RE: It's our 10 year autismversary.... nearly oour first year of loss.

[Guest guest]

I hear your pain . We are less than a week away from the one year anniversary of our son, Liam's death from seizures related to his "autism-like" symptoms.

It is very easy for politicians and "journalists" to remain removed from the realities of this epidemic, unless they actually witness the carnage that our trust allowed us to have injected in our children. While I have prayed for the day that the truth would come out, it saddens me that it will not set our children free.

Still a victory....

It's our 10 year autismversary....

I realize that many of you have been in the game longer than a decade -and technically I haven't been in the game a whole decade. it was 10 year ago that Gavin got the MMR shot that caused "autistic-like" features. (insert eye-roll) This July will be the official 10 year anniversary from the date my childhood development professor asked me a few probing questions about my "quirky" kid and ended the conversation with "see me after class". That led to her telling me about a little something called autism and I should read about it.

Autism. what a word. I had heard it before. And I thought back to rain man. I learned that 1 in 10,000 kids had it. well. sure. all my life has been about the "oddity" lottery as I call it. If the odds of winning a million bucks was 1 in 1, I'd manage to miss out. If the odds were for something bad, and 1 in a million -well. I'm your girl. My kids apparently have inherited my luck (ah genetics!).

And Gavin really did hit the medical oddity lottery -in 10 years his list of dx's got long. autism. seizure disorder. chiari malformation. scoliosis. spina bifida occulta -those are the stars, let's not forget the allergies, illness, infections, and whatnot.

Well of course, now I know in 1996 I was a lot more than 1 in 10,000 -we all know the story.

It's been an oddly long ten years. Looking back, it seems like an entire lifetime. I was a 22 year old single mom with a pretty optimistic view of the whole situation -maybe after ten years I am worn down just a little bit. I'd like to be thrilled with the news of today. isn't this what we have waited for? But I look back at all the times in the past ten years that I thought "this is it!!" -and it turned out to not be it. The Gov't PR and Spin machines won each time in the past.

Is it safe? For me to be happy and optimistic? What a wonderful autismversary that would be.

Can they possible dodge it much longer?

[Guest guest]

I cannot believe it's been almost a year. I'm so very sorry for your

loss. I was just listening to Mercy Me's " I Can Only Imagine. " It was

very popular when my daughter first started going to a sped preschool,

it used to play every day about time I drove to pick her up. I'd sit

out in the parking lot & watch all the children in the cafeteria who

were on feeding tubes, wheelchairs, walkers, flapping, etc while I

listened to that song.

When the song said, " Will I dance for You Jesus, or in awe of You be

still? Will I stand in your presence or to my knees will I fall, will

I sing halleleiugh, will I be able to speak at all... " I always

imagined all those little children in their wheelchairs as doing their

most graceful dance on their feet, the kids who were nonverbal would

be shouting the most profound praises, while us parents on our faces,

unable to speak or move.

May your little Liam dance and sing in full freedom from bodily

constraints until you are together again... with no seizures.

Debi

>

> I hear your pain . We are less than a week away from the one

year anniversary of our son, Liam's death from seizures related to his

" autism-like " symptoms.

>

> It is very easy for politicians and " journalists " to remain removed

from the realities of this epidemic, unless they actually witness the

carnage that our trust allowed us to have injected in our children.

While I have prayed for the day that the truth would come out, it

saddens me that it will not set our children free.

>

> Still a victory....

>

>

[Guest guest]

Bless you Debi,

I will look for that song.

Re: It's our 10 year autismversary.... nearly oour first year of loss.

I cannot believe it's been almost a year. I'm so very sorry for yourloss. I was just listening to Mercy Me's "I Can Only Imagine." It wasvery popular when my daughter first started going to a sped preschool,it used to play every day about time I drove to pick her up. I'd sitout in the parking lot & watch all the children in the cafeteria whowere on feeding tubes, wheelchairs, walkers, flapping, etc while Ilistened to that song. When the song said, "Will I dance for You Jesus, or in awe of You bestill? Will I stand in your presence or to my knees will I fall, willI sing halleleiugh, will I be able to speak at all..." I alwaysimagined all those little children in their wheelchairs as doing theirmost graceful dance on their feet, the kids who were nonverbal wouldbe shouting the most profound praises, while us parents on our faces,unable to speak or move. May your little Liam dance and sing in full freedom from bodilyconstraints until you are together again... with no seizures.Debi>> I hear your pain . We are less than a week away from the oneyear anniversary of our son, Liam's death from seizures related to his"autism-like" symptoms. > > It is very easy for politicians and "journalists" to remain removedfrom the realities of this epidemic, unless they actually witness thecarnage that our trust allowed us to have injected in our children. While I have prayed for the day that the truth would come out, itsaddens me that it will not set our children free. > > Still a victory....> >

[Guest guest]

I've got it on my myspace account.

www.myspace.com/debityree

Scroll down on the right side a menu of songs will load, scroll down

to " I Can Only Imagine " by MercyMe. I think it's the 3rd from the bottom.

HTH,

Debi

>

> Bless you Debi,

>

> I will look for that song.

>

>

>

[Guest guest]

I am sorry to hear about your

Liam L

That scares me to hear about a

death from seizures. Gavin has only had two, and I have remained calm,

but

Last time his lips got blue so I

called 911. They told me that is normal –well sure, but how long

should I wait to see if

He comes out of it? Zero

seconds as far as I am concerned.

From:

EOHarm [mailto:EOHarm ] On Behalf Of

Bradley

Sent: Friday, March 07, 2008 12:00 AM

EOHarm

Subject: Re: It's our 10 year autismversary.... nearly oour

first year of loss.

I hear your pain . We are less than a week away from

the one year anniversary of our son, Liam's death from seizures related to his

" autism-like " symptoms.

It is very easy for politicians and " journalists "

to remain removed from the realities of this epidemic, unless they actually

witness the carnage that our trust allowed us to have injected in our

children. While I have prayed for the day that the truth would come

out, it saddens me that it will not set our children free.

Still a victory....