Guest guest Posted May 17, 2003 Report Share Posted May 17, 2003 aka Superman, I know that you and I haven't really talked much, but you are great! My name is Patti and I am not sure if I had introduced myself yet, but I always read your posts and even though they aren't directed to me it really makes me smile, not that I need help with that, but yea! AWESOME! Keep up the high hopes! Patti >From: pscarmen@... >Reply-Stillsdisease >Stillsdisease >Subject: Superman >Date: Fri, 16 May 2003 22:57:07 EDT > >See......See......See....... Superman !!! >I told you that you'd be seeing a lot of responses to your " good-bye " post. >All POSITIVE!! Now you can take that ungrateful letter you received, read >it again and laugh. >I should have saved all the posts in favor of you staying with our group >and >that way, that nasty person might be noticed because of his/her absence in >asking you to continue to be one of our family members. Process of >elimination, yes? >Please reconsider! >xxoo >Michigan Carmen > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2003 Report Share Posted May 17, 2003 Hi , my name is Patti and I just wanted to say hi. I just like to say hello to people that I haven't spoken with really. I was diagnosed back in October and I fully agree with you on success stories. I too seem to be doing very good and sometimes I get scared to post on here for reasons that I am unsure of. I always feel like I am bragging, but you just post away. Thats awesome and I hope that one day I can as active as you! Patti~Canada Superman Hi Superman, I don't post that often, but I do read many of the posts to keep myself updated on all the different things people have to deal with when they have Stills. I was diagnosed a year ago and I too feel very hopeful when I read your posts. I usually tell my mother, " Listen to what the military guy can do and he was diagnosed not too long ago! " And like someone else mentioned, it's helpful to hear your exercise advice. Anyway, I too was shocked that someone would feel bad to hear your progress. To me that makes no sense (someone that really feels bad about themself maybe). Hope you continue to post. Take care and I hope you continue to make progress........ Buffalo, NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2003 Report Share Posted May 18, 2003 Sorry but that last note should have been addressed to Patti. CRS taking over again, LOL! We Will Win Love Y'all Mom & Dad Bob & Carole Panama City, Florida Please Visit the International Stills Disease Foundation Web Site at: www.stillsdisease.org Politicians & Diapers have one thing in common..... They should be changed regularly - - and for the same reason !! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2003 Report Share Posted May 18, 2003 Thank you Pat, please feel free to email me as I would love to keep in contact. >From: " ~PaTz~the~ jOvIaL~jUnIpEr~ " <qt_4_him@...> >Reply-Stillsdisease >Stillsdisease >Subject: Re: Superman >Date: Sun, 18 May 2003 05:00:12 +0000 > > aka Superman, I know that you and I haven't really talked much, but >you are great! My name is Patti and I am not sure if I had introduced >myself >yet, but I always read your posts and even though they aren't directed to >me >it really makes me smile, not that I need help with that, but yea! AWESOME! >Keep up the high hopes! >Patti > > > > >From: pscarmen@... > >Reply-Stillsdisease > >Stillsdisease > >Subject: Superman > >Date: Fri, 16 May 2003 22:57:07 EDT > > > >See......See......See....... Superman !!! > >I told you that you'd be seeing a lot of responses to your " good-bye " >post. > >All POSITIVE!! Now you can take that ungrateful letter you received, >read > >it again and laugh. > >I should have saved all the posts in favor of you staying with our group > >and > >that way, that nasty person might be noticed because of his/her absence >in > >asking you to continue to be one of our family members. Process of > >elimination, yes? > >Please reconsider! > >xxoo > >Michigan Carmen > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2003 Report Share Posted May 19, 2003 I have everything I need in my car to go swimming tomorow...I know alot will be floating too as it will calm me...am a bit frazzled..thank you ...ha ha ha Wishing you mountains of happiness, And oceans of joy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2003 Report Share Posted May 19, 2003 I have everything I need in my car to go swimming