Re: UPDATE- two days on eplerenone

[Guest guest]

Your kid spec seems to be of low IQ...assuming that 50mg Eplr can increase K

to such high levels that he stops K-supp! My dumb doc also did the same and

I had a lot of back muscle spasms until tests results surprised him that

20mEq K sup was elevated to 180 mEq/day then backed up to 120!

Max, 62M

| UPDATE- two days on eplerenone

|

|Hi all,

|

| The Kidney specialist put me on eplerenone on Monday.

|25mg - 2/day. I started Monday night.

|He had me stop my Postassium supplements (20MEQ 1/day) Tuesday - Started

|feeling lots different.

|I swear I went pee every 2 hrs. that day.

|the over-all yuck was going away..I could tell my body was functioning

|differently. feeling pretty decent Wednesday - Woke up feeling not as

well.

|Now my legs are cramping going up my back and into my neck..my face feels

|weird..almost tingly but not quite. Muscle aches and fatigue are starting

to set

|in. Tired and getting weaker. Low K for sure I'm sure it's the fact that

I have

|not taken my potassium suppliment in two days and my K has dipped low.

|I know it's only been a few days on this drug, but is this a normal affect

when

|going off K suppliments..will my body rebound, I understand the reasoning

for

|going off K due to the eplerenone.

|1. Should I wait a few days and see how my body responds ?

|2. Maybe i'm still spilling too much K?

| Too low of dose of eplerenone?

|

|Anyone with experience going onto this drug...dropping K suppliments..would

|appreciate some advice ?

|Not sure about calling my kidney specialist.. I probably will, but I think

he's not

|in tune with this stuff.

|

|

|

|

|

|------------------------------------

|

|

[Guest guest]

Think maybe you pee'd the k right out. Generally doctors taper your k supplements to see how you do on MCB's, then retest your k levels. Were you eating a high k diet, as in Dashing?Call that doctor and let him know what has happened. He should be doing better than this.Dianne

Hi all,

The Kidney specialist put me on eplerenone on Monday.

25mg - 2/day. I started Monday night.

He had me stop my Postassium supplements (20MEQ 1/day)

Tuesday - Started feeling lots different.

I swear I went pee every 2 hrs. that day.

the over-all yuck was going away..I could tell my body was functioning differently. feeling pretty decent

Wednesday - Woke up feeling not as well. Now my legs are cramping

going up my back and into my neck..my face feels weird..almost tingly but not quite. Muscle aches and fatigue are starting to set in. Tired and getting weaker. Low K for sure

I'm sure it's the fact that I have not taken my potassium suppliment in two days and my K has dipped low.

I know it's only been a few days on this drug, but is this a normal affect when going off K suppliments..will my body rebound, I understand the reasoning for going off K due to the eplerenone.

1. Should I wait a few days and see how my body responds ?

2. Maybe i'm still spilling too much K?

Too low of dose of eplerenone?

Anyone with experience going onto this drug...dropping K suppliments..would appreciate some advice ?

Not sure about calling my kidney specialist.. I probably will, but I think he's not in tune with this stuff.

[Guest guest]

Nope..no high K diet .. I'm really new to this

I am being treated for Fibro due to muscle aches and pains for the last 2

years.. I always told them that I thought it was hogwash and that my body was

not running right. With these huge fluctuations in muscle aches, I'm inclined

to think I had a low K issue for a long time

I even got " Code Blue " 'ed in a hospital last year. I'm only 42

I was in for a partial blockage..

It ended up releasing or something and I pooped so much water and yuck. I know

it sounds gross, but it was alot... then I passed out and my whole body seized

up/crammped.. my face went numb and I couldn't feel my legs. They thought I was

having a stroke or an allergic reaction. They never could answer why that

happened.

Some said allergic reaction..some said a funky never or something toggled.

never any answers and I was sent home when I stablized. The blockage was gone

after that episode.

I now think I lost so much fluid and I was already low K that my body went into

low K shock.

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> Hi all,

>

>

>

> The Kidney specialist put me on eplerenone on Monday.

>

> 25mg - 2/day. I started Monday night.

>

> He had me stop my Postassium supplements (20MEQ 1/day)

>

> Tuesday - Started feeling lots different.

>

> I swear I went pee every 2 hrs. that day.

