Basically it sucks! I just feelLike I wanna run, take Matson and run away! I know, like that would accomplish anything, huh? Distorted mommy thought processes at work. This is such a long road no matter the treatment and it seems like to me the world just stops about 1-2 weeks before we are due to go back. I do want to let you know though, that as scary as rod surgery is....although I know that Bexon will probably not need it (hoping and praying) it isn't as bad as I thought it would be. So if you are scared for getting his numbers, at the thought that you may need to consider surgery someday...please know that I amBeing honest in that although the

initial surgery was a nightmare, after that life has been pretty darn sweet. No daily life impacted by casts and thankfully not a lot of complications. I dont mean for this to sound like I am pro-surgery by any means, but just to let you and other parents know that surgery isn't as omninous as it may sound. Two years is a long time to go through the ups and downs of infantile scoliosis....it is definitely hardest on the mama bear for sure. I hope this next casting for Bex goes off without a hitch and he has great numbers and the trip is uneventful and succesful. He has come so very far and i think if you can hang on a bit longer you will have achieved the numbers he needs! Sometimes it is just so hard to see that light at the end of the tunnel.You have helped so very many people on his board, me and my family included, I wish had something to help you now. Please know that we will thinking of you and praying for you

all. Take care and Happy New Year! FournierMom to Tyler (8), Matson (4)-5 casts, Dual Rod surgery 3/24/10 and one successful lengthening 10/13/10; next rod lengthening 4/25/11, and Lily (3).Sent from my iPhoneOn Dec 27, 2010, at 5:49 PM, NIck Guthe <nickguthe@...> wrote:

I'm so scared to go back to the hospital in less than a week. We just went in Dec. and were sent away without a cast because Bex was sick with a little cough. With the holiday fun/and family stress it just seems like we are going right back through this pre-cast week worry yet again and I'm kind of freaking out. I know some of you understand that it can be an emotional roller coaster each time. I know we're doing the right thing of course, the best possible thing for our boy, but it is coming up on 2 years of cast trips for us and I am on a low limb today.I could really use a pep talk or words of wisdom if anyone has a moment.Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast. You can read Bexon's Story on

www.GirltoMom.com)

December 28, 2010

a,Thank you so much, you are right, losing is not an option! Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast. You can read Bexon's Story on www.GirltoMom.com)--- On Mon, 12/27/10, a Ross <danceswiththesun@...> wrote:From: a Ross <danceswiththesun@...>Subject: Re: little pathetic cry for supportinfantile scoliosis treatment Date: Monday, December 27, 2010, 6:22 PM

In the words of Robbins-â€œYou're in the midst of a war: a battle

between the limits of a crowd seeking the surrender of your dreams, and

the power of your true vision to create and contribute. It is a fight between those who will tell you what you cannot do, and that part of you

that knows / and has always known / that we are more than our environment; and that a dream, backed by an unrelenting will to attain it, is truly a reality with an imminent arrival.â€This is how I view every day. It is a battle- a battle for me to not show the kids my worries for them. A battle for them to have as "normal" a childhood as possible. A battle to keep moving forward. And, it's a battle we all will win simply because losing is NOT an option.aMommy to Doc.From: NIck Guthe <nickguthe@...>infantile scoliosis treatment Cc: Montoya

<isop06@...>Sent: Mon, December 27, 2010 8:49:07 PMSubject: little pathetic cry for support

I'm so scared to go back to the hospital in less than a week. We just went in Dec. and were sent away without a cast because Bex was sick with a little cough. With the holiday fun/and family stress it just seems like we are going right back through this pre-cast week worry yet again and I'm kind of freaking out. I know some of you understand that it can be an emotional roller coaster each time. I know we're doing the right thing of course, the best possible thing for our boy, but it is coming up on 2 years of cast trips for us and I am on a low limb today.I could really use a pep talk or words of wisdom if anyone has a moment.Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast. You can read Bexon's Story on

www.GirltoMom.com)

