Guest guest Posted October 17, 1999 Report Share Posted October 17, 1999 > I have been gargling with 3% non food grade H2O2 for the past couple of > weeks. I think someone on this list, or on my fasting forum list, spoke > about using it. Well I followed the advice and my teeth feel absolutely > great. They are so smooth, just like when I've had them polished at the > dentist. It's amazing. I also gargled when I had a sore throat and it went > away within 15 minutes. > > >Are you mixing this with water? >Thanks; No, just straight H2O2 3%. Not the greatest taste in the world, but I just don't breath through my nose. It would be worth the bad taste even if it was revolting. What great stuff. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2000 Report Share Posted January 28, 2000 Hi n. Gee guys I was kinda feeling bad that my 4 year old still gets in my bed. He isnt the one with JRA tho, I am! AND it is much easier for him to come get in my bed than for me to go get in his bunk bed at 3:00 or 4:00 am.Glad to hear other lil ones at that age are seeking comfort in mommys bed. Thanks and have a good one! Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2000 Report Share Posted January 28, 2000 Dear Amy, My son jason is 10 and also takes methotrexate. The problems you are having with your daughters eating habits sound familiar! A while back jason was on voltarol and methotrexate. During this time he seemed to want to eat alot more than usual too. The doctor explained to me that the cause was infact irritation to the stomach from the voltarol, not hunger itself. interpreted the feeling as hunger and ate to try to get rid of it. We were having alot of side effects from the voltarol anyway, so by this time it was decided it best if he came off it. I have also found that the desire to eat increases when he is on predisone. A friend gave me a tip that seems to work. Encourage foods like cereals, porridge, pasta, bread, etc as this seems to ease the feeling in the stomach and dulls the cravings for excess amounts of food. For some reason whenever jason is on steriods he craves porridge anyway! I found the little and often approach works for us. When he is ill jason tends to snack rather than eat at a set mealtime. I`m pretty relaxed about this as its no use enforcing a set meal if he really does`nt want to eat at that particular time. Goodluck carol ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2000 Report Share Posted March 26, 2000 People: I am basically new to this forum, but after what is only weeks of reading comments and seeing the volleying of what are inane subjects (to me at least some are) decided to interject my comments also. Here we are trying to show the world that we are no different from everyone else. That everything that affects the world affects us and we find ourselves censoring issues that seem to get under our skin. How could we say that this room is to share and support each other and then turn our backs on an issue that to a certain degree affects this community more than others. I doubt you will ever hear someone proclaim that they are aborting a fetus because it is " too perfect " , as in tall enough, white enough, blond enough or much too smart. But in this age of the rapid advancement of genetic testing " WE " will be the casualties, more and more. So why shouldn't we hear others experiences even if they only serve as information for future reference. I will only make a choice after hearing as many sides of the story as possible. And its not about our personal views and choices on the 'abortion' issue. I really don't think one person's outcry will change my choices. And its wasn't on my views on whether Dwarfs should take the chance of passing this onto to another generation if they choose that was important. It should have been about the indiscretion of that doctor who took it upon himself to pass judgment on another individuals life choices. Why didn't we stand up as a group or as individuals and bombard him with letters explaining why sometimes what he perceives as a damaged life is better than no life at all. Or how that woman's children will be better loved and cared for than those of other couples that chose to have families as a status symbol. I need to tell that " man of medicine " , that despite the fact that I almost died three years ago and the horrible time I had dealing with three surgeries after the scare. And the pain and frustration that I still feel everyday, life is still peachy keen and worth being a player in it. I can still put my head down on my pillow each night and quietly marvel at what we experience everyday as human beings and how this all fits in the big picture. I can appreciate the light stuff some days and laugh with the rest of you when it is appropriate, but we should also be addressing serious issues, and being supportive. Abortion, genetic testing, HMO's denial of much needed treatment are subjects that I don't get into in the chat room but feel that would be appropriate subjects for this and regional as well as national conferences. Get a grip folks there is more out there than " love, sex & rock and roll " and everything should be on the table so we could be better prepared