Guest guest Posted July 21, 2012 Report Share Posted July 21, 2012 Good report. Did you read the NYTimes article on dont get sick in July. Sounds like NIH has the same problem. Not surprising IMHO.CE Grim MDOn Jul 21, 2012, at 3:58 PM, ww_engineer wrote: Here are some of my random thoughts on what its been like staying at NIH this past week: The nursing staff is fantastic. They treat the patients as guests and really go out of the way to make sure you are comfortable. For me, the most important part has been their keeping me informed of what is going on each day, and what to expect. There is a lot of traffic through your room the first day. I met with three Doctors, a social worker, the administrator for the study protocol, the BG expert, dietician, phlebotomist, and multiple nurses. They gave me a schedule before I arrived. I understood that this was tentative, at the time and expected changes. Probably 30% of the test were changes or canceled after I arrived. One was due to mix-up the rest were revision based on other test results. The mix-up was with a bone density test. It was scheduled on Wednesday. On Tuesday I had an MRA with a contrast agent, and you are not supposed to have contrast for several days before the bone density scan. They really like blood here. I have lost count, but I think they have taken at least 30 vials of blood this week, including 17 at one time the first day. That does not include the draws to check BG out of the tube in my arm or finger sticks. Four days of 24-hour urine collection can be tedious. When I go out for a walk I've been a little afraid of getting too far from the room and then having to "go". The first couple weeks of July are not the best time to come for a study. A new group of fellows arrive the first of July. Like all new jobs it takes anyone a little time to understand how the system works, and know what your boss expects. So far my fellow has been double checking everything with Dr. Stratakis. I understand, but sometimes it is frustrating waiting for responses. My endocrinologist fellows name is Mikumi Endo. I thought the nurse was joking when he told me the fellow assigned to me was "Dr. Endo". She is still learning the system at NIH, but has been very good so far. Find an excuse to ask for a massage (my back was bothering me from working on the computer while sitting on the bed). Its free, they come to your room, and do a great job. The "coffee" they serve with meals is horrible. I have a pretty serious coffee addiction and would probably have died from withdrawal if it wasn't possible to get Duncan Doughnuts coffee the in the B1 cafeteria. Mike Thumbnail: Caucasian, male, 51 years old, 6'- 3" tall, 285 lbs. Adrenal adenoma both sides by CT scan Diabetic Type II, OSA on cpap Verapamil CR 360 mg Hydralazine, 50 mg x3 Janumet 50/1000 (not taking at NIH) Simcor 1000/40 Novolog 70/30 Dashing with occasional lapses Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2012 Report Share Posted July 22, 2012 I looked up the NYT article. THe issues here are a little different, since all major care dicesions are made by the team anyway. It the minor day to day stuff that is a little anoying. > > > Here are some of my random thoughts on what its been like staying at NIH this past week: > > > > The nursing staff is fantastic. They treat the patients as guests and really go out of the way to make sure you are comfortable. For me, the most important part has been their keeping me informed of what is going on each day, and what to expect. > > > > There is a lot of traffic through your room the first day. I met with three Doctors, a social worker, the administrator for the study protocol, the BG expert, dietician, phlebotomist, and multiple nurses. > > > > They gave me a schedule before I arrived. I understood that this was tentative, at the time and expected changes. Probably 30% of the test were changes or canceled after I arrived. One was due to mix-up the rest were revision based on other test results. The mix-up was with a bone density test. It was scheduled on Wednesday. On Tuesday I had an MRA with a contrast agent, and you are not supposed to have contrast for several days before the bone density scan. > > > > They really like blood here. I have lost count, but I think they have taken at least 30 vials of blood this week, including 17 at one time the first day. That does not include the draws to check BG out of the tube in my arm or finger sticks. > > > > Four days of 24-hour urine collection can be tedious. When I go out for a walk I've been a little afraid of getting too far from the room and then having to " go " . > > > > The first couple weeks of July are not the best time to come for a study. A new group of fellows arrive the first of July. Like all new jobs it takes anyone a little time to understand how the system works, and know what your boss expects. So far my fellow has been double checking everything with Dr. Stratakis. I understand, but sometimes it is frustrating waiting for responses. > > > > My endocrinologist fellows name is Mikumi Endo. I thought the nurse was joking when he told me the fellow assigned to me was " Dr. Endo " . She is still learning the system at NIH, but has been very good so far. > > > > Find an excuse to ask for a massage (my back was bothering me from working on the computer while sitting on the bed). Its free, they come to your room, and do a great job. > > > > The " coffee " they serve with meals is horrible. I have a pretty serious coffee addiction and would probably have died from withdrawal if it wasn't possible to get Duncan Doughnuts coffee the in the B1 cafeteria. > > > > Mike > > > > Thumbnail: > > Caucasian, male, 51 years old, 6'- 3 " tall, 285 lbs. > > Adrenal adenoma both sides by CT scan > > Diabetic Type II, OSA on cpap > > Verapamil CR 360 mg > > Hydralazine, 50 mg x3 > > Janumet 50/1000 (not taking at NIH) > > Simcor 1000/40 > > Novolog 70/30 > > Dashing with occasional lapses > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2012 