Guest guest Posted May 6, 2002 Report Share Posted May 6, 2002 Hello to you & your husband, First of all, I would advise your husband to see a rheumatologist to test for forms of arthritis that GPs don't test for. For me, ER doctors tested for RA but it wasn't until I saw a rheumatologist that I was tested for, and diagnosed with RAA and AS. Here are my humble suggestions for tests to ask for: hand & ankle X-rays, a bone density test (how I was diagnosed with AS), lupus, Lyme, Fibromayglia (sp.?), & B27 antigen (what I have also). Hope that helps! Culpeper, VA RAA & AS We're just not sure what to ask for or what >kinds of tests. Any help would be appreciated. Thank you all. > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ " Service is the rent we pay for being. It is the very purpose of life, and not something you do in your spare time. " (Edelman) " Do not go where the path may lead, go instead where there is no path and leave a trail. " (Emerson) ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~\ ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2002 Report Share Posted May 6, 2002 > Hi all. I'm so glad to have found this site. My dear hubby (DH) > recently had ankle pain for about 2 weeks till finally the swelling > got so bad, and a fever lasting about a week that we went to the ER. > He also was having indegestion, Better test for colon cancer, too. Try boiling all his drinking water including bottled water and reconstituted juices as even canned stuff can harbour harmful bacteria. Try it, it won't hurt, but will take more than a week to notices any improvement if that is what is the problem. Malcolm > (they tested him for a heart attack) > after all the tests came back they said his sed rate was 57 and they > believe its RA. He went to his family dr. who said he didn't think > it was that but put him on steroids. He finished those on Tuesday > and by Thursday the burning like pain was back a some swelling. This > is all new to us. He goes back tomorrow and he's going to ask to see > a specialist. What kinds of tests etc or things should we be > asking? He has a family history (both maternal grandparents, aunt, a > 2nd cousin had it at 25) They think his mom who has terrible > arthritis has osteo. We're just not sure what to ask for or what > kinds of tests. Any help would be appreciated. Thank you all. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2002 Report Share Posted May 7, 2002 Thank you for the advice. We went to see the primary doctor today whos' sure it couldn't be RA. Says he thinks it was just a virus kind of thing with some inflamation. I don't agree. He'll see him in 2 weeks. I kept asking for a referral but no such luck. Thank you for the lists of tests and suggestions. We'll see in 2 weeks. > Hello to you & your husband, > First of all, I would advise your husband to see a rheumatologist to > test for forms of arthritis that GPs don't test for. > For me, ER doctors tested for RA but it wasn't until I saw a > rheumatologist that I was tested for, and diagnosed with RAA and AS. > Here are my humble suggestions for tests to ask for: hand & ankle X-rays, > a bone density test (how I was diagnosed with AS), lupus, Lyme, Fibromayglia > (sp.?), & B27 antigen (what I have also). > > Hope that helps! > > Culpeper, VA > RAA & AS > > We're just not sure what to ask for or what > >kinds of tests. Any help would be appreciated. Thank you all. > > > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > " Service is the rent we pay for being. It is the very purpose of life, > and not something you do in your spare time. " (Edelman) > > " Do not go where the path may lead, go instead where there is no path and > leave a trail. " (Emerson) > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > > > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2002 Report Share Posted May 11, 2002 My 2 cents worth....When I suspected I developed RA my primary said and I quote the jerk "Until you (meaning me) have MD at the end of your name I should either not question his *expert* advice or seek a new primary which i did and guess what? I wish I could say my suspension was wrong but the blood tests from the new primary came back with positive RA and a sed rate of 82..This was over 2 years ago..So please, if anyone is having trouble with their primary cause they think they know it all, STOP, demand and if that does not work, find a new primary who listens to the patient..HMO's stink as it is, we cannot allow them to squelch our voice because when it is all said and done if is us who hurt and suffer and all the docs and insurance companys want is their money.. I wish all a pain free day Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2007 Report Share Posted May 29, 2007 i really agree, that it sounds like a depression that is screaming for treatment with both antidepressants and talk therapy. I see a wonderful lincensed social worker and it has helped me feel human again through all of this plus I take my antidepressants. It helps to seek someone outside the family when they are no support. Please talk to your DR and get started. I know the hardest part is getting started but once you do, you will wonder why it took so long. Please take care and know that I am praying for you. As RED GREEN says " we're all in this together and I'm pullin' for you. Keep your stick on the ice. " I know you want help or you wouldn't have posted. Don't give up. Laurie R. On 5/29/07, Fair <kalfoley@...> wrote: > > , > Many squeezes, it's normal to feel down and just plan awful when you're > flaring and don't have a treatment plan that's working. I'm not familiar > with Humira, but are you building up to weekly rather than every other week? > If I miss an Enbrel shot, it's flare-city for me, so I know an > every-other-week schedule wouldn't work for me. Did the Enbrel work for you? > The reactions get better with time and they respond well to benadryl. I > hardly get welts anymore, but for about 3 months I got big, hot marks after > my shots. Also, you might want to think of following up with your dr sooner > rather than later to discuss depression. When you're questioning the point > of living with chronic disease it's worth a heart-to-heart with your doc > about treating depression aggressively. It's normal to feel down, but when > you have serious thoughts of ending your life, or heck, even just not > enjoying it, it might be a good idea to discuss counseling and > antidepressants. Where in Michigan > are you? I grew up smack dab in the center, best and feel better, Kate F > > [ ] Questions About RA > > Dear Friends: > > I have been a member since beginning of the year. Have RA and > Arachnoiditis. Tired and disgusted. Don't understand this illness? Tried > Methotrexate > tablets but allergic to the binders. Started Enbrel injections but didn't > help > - kept getting injection site reactions. Now I am on Humera and > Methorexate > injections - alternating weeks. Get up every morning with the flue-like > symptoms and tired. Crying and tired of feeling sick. Husband does what he > can > to cheer me up but nothing seems to work. Doctor just says to be patient > but I am not. Mc's person! Want my life back. > > To be honest, I don't read all the postings. Belong to another support > group for A. Loosing interest in everything. No support from immediate > family. > My three fur balls keep me company. Why live like this? > Thank you for listening to my whining. > > Lee > Michigan > > ************ ********* ********* ******** See what's free at > http://www.aol. com. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2007 Report Share Posted June 2, 2007 Hi Lee,......Glad to see you posting, it helps a lot. Just to know others are feeling the same way. I know EXACTLY how you feel. I am tired of being sick and fatigued all the time. I can't really do much anymore. I would like to just lie down, and never get up again, but I have my family to look out after. Having a chronical illness, whatever it may be, is a b#* " *. It's hard on us, because someone that doesn't have it, can't understand. We do have to remember it's hard on are family, they don't know how to fix it. When I hear someone tell me, " they know how I feel, " I just want to scream. Or,they know someone with arthritis, and they just take a OTC med, great!! Just know were all here for you. You can email me anytime, I would be glad to hear from you. We all need support, so just holler anytime, Tawny Quote Link to comment Share on other sites More sharing options...
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