and we can help to prepare others. If you just want to be funny and light, then meet me in the chat room and we'll throw the bull around some. And as for my 'meet & greet' for those of you on this list: I am a 44 yr. old female from New Jersey, just became a member of LPA, employed as a graphic artist at a University. If you go into the mIRC " Dwarfism " chat room i am known as " (^oo^) say Hi. Happy to meet you all and look forward to reading more about you and your views. dwarfismonelist wrote: > > ------------------------------------------------------------------------ > GET A NEXTCARD VISA, in 30 seconds! Get rates as low as 2.9% > Intro or 9.9% Fixed APR and no hidden fees. Apply NOW! > 1/936/6/_/77518/_/954060232/ > ------------------------------------------------------------------------ > There are 18 messages in this issue. > > Topics in today's digest: > > 1. Re: Fw: Fw: Please read! > From: Craig <dcm@...> > 2. Fw: Fw: Fw: Please read! > From: REDHAWK4@... > 3. Re: Fw: Fw: Fw: Please read! > From: ningerbil@... > 4. 's decompression surgery > From: KCal0329@... > 5. Re: AOL & Gdwarf chat > From: JenJo@... > 6. [Fwd: [Fwd: Fw: Three Serious WARNINGS]] > From: Mark McCormick <dryker@...> > 7. What would it be like if ? > From: andRose520@... > 8. Re: My previous post > From: kd1219@... > 9. Re: HAHAHa > From: kd1219@... > 10. Re: Hey, about the abortion message - let's go there! > From: Marty Hiebert <martie@...> > 11. Re: Reba's " Something to think about " response dated 3/25/00 > From: LinLouCan@... > 12. Re: Maybe we should go there > From: Marty Hiebert <martie@...> > 13. Abortion and uptight people > From: Deitze <daviddeitze@...> > 14. Re: Hey, about the abortion message - let's go there! > From: AngelsRTru@... > 15. People magazine > From: " anon 693 " <anon_693@...> > 16. Non-Dwarf Related Topics > From: kd1219@... > 17. Re: My previous post > From: JenJo@... > 18. Re: Abortion and uptight people > From: JenJo@... > > _______________________________________________________________________________ > _______________________________________________________________________________ > > Message: 1 > Date: Sat, 25 Mar 2000 07:30:20 -0600 (CST) > From: Craig <dcm@...> > Subject: Re: Fw: Fw: Please read! > > On Fri, 24 Mar 2000, Butch C Carlisle wrote: > > From: Butch C Carlisle <Butchcs@...> > > > > IMPORTANT NOTICE > > > > To everyone who reads this message. THIS IS NOT A JOKE, REPEAT NOT A > > JOKE. This information is from a very good friend of mine who I go > > Bowlong and Fishing with. Please read this. It COULD happen to YOU. > > This is a variation of the " don't flash your headlights at > a car with their lights off " hoax. > > Please people, whenever you see a note with a line like: > > > > > PLEASE PASS THIS ON TO EVERYONE YOU CARE ABOUT. > > be suspicious - it's almost always a hoax. > > Craig > > > Thank You > > Butch > > > > --------- Forwarded message ---------- > > From: " Calvin Rathburn " <calbudy@...> > > " M Hecht " <twinsrus@...>, " david linder " <generals@...>, > > " Butch C Carlisle " <butchcs@...> > > Date: Fri, 24 Mar 2000 20:41:42 -0500 > > Subject: Fw: Please read! > > Message-ID: <000501bf95fb$465579c0$718f28d8@default> > > > > > > [Fwd: [Fwd: Fw: Three Serious WARNINGS]] > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2000 Report Share Posted March 26, 2000 Welcome to the dwarfism listserv . Nice to hear your voice on here and please do continue posting. See ya in Jersey, girl! Ann [Fwd: [Fwd: Fw: Three Serious WARNINGS]] > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2000 Report Share Posted April 28, 2000 << Unfortunately, I am also on the birth control pill, not for contraceptive purposes really, but to balance a hormonal imbalance that I was born with. I tried natural hormonal methods in the past, but because of my young age (26) none of them were potent enough to help with the imbalance, which is quite severe. But it's frustrating having to rely on such a pill, because I know that the Pill can cause or aggravate candida infection. >> I was on the pill for a while to " correct " hormonal imbalances (very irregular periods, heavy bleeding, bad cramps). BUT since I went off the pill, I realized all I had to do was eat correctly to have virtually no period problems. And of course the pill just ended up contributing to greater problems, like candida. Of course, if you were born with a hormonal imbalance, your situation could be quite different, but nutrition has such a drastic effect on hormones. I just wish I'd realized it sooner instead of believing my body was this disconnected entity that I could just pour garbage into and be fine. *Jami Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2000 Report Share Posted July 29, 2000 Just wanted to thank Kim for the idea-going to try it myself! Vickie~ ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2000 Report Share Posted August 7, 2000 I just re-entered my kids in public school after homeschooling for 2 year against my better judgement). I haven't continued with their shots because I have concerns. One of the school personel stressed her concern that my 5th grader hadn't had a booster HepB shot. Could someone tell me how HepB