Report Share Posted July 22, 2012 I looked up the NYT article. THe issues here are a little different, since all major care dicesions are made by the team anyway. It the minor day to day stuff that is a little anoying. > > > Here are some of my random thoughts on what its been like staying at NIH this past week: > > > > The nursing staff is fantastic. They treat the patients as guests and really go out of the way to make sure you are comfortable. For me, the most important part has been their keeping me informed of what is going on each day, and what to expect. > > > > There is a lot of traffic through your room the first day. I met with three Doctors, a social worker, the administrator for the study protocol, the BG expert, dietician, phlebotomist, and multiple nurses. > > > > They gave me a schedule before I arrived. I understood that this was tentative, at the time and expected changes. Probably 30% of the test were changes or canceled after I arrived. One was due to mix-up the rest were revision based on other test results. The mix-up was with a bone density test. It was scheduled on Wednesday. On Tuesday I had an MRA with a contrast agent, and you are not supposed to have contrast for several days before the bone density scan. > > > > They really like blood here. I have lost count, but I think they have taken at least 30 vials of blood this week, including 17 at one time the first day. That does not include the draws to check BG out of the tube in my arm or finger sticks. > > > > Four days of 24-hour urine collection can be tedious. When I go out for a walk I've been a little afraid of getting too far from the room and then having to " go " . > > > > The first couple weeks of July are not the best time to come for a study. A new group of fellows arrive the first of July. Like all new jobs it takes anyone a little time to understand how the system works, and know what your boss expects. So far my fellow has been double checking everything with Dr. Stratakis. I understand, but sometimes it is frustrating waiting for responses. > > > > My endocrinologist fellows name is Mikumi Endo. I thought the nurse was joking when he told me the fellow assigned to me was " Dr. Endo " . She is still learning the system at NIH, but has been very good so far. > > > > Find an excuse to ask for a massage (my back was bothering me from working on the computer while sitting on the bed). Its free, they come to your room, and do a great job. > > > > The " coffee " they serve with meals is horrible. I have a pretty serious coffee addiction and would probably have died from withdrawal if it wasn't possible to get Duncan Doughnuts coffee the in the B1 cafeteria. > > > > Mike > > > > Thumbnail: > > Caucasian, male, 51 years old, 6'- 3 " tall, 285 lbs. > > Adrenal adenoma both sides by CT scan > > Diabetic Type II, OSA on cpap > > Verapamil CR 360 mg > > Hydralazine, 50 mg x3 > > Janumet 50/1000 (not taking at NIH) > > Simcor 1000/40 > > Novolog 70/30 > > Dashing with occasional lapses > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2012 Report Share Posted July 22, 2012 Also, I thought I read in post somewhere that there was a ffolder or something in the file section for members to post stories on experiences at NIH. I did not see it. If there is a place to put it, I'll convert my post to a PDF and save it here. Mike > > > Here are some of my random thoughts on what its been like staying at NIH this past week: > > > > The nursing staff is fantastic. They treat the patients as guests and really go out of the way to make sure you are comfortable. For me, the most important part has been their keeping me informed of what is going on each day, and what to expect. > > > > There is a lot of traffic through your room the first day. I met with three Doctors, a social worker, the administrator for the study protocol, the BG expert, dietician, phlebotomist, and multiple nurses. > > > > They gave me a schedule before I arrived. I understood that this was tentative, at the time and expected changes. Probably 30% of the test were changes or canceled after I arrived. One was due to mix-up the rest were revision based on other test results. The mix-up was with a bone density test. It was scheduled on Wednesday. On Tuesday I had an MRA with a contrast agent, and you are not supposed to have contrast for several days before the bone density scan. > > > > They really like blood here. I have lost count, but I think they have taken at least 30 vials of blood this week, including 17 at one time the first day. That does not include the draws to check BG out of the tube in my arm or finger sticks. > > > > Four days of 24-hour urine collection can be tedious. When I go out for a walk I've been a little afraid of getting too far from the room and then having to " go " . > > > > The first couple weeks of July are not the best time to come for a study. A new group of fellows arrive the first of July. Like all new jobs it takes anyone a little time to understand how the system works, and know what your boss expects. So far my fellow has been double checking everything with Dr. Stratakis. I understand, but sometimes it is frustrating waiting for responses. > > > > My endocrinologist fellows name is Mikumi Endo. I thought the nurse was joking when he told me the fellow assigned to me was " Dr. Endo " . She is still learning the system at NIH, but has been very good so far. > > > > Find an excuse to ask for a massage (my back was bothering me from working on the computer while sitting on the bed). Its free, they come to your room, and do a great job. > > > > The " coffee " they serve with meals is horrible. I have a pretty serious coffee addiction and would probably have died from withdrawal if it wasn't possible to get Duncan Doughnuts coffee the in the B1 cafeteria. > > > > Mike > > > > Thumbnail: > > Caucasian, male, 51 years old, 6'- 3 " tall, 285 lbs. > > Adrenal adenoma both sides by CT scan > > Diabetic Type II, OSA on cpap > > Verapamil CR 360 mg > > Hydralazine, 50 mg x3 > > Janumet 50/1000 (not taking at NIH) > > Simcor 1000/40 > > Novolog 70/30 > > Dashing with occasional lapses > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2012 Report Share Posted July 22, 2012 Also, I thought I read in post somewhere that there was a ffolder or something in the file section for members to post stories on experiences at NIH. I did not see it. If there is a place to put it, I'll convert my post to a PDF and save it here. Mike > > > Here are some of my random thoughts on what its been like staying at NIH this past week: > > > > The nursing staff is fantastic. They treat the patients as guests and really go out of the way to make sure you are comfortable. For me, the most important part has been their keeping me informed of what is going on each day, and what to expect. > > > > There is a lot of traffic through your room the first day. I met with three Doctors, a social worker, the administrator for the study protocol, the BG expert, dietician, phlebotomist, and multiple nurses. > > > > They gave me a schedule before I arrived. I understood that this was tentative, at the time and expected changes. Probably 30% of the test were changes or canceled after I arrived. One was due to mix-up the rest were revision based on other test results. The mix-up was with a bone density test. It was scheduled on Wednesday. On Tuesday I had an MRA with a contrast agent, and you are not supposed to have contrast for several days before the bone density scan. > > > > They really like blood here. I have lost count, but I think they have taken at least 30 vials of blood this week, including 17 at one time the first day. That does not include the draws to check BG out of the tube in my arm or finger sticks. > > > > Four days of 24-hour urine collection can be tedious. When I go out for a walk I've been a little afraid of getting too far from the room and then having to " go " . > > > > The first couple weeks of July are not the best time to come for a study. A new group of fellows arrive the first of July. Like all new jobs it takes anyone a little time to understand how the system works, and know what your boss expects. So far my fellow has been double checking everything with Dr. Stratakis. I understand, but sometimes it is frustrating waiting for responses. > > > > My endocrinologist fellows name is Mikumi Endo. I thought the nurse was joking when he told me the fellow assigned to me was " Dr. Endo " . She is still learning the system at NIH, but has been very good so far. > > > > Find an excuse to ask for a massage (my back was bothering me from working on the computer while sitting on the bed). Its free, they come to your room, and do a great job. > > > > The " coffee " they serve with meals is horrible. I have a pretty serious coffee addiction and would probably have died from withdrawal if it wasn't possible to get Duncan Doughnuts coffee the in the B1 cafeteria. > > > > Mike > > > > Thumbnail: > > Caucasian, male, 51 years old, 6'- 3 " tall, 285 lbs. > > Adrenal adenoma both sides by CT scan > > Diabetic Type II, OSA on cpap > > Verapamil CR 360 mg > > Hydralazine, 50 mg x3 > > Janumet 50/1000 (not taking at NIH) > > Simcor 1000/40 > > Novolog 70/30 > > Dashing with occasional lapses > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2012 Report Share Posted July 22, 2012 I didn't see one but just created one for you: hyperaldosteronism/files/NIH%20Stor\ ies. (As a librarian by training, I wish I had more time to go in there and organize things for everybody!) > > > > > Here are some of my random thoughts on what its been like staying at NIH this past week: > > > > > > The nursing staff is fantastic. They treat the patients as guests and really go out of the way to make sure you are comfortable. For me, the most important part has been their keeping me informed of what is going on each day, and what to expect. > > > > > > There is a lot of traffic through your room the first day. I met with three Doctors, a social worker, the administrator for the study protocol, the BG expert, dietician, phlebotomist, and multiple nurses. > > > > > > They gave me a schedule before I arrived. I understood that this was tentative, at the time and expected changes. Probably 30% of the test were changes or canceled after I arrived. One was due to mix-up the rest were revision based on other test results. The mix-up was with a bone density test. It was scheduled on Wednesday. On Tuesday I had an MRA with a contrast agent, and you are not supposed to have contrast for several days before the bone density scan. > > > > > > They really like blood here. I have lost count, but I think they have taken at least 30 vials of blood this week, including 17 at one time the first day. That does not include the draws to check BG out of the tube in my arm or finger sticks. > > > > > > Four days of 24-hour urine collection can be tedious. When I go out for a walk I've been a little afraid of getting too far from the room and then having to " go " . > > > > > > The first couple weeks of July are not the best time to come for a study. A new group of fellows arrive the first of July. Like all new jobs it takes anyone a little time to understand how the system works, and know what your boss expects. So far my fellow has been double checking everything with Dr. Stratakis. I understand, but sometimes it is frustrating waiting for responses. > > > > > > My endocrinologist fellows name is Mikumi Endo. I thought the nurse was joking when he told me the fellow assigned to me was " Dr. Endo " . She is still learning the system at NIH, but has been very good so far. > > > > > > Find an excuse to ask for a massage (my back was bothering me from working on the computer while sitting on the bed). Its free, they come to your room, and do a great job. > > > > > > The " coffee " they serve with meals is horrible. I have a pretty serious coffee addiction and would probably have died from withdrawal