Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 I'm new to this board. My son is 9 and his OCD is at it's worst. Our DR. said that the winter months, December - February, are tough on OCD patients because of the shorter days and that less sunlight is absorbed by through the skin & eyes which helps increase seratonin, which in turn also helps worrying. Also, my son just got over strep throat and we were told that this strep infection is a major cause in the spike of his OCD symptoms. We were shocked. Has anyone ever heard of this? My son has an overwhelming fear & obsession with vomitting...especially in public. His anxiety gets so bad that it has actually happened at home, restaurants, and most recently at school. Does anyone have any advice on what I can do to help him feel more confident in school? HAs anyone experienced anything like this with their child> It's so bad sometimes, that he just doesn't or can't eat! And this is only one of his isues! Thanks for listening Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 Hi Jen, Welcome. Has your son ever had a blood test to check his strep titers for PANDAS?(Pediatric Autoimmune Neuro Psychiatric Disorder associated with Strepptocol (sp?) infections) - its OCD that's caused when your strep antibodies (after a strep infection) attack the basal ganglia of the brain. My 10 year old daughter had a sudden onset of OCD symptoms when she was 9 after suffering from a strep infection. She had several blood tests over a period of months, and each time her strep titers were increasing, and she was diagnosed with PANDAS OCD. Her doctor prescribed a 3 week course of antibiotics, and she slowly started to feel better. She is prone to throat/ear infections, so her psychiatrist has her on a low dose antibiotic thoughtout the school year. He tells us that even being exposed to the strep virus can cause an exacerbation of OCD symptoms. My daughter went through a fear of vomiting at restaurants too, and we didn't eat out for quite a while. We started bringing food in from her favourite restaurants, and then we started having her come with me to pick up the food. Then, we went to restaurants for only a short time - maybe for desserts or appetizers. We also brought along one of her friends and that seemed to take her mind off vomiting....Just some ideas. I hope some of this helps. Take care, nne > > I'm new to this board. My son is 9 and his OCD is at it's worst. Our > DR. said that the winter months, December - February, are tough on OCD > patients because of the shorter days and that less sunlight is absorbed > by through the skin & eyes which helps increase seratonin, which in > turn also helps worrying. Also, my son just got over strep throat and > we were told that this strep infection is a major cause in the spike of > his OCD symptoms. We were shocked. Has anyone ever heard of this? > My son has an overwhelming fear & obsession with vomitting...especially > in public. His anxiety gets so bad that it has actually happened at > home, restaurants, and most recently at school. Does anyone have any > advice on what I can do to help him feel more confident in school? HAs > anyone experienced anything like this with their child> It's so bad > sometimes, that he just doesn't or can't eat! And this is only one of > his isues! > Thanks for listening > Jen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 > > > > I'm new to this board. My son is 9 and his OCD is at it's worst. > Our > > DR. said that the winter months, December - February, are tough on > OCD > > patients because of the shorter days and that less sunlight is > absorbed > > by through the skin & eyes which helps increase seratonin, which > in > > turn also helps worrying. Also, my son just got over strep throat > and > > we were told that this strep infection is a major cause in the > spike of > > his OCD symptoms. We were shocked. Has anyone ever heard of > this? > > My son has an overwhelming fear & obsession with > vomitting...especially > > in public. His anxiety gets so bad that it has actually happened > at > > home, restaurants, and most recently at school. Does anyone have > any > > advice on what I can do to help him feel more confident in > school? HAs > > anyone experienced anything like this with their child> It's so > bad > > sometimes, that he just doesn't or can't eat! And this is only > one of > > his isues! > > Thanks for listening > > Jen > > >Thanks for the advice nne. We just took a regular strep culture yesterday to be sure, and it was negative. Can strep titers still be elevated if the culture is negative? Our GP didn't even know about the OCd/Strep connection. Do I discuss this with him or the Psychiatrist where he gets his meds? I will try the advice about eating, restaurants.ect...I thought we were alone in this. Thanks so very much! