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Thank you Lynette and Harold for your responses.

I will ask my Dr. about Prednisone in the interim until the

Methotrexate and Plaquinil kick in. As I said the symptoms hit me

quickly and severely.

I will start a pain and sleep diary so I can give my " rhuemy " as much

info as possible. It is good to know about something for sleep, I

take Trazadone but it doesn't alow me a full nights sleep.

I also read post and his nutritional info may help. I think I

read something about caffiene and Methotrexate, any truth to it?

Again, thanks for the responses.

Jay

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  • 3 years later...
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I don't know about you all, but I am getting so pissed about all this sickness and dying and suffering and hurting and warring and judging and --

MERCY! Lord, can't we all just have a little MERCY for awhile, now??????????

Bless you, Vivian -- bless you, anyone who's watching -- anyone who's reading. God bless , his friends, his family, his old football! I hope another child is enjoying it, because the one he's playing with somewhere else is sufficient to his needs now.

I hope none of you are so cold as to think I'm being blasphemous-- if you are, sorry friend. Sorry, strangers. Sorry you don't "get it." I hate if life has to be so cruel -- when there is SUCH POTENTIAL in life, for joy and truth and learning and well, living. It's all I want for any of us. THE GOOD STUFF -- true friendship, fun, peace of souls, inspiration, dare I suggest "progress...." in a spiritual sense.

Whatever.

Dear, thanks for sharing your concerns here. People need to know where they are and who they're surrounded by and what's going on.

I wish you only the BEST!

----- Original Message -----

From: Vivian A.

Sent: Tuesday, May 08, 2007 10:21 AM

Subject: [] THANKS

I am Viv....a new member for a few days now....would have thanked you sooner but had a family crisis. My sister-in-laws 9 year old Great Grandchild passed away a couple of days ago with a rare blood disease HLH(Hemophagocytic Lymphohistiocytosis) it is hard to see children suffer and leave so soon...he is free now to play the sport he loved so much football with the rest of the family that has passed to cheer him on... in our souls forever to live for all eternity...you are free ....:)

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Humanity Healing is what it is all about in this group

whether it be from sickness or grieving from a

death...or just plain sadness for some reason...part

of the healing is positivity...we all suffer at some

point and time in our lives but how we look at it

makes the difference and sometimes it takes others to

guide us to see things in different ways...

Keeping the spirit alive and well for all eternity is

important... is alive and well in spirit.....we

miss him in body but have him in spirit never to be

forgotten... chose to move on for he had a more

important job to do in spirit and it will benefit us

all I am sure along with so many others who have

chosen this path...

Universal oneness is the goal...

love and light

viv

--- EVELYN BELL <beleve2005@...> wrote:

> I don't know about you all, but I am getting so

> pissed about all this sickness and dying and

> suffering and hurting and warring and judging and --

>

> MERCY! Lord, can't we all just have a little MERCY

> for awhile, now??????????

> Bless you, Vivian -- bless you, anyone who's

> watching -- anyone who's reading. God bless ,

> his friends, his family, his old football! I hope

> another child is enjoying it, because the one he's

> playing with somewhere else is sufficient to his

> needs now.

> I hope none of you are so cold as to think I'm being

> blasphemous-- if you are, sorry friend. Sorry,

> strangers. Sorry you don't " get it. " I hate if life

> has to be so cruel -- when there is SUCH POTENTIAL

> in life, for joy and truth and learning and well,

> living. It's all I want for any of us. THE GOOD

> STUFF -- true friendship, fun, peace of souls,

> inspiration, dare I suggest " progress.... " in a

> spiritual sense.

> Whatever.

> Dear, thanks for sharing your concerns here. People

> need to know where they are and who they're

> surrounded by and what's going on.

> I wish you only the BEST!

>

> ----- Original Message -----

> From: Vivian A.

>

> Sent: Tuesday, May 08, 2007 10:21 AM

> Subject: [] THANKS

>

>

> I am Viv....a new member for a few days

> now....would have thanked you sooner but had a

> family crisis. My sister-in-laws 9 year old Great

> Grandchild passed away a couple of

> days ago with a rare blood disease

> HLH(Hemophagocytic Lymphohistiocytosis) it is hard

> to

> see children suffer and leave so soon...he is free

> now to play the sport he loved so much

> football with the rest of the family that has

> passed to cheer him on... in our souls

> forever to live for all eternity...you are free

> ....:)

>

>

>

>

Vam

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