December 28, 2010

le,Thank you so much, we CAN do this!!! Hugs back to you : )Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast. You can read Bexon's Story on www.GirltoMom.com)--- On Mon, 12/27/10, chilliwackpitbull <chilliwackpitbull@...> wrote:From: chilliwackpitbull <chilliwackpitbull@...>Subject: Re: little pathetic cry for supportinfantile scoliosis treatment Date: Monday, December 27, 2010, 6:32 PM

Awwww Heidi, no words of wisdom or advice here, as I'm new to this whole deal. Just wanted to send some cyber hugs your way and remind you you're a super strong mama and can do this

(((hugs)))

le

>

> I'm so scared to go back to the hospital in less than a week. We just went in Dec. and were sent away without a cast because Bex was sick with a little cough. With the holiday fun/and family stress it just seems like we are going right back through this pre-cast week worry yet again and I'm kind of freaking out.

> I know some of you understand that it can be an emotional roller coaster each time. I know we're doing the right thing of course, the best possible thing for our boy, but it is coming up on 2 years of cast trips for us and I am on a low limb today.

> I could really use a pep talk or words of wisdom if anyone has a moment.

>

> Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast. You can read Bexon's Story on www.GirltoMom.com)

>

December 28, 2010

I try to always tell myself that although these hospital stays and waiting on pins and needles for the numbers is so hard and stressful for both you and your child, at least when you are home, our little ones are running and playing and eating and happy. My husband says "it is only one day of upset and stress and then we can enjoy our happy boy again". Not sure if this helps. Remember he is getting the best care and is such a happy little boy. HUGS and good luck next week. Joanmom to Hayden 339 degrees down from 62After 4 casts, now in a brace 23 hours/dayTreated at ish Rite Hospital Dallas, TX

From: NIck Guthe <nickguthe@...>infantile scoliosis treatment Cc: Montoya <isop06@...>Sent: Mon, December 27, 2010 7:49:07 PMSubject: little pathetic cry for support

I'm so scared to go back to the hospital in less than a week. We just went in Dec. and were sent away without a cast because Bex was sick with a little cough. With the holiday fun/and family stress it just seems like we are going right back through this pre-cast week worry yet again and I'm kind of freaking out.

I know some of you understand that it can be an emotional roller coaster each time. I know we're doing the right thing of course, the best possible thing for our boy, but it is coming up on 2 years of cast trips for us and I am on a low limb today.

I could really use a pep talk or words of wisdom if anyone has a moment.Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast. You can read Bexon's Story on www.GirltoMom.com)

December 28, 2010

Heidi,You have helped me so much through this journey and I wish there was something I could do to make you feel better! Just keep your positive attitude... it is much better than mine which is Mrs. Pessimistic! I know exactly what you are going through and it is so hard. Keep the faith that 2011 will bring you all that you want! HUGS!!!!!!!! Patty, mom of Isabella, 3 years old, in 8th scoli cast (Rochester) & mom to (9) & Evan(6)From: NIck Guthe <nickguthe@...>infantile scoliosis treatment Cc: Montoya <isop06@...>Sent: Mon, December 27, 2010 8:49:07 PMSubject: little pathetic cry for support

I'm so scared to go back to the hospital in less than a week. We just went in Dec. and were sent away without a cast because Bex was sick with a little cough. With the holiday fun/and family stress it just seems like we are going right back through this pre-cast week worry yet again and I'm kind of freaking out. I know some of you understand that it can be an emotional roller coaster each time. I know we're doing the right thing of course, the best possible thing for our boy, but it is coming up on 2 years of cast trips for us and I am on a low limb today.I could really use a pep talk or words of wisdom if anyone has a moment.Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast. You can read Bexon's Story on

www.GirltoMom.com)

December 28, 2010

I know how heartbreaking this waiting period can be, as we are also in the weeks

leading up to another casting.

However, I hope you can find some comfort in the fact that you and many others

in this group have become my source of hope and promise. My son has only been

through one cast, but I quickly noticed that you all who have a child in one

cast after another are still strong, supportive and full of hope.