is spread and if there is any alternative to protect my kids against it? I would very grateful to hear from you. Thanks, Suzanne __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2000 Report Share Posted August 7, 2000 Suzanne, I once worked with a nursing assistant who got Hepatitis B from a patient. She was pregnant at the time, and now her daughter is a carrier. I also have an upstairs neighbor who got Hepatitis C from a tainted blood transfusion. I know people have reservations about vaccinations, but, in my estimation, the benefits far outweigh the risks. I have heard of cases of children becoming very ill with whooping cough who were not vaccinated. You're better off to get the children vaccinated, and keep going with your natural regimen. Kathleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2000 Report Share Posted August 17, 2000 mb, sounds like pb is having fun dunking, stirring and eating.....my dh hates when my kids do that....its all part of the fun...... i guess so is painting floors, dropping watermelons, bunging chairs, splattering chinese food, ruining mommies new shirt, escaping home, making moms lock the house down like max security prisons and so on and on on life goes....taek care lall Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2000 Report Share Posted August 17, 2000 Well, all, I should be getting dinner ready and instead I am sitting here alternating between laughing and crying with all of you. ine, your post about your sister and your life was beautifully put! Thanks for the reflection- sort of this wonderful juxtaposition against the other posts about all of these household disasters today. I think my favorite line just might be (Lori-Ann's?) " NO AUTISM TODAY!! " Leah, hang in there- don't know what more I can say. I would have lost it ages ago if PB was home for months at a time 24-7! Yegads! And I laughed at 's description of this large family table with a huge area cleared away for Matt. Yep- that's us at our house to a t! Plus, PB is just now discovering the joys of dunking, stirring, etc. Even funnier was my DH 's reaction to PB puttitng bits of food in his juice- " He can't drink that! " Yes, he mixed it, and now he gets to drink it!! ALl kids like to do that food mix at some point anyway but he thought it was gross. And we even have a photo somewhere of the splattered watermelon on the floor the day PB tried to lift it from the counter and there it lay in all its glory. We also have a paint story-(several years ago) - a brush soaking in turpentine that I didn't think he could get to- and of course he did- and painted all over the rug that we were fortunately pulling up- but the white paint by his mough nearly gave me a heart attack because I thought he'd tasted the turpentine. I like the idea of bungee cording chairs to the table- the things we do! Well, gotta put some food on the table. Blessings and love to all! MB Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2000 Report Share Posted September 16, 2000 http://www.the-sage.com/services/calculator.html Use the lye calculator at Majestic Mountain Sage egroups wrote: > > ~*~*Thanks for joining! Tell your friends!!!!!All natural is the way to go!!~*~* > ------------------------------------------------------------------------ > > There is 1 message in this issue. > > Topics in this digest: > > 1. substituting oils > From: 2didi@... > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 1 > Date: Thu, 14 Sep 2000 16:38:20 -0000 > From: 2didi@... > Subject: substituting oils > > Thanks for your advice re: substituting oils: I'll have to > play around with substitutions and my lye calculator. To date, I've > been working with pre measured recipes, and haven't had to do the > math. I guess it's time to move to the next level! > > Kim > > ________________________________________________________________________ > ________________________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2001 Report Share Posted January 13, 2001 In a message dated 1/13/1 6:55:03 AM, Earl writes: << : you're using extremes.>> I was not the one who stated " never needs replaced " . <<If one is unfortunate enough to have submitted to surgery then replacement is obviously required.>> " To have submitted to surgery " ? It was not a defeat to do this! It was a proactive way to rid my body of cancer. Can you not see that? And yes, it *is* obvious if a body has no thyroid gland, a replacement is necessary. That was my original point. <<Synthroid, in general, is a poor choice as its side effects are not nice and no drug actually " replaces " your hormone. If one has had surgery for some reason, then Armour [pig thyroid extract] is usually a much better choice.>> Unless your body actually reacts poorly to Armour and Synthroid doesn't cause these same side effects, then you have to make the most logical decision for your own health. <<Medically trained personnel in general are trained to use drugs and do not tend to determine if there are alternatives. The drug therapy for thyroid dysfunction, generally, is a tragedy!!