if it wasn't possible to get Duncan Doughnuts coffee the in the B1 cafeteria. > > > > > > Mike > > > > > > Thumbnail: > > > Caucasian, male, 51 years old, 6'- 3 " tall, 285 lbs. > > > Adrenal adenoma both sides by CT scan > > > Diabetic Type II, OSA on cpap > > > Verapamil CR 360 mg > > > Hydralazine, 50 mg x3 > > > Janumet 50/1000 (not taking at NIH) > > > Simcor 1000/40 > > > Novolog 70/30 > > > Dashing with occasional lapses > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2012 Report Share Posted July 22, 2012 I didn't see one but just created one for you: hyperaldosteronism/files/NIH%20Stor\ ies. (As a librarian by training, I wish I had more time to go in there and organize things for everybody!) > > > > > Here are some of my random thoughts on what its been like staying at NIH this past week: > > > > > > The nursing staff is fantastic. They treat the patients as guests and really go out of the way to make sure you are comfortable. For me, the most important part has been their keeping me informed of what is going on each day, and what to expect. > > > > > > There is a lot of traffic through your room the first day. I met with three Doctors, a social worker, the administrator for the study protocol, the BG expert, dietician, phlebotomist, and multiple nurses. > > > > > > They gave me a schedule before I arrived. I understood that this was tentative, at the time and expected changes. Probably 30% of the test were changes or canceled after I arrived. One was due to mix-up the rest were revision based on other test results. The mix-up was with a bone density test. It was scheduled on Wednesday. On Tuesday I had an MRA with a contrast agent, and you are not supposed to have contrast for several days before the bone density scan. > > > > > > They really like blood here. I have lost count, but I think they have taken at least 30 vials of blood this week, including 17 at one time the first day. That does not include the draws to check BG out of the tube in my arm or finger sticks. > > > > > > Four days of 24-hour urine collection can be tedious. When I go out for a walk I've been a little afraid of getting too far from the room and then having to " go " . > > > > > > The first couple weeks of July are not the best time to come for a study. A new group of fellows arrive the first of July. Like all new jobs it takes anyone a little time to understand how the system works, and know what your boss expects. So far my fellow has been double checking everything with Dr. Stratakis. I understand, but sometimes it is frustrating waiting for responses. > > > > > > My endocrinologist fellows name is Mikumi Endo. I thought the nurse was joking when he told me the fellow assigned to me was " Dr. Endo " . She is still learning the system at NIH, but has been very good so far. > > > > > > Find an excuse to ask for a massage (my back was bothering me from working on the computer while sitting on the bed). Its free, they come to your room, and do a great job. > > > > > > The " coffee " they serve with meals is horrible. I have a pretty serious coffee addiction and would probably have died from withdrawal if it wasn't possible to get Duncan Doughnuts coffee the in the B1 cafeteria. > > > > > > Mike > > > > > > Thumbnail: > > > Caucasian, male, 51 years old, 6'- 3 " tall, 285 lbs. > > > Adrenal adenoma both sides by CT scan > > > Diabetic Type II, OSA on cpap > > > Verapamil CR 360 mg > > > Hydralazine, 50 mg x3 > > > Janumet 50/1000 (not taking at NIH) > > > Simcor 1000/40 > > > Novolog 70/30 > > > Dashing with occasional lapses > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2012 Report Share Posted July 22, 2012 Argh, stupid converted my link to have some bad characters in it, and I can't edit that post. Go to Files > NIH Stories. > > > > > > > Here are some of my random thoughts on what its been like staying > at NIH this past week: > > > > > > > > The nursing staff is fantastic. They treat the patients as guests > and really go out of the way to make sure you are comfortable. For me, > the most important part has been their keeping me informed of what is > going on each day, and what to expect. > > > > > > > > There is a lot of traffic through your room the first day. I met > with three Doctors, a social worker, the administrator for the study > protocol, the BG expert, dietician, phlebotomist, and multiple nurses. > > > > > > > > They gave me a schedule before I arrived. I understood that this > was tentative, at the time and expected changes. Probably 30% of the > test were changes or canceled after I arrived. One was due to mix-up the > rest were revision based on other test results. The mix-up was with a > bone density test. It was scheduled on Wednesday. On Tuesday I had an > MRA with a contrast agent, and you are not supposed to have contrast for > several days before the bone density scan. > > > > > > > > They really like blood here. I have lost count, but I think they > have taken at least 30 vials of blood this week, including 17 at one > time the first day. That does not include the draws to check BG out of > the tube in my arm or finger sticks. > > > > > > > > Four days of 24-hour urine collection can be tedious. When I go > out for a walk I've been a little afraid of getting too far from the > room and then having to " go " . > > > > > > > > The first couple weeks of July are not the best time to come for a > study. A new group of fellows arrive the first of July. Like all new > jobs it takes anyone a little time to understand how the system works, > and know what your boss expects. So far my fellow has been double > checking everything with Dr. Stratakis. I understand, but sometimes it > is frustrating waiting for responses. > > > > > > > > My endocrinologist fellows name is Mikumi Endo. I thought the > nurse was joking when he told me the fellow assigned to me was " Dr. > Endo " . She is still learning the system at NIH, but has been very good > so far. > > > > > > > > Find an excuse to ask for a