Guest guest Posted March 22, 2000 Report Share Posted March 22, 2000 Fly.....hello glad to hear from you. Esther has been on Plaquenil for a couple of years now and I have noticed no unusual amount of excessive infection. ~ Carol ~ ----- Original Message ----- From: <iwannafly@...> < onelist> Sent: Wednesday, March 22, 2000 10:09 AM Subject: [ ] a question > From: iwannafly@... > > Hi everyone. Forgive me for being so quiet lately, but I've had many > things going on around here. Everything is fine including my RA. I'm > sorry to have lost touch, and now, here I am, asking you a question. > > To update, I take Clinoril and Plaquenil for the RA, Fosomax for the OP, > Prozac in the morning and Trazadone at night for the FM, Prevacid for > the stomach. The Clinoril is also for the OA I suppose. > I started the Plaquenil in September. I stopped all Prednisone in > November. With the present mixture of drugs, I've been doing great. The > swelling is down and to tell you the truth, I'm happy. > BUT... > I've had respiratory infections five times this winter. Started with > Bronchitis and Strep which in turn hit the nerve from my ear to the > brain and caused sever dizziness that I am still suffering with, not > anywhere near the degree though! I'm at the tail end of my " fifth case > of strep with infected sinuses " . The last two times. swollen lymph nodes > as well. > I asked the doctor what could possibly be causing all of these > infections, and she said possibly the Plaquenil. > After doing research on that, I, and my trusty researchers (thanks > guys) found no evidence that Plaquenil can lower the immune system. It > can lower the white blood count, but it is not an immunosupressant. > > OK, now the question... > > Have any of you, on Plaquenil, experienced excessive infections? > I am trying to narrow down the probable causes here. It sucks to feel > good, but be sick, all the time. > Thanks a lot. If you want to write to me privately on this one, that's > fine. > If you want to ignore me for being such a jerk, I deserve it. > > Fly > > > ------------------------------------------------------------------------ > GET A NEXTCARD VISA, in 30 seconds! Get rates as low as 2.9% > Intro or 9.9% Fixed APR and no hidden fees. Apply NOW! > 1/936/4/_/478567/_/953737784/ > ------------------------------------------------------------------------ > > URL to change your membership options: /group/ > RA-support website: http://www.rasupport.webprovider.com/ > Our chat room: www.delphi.com/RheumatoidArth1/start > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2000 Report Share Posted March 22, 2000 Hi Fly, I was on Plaquenil in the mid 70's, I never had any infections. In fact, it was said to have " changed the course of the disease " . No eye problems either. Hugs, Carolyn Esther & Carol wrote: > > From: " Esther & Carol " <cheerios2@...> > > Fly.....hello glad to hear from you. > Esther has been on Plaquenil for a couple of years now and I > have > noticed no unusual amount of excessive infection. > > ~ Carol ~ > > ----- Original Message ----- > From: <iwannafly@...> > < onelist> > Sent: Wednesday, March 22, 2000 10:09 AM > Subject: [ ] a question > > > From: iwannafly@... > > > > Hi everyone. Forgive me for being so quiet lately, but I've > had many > > things going on around here. Everything is fine including my > RA. I'm > > sorry to have lost touch, and now, here I am, asking you a > question. > > > > To update, I take Clinoril and Plaquenil for the RA, Fosomax > for the OP, > > Prozac in the morning and Trazadone at night for the FM, > Prevacid for > > the stomach. The Clinoril is also for the OA I suppose. > > I started the Plaquenil in September. I stopped all > Prednisone in > > November. With the present mixture of drugs, I've been doing > great. The > > swelling is down and to tell you the truth, I'm happy. > > BUT... > > I've had respiratory infections five times this winter. > Started with > > Bronchitis and Strep which in turn hit the nerve from my ear > to the > > brain and caused sever dizziness that I am still suffering > with, not > > anywhere near the degree though! I'm at the tail end of my > " fifth case > > of strep with infected sinuses " . The last two times. swollen > lymph nodes > > as well. > > I asked the doctor what could possibly be causing all of > these > > infections, and she said possibly the Plaquenil. > > After doing research on that, I, and my trusty researchers > (thanks > > guys) found no evidence that Plaquenil can lower the immune > system. It > > can lower the white blood count, but it is not an > immunosupressant. > > > > OK, now the question... > > > > Have any of you, on Plaquenil, experienced excessive > infections? > > I am trying to narrow down the probable causes here. It sucks > to feel > > good, but be sick, all the time. > > Thanks a lot. If you want to write to me privately on this > one, that's > > fine. > > If you want to ignore me for being such a jerk, I deserve it. > > > > > Fly > > > > > > > ------------------------------------------------------------------------ > > GET A NEXTCARD VISA, in 30 seconds! Get rates as low as 