>> Which is why each individual must be his/her own medical advocate, just as we should be our own advocates in all aspects of life. To do anything else is irresponsible on our parts. <<Just read the messages on this list over time and see how many people experience poor results from medical management of thyroid dysfunctions. People throughout the world are turning to alternative practitioners because they realize that drugs simply do not heal.>> I have been reading these messages, for about 2 years now. I do it not because I believe fully in one person's treatment or point of view, but because I feel it is my responsibility to know options out there and how they can affect your body, positively and adversely. <<Surgery, in most instances, is unnecessary. It is not necessary to mutilate the body in order to heal it...in most instances.>> Some people do not consider a surgery which saves a life from a cancer as, using your loaded language, a " mutilation " to which someone has to be " submitted " . <<There are always exceptions.>> This was my point exactly in my original post. *I* was not the one who stated " never " in my post. I just wanted to point out that an individual cannot continually generalize and lump all people (or categories of people) together. It is irresponsible to do so, in most instances, because of so many exceptions in this world. <<Read any of the books by Dr. Deepak Chopra. He keeps repeating over and over....the body is capable of amazing feats of regeneration...given the opportunity. What I do is to suggest to people how to take that opportunity to regenerate their thyroid....and the rest of their body, naturally. Earl >> I have read them. I agree that is amazing what the body can do. It is also amazing that we have learned so much in medicine over the past several hundred years. It amazes me that a person can have cancer and can rely on more than just luck or prayer alone to cure a body of a ravaging disease. I would take a surgery which leaves the body with a scar and the prayers of friends and family over not having that information and ability any day. You may or may not agree with that. As you well know, it is your right and responsibility to explore options and choose the best one for you, which is precisely what I continue to do every day while I take the Synthroid, which has so far proven to be my best option. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2001 Report Share Posted January 14, 2001 : You are right in all of your contentions. Surgery can be life saving...at times. What I have found best is, if at all possible, to avoid the circumstances that require surgery.Cancer is now said to be " striking " 1 person out of about 2.5 people. If we can avoid the circumstances that initiate cancer then maybe surgery could be avoided. Yes, mutilation may be a loaded word, but I see so many peiople who have had surgery...for throid, gall bladder, caesarian, hysterectomies and on and on, most of which are entirely unnecessary. I always marvel when I access www.hacres.com and see the testimonials of people who have adopted the " Hallelujah Diet " and eliminated cancer, heart disease, tons of weight [collectively] and most diseases that plague us today. And thats just from adopting a balanced vegetarian diet with fairly minimal detox processes. Prevention is just so much easier, cheaper and growthful than is radical " therapy " after one contracts some disease. But then sometimes it takes a life threatening situation for many folks to really take responsibility for their health and well-being. Earl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2001 Report Share Posted March 2, 2001 Rajinder Johal wrote, >Was Rigert East European? Where was he from? Yes, he was a premier 90 kg lifter from the Soviet Union. >True but after early success he is now being piloried by the Welsh >media. I accept your point though although when I speak of traing >methods I am primarily speaking of weight training as opposed to the >type of technical work prevalent in rugby or gymnastics. Yup - but if you know something of Welsh rugby you'll know this is pretty much par for the course! >I could be mistaken but haven't you previously argued elsewhere of >the importance of genetics in sprinting so that the success of these >US and Canadian coaches can be attributed to the athletes they work >with more than their methods? Absolutely not! One of many important areas in detemining athletic excellence - yes. The sole factor? Absolutely not. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2002 Report Share Posted July 1, 2002 re: Queenie What belly dancing tape do you have? I saw one and am thinking about trying one. re: Happy belated birthday to your baby. :-) Did she have a good day? re: n WOOHOO! Congrats on the loss! Don't work too hard. :-) re: Sylvie WOOHOO about the Buffy DVD. I'm watching all the old episodes on weekends trying to get caught up. re: K Sorry . Hugs! What you have to do is follow orders and work to become healthier. re: Hugs! re: 's soup I modified the recipe a bit (more tomatoes; replaced some of the broth with water; seasoned with lemon pepper) and it was YUMMY! Next time, though I might add more mushrooms. Much love, all. Sherrie ----------------- <A HREF= " http://members.ebay.com/aboutme/sc_wahm/ " >http://members.ebay.com/aboutme/\ sc_wahm/</A> http://members.ebay.com/aboutme/jillryangifts <A HREF= " http://user.auctions.shopping./user/sc_wahm " >http://user.auctions\ ..shopping./user/sc_wahm</A> http://www.bidbay.com/index.php?page=aboutme & user=964312859 ========== <A HREF= " auctionspam " >a\ uctionspam</A> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2002 Report Share Posted July 1, 2002 I caught that Buffy DVD thing....I just got a bunch from Netflix.com and we had a Buffyathon. We just started watching it. Great show. I just found out my 20 yr high school reunion is this weekend. I cannot go because we are getting ready to move, but it got me to thinking how I would handle people's reaction seeing my body with 90 more pounds on it. Strange, it had not bothered me that much before. I guess those old feelings of being inadquate in high school never really leave you...or maybe they do. Then I thought, why do I want to go? Is there anyone there I want to see-hmmm - No. Did I keep in touch with the people from high school-no. So why am I letting this bug me? Any ideas... Keep the Faith 220/217/120ish www.geocities.com/bloomingpansy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2002 Report Share Posted July 3, 2002 High school reunion are hell!!! I didn't go to the 5 year one and to the 10 year one. At both I was in paticularly bad place in my life and I had the same reflection as you: Do I want to see anybody from there? NO. Those years of high school are really stuck into our heads. Anything and everything that happens in those years has just so much importance to our own eyes at the time. Anyway, what I really wanted to say is that I did meet someone I knew in high school that did go to the 10yr one and she said something that made me feel better about not going, here it is: The people she liked back then... she still pretty much liked today, AND the ones she couldn't stand... yep! Still can't stand them. Sylvie Hebert 336/336/299-175 >I just found out my 20 yr high school reunion is this weekend. I cannot go >because we are getting ready to move, but it got me to thinking how I >would handle people's reaction seeing my body with 90 more pounds on it. >Strange, it had not bothered me that much before. I guess those old >feelings of being inadquate in high school never really leave you...or >maybe they do. Then I thought, why do I want to go? Is there anyone there >I want to see-hmmm - No. Did I keep in touch with the people from high >school-no. So why am I letting this bug me? > >Any ideas... > > >Keep the Faith > >220/217/120ish >www.geocities.com/bloomingpansy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2003 Report Share Posted April 21, 2003 Hi, I have had RA over 40 years, and I emphatize with you. Do you elevate your feet? Try massaging your muscles around your knee,too. Stay active as I'm sure you do. Simple stretching exercises help. too. I have a wonderful physical therapist who knows I exercise including walking every day. It hurts, too. Send me your story about what meds, ,etc that you have tried. I'm going to compile the things that work for me soon. Pearson ----- Original Message ----- From: <Rheumatoid Arthritis > <Rheumatoid Arthritis > Sent: Thursday, April 10, 2003 9:28 AM Subject: Digest Number 340 > > There are 3 messages in this issue. > > Topics in this digest: > > 1. new here > From: " Sassy " <sassygirl45365@...> > 2. Another problem > From: " jeffgrocka " <jeffgrocka@...> > 3. new to this group > From: " neiceetn " <Randydenis@...> > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 1 > Date: Thu, 10 Apr 2003 02:51:04 -0000 > From: " Sassy " <sassygirl45365@...> > Subject: new here > > well kind of takes me awhile to post. A year ago I found out I have > RA..we do the blood work and specialist. With a list of things I > shouldn't be doing. If I don't do them they don't get done. I'm 45 > and a widow with 3 kids the youngest 8. I have 7 acres to take care > of. I have been and still am active. I am trying not let the pain > get to me. My problem is and the doc just says she can try draining > it...my knee fill with fluid. It will go down some with the meds but > then fills back up to the point it throbs after a days work or outing > with the kids. She also tells me my pain tolerance is too high. Any > one else had a knee fill with fluid??and what did you do about it? > Thanks for listening > > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 2 > Date: Thu, 10 Apr 2003 03:59:20 -0000 > From: " jeffgrocka " <jeffgrocka@...> > Subject: Another problem > > I was at the my regular Dr. today and on top of my RA she is telling > me I have all the signs of Fibromyalgia. She wants my rhumy to > comfirm this. I don't go back to her till 4-29 though. My reg ular > Dr. did finaly give me somthing to help my pain and to help me to > sleep at night. We will see if it works. I also got a email from one > of my wifes friend about some new treatment for RA. I did not have to > much time to look at it but I will give out the web sight. > http://www.controlra.com/ > If any one has any insight on the Fibromyalgia thing I would love to > hear it. Thanks Jeff R > > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 3 > Date: Thu, 10 Apr 2003 08:37:57 -0000 > From: " neiceetn " <Randydenis@...