massage (my back was bothering me from > working on the computer while sitting on the bed). Its free, they come > to your room, and do a great job. > > > > > > > > The " coffee " they serve with meals is horrible. I have a pretty > serious coffee addiction and would probably have died from withdrawal if > it wasn't possible to get Duncan Doughnuts coffee the in the B1 > cafeteria. > > > > > > > > Mike > > > > > > > > Thumbnail: > > > > Caucasian, male, 51 years old, 6'- 3 " tall, 285 lbs. > > > > Adrenal adenoma both sides by CT scan > > > > Diabetic Type II, OSA on cpap > > > > Verapamil CR 360 mg > > > > Hydralazine, 50 mg x3 > > > > Janumet 50/1000 (not taking at NIH) > > > > Simcor 1000/40 > > > > Novolog 70/30 > > > > Dashing with occasional lapses > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2012 Report Share Posted July 22, 2012 Argh, stupid converted my link to have some bad characters in it, and I can't edit that post. Go to Files > NIH Stories. > > > > > > > Here are some of my random thoughts on what its been like staying > at NIH this past week: > > > > > > > > The nursing staff is fantastic. They treat the patients as guests > and really go out of the way to make sure you are comfortable. For me, > the most important part has been their keeping me informed of what is > going on each day, and what to expect. > > > > > > > > There is a lot of traffic through your room the first day. I met > with three Doctors, a social worker, the administrator for the study > protocol, the BG expert, dietician, phlebotomist, and multiple nurses. > > > > > > > > They gave me a schedule before I arrived. I understood that this > was tentative, at the time and expected changes. Probably 30% of the > test were changes or canceled after I arrived. One was due to mix-up the > rest were revision based on other test results. The mix-up was with a > bone density test. It was scheduled on Wednesday. On Tuesday I had an > MRA with a contrast agent, and you are not supposed to have contrast for > several days before the bone density scan. > > > > > > > > They really like blood here. I have lost count, but I think they > have taken at least 30 vials of blood this week, including 17 at one > time the first day. That does not include the draws to check BG out of > the tube in my arm or finger sticks. > > > > > > > > Four days of 24-hour urine collection can be tedious. When I go > out for a walk I've been a little afraid of getting too far from the > room and then having to " go " . > > > > > > > > The first couple weeks of July are not the best time to come for a > study. A new group of fellows arrive the first of July. Like all new > jobs it takes anyone a little time to understand how the system works, > and know what your boss expects. So far my fellow has been double > checking everything with Dr. Stratakis. I understand, but sometimes it > is frustrating waiting for responses. > > > > > > > > My endocrinologist fellows name is Mikumi Endo. I thought the > nurse was joking when he told me the fellow assigned to me was " Dr. > Endo " . She is still learning the system at NIH, but has been very good > so far. > > > > > > > > Find an excuse to ask for a massage (my back was bothering me from > working on the computer while sitting on the bed). Its free, they come > to your room, and do a great job. > > > > > > > > The " coffee " they serve with meals is horrible. I have a pretty > serious coffee addiction and would probably have died from withdrawal if > it wasn't possible to get Duncan Doughnuts coffee the in the B1 > cafeteria. > > > > > > > > Mike > > > > > > > > Thumbnail: > > > > Caucasian, male, 51 years old, 6'- 3 " tall, 285 lbs. > > > > Adrenal adenoma both sides by CT scan > > > > Diabetic Type II, OSA on cpap > > > > Verapamil CR 360 mg > > > > Hydralazine, 50 mg x3 > > > > Janumet 50/1000 (not taking at NIH) > > > > Simcor 1000/40 > > > > Novolog 70/30 > > > > Dashing with occasional lapses > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2012 Report Share Posted July 22, 2012 Thanks, I found the folder. If I have any trouble posting I'll let you know. Mike > > > > > > > > > Here are some of my random thoughts on what its been like staying > > at NIH this past week: > > > > > > > > > > The nursing staff is fantastic. They treat the patients as guests > > and really go out of the way to make sure you are comfortable. For me, > > the most important part has been their keeping me informed of what is > > going on each day, and what to expect. > > > > > > > > > > There is a lot of traffic through your room the first day. I met > > with three Doctors, a social worker, the administrator for the study > > protocol, the BG expert, dietician, phlebotomist, and multiple nurses. > > > > > > > > > > They gave me a schedule before I arrived. I understood that this > > was tentative, at the time and expected changes. Probably 30% of the > > test were changes or canceled after I arrived. One was due to mix-up the > > rest were revision based on other test results. The mix-up was with a > > bone density test. It was scheduled on Wednesday. On Tuesday I had an > > MRA with a contrast agent, and you are not supposed to have contrast for > > several days before the bone density scan. > > > > > > > > > > They really like blood here. I have lost count, but I think they > > have taken at least 30 vials of blood this week, including 17 at one > > time the first day. That does not include the draws to check BG out of > > the tube in my arm or finger sticks. > > > > > > > > > > Four days of 24-hour urine collection can be tedious. When I go > > out for a walk I've been a little afraid of getting too far from the > > room and then having to " go " . > > > > > > > > > > The first couple weeks of July are not the best time to come for a > > study. A new group of fellows arrive the first of July. Like all new > > jobs it takes anyone a little time to understand how the system works, > > and know what your boss expects. So far my