It's also helped me to keep reminding myself that I'm doing this for 's

health. I hope you are able to find some relief from your worries.

-

>

> I'm so scared to go back to the hospital in less than a week. We just went in

Dec. and were sent away without a cast because Bex was sick with a little cough.

With the holiday fun/and family stress it just seems like we are going right

back through this pre-cast week worry yet again and I'm kind of freaking out.

> I know some of you understand that it can be an emotional roller coaster each

time. I know we're doing the right thing of course, the best possible thing for

our boy, but it is coming up on 2 years of cast trips for us and I am on a low

limb today.

> I could really use a pep talk or words of wisdom if anyone has a moment.

>

> Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners,

currently down from 62 degrees to 20 in cast. You can read Bexon's Story on

www.GirltoMom.com)

>

December 29, 2010

Heidi,

You got this! You are a pro! I totally understand your fears. You and I have

talked about pre/post jitters and the PTSD feelings it brings on.

You are super strong, a wonderful mother and a great source of support and

inspritation to us all. Before long Bex will be cast free and you can enjoy

squishy hugs everyday!

I will be thinking of you. Please update when you can.

Much love,

NIck Guthe <nickguthe@...> wrote:

>I'm so scared to go back to the hospital in less than a week. We just went in

Dec. and were sent away without a cast because Bex was sick with a little cough.

With the holiday fun/and family stress it just seems like we are going right

back through this pre-cast week worry yet again and I'm kind of freaking out.Â

>I know some of you understand that it can be an emotional roller coaster each

time. I know we're doing the right thing of course, the best possible thing for

our boy, but it is coming up on 2 years of cast trips for us and I am on a low

limb today.

>I could really use a pep talk or words of wisdom if anyone has a moment.

>

>Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners,

currently down from 62 degrees to 20 in cast. You can read Bexon's Story on

www.GirltoMom.com)

>

December 29, 2010

Hi Heidi,

I so agree with . YOU CAN DO THIS! And are good at it too. You are a strong Momma and such an inspiration to others.

But your feelings right now are perfectly normal and I think most of us, if not all, have felt the way you are feeling right now. Two years is a long time to be casting....we did 14 months so I can only imagine what you are going through. You are doing the very best for Bexon and it will all work out just fine. In due time.

Remember life may lead you where you least expect it, but have faith it is exactly where you need to be.

HUGS to you Heidi! When do y'all go back?

TashaMommy of 5 year old twin boys- and Fort Worth, Texas is treated at Texas ish Rite Hospital in Dallas, Texas. After being treated in a series of 6 casts for 14 months he is now in a brace and has been since September 2007.

EARLY Treatment does work if done properly.

You can read 's story at.... http://www.infantilescoliosis.org/stories.html

Or follow our family one day at a time......http://thefontenotslife.blogspot.com/

From: <missikay10@...>infantile scoliosis treatment Sent: Tue, December 28, 2010 6:05:17 PMSubject: Re: little pathetic cry for support

Heidi,You got this! You are a pro! I totally understand your fears. You and I have talked about pre/post jitters and the PTSD feelings it brings on.You are super strong, a wonderful mother and a great source of support and inspritation to us all. Before long Bex will be cast free and you can enjoy squishy hugs everyday!I will be thinking of you. Please update when you can.Much love,NIck Guthe <nickguthe@...> wrote:>I'm so scared to go back to the hospital in less than a week. We just went in Dec. and were sent away without a cast because Bex was sick with a little cough. With the holiday fun/and family stress it just seems like we are going right back through this pre-cast week worry yet again and I'm kind of freaking out. >I know some of you understand that it can be

an emotional roller coaster each time. I know we're doing the right thing of course, the best possible thing for our boy, but it is coming up on 2 years of cast trips for us and I am on a low limb today.>I could really use a pep talk or words of wisdom if anyone has a moment.>>Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast. You can read Bexon's Story on www.GirltoMom.com)>>>

December 29, 2010

Heidi,

You are one of the strongest women I know! I know the emotions are all over the place right before and during casting. It's a tough time because of the unknown. I can't even begin to imagine what you go through after 2 years of trips, but I know you agree it's the best treatment for Bex. That doesn't make it any easier especially with your last trip getting the no go. I had a trip like that with , but her cast was already off and they couldn't put another back on. It's rough, but you have great support with Nick and with your CAST family. You CAN do this! Be positive, hold your head high and think positive thoughts!

