Re: -Speaking now Speech Therapy

November 12, 1999

Hi Kay,

Landon started speech therapy at 14 months

adjusted age 12 months. The ST said that he is right

on target for now and we could wait. I told her that I

wanted to start as soon as possible. I felt like we

had wasted some time. I also know that language

develops so quickly and eventhough he is on target for

now that could always change. If he does change in the

future, I don't want to have to make up lost time. I

think different professionals have different opinions.

We were told to start speech therapy at a year because

it would overlap with what the O.T. was doing. He has

had O.T. since the first week of life. They start that

in the NICU. I personally think that seven months is a

good time to start and not too late. After reading

some discussion about this topic in previous posts, I

was really upset because we waited until a year. It

didn't seem to matter in the long run. but if I had to

do it over again, I would have definitely had an

evaluation done earlier. BTW, thanks for you input

regarding the workshop. You brought up some good

points. mom to

Landon(DS) and Ashton - 17

months -- " Tiernan,

Kay " <kay.tiernan@...> wrote:

> ,

>

> Our EI experience has been real good. They have a

> coordinator responsible

> for ensuring we have all that we need. The parent to

> parent support person

> calls once a month to say hello and has hooked us up

> with other families

> that live close to us. She's the best. They offer a

> coffee hour support time

> two different evenings a month (based on the age of

> your child with a

> disability so you can relate to the other folks

> there).

>

> One thing I might emphasize is for the EI team to

> ensure the parents are

> understanding the process and goals of the

> assessments done by the PT/ST/OT.

> When our had her initial assessment, since she

> had no problem sucking,

> we did not have a ST assess her. I was told just a

> week ago that the EI team

> should have done the assessment anyway - even though

> I was saying no. I was

> uneducated and therefore should not have been the

> one saying my daughter did

> not need ST at the time. I guess I'm saying that the

> EI team needs to be

> sure and cover all bases because many parents are

> still not fully educated

> on DS right after the baby is born - especially when

> you have triplets!

> There's no time to sleep those first couple months,

> let alone read numerous

> books on DS. We rely on the EI team for education as

> well.

>

> is now 7 mos. and having her first " official "

> assessment by an ST on

> Monday. Did anyone else wait this long? I don't know

> yet if she is even

> behind or how far behind she is until the assessment

> is done. When did all

> of you start ST with your children?

>

> Kay Tiernan

>

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> http://DSyndrome.com/Multiples

>

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