tomorow...I know alot will be floating too as it will calm me...am a bit frazzled..thank you ...ha ha ha Wishing you mountains of happiness, And oceans of joy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2003 Report Share Posted May 19, 2003 Liz, Thats great. When I first started back I began just walking, and doing some swimming as well. Very good cardio and saving the joints at the same time. I would also focus on your flexibility as well as strength training. It may sound crazy, but when you are well enough even just two days a week will benefit you. But in the beginning, take it slow. If you think you are taking it slow, well go just a bit slower. Nothing is worse for the body and the mind then going too intense in the beginning. If you need advice, or a training schedeule, or plan...questions about diet, etc...you know where to reach me. superman >From: lizdaly101@... >Reply-Stillsdisease >Stillsdisease >Subject: Re: superman >Date: Mon, 19 May 2003 13:33:38 EDT > >Just want to say you are too cool...and I want to read all you write!! I >need >to get moving(exercising) again..soon..am not sure if I am well enough.. I >think I will start by some easy swimming..what do ya think ?? Liz NJ > >Wishing you mountains of happiness, >And oceans of joy. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2003 Report Share Posted May 20, 2003 um.......ummm...let me apologize, for sticking my tongue out at you every time you e-mail your excercise routine to us..it was out of guilt for not moving my own tush...uh...again, sorry....{ dang that x-ray vision!!! I keep forgetting about it!!!} G.ot Still NOt Engaged Moon!!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2003 Report Share Posted May 29, 2003 Hey supe you R super.!!!!!!!!.I have been taking baby steps back to fitness...it was only 3 years ago this litlle chubby then 44 year old lady beat the state champs in the pool...(one lap..but by lots!! more than 1/4 of the pool )...I want so badly to get fit again..I recently swam..then today since it was nice I took a walk....1 mile in 45 min....that is how out of shape I am... I have done atkins for 3 days..and my strips are showing Ketones.....I am a looooonnnngggg way from 6% body fat....but as we know the journey of a million miles...etc etc Liz NJ.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2003 Report Share Posted May 30, 2003 Liz, Thats great, 1 mile in 45min for a walk (good pace). Good idea getting the ketone strips! Remeber, fitness is a lifetime journey...there is no rush to increase intensity, or duration. Ease into, enjoy the process and the result will come on there own...I'm proud of you and looking forwad to your updates... SM >From: lizdaly101@... >Reply-Stillsdisease >Stillsdisease >Subject: Re: Superman >Date: Thu, 29 May 2003 18:48:08 EDT > >Hey supe you R super.!!!!!!!!.I have been taking baby steps back to >fitness...it was only 3 years ago this litlle chubby then 44 year old lady >beat the >state champs in the pool...(one lap..but by lots!! more than 1/4 of the >pool >)...I want so badly to get fit again..I recently swam..then today since it >was >nice I took a walk....1 mile in 45 min....that is how out of shape I am... >I >have done atkins for 3 days..and my strips are showing Ketones.....I am a >looooonnnngggg way from 6% body fat....but as we know the journey of a >million >miles...etc etc Liz NJ.. _________________________________________________________________ The new MSN 8: smart spam protection and 2 months FREE* http://join.msn.com/?page=features/junkmail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2003 Report Share Posted June 2, 2003 Being off prednisone is time to celebrate!!! Yea!!!!!!! Liz NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2003 Report Share Posted June 2, 2003 Being off prednisone is time to celebrate!!! Yea!!!!!!! Liz NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2003 Report Share Posted June 2, 2003 This disease is so different for so many of us yet the same..I have had long drug free remiissions....then I have years where I am just a bit yukie(comparitively speaking )...we have to do the best we can with each day...I know you are super motivated..sooo I can bet you will be well for a long looong time..maybe forever! This disease is soo weird!!! Grrrr Liz NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2003 Report Share Posted June 2, 2003 I agree with Liz. You are super motivated so you