Much love!

(mother to - 2 1/2 yrs old - 2 casts - 1 brace - currently treamtment free and straight since Feb)>I'm so scared to go back to the hospital in less than a week. We just went in Dec. and were sent away without a cast because Bex was sick with a little cough. With the holiday fun/and family stress it just seems like we are going right back through this pre-cast week worry yet again and I'm kind of freaking out. >I

know some of you understand that it can be an emotional roller coaster each time. I know we're doing the right thing of course, the best possible thing for our boy, but it is coming up on 2 years of cast trips for us and I am on a low limb today.>I could really use a pep talk or words of wisdom if anyone has a moment.>>Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast. You can read Bexon's Story on www.GirltoMom.com)>>>

December 29, 2010

Thank you so much, Patty!Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast. You can read Bexon's Story on www.GirltoMom.com)--- On Tue, 12/28/10, Patty Bowen <bowenpatty@...> wrote:From: Patty Bowen <bowenpatty@...>Subject: Re: little pathetic cry for supportinfantile scoliosis treatment Date: Tuesday, December 28, 2010, 8:18 AM

Heidi,You have helped me so much through this journey and I wish there was something I could do to make you feel better! Just keep your positive attitude... it is much better than mine which is Mrs. Pessimistic! I know exactly what you are going through and it is so hard. Keep the faith that 2011 will bring you all that you want! HUGS!!!!!!!! Patty, mom of Isabella, 3 years old, in 8th scoli cast (Rochester) & mom to (9) & Evan(6)From: NIck Guthe <nickguthe@...>infantile scoliosis treatment Cc: Montoya <isop06@...>Sent: Mon, December 27, 2010 8:49:07 PMSubject: little pathetic cry for support

I'm so scared to go back to the hospital in less than a week. We just went in Dec. and were sent away without a cast because Bex was sick with a little cough. With the holiday fun/and family stress it just seems like we are going right back through this pre-cast week worry yet again and I'm kind of freaking out. I know some of you understand that it can be an emotional roller coaster each time. I know we're doing the right thing of course, the best possible thing for our boy, but it is coming up on 2 years of cast trips for us and I am on a low limb today.I could really use a pep talk or words of wisdom if anyone has a moment.Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast. You can read Bexon's Story on

www.GirltoMom.com)

December 29, 2010

Thank you, !Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast. You can read Bexon's Story on www.GirltoMom.com)--- On Tue, 12/28/10, kristen.m.dalton@... <kristen.m.dalton@...> wrote:From: kristen.m.dalton@... <kristen.m.dalton@...>Subject: Re: little pathetic cry for supportinfantile scoliosis treatment Date: Tuesday, December 28, 2010, 8:36 AM

I know how heartbreaking this waiting period can be, as we are also in the weeks leading up to another casting.

However, I hope you can find some comfort in the fact that you and many others in this group have become my source of hope and promise. My son has only been through one cast, but I quickly noticed that you all who have a child in one cast after another are still strong, supportive and full of hope.

It's also helped me to keep reminding myself that I'm doing this for 's health. I hope you are able to find some relief from your worries.

-

>

> I'm so scared to go back to the hospital in less than a week. We just went in Dec. and were sent away without a cast because Bex was sick with a little cough. With the holiday fun/and family stress it just seems like we are going right back through this pre-cast week worry yet again and I'm kind of freaking out.