> > Subject: new to this group > > Hi everyone. I am searching to find out all I can regarding ra. I > had carpal tunnel surgery back 4 years ago on both hands, and that is > when my troubles began. I have rsd, which is where my sympathetic > nervous system is damaged either from the surgery or from carpal > tunnel. I have seen over 20 doctors, have had to file bankruptcy in > order to keep my house, and put my family through alot of hardache > because of my pain. I now have a wonderful arthritis doctor who has > me taking 7.5mg of methotrexate per week. I am also on neurontin, > bextra, effexor, trazadone, amtriptoline,bayer asprin, and acidflex. > I have been on methotrexate for about 2 months, and so far it hasn't > helped. I fell 3 weeks ago and broke my right arm, and the very next > day accidentally kicked the table leg and broke my right little toe > where it joins the foot. Before quitting my job I was in customer > service and typed 8 hours per day. The ra is up both arms from the > fingers to the shoulders, in my neck, down my spine and both legs and > feet. I am 38 and it has been very hard adapting. I'm anxious to > know what others have done to adapt, and any info about others on > methotrexate. I am happily married with 2 daughters, one is 19 and > one is 13. The 13 year old has really had her life turned upside > down with all that has happened. I really hope to learn from this > group. > > > > > ________________________________________________________________________ > ________________________________________________________________________ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2003 Report Share Posted April 22, 2003 Hi Sassy.... I am also a widow with RA but I also have MS. The pain sometimes gets so bad. Mostly because of the ms meds interferring with the RA meds. I am on relefen, azulfadine, plaquenil, and methotrexate. They were helping great until I had to start on my MS med. I found that you have to have a certain amount of exercise but also a certain amount of rest as well. You have to find the right balance. I will get bad after over doing it also. I have had my knee drained twice and then followed up with steroids. that was the only thing that worked for a period of time when I had over done it. I did help a lot. I hate steroids but sometimes they are the only thing that works. Of course I also live on darvocet when needed. Jan in MI -------Original Message------- From: Rheumatoid Arthritis Date: Monday, April 21, 2003 18:54:05 Rheumatoid Arthritis Subject: Re: Digest Number 340 Hi,I have had RA over 40 years, and I emphatize with you. Do you elevate yourfeet? Try massaging your muscles around your knee,too. Stay active as I'msure you do. Simple stretching exercises help. too. I have a wonderfulphysical therapist who knows I exercise including walking every day. Ithurts, too. Send me your story about what meds, ,etc that you have tried.I'm going to compile the things that work for me soon.Pearson----- Original Message -----From: <Rheumatoid Arthritis ><Rheumatoid Arthritis >Sent: Thursday, April 10, 2003 9:28 AMSubject: Digest Number 340>> There are 3 messages in this issue.>> Topics in this digest:>> 1. new here> From: "Sassy" <sassygirl45365@...>> 2. Another problem> From: "jeffgrocka" <jeffgrocka@...>> 3. new to this group> From: "neiceetn" <Randydenis@...>>>> ________________________________________________________________________> ________________________________________________________________________>> Message: 1> Date: Thu, 10 Apr 2003 02:51:04 -0000> From: "Sassy" <sassygirl45365@...>> Subject: new here>> well kind of takes me awhile to post. A year ago I found out I have> RA..we do the blood work and specialist. With a list of things I> shouldn't be doing. If I don't do them they don't get done. I'm 45> and a widow with 3 kids the youngest 8. I have 7 acres to take care> of. I have been and still am active. I am trying not let the pain> get to me. My problem is and the doc just says she can try draining> it...my knee fill with fluid. It will go down some with the meds but> then fills back up to the point it throbs after a days work or outing> with the kids. She also tells me my pain tolerance is too high. Any> one else had a knee fill with fluid??and what did you do about it?> Thanks for listening>>>>> ________________________________________________________________________> ________________________________________________________________________>> Message: 2> Date: Thu, 10 Apr 2003 03:59:20 -0000> From: "jeffgrocka" <jeffgrocka@...>> Subject: Another problem>> I was at the my regular Dr. today and on top of my RA she is telling> me I have all the signs of Fibromyalgia. She wants my rhumy to> comfirm this. I don't go back to her till 4-29 though. My reg ular> Dr. did finaly give me somthing to help my pain and to help me to> sleep at night. We will see if it works. I also got a email from one> of my wifes friend about some new treatment for RA. I did not have to> much time to look at it but I will give out the web sight.