>

> the over-all yuck was going away..I could tell my body was functioning

differently. feeling pretty decent

>

> Wednesday - Woke up feeling not as well. Now my legs are cramping

>

> going up my back and into my neck..my face feels weird..almost tingly but not

quite. Muscle aches and fatigue are starting to set in. Tired and getting

weaker. Low K for sure

>

> I'm sure it's the fact that I have not taken my potassium suppliment in two

days and my K has dipped low.

>

> I know it's only been a few days on this drug, but is this a normal affect

when going off K suppliments..will my body rebound, I understand the reasoning

for going off K due to the eplerenone.

>

> 1. Should I wait a few days and see how my body responds ?

>

> 2. Maybe i'm still spilling too much K?

>

> Too low of dose of eplerenone?

>

>

>

> Anyone with experience going onto this drug...dropping K suppliments..would

appreciate some advice ?

>

> Not sure about calling my kidney specialist.. I probably will, but I think

he's not in tune with this stuff.

>

[Guest guest]

You didn't tell us what your K was when you started this. Many doctors do it this way (we should call them the IGUESSDOCS! ) Unless your K is in the higher end of the scale my doctor would have started the Eplerenone and had me on a 2-week recall recall for testing. (I have to drive 102 miles for that testing but she doesn't care, she doesn't like to hear me bitch! )

I would agree that your K is more than likely low and I would suspect the Eplerenone isn't completely working. Since you didn't mention DASH or a urine Na test I am assuming you are outsalting the Epler. You can increase epler but it likely won't do much but maybe give you diarrhea! They should do some baseline testing unless this has been recently done, 24hr urine especially.

A good thumbnail will make it a lot easier for us so we can reduce the guessing. Do they know you have PA or what makes them suspect it? BP numbers and are you taking it at home daily?

We can probably help if we know what is going on.

.....

>> Hi all,> > The Kidney specialist put me on eplerenone on Monday.> 25mg - 2/day. I started Monday night.> He had me stop my Postassium supplements (20MEQ 1/day)> Tuesday - Started feeling lots different. > I swear I went pee every 2 hrs. that day. > the over-all yuck was going away..I could tell my body was functioning differently. feeling pretty decent> Wednesday - Woke up feeling not as well. Now my legs are cramping> going up my back and into my neck..my face feels weird..almost tingly but not quite. Muscle aches and fatigue are starting to set in. Tired and getting weaker. Low K for sure> I'm sure it's the fact that I have not taken my potassium suppliment in two days and my K has dipped low.> I know it's only been a few days on this drug, but is this a normal affect when going off K suppliments..will my body rebound, I understand the reasoning for going off K due to the eplerenone. > 1. Should I wait a few days and see how my body responds ?> 2. Maybe i'm still spilling too much K?> Too low of dose of eplerenone?> > Anyone with experience going onto this drug...dropping K suppliments..would appreciate some advice ?> Not sure about calling my kidney specialist.. I probably will, but I think he's not in tune with this stuff.>

[Guest guest]

Correct me if I'm wrong, but this sounds like a lot of processed foods - yogurt

(I'm assuming flavored), granola bar (I'm assuming out of a box and not

homemade), a sandwich made with ingredients you don't know the nutritional info

of (assuming sine you asked " them " to make it that you didn't buy the

ingredients and make it yourself). Processed foods like snack foods (granola

bars), bread, processed meat, cereals, and cheese are often LOADED with hidden

sodium. And Gatorade is FULL of sodium - it's mainly water with sugar and salt

added.

So, I might be completely off base here, but from the list you posted, this

looks like a pretty high-sodium diet to me.

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> > > Hi all,

> > >

> > >

> > >

> > > The Kidney specialist put me on eplerenone on Monday.

> > >

> > > 25mg - 2/day. I started Monday night.

> > >

> > > He had me stop my Postassium supplements (20MEQ 1/day)

> > >

> > > Tuesday - Started feeling lots different.

> > >

> > > I swear I went pee every 2 hrs. that day.

> > >

> > > the over-all yuck was going away..I could tell my body was functioning

differently. feeling pretty decent

> > >

> > > Wednesday - Woke up feeling not as well. Now my legs are cramping

> > >

> > > going up my back and into my neck..my face feels weird..almost tingly but

not quite. Muscle aches and fatigue are starting to set in. Tired and getting

weaker. Low K for sure

> > >

> > > I'm sure it's the fact that I have not taken my potassium suppliment in

two days and my K has dipped low.

> > >

> > > I know it's only been a few days on this drug, but is this a normal affect

when going off K suppliments..will my body rebound, I understand the reasoning

for going off K due to the eplerenone.