just might be one step ahead of the dragon from now on. Also, every Stilligan is different. I would have flares if I did too much. My husband would be yelling at me to slow down....the house didn't need cleaning....the yard didn't need weeding...etc. but I wouldn't listen. It just felt so good to be able to be doing things again. So, I don't know if I would be attacked from over working or stress. Did your cheeks, and I mean the ones on your face, ever get red or splotchy? I would look in the mirror at times and notice that mine were. I think I used to have that butterfly rash but don't anymore. I just wonder if this MTX plus Enbrel is really helping? Seems like it's doing the trick. If I could only start decreasing the MTX. I think I can "color you fixed". Good going! xxoo Mi. Carmen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2003 Report Share Posted June 3, 2003 I hope its gone, but I am on the alert. I never got blothes or anything on my face. The very first symptom I got was joint pain in my kness. The rash didn't start till 3 days later, with the fevers and the rest of it. I guess I'll pay attention to my joints and see if they start to hurt (more then normal that is). I don't know what started it all for me either, but I do know the exact moment it began (13 December 2002 at 0730am) I Think this december 13th I'll sleep a little later...maybe :-) I'm sure you'll evetually get to taper off the MTX...I'm pulling for you SM >From: pscarmen@... >Reply-Stillsdisease >Stillsdisease >Subject: Re: Superman >Date: Mon, 2 Jun 2003 16:26:07 EDT > >I agree with Liz. You are super motivated so you just might be one step >ahead of the dragon from now on. Also, every Stilligan is different. I >would >have flares if I did too much. My husband would be yelling at me to slow >down....the house didn't need cleaning....the yard didn't need >weeding...etc. but I >wouldn't listen. It just felt so good to be able to be doing things again. >So, I don't know if I would be attacked from over working or stress. Did >your >cheeks, and I mean the ones on your face, ever get red or splotchy? I >would >look in the mirror at times and notice that mine were. I think I used to >have >that butterfly rash but don't anymore. I just wonder if this MTX plus >Enbrel >is really helping? Seems like it's doing the trick. If I could only start >decreasing the MTX. >I think I can " color you fixed " . Good going! >xxoo >Mi. Carmen _________________________________________________________________ MSN 8 with e-mail virus protection service: 2 months FREE* http://join.msn.com/?page=features/virus Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2003 Report Share Posted June 24, 2003 I think he's out rucking also but now we know it's not with our Goddess. Could he be in her box that Dan is keeping? Come on Superman....show yourself! xxoo Mi. Carmen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2003 Report Share Posted August 15, 2003 Welcome back Superman.. glad to hear you are still doing good and little to no pain.. as Carmen would say glad you are done " rucking " lol take care Kelley in Colorado Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2003 Report Share Posted August 15, 2003 That's the word, Kelley. Rucking.....I couldn't think of it. Thanks... Carmen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2008 Report Share Posted March 13, 2008 SUPERMAN Someone asked for before vaccine and after vaccine videos. How about also, autism DIAGNOSED video of a child and AUTISM treated child by the 'LOONY' scientists who DARE to think MERCURY is TOXIC and needs REMOVING? HOW DAFT CAN YOU GET? See the HOOVER video for the REAL TRUTH: www.youtube.com/watch?v=BnTBEHVmtTc SUPERMAN Dr MARK GEIER? SUPERMAN Professor BOYD HALEY? SUPERMAN Senator ROBERT KENNEDY? SUPERMAN DAN OLMSTED? SUPERMAN DAVID KIRBY? SUPERMAN Dr ANDREW WAKEFIELD? SUPERMAN Professor HERMAN FUDENBERG? SUPERMAN MASTER HOOVER? SUPERMAN 1 000’s OF OTHERS (INCLUDING ALL HONEST PEOPLE who subscribe to this site) NOT BECAUSE they THINK. BUT BECAUSE THEY KNOW! EVIDENCE OF HARM When it comes in a needle straight into you. When it comes AGAIN in a needle straight into you. When it finally comes AGAIN and your body REACTS VIOLENTLY! ANAPHYLAXIS SCIENCE from 1902 SUPERMAN Professor CHARLES RICHET WE REMEMBER THEM WELL SUPERMEN Quote Link to comment Share on other sites More sharing options...
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