> http://www.controlra.com/> If any one has any insight on the Fibromyalgia thing I would love to> hear it. Thanks Jeff R>>>>> ________________________________________________________________________> ________________________________________________________________________>> Message: 3> Date: Thu, 10 Apr 2003 08:37:57 -0000> From: "neiceetn" <Randydenis@...>> Subject: new to this group>> Hi everyone. I am searching to find out all I can regarding ra. I> had carpal tunnel surgery back 4 years ago on both hands, and that is> when my troubles began. I have rsd, which is where my sympathetic> nervous system is damaged either from the surgery or from carpal> tunnel. I have seen over 20 doctors, have had to file bankruptcy in> order to keep my house, and put my family through alot of hardache> because of my pain. I now have a wonderful arthritis doctor who has> me taking 7.5mg of methotrexate per week. I am also on neurontin,> bextra, effexor, trazadone, amtriptoline,bayer asprin, and acidflex.> I have been on methotrexate for about 2 months, and so far it hasn't> helped. I fell 3 weeks ago and broke my right arm, and the very next> day accidentally kicked the table leg and broke my right little toe> where it joins the foot. Before quitting my job I was in customer> service and typed 8 hours per day. The ra is up both arms from the> fingers to the shoulders, in my neck, down my spine and both legs and> feet. I am 38 and it has been very hard adapting. I'm anxious to> know what others have done to adapt, and any info about others on> methotrexate. I am happily married with 2 daughters, one is 19 and> one is 13. The 13 year old has really had her life turned upside> down with all that has happened. I really hope to learn from this> group. >>>>> ________________________________________________________________________> ________________________________________________________________________>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2003 Report Share Posted April 22, 2003 Guess i just need to slow down...but after going full speed ahead that sure is hard. I do sit with my legs up and massage my knee. I had it drained once and it filled up withing 3 days. That was before they found out I had RA. The doc has me on Celebrex and Sulfazine (generic for I foget) But the sulfazine makes me tired. She keeps telling me my systom will adjust...well after 9 mos on the stuff...it hasn't...so I don't take it all the time. It will also make me feel like I am spaced out. Which I don't like that feeling either. My best relief from the pain is soaking in a hot tub. I don't know if it is the heat, the jets, or just being able to relax. > > Hi Sassy.... I am also a widow with RA but I also have MS. The pain > sometimes gets so bad. Mostly because of the ms meds interferring with the > RA meds. I am on relefen, azulfadine, plaquenil, and methotrexate. They > were helping great until I had to start on my MS med. I found that you have > to have a certain amount of exercise but also a certain amount of rest as > well. You have to find the right balance. I will get bad after over doing > it also. I have had my knee drained twice and then followed up with > steroids. that was the only thing that worked for a period of time when I > had over done it. I did help a lot. I hate steroids but sometimes they are > the only thing that works. Of course I also live on darvocet when needed. > Jan in MI > -------Original Message------- > > From: Rheumatoid Arthritis > Date: Monday, April 21, 2003 18:54:05 > Rheumatoid Arthritis > Subject: Re: Digest Number 340 > > Hi, > I have had RA over 40 years, and I emphatize with you. Do you elevate your > feet? Try massaging your muscles around your knee,too. Stay active as I'm > sure you do. Simple stretching exercises help. too. I have a wonderful > physical therapist who knows I exercise including walking every day. It > hurts, too. Send me your story about what meds, ,etc that you have tried. > I'm going to compile the things that work for me soon. > Pearson > ----- Original Message ----- > From: <Rheumatoid Arthritis > > <Rheumatoid Arthritis > > Sent: Thursday, April 10, 2003 9:28 AM > Subject: Digest Number 340 > > > > > > There are 3 messages in this issue. > > > > Topics in this digest: > > > > 1. new here > > From: " Sassy " <sassygirl45365@y...> > > 2. Another problem > > From: " jeffgrocka " <jeffgrocka@y...> > > 3. new to this group > > From: " neiceetn " <Randydenis@a...> > > > > > > ______________________________________________________________________ __ > > ______________________________________________________________________ __ > > > > Message: 1 > > Date: Thu, 10 Apr 2003 02:51:04 -0000 > > From: " Sassy " <sassygirl45365@y...> > > Subject: new here > > > > well kind of takes me awhile to post. A year ago I found out I have > > RA..we do the blood work and specialist. With a list of things I > > shouldn't be doing. If I don't do them they don't get done. I'm 45 > > and a widow with 3 kids the youngest 8. I have 7 acres to take care > > of. I have been and still am active. I am trying not let the pain > > get to me. My problem is and the doc just says she can try draining > > it...my knee fill with fluid. It will go down some with the meds but > > then fills back up to the point it throbs after a days work or outing > > with the kids. She also tells me my pain tolerance is too high. Any > > one else had a knee fill with fluid??and what did you do about it? > > Thanks for listening > > > > > > > > > > ______________________________________________________________________ __ > > ______________________________________________________________________ __ > > > > Message: 2 > > Date: Thu, 10 Apr 2003 03:59:20 -0000 > > From: " jeffgrocka " <jeffgrocka@y...