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 If your son had a neg. strep throat culture, that just means he doesn't have infection in his throat, the most common site. However kids can get skin, sinus, ear, rectum etc. strep infections. Needless to say a throat swab test will not pick up these! A blood test is required to detect elevated strep titers. Elevated titers just indicate a kid whose had a recent strep infection. Rising titers indicate increasing immune activation and perhaps continuing strep infection *somewhere*. My child is a PANDAS child. She's had documented strep infections with no physical symptoms, just the abruptly worse OCD. Antibiotics (always necessary when there is a strep infection--strep is a nasty, dangerous bug aside from PANDAS) *may* shorten and lessen a PANDAS OCD episode. Many of our PANDAS kids take preventive AB therapy similar to that prescribed to kids with rheumatic fever/heart (yet another post-strep-infection complication.) Not all doctors have heard of strep/OCD connection, and not all believe in it or will treat it. It is still considered a theory, not an established medical fact. Doctors today are under a lot of pressure to curtail antibiotic overuse and may not be comfortable prescribing them to a child with OCD on a " let's see " basis. Kathy R. in Indiana ----- Original Message ----- From: " jenniferleighmom " <jenniferleighmom@...> >>Thanks for the advice nne. We just took a regular strep > culture yesterday to be sure, and it was negative. Can strep titers > still be elevated if the culture is negative? Our GP didn't even > know about the OCd/Strep connection. Do I discuss this with him or > the Psychiatrist where he gets his meds? > I will try the advice about eating, restaurants.ect...I thought we > were alone in this. Thanks so very much! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 Hello Jen! I'm also new to this group. I have a 9 year old son with OCD and tics. I was told that 9-11 years old are very hard years for OCD. My sons symptoms seem to be getting worst this year. I wonder if this is true for others? I'm not even sure why? Wierd thing is he seems to do alot better when were outside in the sun and nature. Maybe , I'll try starting the day with a nice walk on the beach. I don't know the scientific research on this. All I know is I too feel better in the summer Are you in California? Good luck and keep smiling! Danalee jenniferleighmom <jenniferleighmom@...> wrote: I'm new to this board. My son is 9 and his OCD is at it's worst. Our DR. said that the winter months, December - February, are tough on OCD patients because of the shorter days and that less sunlight is absorbed by through the skin & eyes which helps increase seratonin, which in turn also helps worrying. Also, my son just got over strep throat and we were told that this strep infection is a major cause in the spike of his OCD symptoms. We were shocked. Has anyone ever heard of this? My son has an overwhelming fear & obsession with vomitting...especially in public. His anxiety gets so bad that it has actually happened at home, restaurants, and most recently at school. Does anyone have any advice on what I can do to help him feel more confident in school? HAs anyone experienced anything like this with their child> It's so bad sometimes, that he just doesn't or can't eat! And this is only one of his isues! Thanks for listening Jen Our list archives, bookmarks, files, and chat feature may be accessed at: / . Our list advisors are Gail B. , Ed.D., Tamar Chansky, Ph.D.( http://www.worrywisekids.org ), Dan Geller, M.D.,Aureen Pinto Wagner, Ph.D., ( http://www.lighthouse-press.com ). Our list moderators are Birkhan, Castle, Fowler, Kathy Hammes, Joye, Kathy Mac, Gail Pesses, and Kathy . Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at louisharkins@... , louisharkins@... , louisharkins@... . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 > > > Jen, My daughter had a 2nd strep culture a couple months after getting sick and it was negative. But we pushed for blood tests - an ASO and Anti DNase B test to count strep antibodies, and at first 2 months into her illness the results were normal. Three weeks later when we repeated the blood tests, the titers were exremely high. Our psychiatrist indicated that sometimes you can have OCD symptoms without a high titer count, but gradually if you have PANDAs the titers will increase. In our daughter's case her culture was negative but her titers were very high months after her strep infection. We live in Canada, and our pediatrician knew nothing about PANDAS. We photocopied some information for her. NIMH or the National Institute of Mental Health has some good information on PANDAS and I also called the OCD Foundation. We ended up going to Michigan to see a Psychiatrist who specializes in pediatric OCD and he was the one who prescibed the antibiotics and had her go for more blood tests. I wish you and your family well. nne > >Thanks for the advice nne. We just took a regular strep > culture yesterday to be sure, and it was negative. Can strep titers > still be elevated if the culture is negative? Our GP didn't even > know about the OCd/Strep connection. Do I discuss this with him or > the Psychiatrist where he gets his meds? > I will try the advice about eating, restaurants.ect...I thought we > were alone in this. Thanks so very much! > Quote Link to comment Share on other sites More sharing options...
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