> I know some of you understand that it can be an emotional roller coaster each time. I know we're doing the right thing of course, the best possible thing for our boy, but it is coming up on 2 years of cast trips for us and I am on a low limb today.

> I could really use a pep talk or words of wisdom if anyone has a moment.

>

> Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast. You can read Bexon's Story on www.GirltoMom.com)

>

December 29, 2010

,I hope I can be real here. I don't have it. I get these PTSD feelings- a lot like the symptoms of grief- and it starts about 5 days before the trip or 1 week before casting day. I am crying every day- I feel like I should have this down and I DO in between casts! I'm much better on the travel and even the hospital days- for me, this pre-week is the hardest part. I'm so scared of bad news. Listen, you know we got in late- over 60 degrees and 19 months and just last month we flew to SLC and came home with no new cast. We've had no real number change for 5 casting trips. Up and down within 5 degrees. And we have seen children come and go and we are so happy for them but it is hard to still be stuck almost 2 years later. I know without casts we would be S* & & ED!!! I know it! It is the gold standard and the best treatment in the world, I am

just so tired of hospital trips! Bex has been in this cast for 4.5 months and he is so blissfully happy! I am just really freaking out this week. I feel weak, why can't I handle this better by now?Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast. You can read Bexon's Story on www.GirltoMom.com)--- On Tue, 12/28/10, <missikay10@...> wrote:From: <missikay10@...>Subject: Re: little pathetic cry for supportinfantile scoliosis treatment Date: Tuesday, December 28, 2010, 4:05 PM

Heidi,

You got this! You are a pro! I totally understand your fears. You and I have talked about pre/post jitters and the PTSD feelings it brings on.

You are super strong, a wonderful mother and a great source of support and inspritation to us all. Before long Bex will be cast free and you can enjoy squishy hugs everyday!

I will be thinking of you. Please update when you can.

Much love,

NIck Guthe <nickguthe@...> wrote:

>I'm so scared to go back to the hospital in less than a week. We just went in Dec. and were sent away without a cast because Bex was sick with a little cough. With the holiday fun/and family stress it just seems like we are going right back through this pre-cast week worry yet again and I'm kind of freaking out.

>I know some of you understand that it can be an emotional roller coaster each time. I know we're doing the right thing of course, the best possible thing for our boy, but it is coming up on 2 years of cast trips for us and I am on a low limb today.

>I could really use a pep talk or words of wisdom if anyone has a moment.

>

>Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast. You can read Bexon's Story on www.GirltoMom.com)

>

December 29, 2010

,I hope I can be real here. I don't have it. I get these PTSD feelings- a lot like the symptoms of grief- and it starts about 5 days before the trip or 1 week before casting day. I am crying every day- I feel like I should have this down and I DO in between casts! I'm much better on the travel and even the hospital days- for me, this pre-week is the hardest part. I'm so scared of bad news. Listen, you know we got in late- over 60 degrees and 19 months and just last month we flew to SLC and came home with no new cast. We've had no real number change for 5 casting trips. Up and down within 5 degrees. And we have seen children come and go and we are so happy for them but it is hard to still be stuck almost 2 years later. I know without casts we would be S* & & ED!!! I know it! It is the gold standard and the best treatment in the world, I am

just so tired of hospital trips! Bex has been in this cast for 4.5 months and he is so blissfully happy! I am just really freaking out this week. I feel weak, why can't I handle this better by now?Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast. You can read Bexon's Story on www.GirltoMom.com)--- On Tue, 12/28/10, <missikay10@...> wrote:From: <missikay10@...>Subject: Re: little pathetic cry for supportinfantile scoliosis treatment Date: Tuesday, December 28, 2010, 4:05 PM

Heidi,

You got this! You are a pro! I totally understand your fears. You and I have talked about pre/post jitters and the PTSD feelings it brings on.

You are super strong, a wonderful mother and a great source of support and inspritation to us all. Before long Bex will be cast free and you can enjoy squishy hugs everyday!

I will be thinking of you. Please update when you can.