> > >

> > > 1. Should I wait a few days and see how my body responds ?

> > >

> > > 2. Maybe i'm still spilling too much K?

> > >

> > > Too low of dose of eplerenone?

> > >

> > >

> > >

> > > Anyone with experience going onto this drug...dropping K

suppliments..would appreciate some advice ?

> > >

> > > Not sure about calling my kidney specialist.. I probably will, but I think

he's not in tune with this stuff.

> > >

> >

> >

>

[Guest guest]

As you progress through this you will quickly learn to control your own destiny.

Don't let them get away with low, high and ok - make them give you real numbers

and the acceptable range. That way you and we will be able to track how you are

doing. The usual low end of the range is 3.5 and many here start having issues

when they get down to 3.7 and below. You'll probably need to supplement until

you get the eplerenone and sodium adjusted correctly. (I found the frequent

peeing went away when I got it right. I can now sleep 8 hours without getting

up - pretty good for an old fatty!)

> > >

> > > Hi all,

> > >

> > > The Kidney specialist put me on eplerenone on Monday.

> > > 25mg - 2/day. I started Monday night.

> > > He had me stop my Postassium supplements (20MEQ 1/day)

> > > Tuesday - Started feeling lots different.

> > > I swear I went pee every 2 hrs. that day.

> > > the over-all yuck was going away..I could tell my body was functioning

differently. feeling pretty decent

> > > Wednesday - Woke up feeling not as well. Now my legs are cramping

> > > going up my back and into my neck..my face feels weird..almost tingly but

not quite. Muscle aches and fatigue are starting to set in. Tired and getting

weaker. Low K for sure

> > > I'm sure it's the fact that I have not taken my potassium suppliment in

two days and my K has dipped low.

> > > I know it's only been a few days on this drug, but is this a normal affect

when going off K suppliments..will my body rebound, I understand the reasoning

for going off K due to the eplerenone.

> > > 1. Should I wait a few days and see how my body responds ?

> > > 2. Maybe i'm still spilling too much K?

> > > Too low of dose of eplerenone?

> > >

> > > Anyone with experience going onto this drug...dropping K

suppliments..would appreciate some advice ?

> > > Not sure about calling my kidney specialist.. I probably will, but I think

he's not in tune with this stuff.

> > >

> >

> >

>

[Guest guest]

That is a piddling dose of eplere depending on which stage of PA you are in.See my review article on evolution of PA for stages of PA.

Clarence Grim MD

On Aug 1, 2012, at 1:00 PM, Wesley wrote:

Hi all,

The Kidney specialist put me on eplerenone on Monday.

25mg - 2/day. I started Monday night.

He had me stop my Postassium supplements (20MEQ 1/day)

Tuesday - Started feeling lots different.

I swear I went pee every 2 hrs. that day.

the over-all yuck was going away..I could tell my body was functioning differently. feeling pretty decent

Wednesday - Woke up feeling not as well. Now my legs are cramping

going up my back and into my neck..my face feels weird..almost tingly but not quite. Muscle aches and fatigue are starting to set in. Tired and getting weaker. Low K for sure

I'm sure it's the fact that I have not taken my potassium suppliment in two days and my K has dipped low.

I know it's only been a few days on this drug, but is this a normal affect when going off K suppliments..will my body rebound, I understand the reasoning for going off K due to the eplerenone.

1. Should I wait a few days and see how my body responds ?

2. Maybe i'm still spilling too much K?

Too low of dose of eplerenone?

Anyone with experience going onto this drug...dropping K suppliments..would appreciate some advice ?

Not sure about calling my kidney specialist.. I probably will, but I think he's not in tune with this stuff.

[Guest guest]

And 25 a day of K is a very low dose.Did he not mention DASHing?If not you may want to get him copy of the book.

Clarence Grim MDlowerbp2@...

On Aug 1, 2012, at 1:27 PM, Dianne strong wrote:

Think maybe you pee'd the k right out. Generally doctors taper your k supplements to see how you do on MCB's, then retest your k levels. Were you eating a high k diet, as in Dashing?Call that doctor and let him know what has happened. He should be doing better than this.Dianne

Hi all,

The Kidney specialist put me on eplerenone on Monday.

25mg - 2/day. I started Monday night.

He had me stop my Postassium supplements (20MEQ 1/day)

Tuesday - Started feeling lots different.

