Guest guest Posted July 31, 2012 Report Share Posted July 31, 2012 I tested low when I still had the tumor, and I continue to test low. However, I'm skeptical of the whole Vitamin D craze in general. When I last spoke with my doctor about it, the only studies done showing that supplementation helped anybody at all were in northern European males, over age 50, with a previous history of cardiac events. As I am neither northern European, male, or over 50, and have no history of cardiac events, I don't see any proof that there is a benefit for me to supplement Vit D. I did try it once, long before my PA was diagnosed. To this day I don't know if the 2000 IU's my clueless then-doctor prescribed interacted with one of the many HTN meds I was on at the time, or what, but I'm convinced that it almost killed me. While on Vit D, I had the worst palpitations of my life, my heart was racing, and I felt like I was going to die. I stopped taking the Vit D, and within a week I felt better. Never again. The thing about the whole Vitamin D craze that make no sense to me is this - we don't really get it from food, we get it from sun exposure. I live in southern California, hike or go to the beach several times a week, and refuse to use sunscreen (sunscreens are known carcinogens - I don't use any cosmetics for this reason). So the usual blame it on sunscreen or lack of outdoor time doesn't apply to me, yet I still test really low. I'm convinced that something is amiss here - either we all have wildly varying " normal " ranges, or something is wrong with the testing method. Even though my labs show low Vit D, since my surgery I feel fine and don't have any of the usual symptoms of deficiency (supposedly bone pain, respiratory problems, and thyroid issues are typical). We had a discussion here not too long ago about how many of us tested low - IIRC the majority of responders did. -msmith1928 Left laparoscopic adrenalectomy 10/13/11 > > I briefly read some of the chatter here about Vit D and I wondered...to other folks here have low Vit D levels? I've only had my D level checked once,May 2012 and it was 18.8 (normal levels are 30.0-100). > > My PCP said it was a relatively new thing to check, and that I should supplement. I'm not a vitamin taker, so I haven't done anything about it. I figured I " d been inside all winter, so my summer in the sun would help. I'm very pale, so I wear sunscreen religiously, but I try to wait a bit before applying now. > > Just curious if others have low Vit D. > > Jill > > 2 cm left adrenal adenoma, CT scan diagnosed July 2012 > Aldosterone level 32.7 (top level normal 30.0) > BP avg 150/100 > Low Potassium for 2+ years > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2012 Report Share Posted July 31, 2012 I keep saying somethings wrong with the range or the testing because nearly every single person on here who's had theirs tested is low. We can't all be THAT deficient especially with everything VIT D fortified. From: NJ Roadie <junk@...>Subject: Vitamin D level questionhyperaldosteronism Date: Tuesday, July 31, 2012, 7:53 PM I briefly read some of the chatter here about Vit D and I wondered...to other folks here have low Vit D levels? I've only had my D level checked once,May 2012 and it was 18.8 (normal levels are 30.0-100). My PCP said it was a relatively new thing to check, and that I should supplement. I'm not a vitamin taker, so I haven't done anything about it. I figured I"d been inside all winter, so my summer in the sun would help. I'm very pale, so I wear sunscreen religiously, but I try to wait a bit before applying now. Just curious if others have low Vit D.Jill2 cm left adrenal adenoma, CT scan diagnosed July 2012Aldosterone level 32.7 (top level normal 30.0)BP avg 150/100Low Potassium for 2+ years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2012 Report Share Posted July 31, 2012 Me too. I was low a couple years back, went on it D3 and felt HORRIBLE. >> I briefly read some of the chatter here about Vit D and I wondered...to other folks here have low Vit D levels? I've only had my D level checked once,May 2012 and it was 18.8 (normal levels are 30.0-100). > > My PCP said it was a relatively new thing to check, and that I should supplement. I'm not a vitamin taker, so I haven't done anything about it. I figured I"d been inside all winter, so my summer in the sun would help. I'm very pale, so I wear sunscreen religiously, but I try to wait a bit before applying now. > > Just curious if others have low Vit D.> > Jill> > 2 cm left adrenal adenoma, CT scan diagnosed July 2012> Aldosterone level 32.7 (top level normal 30.0)> BP avg 150/100> Low Potassium for 2+ years>Me t Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2012 Report Share Posted July 31, 2012 The institute of health has raised their recommendations is why many come in low. I presume they did it because they found it too low to provide the necessary protection. That is why the supplement in dairy products and foods isn't high enough. If you go to WebMd they have a good explaination and list of conditions that may be affected. Since I am starting to approach the advanced age, I no longer spend 8-10 hours in the field or operating a ski lift or in the front seat of a bus I decided I should pay attention. I read the list and decided broken bones , cancer, dementia, etc. are things I prefer to avoid if at all possible but the choice is yours. I have not experienced any side effects and can handle one more pill a week, afterall I used to take 18 a day! > > > From: NJ Roadie junk@... > Subject: Vitamin D level question > hyperaldosteronism > Date: Tuesday, July 31, 2012, 7:53 PM > > > > Â > > > > I briefly read some of the chatter here about Vit D and I wondered...to other folks here have low Vit D levels? I've only had my D level checked once,May 2012 and it was 18.8 (normal levels are 30.0-100). > > My PCP said it was a relatively new thing to check, and that I should supplement. I'm not a vitamin taker, so I haven't done anything about it. I figured I " d been inside all winter, so my summer in the sun would help. I'm very pale, so I wear sunscreen religiously, but I try to wait a bit before applying now. > > Just curious if others have low Vit D. > > Jill > > 2 cm left adrenal adenoma, CT scan diagnosed July 2012 > Aldosterone level 32.7 (top level normal 30.0) > BP avg 150/100 > Low Potassium for 2+ years > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2012 Report Share Posted July 31, 2012 Some recommend a level of 20 as lower limit of "normal" rather than 30. So you would be close to this "normal". Clarence Grim MD On Jul 31, 2012, at 7:53 PM, NJ Roadie wrote: I briefly read some of the chatter here about Vit D and I wondered...to other folks here have low Vit D levels? I've only had my D level checked once,May 2012 and it was 18.8 (normal levels are 30.0-100). My PCP said it was a relatively new thing to check, and that I should supplement. I'm not a vitamin taker, so I haven't done anything about it. I figured I"d been inside all winter, so my summer in the sun would help. I'm very pale, so I wear sunscreen religiously, but I try to wait a bit before applying now. Just curious if others have low Vit D. Jill 2 cm left adrenal adenoma, CT scan diagnosed July 2012 Aldosterone level 32.7 (top level normal 30.0) BP avg 150/100 Low Potassium for 2+ years Quote Link to comment Share on other sites More sharing options...
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