Much love,

NIck Guthe <nickguthe@...> wrote:

>I'm so scared to go back to the hospital in less than a week. We just went in Dec. and were sent away without a cast because Bex was sick with a little cough. With the holiday fun/and family stress it just seems like we are going right back through this pre-cast week worry yet again and I'm kind of freaking out.

>I know some of you understand that it can be an emotional roller coaster each time. I know we're doing the right thing of course, the best possible thing for our boy, but it is coming up on 2 years of cast trips for us and I am on a low limb today.

>I could really use a pep talk or words of wisdom if anyone has a moment.

>

>Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast. You can read Bexon's Story on www.GirltoMom.com)

>

December 29, 2010

Tasha,Thank you, can I beg you to yell at me Texas style to pull it together? Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast. You can read Bexon's Story on www.GirltoMom.com)--- On Tue, 12/28/10, Tasha Fontenot <ryanswalk@...> wrote:From: Tasha Fontenot <ryanswalk@...>Subject: Re: little pathetic cry for supportinfantile scoliosis treatment Date: Tuesday, December 28, 2010, 5:50 PM

Hi Heidi,

I so agree with . YOU CAN DO THIS! And are good at it too. You are a strong Momma and such an inspiration to others.

But your feelings right now are perfectly normal and I think most of us, if not all, have felt the way you are feeling right now. Two years is a long time to be casting....we did 14 months so I can only imagine what you are going through. You are doing the very best for Bexon and it will all work out just fine. In due time.

Remember life may lead you where you least expect it, but have faith it is exactly where you need to be.

HUGS to you Heidi! When do y'all go back?

TashaMommy of 5 year old twin boys- and Fort Worth, Texas is treated at Texas ish Rite Hospital in Dallas, Texas. After being treated in a series of 6 casts for 14 months he is now in a brace and has been since September 2007.

EARLY Treatment does work if done properly.

You can read 's story at.... http://www.infantilescoliosis.org/stories.html

Or follow our family one day at a time......http://thefontenotslife.blogspot.com/

From: <missikay10@...>infantile scoliosis treatment Sent: Tue, December 28, 2010 6:05:17 PMSubject: Re: little pathetic cry for support

Heidi,You got this! You are a pro! I totally understand your fears. You and I have talked about pre/post jitters and the PTSD feelings it brings on.You are super strong, a wonderful mother and a great source of support and inspritation to us all. Before long Bex will be cast free and you can enjoy squishy hugs everyday!I will be thinking of you. Please update when you can.Much love,NIck Guthe <nickguthe@...> wrote:>I'm so scared to go back to the hospital in less than a week. We just went in Dec. and were sent away without a cast because Bex was sick with a little cough. With the holiday fun/and family stress it just seems like we are going right back through this pre-cast week worry yet again and I'm kind of freaking out. >I know some of you understand

that it can be

an emotional roller coaster each time. I know we're doing the right thing of course, the best possible thing for our boy, but it is coming up on 2 years of cast trips for us and I am on a low limb today.>I could really use a pep talk or words of wisdom if anyone has a moment.>>Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast. You can read Bexon's Story on www.GirltoMom.com)>>>

December 29, 2010

Thank you, !!!Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast. You can read Bexon's Story on www.GirltoMom.com)--- On Tue, 12/28/10, Sullivan <elizsullivan6@...> wrote:From: Sullivan <elizsullivan6@...>Subject: Re: little pathetic cry for supportinfantile scoliosis treatment Date: Tuesday, December 28, 2010, 6:00 PM

Heidi,

You are one of the strongest women I know! I know the emotions are all over the place right before and during casting. It's a tough time because of the unknown. I can't even begin to imagine what you go through after 2 years of trips, but I know you agree it's the best treatment for Bex. That doesn't make it any easier especially with your last trip getting the no go. I had a trip like that with , but her cast was already off and they couldn't put another back on. It's rough, but you have great support with Nick and with your CAST family. You CAN do this! Be positive, hold your head high and think positive thoughts!