fellow has been double > > checking everything with Dr. Stratakis. I understand, but sometimes it > > is frustrating waiting for responses. > > > > > > > > > > My endocrinologist fellows name is Mikumi Endo. I thought the > > nurse was joking when he told me the fellow assigned to me was " Dr. > > Endo " . She is still learning the system at NIH, but has been very good > > so far. > > > > > > > > > > Find an excuse to ask for a massage (my back was bothering me from > > working on the computer while sitting on the bed). Its free, they come > > to your room, and do a great job. > > > > > > > > > > The " coffee " they serve with meals is horrible. I have a pretty > > serious coffee addiction and would probably have died from withdrawal if > > it wasn't possible to get Duncan Doughnuts coffee the in the B1 > > cafeteria. > > > > > > > > > > Mike > > > > > > > > > > Thumbnail: > > > > > Caucasian, male, 51 years old, 6'- 3 " tall, 285 lbs. > > > > > Adrenal adenoma both sides by CT scan > > > > > Diabetic Type II, OSA on cpap > > > > > Verapamil CR 360 mg > > > > > Hydralazine, 50 mg x3 > > > > > Janumet 50/1000 (not taking at NIH) > > > > > Simcor 1000/40 > > > > > Novolog 70/30 > > > > > Dashing with occasional lapses > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2012 Report Share Posted July 22, 2012 Thanks, I found the folder. If I have any trouble posting I'll let you know. Mike > > > > > > > > > Here are some of my random thoughts on what its been like staying > > at NIH this past week: > > > > > > > > > > The nursing staff is fantastic. They treat the patients as guests > > and really go out of the way to make sure you are comfortable. For me, > > the most important part has been their keeping me informed of what is > > going on each day, and what to expect. > > > > > > > > > > There is a lot of traffic through your room the first day. I met > > with three Doctors, a social worker, the administrator for the study > > protocol, the BG expert, dietician, phlebotomist, and multiple nurses. > > > > > > > > > > They gave me a schedule before I arrived. I understood that this > > was tentative, at the time and expected changes. Probably 30% of the > > test were changes or canceled after I arrived. One was due to mix-up the > > rest were revision based on other test results. The mix-up was with a > > bone density test. It was scheduled on Wednesday. On Tuesday I had an > > MRA with a contrast agent, and you are not supposed to have contrast for > > several days before the bone density scan. > > > > > > > > > > They really like blood here. I have lost count, but I think they > > have taken at least 30 vials of blood this week, including 17 at one > > time the first day. That does not include the draws to check BG out of > > the tube in my arm or finger sticks. > > > > > > > > > > Four days of 24-hour urine collection can be tedious. When I go > > out for a walk I've been a little afraid of getting too far from the > > room and then having to " go " . > > > > > > > > > > The first couple weeks of July are not the best time to come for a > > study. A new group of fellows arrive the first of July. Like all new > > jobs it takes anyone a little time to understand how the system works, > > and know what your boss expects. So far my fellow has been double > > checking everything with Dr. Stratakis. I understand, but sometimes it > > is frustrating waiting for responses. > > > > > > > > > > My endocrinologist fellows name is Mikumi Endo. I thought the > > nurse was joking when he told me the fellow assigned to me was " Dr. > > Endo " . She is still learning the system at NIH, but has been very good > > so far. > > > > > > > > > > Find an excuse to ask for a massage (my back was bothering me from > > working on the computer while sitting on the bed). Its free, they come > > to your room, and do a great job. > > > > > > > > > > The " coffee " they serve with meals is horrible. I have a pretty > > serious coffee addiction and would probably have died from withdrawal if > > it wasn't possible to get Duncan Doughnuts coffee the in the B1 > > cafeteria. > > > > > > > > > > Mike > > > > > > > > > > Thumbnail: > > > > > Caucasian, male, 51 years old, 6'- 3 " tall, 285 lbs. > > > > > Adrenal adenoma both sides by CT scan > > > > > Diabetic Type II, OSA on cpap > > > > > Verapamil CR 360 mg > > > > > Hydralazine, 50 mg x3 > > > > > Janumet 50/1000 (not taking at NIH) > > > > > Simcor 1000/40 > > > > > Novolog 70/30 > > > > > Dashing with occasional lapses > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2012 Report Share Posted July 22, 2012 I am thinking JC set up a file?May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Jul 22, 2012, at 16:04, ww_engineer <mfaeth01@...> wrote: Also, I thought I read in post somewhere that there was a ffolder or something in the file section for members to post stories on experiences at NIH. I did not see it. If there is a place to put it, I'll convert my post to a PDF and save it here. Mike > > > Here are some of my random thoughts on what its been like staying at NIH this past week: > > > > The nursing staff is fantastic. They treat the patients as guests and really go out of the way to make sure you are comfortable. For me, the most important part has been their keeping me informed of what is going on each day, and what to expect. > > > > There is a lot of traffic through your room the first day. I met with three Doctors, a social worker, the administrator for the study protocol, the BG expert, dietician, phlebotomist, and multiple nurses. > > > > They gave me a schedule before I arrived. I understood that this was tentative, at the time and expected changes. Probably 30% of the test were changes or canceled after I arrived. One was due to mix-up the rest were revision based on other test results. The mix-up was with a bone density test. It was scheduled on Wednesday. On Tuesday I had an MRA with a contrast agent, and you are not supposed to have contrast for several days