Re: little pathetic cry for support

[Guest guest]

Heidi,

You're such a great support and inspiration for all of us CAST families and

more. I will pray for you all to have a safe trip to SLC. We have only had cast

as of yet so I can only imagine what 2 years from now will be like but I almost

sure of anyone cam handle this and make the best of it it is you. You are such a

positive person in your writings and obviously a great humanitarian. Keep your

head up and I am sure that your trip will go as smoothe as ever.

Safe travels!

, Mommy to Tommy Lee, 3 (68* down to 52* in first cast) and Logan who is

10

>

> I'm so scared to go back to the hospital in less than a week. We just went in

Dec. and were sent away without a cast because Bex was sick with a little cough.

With the holiday fun/and family stress it just seems like we are going right

back through this pre-cast week worry yet again and I'm kind of freaking out. 

> I know some of you understand that it can be an emotional roller coaster each

time. I know we're doing the right thing of course, the best possible thing for

our boy, but it is coming up on 2 years of cast trips for us and I am on a low

limb today.

> I could really use a pep talk or words of wisdom if anyone has a moment.

>

> Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners,

currently down from 62 degrees to 20 in cast. You can read Bexon's Story on

www.GirltoMom.com)

>

[Guest guest]

,Thank you so much! Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast. You can read Bexon's Story on www.GirltoMom.com)From: crazerach <crazerach29@...>infantile scoliosis treatment Sent: Wed, December 29, 2010 7:26:03 PMSubject: Re: little pathetic cry for support

Heidi,

You're such a great support and inspiration for all of us CAST families and more. I will pray for you all to have a safe trip to SLC. We have only had cast as of yet so I can only imagine what 2 years from now will be like but I almost sure of anyone cam handle this and make the best of it it is you. You are such a positive person in your writings and obviously a great humanitarian. Keep your head up and I am sure that your trip will go as smoothe as ever.

Safe travels!

, Mommy to Tommy Lee, 3 (68* down to 52* in first cast) and Logan who is 10

>

> I'm so scared to go back to the hospital in less than a week. We just went in Dec. and were sent away without a cast because Bex was sick with a little cough. With the holiday fun/and family stress it just seems like we are going right back through this pre-cast week worry yet again and I'm kind of freaking out.

> I know some of you understand that it can be an emotional roller coaster each time. I know we're doing the right thing of course, the best possible thing for our boy, but it is coming up on 2 years of cast trips for us and I am on a low limb today.

> I could really use a pep talk or words of wisdom if anyone has a moment.

>

> Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast. You can read Bexon's Story on www.GirltoMom.com)

>

[Guest guest]

Gotta love T.R.!

I used to look at the entire infantile scoli scenario as a battle. I felt

like I was up against the world everyday w/ my daughters unique and

sometimes dangerous situation. Not to mention, the daily battles that

were encountered in trying to get a surgical community to accept/adopt a

non surgical treatment for PIS. That was/is def. a battle. Now, that

Livs scoli is not progressing at a rapid pace and we are not in SLC every

2/3 months, it seems that its better for me to view the last decade as a

process, rather than a battle (for my own health mostly). Even though,

looking back at it now, a battle is exactly what it seemed. A very long

one at that. I love the quote and agree that we have no choice but to

Press On for the kids...Our own and others out there who have not yet

found ET..Nice post

HRH

> In the words of Robbins-

>

>

> “You're in the midst of a war: a battle between the limits of a crowd

> seeking

> the surrender of your dreams, and the power of your true vision to create

> and

> contribute. It is a fight between those who will tell you what you cannot

> do,

> and that part of you that knows / and has always known / that we are more

> than

> our environment; and that a dream, backed by an unrelenting will to

> attain it,

> is truly a reality with an imminent arrival.â€

>

> This is how I view every day. It is a battle- a battle for me to not show

> the

> kids my worries for them. A battle for them to have as " normal " a

> childhood as

> possible. A battle to keep moving forward.

>

>

> And, it's a battle we all will win simply because losing is NOT an option.

>

> a

> Mommy to Doc.

>

>

>

>

> ________________________________

> From: NIck Guthe <nickguthe@...>

> infantile scoliosis treatment

> Cc: Montoya <isop06@...>

> Sent: Mon, December 27, 2010 8:49:07 PM

> Subject: little pathetic cry for support

>

>

> I'm so scared to go back to the hospital in less than a week. We just went

> in

> Dec. and were sent away without a cast because Bex was sick with a little

> cough.

> With the holiday fun/and family stress it just seems like we are going

> right

> back through this pre-cast week worry yet again and I'm kind of freaking

> out.

>

> I know some of you understand that it can be an emotional roller coaster

> each

> time. I know we're doing the right thing of course, the best possible

> thing for

> our boy, but it is coming up on 2 years of cast trips for us and I am on a

> low

> limb today.

>

> I could really use a pep talk or words of wisdom if anyone has a moment.

>

> Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City

> Shriners,

> currently down from 62 degrees to 20 in cast. You can read Bexon's Story

> on

> www.GirltoMom.com)

>

>

>

>

>

>