Much love!

(mother to - 2 1/2 yrs old - 2 casts - 1 brace - currently treamtment free and straight since Feb)>I'm so scared to go back to the hospital in less than a week. We just went in Dec. and were sent away without a cast because Bex was sick with a little cough. With the holiday fun/and family stress it just seems like we are going right back through this pre-cast week worry yet again and I'm kind of freaking out. >I

know some of you understand that it can be an emotional roller coaster each time. I know we're doing the right thing of course, the best possible thing for our boy, but it is coming up on 2 years of cast trips for us and I am on a low limb today.>I could really use a pep talk or words of wisdom if anyone has a moment.>>Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast. You can read Bexon's Story on www.GirltoMom.com)>>>

December 29, 2010

Heidi, I hear you on the depression that sets in just before casting or other testing, surgeries, etc. I've been down that road many times since I was 20 weeks pregnant with Grace. I personally find having "me" time is what works best for me. I go once a month and spend the day scrapbooking and another day I try to go do things with my SIL or one of my own sisters.*hugs* to you. Know that we are all on this journey together, even though we may be at different stages. JaneFrom: NIck Guthe <nickguthe@...>infantile scoliosis treatment Sent: Tue, December 28, 2010 8:30:10 PMSubject: Re: little pathetic cry for support

,I hope I can be real here. I don't have it. I get these PTSD feelings- a lot like the symptoms of grief- and it starts about 5 days before the trip or 1 week before casting day. I am crying every day- I feel like I should have this down and I DO in between casts! I'm much better on the travel and even the hospital days- for me, this pre-week is the hardest part. I'm so scared of bad news. Listen, you know we got in late- over 60 degrees and 19 months and just last month we flew to SLC and came home with no new cast. We've had no real number change for 5 casting trips. Up and down within 5 degrees. And we have seen children come and go and we are so happy for them but it is hard to still be stuck almost 2 years later. I know without casts we would be S* & & ED!!! I know it! It is the gold standard and the best treatment in the

world, I am

just so tired of hospital trips! Bex has been in this cast for 4.5 months and he is so blissfully happy! I am just really freaking out this week. I feel weak, why can't I handle this better by now?Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast. You can read Bexon's Story on www.GirltoMom.com)--- On Tue, 12/28/10, <missikay10@...> wrote:From: <missikay10@...>Subject: Re: little pathetic cry for supportinfantile scoliosis treatment Date: Tuesday, December 28, 2010, 4:05 PM

Heidi,

You got this! You are a pro! I totally understand your fears. You and I have talked about pre/post jitters and the PTSD feelings it brings on.

You are super strong, a wonderful mother and a great source of support and inspritation to us all. Before long Bex will be cast free and you can enjoy squishy hugs everyday!

I will be thinking of you. Please update when you can.

Much love,

NIck Guthe <nickguthe@...> wrote:

>I'm so scared to go back to the hospital in less than a week. We just went in Dec. and were sent away without a cast because Bex was sick with a little cough. With the holiday fun/and family stress it just seems like we are going right back through this pre-cast week worry yet again and I'm kind of freaking out.

>I know some of you understand that it can be an emotional roller coaster each time. I know we're doing the right thing of course, the best possible thing for our boy, but it is coming up on 2 years of cast trips for us and I am on a low limb today.

>I could really use a pep talk or words of wisdom if anyone has a moment.

>

>Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast. You can read Bexon's Story on www.GirltoMom.com)

>

December 29, 2010

You got it pertty lady! This ain't yer first rodeo, but what yer goin' through is rarer than hen's teeth(pretty darn rare!).

First off don't get your cows runn'in(that means relax). I know right now you are sweating like a virgin at a prison rodeo(that means you are nervous),

but if you find yourself in a hole the first thing to do is stop diggin'. "Nothin' dries as quick as a tear."(that means problems soon pass).

Here in Texas we like to say, "pull yourself up by your bootstraps"(improve your situation by your own efforts).