before the bone density scan. > > > > They really like blood here. I have lost count, but I think they have taken at least 30 vials of blood this week, including 17 at one time the first day. That does not include the draws to check BG out of the tube in my arm or finger sticks. > > > > Four days of 24-hour urine collection can be tedious. When I go out for a walk I've been a little afraid of getting too far from the room and then having to "go". > > > > The first couple weeks of July are not the best time to come for a study. A new group of fellows arrive the first of July. Like all new jobs it takes anyone a little time to understand how the system works, and know what your boss expects. So far my fellow has been double checking everything with Dr. Stratakis. I understand, but sometimes it is frustrating waiting for responses. > > > > My endocrinologist fellows name is Mikumi Endo. I thought the nurse was joking when he told me the fellow assigned to me was "Dr. Endo". She is still learning the system at NIH, but has been very good so far. > > > > Find an excuse to ask for a massage (my back was bothering me from working on the computer while sitting on the bed). Its free, they come to your room, and do a great job. > > > > The "coffee" they serve with meals is horrible. I have a pretty serious coffee addiction and would probably have died from withdrawal if it wasn't possible to get Duncan Doughnuts coffee the in the B1 cafeteria. > > > > Mike > > > > Thumbnail: > > Caucasian, male, 51 years old, 6'- 3" tall, 285 lbs. > > Adrenal adenoma both sides by CT scan > > Diabetic Type II, OSA on cpap > > Verapamil CR 360 mg > > Hydralazine, 50 mg x3 > > Janumet 50/1000 (not taking at NIH) > > Simcor 1000/40 > > Novolog 70/30 > > Dashing with occasional lapses > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2012 Report Share Posted July 22, 2012 I am thinking JC set up a file?May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Jul 22, 2012, at 16:04, ww_engineer <mfaeth01@...> wrote: Also, I thought I read in post somewhere that there was a ffolder or something in the file section for members to post stories on experiences at NIH. I did not see it. If there is a place to put it, I'll convert my post to a PDF and save it here. Mike > > > Here are some of my random thoughts on what its been like staying at NIH this past week: > > > > The nursing staff is fantastic. They treat the patients as guests and really go out of the way to make sure you are comfortable. For me, the most important part has been their keeping me informed of what is going on each day, and what to expect. > > > > There is a lot of traffic through your room the first day. I met with three Doctors, a social worker, the administrator for the study protocol, the BG expert, dietician, phlebotomist, and multiple nurses. > > > > They gave me a schedule before I arrived. I understood that this was tentative, at the time and expected changes. Probably 30% of the test were changes or canceled after I arrived. One was due to mix-up the rest were revision based on other test results. The mix-up was with a bone density test. It was scheduled on Wednesday. On Tuesday I had an MRA with a contrast agent, and you are not supposed to have contrast for several days before the bone density scan. > > > > They really like blood here. I have lost count, but I think they have taken at least 30 vials of blood this week, including 17 at one time the first day. That does not include the draws to check BG out of the tube in my arm or finger sticks. > > > > Four days of 24-hour urine collection can be tedious. When I go out for a walk I've been a little afraid of getting too far from the room and then having to "go". > > > > The first couple weeks of July are not the best time to come for a study. A new group of fellows arrive the first of July. Like all new jobs it takes anyone a little time to understand how the system works, and know what your boss expects. So far my fellow has been double checking everything with Dr. Stratakis. I understand, but sometimes it is frustrating waiting for responses. > > > > My endocrinologist fellows name is Mikumi Endo. I thought the nurse was joking when he told me the fellow assigned to me was "Dr. Endo". She is still learning the system at NIH, but has been very good so far. > > > > Find an excuse to ask for a massage (my back was bothering me from working on the computer while sitting on the bed). Its free, they come to your room, and do a great job. > > > > The "coffee" they serve with meals is horrible. I have a pretty serious coffee addiction and would probably have died from withdrawal if it wasn't possible to get Duncan Doughnuts coffee the in the B1 cafeteria. > > > > Mike > > > > Thumbnail: > > Caucasian, male, 51 years old, 6'- 3" tall, 285 lbs. > > Adrenal adenoma both sides by CT scan > > Diabetic Type II, OSA on cpap > > Verapamil CR 360 mg > > Hydralazine, 50 mg x3 > > Janumet 50/1000 (not taking at NIH) > > Simcor 1000/40 > > Novolog 70/30 > > Dashing with occasional lapses > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2012 Report Share Posted July 22, 2012 Send us a copy as well in an email. Thanks. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Jul 22, 2012, at 21:45, ww_engineer <mfaeth01@...