Re: Fibromyalsia

[Guest guest]

Hi : I know it is frustrating hurting all the time and not

knowing what or why. I was diagnosed with fibromyalgia a year ago.

It took my rheumy quite a few months to finally find a medication

that worked with the pain. I am a medical transcriptionist and have

typed a lot of reports about fibromyalgia. I told my doc when he

diagosed it that I didn't have time or the patience for that kind of

diagnosis. He laughed and told me to keep that attitude because it

would help. They are finding out that poor sleep habits and stress

can cause this. I was going through a separation from my husband

(still separated) and didn't sleep much. I started to hurt especially

in my right hip and lower back, then my arm and leg muscles hurt. I

literally felt like a truck had hit me and backed up over me again.

Finally he started me on Neurontin which is an antiseizure drug and

after gradually upping the dose it started working. I am supposed to

take 900 mg three times a day but with the price the way it is (I

have no insurance at the moment) I cut back to save on money. With

the cut back I am back to hurting again so hopefully can get

insurance soon so I can afford it. He also put me on several

different trials of sleep medicine. The first two made me gain 35

pounds and that is a no-no for fibromyalgia because the added weight

makes you hurt worse. Anyway I am now on Gabitril for sleep and it

really helps a lot. On nights I sleep straight through I feel much

better the next morning. So with Gabitril and Neurontin I can usually

live with the aches and pains in my muscles. Get with your rheumy

and if he knows a lot about the treatment of fibromyalgia he should

be able to find medications that will help. Also a good exercise

program is absolutely a must with fibromyalgia. Just go very slow

with it and don't over do it. If you push yourself to hurting while

exercising then you will hurt for several days afterwards so go slow.

Hope this helps. There are thousands of us out here with fibromyalgia

so don't give up.

Debby

[Guest guest]

Debby, my rheumy gave me T3 and flexeril for now to get me out of

this severe part. I am to start neurontine here soon. I haven't

gotten it filled just yet. Have to wait for payday. Right now my

attitude is not a good one. I am severely depressed.

Over four years ago I had a tramatic experience that has made

sleeping at night almost impossible without the aid of sedatives and

since then I have been DX with SLE, RA, and now FMS. Like I wrote

earlier, you could make alphabet soup with all that I have been DX'ed

with.

I am doing PT twice a week right now. That's until my insurance

company's allowable amount of appointments are up. That's about 4

more sessions. My Rheumy wants massage therapy but my insurance

doesn't cover that at all.

> Hi : I know it is frustrating hurting all the time and not

> knowing what or why. I was diagnosed with fibromyalgia a year

ago.

> It took my rheumy quite a few months to finally find a medication

> that worked with the pain. I am a medical transcriptionist and

have

> typed a lot of reports about fibromyalgia. I told my doc when he

> diagosed it that I didn't have time or the patience for that kind

of

> diagnosis. He laughed and told me to keep that attitude because it

> would help. They are finding out that poor sleep habits and stress

> can cause this. I was going through a separation from my husband

> (still separated) and didn't sleep much. I started to hurt

especially

> in my right hip and lower back, then my arm and leg muscles hurt.

I

> literally felt like a truck had hit me and backed up over me

again.

> Finally he started me on Neurontin which is an antiseizure drug and

> after gradually upping the dose it started working. I am supposed

to

> take 900 mg three times a day but with the price the way it is (I

> have no insurance at the moment) I cut back to save on money. With

> the cut back I am back to hurting again so hopefully can get

> insurance soon so I can afford it. He also put me on several

> different trials of sleep medicine. The first two made me gain 35

> pounds and that is a no-no for fibromyalgia because the added

weight

> makes you hurt worse. Anyway I am now on Gabitril for sleep and it

> really helps a lot. On nights I sleep straight through I feel much

> better the next morning. So with Gabitril and Neurontin I can

usually

> live with the aches and pains in my muscles. Get with your rheumy

> and if he knows a lot about the treatment of fibromyalgia he should

> be able to find medications that will help. Also a good exercise

> program is absolutely a must with fibromyalgia. Just go very slow

> with it and don't over do it. If you push yourself to hurting while

> exercising then you will hurt for several days afterwards so go

slow.

> Hope this helps. There are thousands of us out here with

fibromyalgia

> so don't give up.

>

> Debby