"Courage is being scared to death - and saddling up anyway." (I think Wayne said that)

"If I tell you a hen dips snuff, you can look under her wing."(you can rest assured I'm telling you the truth).

I said all that out of FUN to make you laugh, but seriously........I know what you are going through and YOU WILL get through it!!!!!

Bottom line is.......you can put your boots in the oven, but that don't make em biscuits. Meaning this is our(us scolio families)life.......it is what it is.....we just deal with it. You deal with it in whatever way works best for you, Nick and Bexon.

Love you!

TashaMommy of 5 year old twin boys- and Fort Worth, Texas is treated at Texas ish Rite Hospital in Dallas, Texas. After being treated in a series of 6 casts for 14 months he is now in a brace and has been since September 2007.

EARLY Treatment does work if done properly.

You can read 's story at.... http://www.infantilescoliosis.org/stories.html

Or follow our family one day at a time......http://thefontenotslife.blogspot.com/

From: NIck Guthe <nickguthe@...>infantile scoliosis treatment Sent: Tue, December 28, 2010 10:33:36 PMSubject: Re: little pathetic cry for support

Tasha,Thank you, can I beg you to yell at me Texas style to pull it together? Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast. You can read Bexon's Story on www.GirltoMom.com)--- On Tue, 12/28/10, Tasha Fontenot <ryanswalk@...> wrote:

From: Tasha Fontenot <ryanswalk@...>Subject: Re: little pathetic cry for supportinfantile scoliosis treatment Date: Tuesday, December 28, 2010, 5:50 PM

Hi Heidi,

I so agree with . YOU CAN DO THIS! And are good at it too. You are a strong Momma and such an inspiration to others.

But your feelings right now are perfectly normal and I think most of us, if not all, have felt the way you are feeling right now. Two years is a long time to be casting....we did 14 months so I can only imagine what you are going through. You are doing the very best for Bexon and it will all work out just fine. In due time.

Remember life may lead you where you least expect it, but have faith it is exactly where you need to be.

HUGS to you Heidi! When do y'all go back?

TashaMommy of 5 year old twin boys- and Fort Worth, Texas is treated at Texas ish Rite Hospital in Dallas, Texas. After being treated in a series of 6 casts for 14 months he is now in a brace and has been since September 2007.

EARLY Treatment does work if done properly.

You can read 's story at.... http://www.infantilescoliosis.org/stories.html

Or follow our family one day at a time......http://thefontenotslife.blogspot.com/

From: <missikay10@...>infantile scoliosis treatment Sent: Tue, December 28, 2010 6:05:17 PMSubject: Re: little pathetic cry for support

Heidi,You got this! You are a pro! I totally understand your fears. You and I have talked about pre/post jitters and the PTSD feelings it brings on.You are super strong, a wonderful mother and a great source of support and inspritation to us all. Before long Bex will be cast free and you can enjoy squishy hugs everyday!I will be thinking of you. Please update when you can.Much love,NIck Guthe <nickguthe@...> wrote:>I'm so scared to go back to the hospital in less than a week. We just went in Dec. and were sent away without a cast because Bex was sick with a little cough. With the holiday fun/and family stress it just seems like we are going right back through this pre-cast week worry yet again and I'm kind of freaking out. >I know some of you understand that it can be an emotional roller coaster each time. I know we're doing the right thing of course, the

best possible thing for our boy, but it is coming up on 2 years of cast trips for us and I am on a low limb today.>I could really use a pep talk or words of wisdom if anyone has a moment.>>Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast. You can read Bexon's Story on www.GirltoMom.com)>>>

December 29, 2010

OMG Tash I love you so much! You made me smile first thing today and I really needed it! Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast. You can read Bexon's Story on www.GirltoMom.com)From: Tasha Fontenot <ryanswalk@...>To:

infantile scoliosis treatment Sent: Wed, December 29, 2010 6:14:34 AMSubject: Re: little pathetic cry for support