> wrote: Thanks, I found the folder. If I have any trouble posting I'll let you know. Mike > > > > > > > > > Here are some of my random thoughts on what its been like staying > > at NIH this past week: > > > > > > > > > > The nursing staff is fantastic. They treat the patients as guests > > and really go out of the way to make sure you are comfortable. For me, > > the most important part has been their keeping me informed of what is > > going on each day, and what to expect. > > > > > > > > > > There is a lot of traffic through your room the first day. I met > > with three Doctors, a social worker, the administrator for the study > > protocol, the BG expert, dietician, phlebotomist, and multiple nurses. > > > > > > > > > > They gave me a schedule before I arrived. I understood that this > > was tentative, at the time and expected changes. Probably 30% of the > > test were changes or canceled after I arrived. One was due to mix-up the > > rest were revision based on other test results. The mix-up was with a > > bone density test. It was scheduled on Wednesday. On Tuesday I had an > > MRA with a contrast agent, and you are not supposed to have contrast for > > several days before the bone density scan. > > > > > > > > > > They really like blood here. I have lost count, but I think they > > have taken at least 30 vials of blood this week, including 17 at one > > time the first day. That does not include the draws to check BG out of > > the tube in my arm or finger sticks. > > > > > > > > > > Four days of 24-hour urine collection can be tedious. When I go > > out for a walk I've been a little afraid of getting too far from the > > room and then having to "go". > > > > > > > > > > The first couple weeks of July are not the best time to come for a > > study. A new group of fellows arrive the first of July. Like all new > > jobs it takes anyone a little time to understand how the system works, > > and know what your boss expects. So far my fellow has been double > > checking everything with Dr. Stratakis. I understand, but sometimes it > > is frustrating waiting for responses. > > > > > > > > > > My endocrinologist fellows name is Mikumi Endo. I thought the > > nurse was joking when he told me the fellow assigned to me was "Dr. > > Endo". She is still learning the system at NIH, but has been very good > > so far. > > > > > > > > > > Find an excuse to ask for a massage (my back was bothering me from > > working on the computer while sitting on the bed). Its free, they come > > to your room, and do a great job. > > > > > > > > > > The "coffee" they serve with meals is horrible. I have a pretty > > serious coffee addiction and would probably have died from withdrawal if > > it wasn't possible to get Duncan Doughnuts coffee the in the B1 > > cafeteria. > > > > > > > > > > Mike > > > > > > > > > > Thumbnail: > > > > > Caucasian, male, 51 years old, 6'- 3" tall, 285 lbs. > > > > > Adrenal adenoma both sides by CT scan > > > > > Diabetic Type II, OSA on cpap > > > > > Verapamil CR 360 mg > > > > > Hydralazine, 50 mg x3 > > > > > Janumet 50/1000 (not taking at NIH) > > > > > Simcor 1000/40 > > > > > Novolog 70/30 > > > > > Dashing with occasional lapses > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2012 Report Share Posted July 22, 2012 Send us a copy as well in an email. Thanks. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Jul 22, 2012, at 21:45, ww_engineer <mfaeth01@...> wrote: Thanks, I found the folder. If I have any trouble posting I'll let you know. Mike > > > > > > > > > Here are some of my random thoughts on what its been like staying > > at NIH this past week: > > > > > > > > > > The nursing staff is fantastic. They treat the patients as guests > > and really go out of the way to make sure you are comfortable. For me, > > the most important part has been their keeping me informed of what is > > going on each day, and what to expect. > > > > > > > > > > There is a lot of traffic through your room the first day. I met > > with three Doctors, a social worker, the administrator for the study > > protocol, the BG expert, dietician, phlebotomist, and multiple nurses. > > > > > > > > > > They gave me a schedule before I arrived. I understood that this > > was tentative, at the time and expected changes. Probably 30% of the > > test were changes or canceled after I arrived. One was due to mix-up the > > rest were revision based on other test results. The mix-up was with a > > bone density test. It was scheduled on Wednesday. On Tuesday I had an > > MRA with a contrast agent, and you are not supposed to have contrast for > > several days before the bone density scan. > > > > > > > > > > They really like blood here. I have lost count, but I think they > > have taken at least 30 vials of blood this week, including 17 at one > > time the first day. That does not include the draws to check BG out of > > the tube in my arm or finger sticks. > > > > > > > > > > Four days of 24-hour urine collection can be tedious. When I go > > out for a walk I've been a little afraid of getting too far from the > > room and then having to "go". > > > > > > > > > > The first couple weeks of July are not the best time to come for a > > study. A new group of fellows arrive the first of July. Like all new > > jobs it takes anyone a little time to understand how the system works, > > and know what your boss expects. So far my fellow has been double > > checking everything with Dr. Stratakis. I understand, but sometimes it > > is frustrating waiting for responses. > > > > > > > > > > My endocrinologist fellows name is Mikumi Endo. I thought the > > nurse was joking when he told me the fellow assigned to me was "Dr. > > Endo". She is still learning the system at NIH, but has been very good > > so far. > > > > > > > > > > Find an excuse to ask for a massage (my back was bothering me from > > working on the computer while sitting on the bed). Its free, they come > > to your room, and do a great job. > > > > > > > > > > The "coffee" they serve with meals is horrible. I have a pretty > > serious coffee addiction and would probably have died from withdrawal if > > it wasn't possible to get Duncan Doughnuts coffee the in the B1 > > cafeteria. > > > > > > > > > > Mike > > > > > > > > > > Thumbnail: > > > > > Caucasian, male, 51 years old, 6'- 3" tall, 285 lbs. > > > > > Adrenal adenoma both sides by CT scan > > > > > Diabetic Type II, OSA on cpap > > > > > Verapamil CR 360 mg > > > > > Hydralazine, 50 mg x3 > > > > > Janumet 50/1000 (not taking at NIH) > > > > > Simcor 1000/40 > > > > > Novolog 70/30 > > > > > Dashing with occasional lapses > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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