I swear I went pee every 2 hrs. that day.

the over-all yuck was going away..I could tell my body was functioning differently. feeling pretty decent

Wednesday - Woke up feeling not as well. Now my legs are cramping

going up my back and into my neck..my face feels weird..almost tingly but not quite. Muscle aches and fatigue are starting to set in. Tired and getting weaker. Low K for sure

I'm sure it's the fact that I have not taken my potassium suppliment in two days and my K has dipped low.

I know it's only been a few days on this drug, but is this a normal affect when going off K suppliments..will my body rebound, I understand the reasoning for going off K due to the eplerenone.

1. Should I wait a few days and see how my body responds ?

2. Maybe i'm still spilling too much K?

Too low of dose of eplerenone?

Anyone with experience going onto this drug...dropping K suppliments..would appreciate some advice ?

Not sure about calling my kidney specialist.. I probably will, but I think he's not in tune with this stuff.

[Guest guest]

And not much for Hi K.

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> > > > Hi all,

> > > >

> > > >

> > > >

> > > > The Kidney specialist put me on eplerenone on Monday.

> > > >

> > > > 25mg - 2/day. I started Monday night.

> > > >

> > > > He had me stop my Postassium supplements (20MEQ 1/day)

> > > >

> > > > Tuesday - Started feeling lots different.

> > > >

> > > > I swear I went pee every 2 hrs. that day.

> > > >

> > > > the over-all yuck was going away..I could tell my body was functioning

differently. feeling pretty decent

> > > >

> > > > Wednesday - Woke up feeling not as well. Now my legs are cramping

> > > >

> > > > going up my back and into my neck..my face feels weird..almost tingly

but not quite. Muscle aches and fatigue are starting to set in. Tired and

getting weaker. Low K for sure

> > > >

> > > > I'm sure it's the fact that I have not taken my potassium suppliment in

two days and my K has dipped low.

> > > >

> > > > I know it's only been a few days on this drug, but is this a normal

affect when going off K suppliments..will my body rebound, I understand the

reasoning for going off K due to the eplerenone.

> > > >

> > > > 1. Should I wait a few days and see how my body responds ?

> > > >

> > > > 2. Maybe i'm still spilling too much K?

> > > >

> > > > Too low of dose of eplerenone?

> > > >

> > > >

> > > >

> > > > Anyone with experience going onto this drug...dropping K

suppliments..would appreciate some advice ?

> > > >

> > > > Not sure about calling my kidney specialist.. I probably will, but I

think he's not in tune with this stuff.

> > > >

> > >

> > >

> >

>

[Guest guest]

I have to agree with msmith_1928,

Sounds like a very high sodium diet. Prior to Conn's Dx - I had a pulled pork

sandwich one day and had to go to the hospital that night! The sodium in

processed meat is sodium on steroids!

I've been told that sodium can negate the medication.

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> > > > >

> > > > > Hi all,

> > > > >

> > > > >

> > > > >

> > > > > The Kidney specialist put me on eplerenone on Monday.

> > > > >

> > > > > 25mg - 2/day. I started Monday night.

> > > > >

> > > > > He had me stop my Postassium supplements (20MEQ 1/day)

> > > > >

> > > > > Tuesday - Started feeling lots different.

> > > > >

> > > > > I swear I went pee every 2 hrs. that day.

> > > > >

> > > > > the over-all yuck was going away..I could tell my body was functioning

differently. feeling pretty decent

> > > > >

> > > > > Wednesday - Woke up feeling not as well. Now my legs are cramping

> > > > >

> > > > > going up my back and into my neck..my face feels weird..almost tingly

but not quite. Muscle aches and fatigue are starting to set in. Tired and

getting weaker. Low K for sure

> > > > >

> > > > > I'm sure it's the fact that I have not taken my potassium suppliment

in two days and my K has dipped low.

> > > > >

> > > > > I know it's only been a few days on this drug, but is this a normal

affect when going off K suppliments..will my body rebound, I understand the

reasoning for going off K due to the eplerenone.

> > > > >

> > > > > 1. Should I wait a few days and see how my body responds ?

> > > > >

> > > > > 2. Maybe i'm still spilling too much K?

> > > > >

> > > > > Too low of dose of eplerenone?

> > > > >

> > > > >

> > > > >

> > > > > Anyone with experience going onto this drug...dropping K

suppliments..would appreciate some advice ?

> > > > >

> > > > > Not sure about calling my kidney specialist.. I probably will, but I

think he's not in tune with this stuff.

> > > > >

> > > >

> > > >

> > >

> >

>