2.9% > > Intro or 9.9% Fixed APR and no hidden fees. Apply NOW! > > 1/936/4/_/478567/_/953737784/ > > > ------------------------------------------------------------------------ > > > > URL to change your membership options: > /group/ > > RA-support website: http://www.rasupport.webprovider.com/ > > Our chat room: www.delphi.com/RheumatoidArth1/start > > > > > > --------------------------------------------------------------- > > --------------------------------------------------------------- > URL to change your membership options: > /group/ > RA-support website: http://www.rasupport.webprovider.com/ > Our chat room: www.delphi.com/RheumatoidArth1/start Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2000 Report Share Posted March 22, 2000 Thank you, Carol. I hope Esther is doing well. ~ Suzanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2000 Report Share Posted March 22, 2000 Thank you Carolyn. So far, 2 of you have, or are on it, and no problems. I didn't think it was causing me any problems either, but when the doc mentioned that, it started me wondering. Thanks for the reply. ~ Suzanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2000 Report Share Posted March 22, 2000 Also, Suzanne I forgot to mention that Esther's Rheummy is always worried about her getting infections because of her past history of losing two joint replacements............don't think he would have her on it if he thought that could be the cause. ----- Original Message ----- From: <Sevancho@...> < onelist> Sent: Wednesday, March 22, 2000 12:24 PM Subject: Re: [ ] a question > From: Sevancho@... > > Thank you, Carol. > I hope Esther is doing well. > > ~ Suzanne > > > ------------------------------------------------------------------------ > PERFORM CPR ON YOUR APR! > Get a NextCard Visa, in 30 seconds! Get rates as low as > 0.0% Intro or 9.9% Fixed APR and no hidden fees. > Apply NOW! > 1/2121/4/_/478567/_/953747002/ > ------------------------------------------------------------------------ > > URL to change your membership options: /group/ > RA-support website: http://www.rasupport.webprovider.com/ > Our chat room: www.delphi.com/RheumatoidArth1/start > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2000 Report Share Posted March 22, 2000 Fly, Maybe it was a coincidence. It would be a shame to stop taking it when it is helping the RA. But these infections can be dangerous, especially strep. Since you work in a school around sick children you are exposed to so many germs. Has your school had more illnesses this year? I hope they find out why you are constantly getting infections. a ----- Original Message ----- From: <Sevancho@...> < onelist> Sent: Wednesday, March 22, 2000 12:30 PM Subject: Re: [ ] a question > From: Sevancho@... > > Thank you Carolyn. > So far, 2 of you have, or are on it, and no problems. I didn't think it > was causing me any problems either, but when the doc mentioned that, it > started me wondering. > Thanks for the reply. > > ~ Suzanne > > > ------------------------------------------------------------------------ > GET A NEXTCARD VISA, in 30 seconds! Get rates > as low as 0.0% Intro APR and no hidden fees. > Apply NOW! > 1/975/4/_/478567/_/953747403/ > ------------------------------------------------------------------------ > > URL to change your membership options: /group/ > RA-support website: http://www.rasupport.webprovider.com/ > Our chat room: www.delphi.com/RheumatoidArth1/start > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2000 Report Share Posted March 22, 2000 a, I don't want to stop the Plaquenil, especially since I feel it's done so much good. There has been a lot of illnesses going around at school, but no one has gotten sick as often as I have. I just wanted to check with anyone else who is using or has used the same med. So far, you're right, it probably is a coincidence. It was my family doctor that said that to me and not my Rheume. Thanks. ~ Suzanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2000 Report Share Posted March 23, 2000 Fly, We could never think of you as a jerk. We know how busy you are. It was a good idea to ask people who have taken Plaquenil about their problems with infections. From what I have seen, it has not caused that kind of problem for others. Hopefully, you will be able to stay on the medication that is working. Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2003 Report Share Posted April 22, 2003 I have been on methotrexate now for over two months, starting out with two 2.5 per week and am now up to four 2.5 per week, but the doc said I will eventually be up to 6 of these per week. My ankles are more swollen now than they've ever been. I also take Bextra, which I went one month without to see if that was holding the fluid, but there was no change so now I am back on it. I was so very sick when I tried prednisone, so I just can't take that on again. Is this normal? I can sit all day with me feet propped up and still my swelling is so bad. Any suggestions? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2003 Report Share Posted April 22, 2003 Hi, neiceetn. I think your doctor is quite slow in increasing your Methotrexate and/or adding another medicine. That's the old theory that medicines are harmful and you want to use as little as possible. The newer theory is that RA is harmful and you want to stop it as soon as possible. There is truth in both theories but the old theory often leads to permanent disability. Also you should be seeing a Rheumatologist who is a specialist in problems with joints. I think a second opinion may well be in order. I think the swelling comes with Rheumatoid Arthritis and does not go down until after the RA is controlled by appropriate medications. You and your doctor need to find out what medicines are needed for you and in what dosages. Different things work for different people so it has to be done by trial and error. Good luck and God bless. ----- Original Message ----- From: neiceetn Rheumatoid Arthritis Sent: Monday, April 21, 2003 9:56 PM Subject: a question I have been on methotrexate now for over two months, starting out with two 2.5 per week and am now up to four 2.5 per week, but the doc said I will eventually be up to 6 of these per week. My ankles are more swollen now than they've ever been. I also take Bextra, which I went one month without to see if that was holding the fluid, but there was no change so now I am back on it. I was so very sick when I tried prednisone, so I just can't take that on again. Is this normal? I can sit all day with me feet propped up and still my swelling is so bad. Any suggestions? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2003 Report Share Posted October 18, 2003 Hi, . The group is for both announcements and discussion. However, this group's home page has the following information: Group members not wishing to receive general discussion e-mail from other members may set their message delivery option to "Special Notices" when joining, or by logging on to the LDN Group site and clicking on "Edit My Membership." , if you sign into the group and click like it says, you'll then find "Special Notices" under the "Message Delivery" heading. Click on that, and then save the change to your membership with the button at the bottom of the page. Hope this helps, Galoux Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 It can affect the spine, but not usually. What happens is if you are overweight, you will have increasingly more problems with your spine. It gets worse because of the constant pressure from the weight. ----- Original Message ----- From: Vicki Rheumatoid Arthritis Sent: Monday, February 20, 2006 12:30 PM Subject: a question Can RA effect the spine? I know that because I am overweight my back can hurt. But I haven't gained any weight over the past year but I am getting more lower back pain. When I mention it to my doctor he says it's because I need to lose weight. Vicki --- USFamily.Net - $8.25/mo! -- Highspeed - $19.99/mo! --- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 Some people say that RA cannot affect the spine so they call spine problems by some other name such as Psoriatic Arthritis or Ankylosing Spondylitis. All three are closely related and treated essentially the same way. Of course there are a lot of other things that can cause back pain so you need to have your doctor tell you how to treat it. God bless. From: Rheumatoid Arthritis [mailto:Rheumatoid Arthritis ] On Behalf Of Vicki Sent: Monday, February 20, 2006 9:30 AM Rheumatoid Arthritis Subject: a question Can RA effect the spine? I know that because I am overweight my back can hurt. But I haven't gained any weight over the past year but I am getting more lower back pain. When I mention it to my doctor he says it's because I need to lose weight. Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 Same problem I had.Go see a orthopedic surgeon. You may have injured a disc, have a hip that's out of place (my favorite), or osteoarthritis (also my favorite). The Orthopedic can really diagnosis and find out just what it is. If it is RA they will find that too. StaceyVicki <hoyt91@...> wrote: Can RA effect the spine? I know that because I am overweight my back can hurt. But I haven't gained any weight over the past year but I am getting more lower back pain. When I mention it to my doctor he says it's because I need to lose weight. Vicki --- USFamily.Net - $8.25/mo! -- Highspeed - $19.99/mo! --- Autos. Looking for a sweet ride? Get pricing, reviews, more on new and used cars. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2006 Report Share Posted February 21, 2006 You should have a bone density scan and an xray from a Rheumatologist to check for arthritis. I have RA and need to take actonel for bone loss in my spine and hips. Get a bone scan by a certified RD and demand the proper respect for your pain. Yours, Deborah On 2/20/06, Vicki <hoyt91@...> wrote: Can RA effect the spine? I know that because I am overweight my back can hurt. But I haven't gained any weight over the past year but I am getting more lower back pain. When I mention it to my doctor he says it's because I need to lose weight. Vicki Quote Link to comment Share on other sites More sharing options...
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