> > > Subject: Another problem > > > > I was at the my regular Dr. today and on top of my RA she is telling > > me I have all the signs of Fibromyalgia. She wants my rhumy to > > comfirm this. I don't go back to her till 4-29 though. My reg ular > > Dr. did finaly give me somthing to help my pain and to help me to > > sleep at night. We will see if it works. I also got a email from one > > of my wifes friend about some new treatment for RA. I did not have to > > much time to look at it but I will give out the web sight. > > http://www.controlra.com/ > > If any one has any insight on the Fibromyalgia thing I would love to > > hear it. Thanks Jeff R > > > > > > > > > > ______________________________________________________________________ __ > > ______________________________________________________________________ __ > > > > Message: 3 > > Date: Thu, 10 Apr 2003 08:37:57 -0000 > > From: " neiceetn " <Randydenis@a...> > > Subject: new to this group > > > > Hi everyone. I am searching to find out all I can regarding ra. I > > had carpal tunnel surgery back 4 years ago on both hands, and that is > > when my troubles began. I have rsd, which is where my sympathetic > > nervous system is damaged either from the surgery or from carpal > > tunnel. I have seen over 20 doctors, have had to file bankruptcy in > > order to keep my house, and put my family through alot of hardache > > because of my pain. I now have a wonderful arthritis doctor who has > > me taking 7.5mg of methotrexate per week. I am also on neurontin, > > bextra, effexor, trazadone, amtriptoline,bayer asprin, and acidflex. > > I have been on methotrexate for about 2 months, and so far it hasn't > > helped. I fell 3 weeks ago and broke my right arm, and the very next > > day accidentally kicked the table leg and broke my right little toe > > where it joins the foot. Before quitting my job I was in customer > > service and typed 8 hours per day. The ra is up both arms from the > > fingers to the shoulders, in my neck, down my spine and both legs and > > feet. I am 38 and it has been very hard adapting. I'm anxious to > > know what others have done to adapt, and any info about others on > > methotrexate. I am happily married with 2 daughters, one is 19 and > > one is 13. The 13 year old has really had her life turned upside > > down with all that has happened. I really hope to learn from this > > group. > > > > > > > > > > ______________________________________________________________________ __ > > ______________________________________________________________________ __ > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2004 Report Share Posted October 5, 2004 Dear Kelli, You are living my worst fear!! I am so afraid that if is a candidate for casting by Dr. D'Astous in UT, we will alienate all her doctors here in TX (the largest medical center in the world!). Why is that? Casting is not 'alternative' medicine (well, alternative to bracing, but not hippy-60's-alternative). It's not like we're getting our kids to go to some back country for treatment with leeches!! For goodness sakes. Any thoughts on how to deal with doctors (orthopedists) locally when kids are casted non-locally??? I'm specifically concerned that we won't have a local doctor in case of an emergency with the cast (not sure what emergency, can't anticipate everything) - but I'm always thinking 'what if'?? Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2006 Report Share Posted March 6, 2006 Hey Dane: I will be sending XTRA prayers for you regarding DLI. . . " K " " I AIN'T FINISHED YET " !!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2006 Report Share Posted March 10, 2006 Dear Jolynn, I know this is rather late - I'm behind on my emails again. But I can truly relate. I really do understand wanting to be "invisible". I can stand almost anything but pity...and the look on my dd's face when I know she's disappointed b/c of something re: my condition. I was on bilateral forearm crutches when dd was born, & so having a single cane now doesn't bother her. In fact, I am more worried that she'll be embarassed than she is. What DOES bother her, & sometimes embarass her, is that I cannot physically run & play with her. Right now she's peeved at me b/c I loaned out my walker & she wants to go for our little walks. I can only make it about 1/2 block, & must use my walker instead of my cane to do it. BTW thanks again to all the advice re: cuddling with my dd. And the puppy v/s dog explanation weight changes was helpful. Blessings, Carla Kay Ps. 96:1,3, & 4a Sing to the LORD a new song; sing to the LORD, all the earth. Declare His glory among the nations, His marvelous deeds among all peoples. For great is the LORD and most worthy of praise... Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.