Guest guest Posted April 13, 2003 Report Share Posted April 13, 2003 Hi All Has anyone else had this problem or any others from remicade? I started remicade about 3 weeks ago, so I have had 2 treatments. I have felt like dog pooh ever since I started. Exhaustion mostly some diareah and after this last treatment a couple of chest pains and no appetite. Anyone else having any problems. Had to take 3 days off after first treatment and 4 after the second. I told the doctor about the way I felt after the first treatment. He just said we will wait and see. Thanks all Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2003 Report Share Posted April 17, 2003 Hello Everyone, What exactly is Remicade and how is it given? I take Methotrexate, prednisone and embrel. I would love to change medications. What are the side effects of Remicade? Thank you, Donna dfisher57@... Carol, I'm on Remicade also and had my 7th infusion yesterday. I've been slightly bushed after some of the infusions but nothing that lasted till the next day. I suggest calling your doctor again and asking about other treatments. It sounds like the Remicade has failed you. I do get a Benadryl and Tylenol before my infusions and that might make a difference. Good luck and God bless. Grandpavan1927 ----- Original Message ----- From: Carol Rheumatoid Arthritis Sent: Sunday, April 13, 2003 10:51 AM Subject: remicade Hi AllHas anyone else had this problem or any others from remicade?I started remicade about 3 weeks ago, so I have had 2 treatments. I have felt like dog pooh ever since I started. Exhaustion mostly some diareah and after this last treatment a couple of chest pains and no appetite. Anyone else having any problems. Had to take 3 days off after first treatment and 4 after the second. I told the doctor about the way I felt after the first treatment. He just said we will wait and see.Thanks allCarol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2003 Report Share Posted April 19, 2003 Thanks, Grandpavan. By the way, I get Remicade every 6-8 weeks, not every 2 weeks. It was a typo. Sorry. Take care, in VA ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ >From: "Harold Van Tuyl" >Reply-Rheumatoid Arthritis > >Subject: Re: remicade >Date: Thu, 17 Apr 2003 18:59:46 -0700 > >Donna, as usual has good information. I would like to add that Enbrel is designed for one size dose given at one frequency so it is hard to adjust for people who require more or less of the drug. Remicade comes in 100 mg vials and I know of people who take two vials and others who take seven vials every 8 weeks. Also the time between infusions can be changed if necessary. >Grandpavan1927 > ----- Original Message ----- > From: DeNicola > Rheumatoid Arthritis > Sent: Thursday, April 17, 2003 1:08 PM > Subject: Re: remicade > > > Hi Donna, > This is in Virginia. I have been taking Remicade for 3 years next month. Remicade is a TNF inhibitor. It was explained to me this way: everyone has something called TNF in their body, it's what causes inflammation. In people with arthritis, our TNF is out of whack so we have too much inflammation. Remicade inhibits the TNF, which lowers the swelling, discomfort and pain of your joints (if it works for you). Remicade is given via IV. It is a slow drip for an hour than a faster drip. It usually takes me 3-4 hours for mine. I take Benedryl and Tylenol to prevent an allergic reaction. I usually have to wait a half hour for it to be mixed and a half hour after my treatment. > > Remicade works the same way as Enbrel, only it stays in your body longer. I got some relief from Enbrel, but not enough to stick myself every few days and to revolve my life around storage, disposal and maintenance of the shots (I travel a lot for my job). I get Remicade every 2 weeks at the local hospital. > > The side effects are similar to Enbrel also -- risk of infection, bruising at injection site. Visit remicade.com for more specific info. If your insurance covers Enbrel it is likely to cover Remicade b/c it costs roughly the same, depending on how often you get the treatment. > > Hope that helps. > > Steph > >~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ >Hello Everyone, > > What exactly is Remicade and how is it given? I take Methotrexate, prednisone and embrel. I would love to change medications. What are the side effects of Remicade? > > Thank you, > > Donna > > dfisher57@... > > >------------------------------------------------------------------------------ > MSN 8 with e-mail virus protection service: 2 months FREE* > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2003 Report Share Posted September 5, 2003 Hip Hip Hoooo Raaayyyy!!!!! I hope it works for you Jay! It took a little while for me but I can sure tell a difference when it wears off!!!!!!!!!! I'll keep you in my prayers with the VA!!! Carla -----Original Message----- From: Jay Bishop [mailto:jbirdak@...] Sent: Thursday, September 04, 2003 8:18 PM Rheumatoid Arthritis Subject: Remicade Hi Gang, I saw my VA Doc yesterday and he prescibed Remicade for me. Sound great, I've heard good things about it. Now I may have to do battle with the VA to get it. You would think that as a Viet Nam vet and 17 years with the Army National Guard I would get what they promised me in 1970, but we know the govornment!!! Hope every one is is getting along OK. God Bless, Jay Quote Link to comment Share on other sites More sharing options...
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