RE: Re: Finding a good chelation doctor- now the doctor vitriol

[Guest guest]

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Well, based on what you have just said, I believe you may indeed be one of

the " educable " docs, and I also think you deserve a little dispassionate (as

best I can!) insight into where this vitriol is coming from. In theory, I

agree with you- education instead of confrontation is always the best

approach. We've tried that, and after you slam your head against a brick

wall a bunch of times, you conclude that you end up with nothing but a

headache. That is where a lot of us parents are- holding our aching heads,

reaching for the aspirin (or something stronger!) and wishing we didn't have

to deal with walls.

First, let me tell you that if you are engaged in forward-thinking stuff

such as secretin, and considering or doing mercury chelation therapy, this

puts you ahead of about 99.9% of the doctors out there. I think the offer

you made to help parents order tests was very kind, and you may have just

contributed in a big way to the health of a lot of kids whose parents have

noplace else to turn. You should not assume that your compadres in the

doctoring business are as flexible, openminded and interested in learning

new things as you appear to be. They are not. I have to congratulate you

on being one of the few. I wish we could clone docs like you!!

Without having a child with special needs, dealing day in and day out with

doctors who are closedminded, unhelpful, patronizing, and in some cases

threatening to turn you in to social services for child neglect when you are

doing what you feel is best for your child (for example, choosing not to

vaccinate), you're right, it is very difficult for you to walk in our shoes.

But this is the road we travel daily. We spend our days dealing with

doctors, therapists, some of us schools, social workers, and what-not, our

other children, trying to keep our marriages afloat, and in our copious

spare time, we scan e-mail newsgroups like this one and search Medline

looking for a glimmer of information that might help our children. After

doing this, I for one have bloodly little patience with a doctor who is

arrogant, patronizing... and has his/her FACTS wrong to boot!! And who

stands between me and the medicine chest or the lab slips- whatever it is

that will help my child get better.

In my opinion, a doctor should be an advisor- one who has an educated

opinion, and who can help guide me throught the forests of sometimes

conflicting information out there. If I ask about a therapy, I want

risk/reward information. I don't need to be told that I read too much (my

ex-ped!) or that I'm just " worried well " (I guess chronic fatigue (trashed

thyroid and adrenals), chronic low back pain, memory loss, headaches and

unexplained weight gain don't qualify as symptoms worth concern according to

my ex-GP!) or that I'm just a desperate parent in denial (various mainstream

docs upon learning that I thought the folate mismetabolism, hypomethylation,

chronic oxidative stress and even the deranged immune response in Down

syndrome might be addressed with nutritional supplements). I also

particularly love the ENT who left us waiting for a post-op report for over

an hour until we learned that he had just gone into his next surgery and

that the written (illegible) hospital release form was all we were gonna get

by way of instruction. Or the ENT (what is it with ENTs, anyway?) who

examined my daughter, and then proceeded to dictate the letter to my ped in

front of me, and assumed that this constituted everything I needed to know

about my daughter's ear situation. I had to stop him from leaving the room

so that I could ask him the particular questions I had, and he seemed

surprised! Doctors should not get angry when a patient or patient mom pulls

out medical journal articles to discuss. (You want to know why we think

they are not educable?) They should not tell us that we shouldn't believe

anything that we learn on the internet because it's all junk. (Translated:

the balance of power in terms of information is tilting against us, and I

don't want to have to spend extra time to answer questions, especially when

I don't know the answer!!) These are just a small sampling of my war

stories. Every parent on this list has a cadre of stories as bad or worse

than mine, and I will not entertain you with the counseling I've given other

parents whose docs would not order tests, or handed them prescriptions for

Prozac when they needed thyroid meds!!

There is nothing like having a special needs kid (or in my case 2) to make

you really HATE the medical establishment. The groupthink- the gestalt- of

doctor behavior is what we rage against. I don't really hate all doctors

individually and personally. (Some of my best friends are doctors..hee hee.

Actually, that's true. One of my best friends is my daughter's former

neonatologist, and I'm on pretty friendly terms with the ER doc at our local

hospital- our kids do Kindermusic together.) In fact, I have a few doctors

that I put in the " hero " category, whether or not I agree with everything

they say. Dr. Megson and Dr. Wakefield are 2 that I have met

and that belong there. So is the orthopedist who stayed in his office until

1.5 hours past his quitting time while I got my daughter X-rayed, and also

fought on my behalf with the lab so that I could bring him the films after

the radiologist went home so that he could advise me on surgery- our first

visit. Above and beyond the call of duty. The first 2 have taken a huge

amount of flak for standing up to the vaccine cartel. I don't know if

everything they say is right or not, but BOY do they have chutzpah- and

principles!! At the vaccine conference this September, during his talk, Dr.

Wakefield described how one of the biggest things he had to accomplish

during his first visit with most parents was to re-establish trust, because

most of the parents he had to deal with were so totally distrustful and

disenfranchised from mainstream medicine that they were often overtly

hostile to any doctor they were forced to deal with.

Add to this that in some cases, my son's included, our kids were MADE

special needs by treatments done by those very doctors- those arrogant,

pigheaded docs, who instead of examining the contents of the vaccines they

are shooting in to our kids and seeing what they could do to help, threaten

to call the social workers if we don't want them to do it again, and refuse

to report vaccine events because they categorically don't believe that

vaccines could be a problem. Vaccines are a religious belief amongst

doctors- it is not founded on anything that resembles science. They are the

valiant warriors on a crusade against infectious disease. We are the

heretics, and they are attempting to burn some of us at the stake!!

Do you understand the anger now? No, rage. We are trapped in a locked

system with our tormentors. Caged tigers often lash out.

G

Quidquid latine dictum sit, altum viditur.

(Whatever is said in Latin sounds lofty.)

Re: [ ] Re: Finding a good chelation doctor

I should have mentioned that I am a MD in my original posting. Hopefully my

education did not include a course in Godliness. I have been using secretin

in my practice since one of my patients asked me to try it on their child.

Since then I have done over 2000 infusions. I charge $30 for the infusion

plus the cost of the secretin - if a parent has their own then it is only e

$30. I have a great difficulty with those DAN docs who charge $500+ for the

same procedure. (This is one of my pet peeves.)

I have begun to help a few parents with chelation and this is a confusing

area for me. Unlike secretin where most docs did about the same thing,

there

is as of yet no single method or methods to use. Do you keep changing the

protocol while you are treating a child? Who really are the " experts " other

then Dr. Holmes and her associates.

One last item I have read of many parents having a problem with their doc

ordering tests. I have no problem ordering the tests for any parent as long

as I am sent the form with a stamped return envelope so I am have to sign my

name and use my physician number.

I do not have a child with autism so I cannot fully understand your burden.

Nevertheless to slam doctors is not going to help us change the thinking of

others.