Re: Any suggestions on getting Valtrex??/Stan

[Guest guest]

Stan, We have a fairly open-mnded pcp. She is new for us <1 year. Although she won't do biomed, she was willing to refer us to our DAN doctor. She also told me she would order any tests on , since our DAN is a naturopath and my BC/BS doesn't cover his "stuff" because he isn't an MD. I am thankful she will do that for us. I really get confused with all these different issues, like leaky gut, yeast, bacteria, etc. I believe if I asked our pcp she would give me an rx for whatever I ask...what should I tell her in order to get an rx for valtrex, and for how long? Should I start with something else first? I really want to give valtrex a try, but I don't want to do anything out of order. is on td dmsa and td glut. I added ALA and also NCD zeolite recently. All is fine, pretty good actually. He is very hf Aspergers, you almost wouldn't notice autism. He does two things: he "jogs" a little bit in the house, just a back and forth thing. If I tell

him "No jogging" he stops. he used to do it nightly, at the exact same time for 1/2 hour, but that was long ago. Now it;s occasional. He also chews on straws, like the kind you get with a juice box. he has taken to tearing off pieces of paper lately also. One other thing: Over Feb vacation (chelation week also) he got a major cold. He was sick the entire week, and into the next wek as well. This week (April vacation...chelation week also) he got another cold, but this time not anywhere near as bad. We started the zeolites this week too, and some ALA. Is his cold this time virus related? For the most part it has been a stuffy nose, so much so I couldn't give his nasal b12 because he couldn't breathe. He is better today. Thanks Stan, for all the help you've given all of us!! Stan Kurtz <kurtzstan@...> wrote: It really takes a special person to see beyond the mainstream thinking. Most of the time it takes someone close to you being ill with autism. Occastionally you'll find doctors, usually they are young doctors, who are open to what we do. I find that when doctors are not UP on things.. they are usually down on it. I'm lucky enough to attend the DAN! physician's training at each conference and it's really interesting to see the new doctors. It's like they found a new religion... like they saw the light... and let me tell you they are really passionate about it. You can see these folks are very centered and aware... very special people to break away from their traditional roots to find answers no matter where they are. This past physician's session we taped the doctors introducing

themselves and it's really moving when you hear the parts of the world they came from and why the came to DAN! It offers hope because far too often we hear stories of doctors who either aren't willing to help, or absolutely resist. Your doctor is like my son's pediatrician. Won't help... won't stand in the way... except to say, "I don't believe in this." Part of me thinks it's a crime considering they won't go to a conference, won't really look at the data, won't try anything, won't tell parents that even some children recover from biomed... it kind of makes me angry to be honest. Angry at the part of human nature that they fit into. The part that is OK with letting children be hurt simply because they don't want to get out of the comfort of their denial... no different than the docs who believed cigarette's were OK because the studies said they were (at first), no different then all the

people who get sick from the whole cell pertussis vaccine before it was taken off the market, no different then all the doctors who still believe that mercury in vaccines is OK, no different than the doctors who don't think twice about giving children 3, 4, 5, 6, 7, 8... vaccines in the same day... who see the kids become autistic afterwards but can't make the connection... no different than my son's developmental pediatrician who used to talk about diet but when GF/CF didn't work on a lot of her kids she just decided that ALL biomedical interventions didn't work..., the same people who don't believe in environmental toxicity, that there isn't global warming, that tap water and spring water don't have heavy metals.... and the list goes on.Not that I have any energy about these doctors... Don't fall into the trap of convincing people who are not ready.... my son's pediatrican origionally charged me to read my reaseach

(this is when I was just getting started and was looking for people's approval) only to file it and not change his mind about anything... still the same way today. I would focus your time on finding a good doctor that can teach you something rather than a doctor who you will never teach anything.Anyway, back to your questions. I would call around to some regular docs and see if you can find a friendly one. As uptight as my son's pediatrician was, he had no issue with Valtrex, because it is known as a safe med. Otherwise, you may want to start with OLE and VS if you don't have any other choice.- Stan>> I've been reading here and I'm loving what I'm reading. Valtrex sounds like > a good route for my son. He is a very verbal child, but only about 40% of > his talking is appropriate

or meaningful. He's not very conversational. When > he has a fever, its terrible but I almost hope he stays slightly ill for a few > days. He is so on when he's sick, and when he's sick and has a fever at > night, you should hear what he says in his sleep.> > His pediatrician thinks the whole biomedical approach is a crap shoot. She's > not totally against us doing it, she just thinks its a waste of time and > money. I have printed a ton of info and am sending it to her. She was open to > reading it when I offered to send it, but she won't prescribe anything for it > for us. So no Valtrex from her. My PCP won't do it because my son is not a > patient in her office but she is LOVING what we are doing with biomed, and she > won't take patients that young otherwise I'd switch him to her as his PCP.> > My

DAN wants to take us in a different direction and doesn't think Valtrex > is a way to go right now. We are this close to dropping him anyway. We have an > appointment tomorrow and if I don't walk out with a prescription for it we > are not going back> > I can't go to a new DAN. We have already begged & borrowed our way into > eternal debt and most DANs have a hefty initial visit fee. I don't have that to > lay out again. > > I have a friend that is a rep for a drug company, unfortunately the wrong > one. Do any other manufacturers make a Valtrex equivalent, maybe one of them > is made by her company. She gives me my Allegra for the whole season in free > samples and I could ask for the Valtrex equivalent.> > Other than that is there anyway to get this?? I really want to try it for my

> son. I think he'd do wonders. I just feel like we are so close but yet so > far with him. Its like NT is on the tip of his tongue and just needs a > proverbial smack to the back of the head as if to say "spit it out" to get it out of > him. Its there, its in there, and we see hints of it from time to time. Its > like he's sitting on a fence teetering back and forth and can't decide which > side of the fence to climb down on.> > Any help would be appreciated immensely.> > thanks> Kerrie>

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[Guest guest]

Stan, We have a fairly open-mnded pcp. She is new for us <1 year. Although she won't do biomed, she was willing to refer us to our DAN doctor. She also told me she would order any tests on , since our DAN is a naturopath and my BC/BS doesn't cover his "stuff" because he isn't an MD. I am thankful she will do that for us. I really get confused with all these different issues, like leaky gut, yeast, bacteria, etc. I believe if I asked our pcp she would give me an rx for whatever I ask...what should I tell her in order to get an rx for valtrex, and for how long? Should I start with something else first? I really want to give valtrex a try, but I don't want to do anything out of order. is on td dmsa and td glut. I added ALA and also NCD zeolite recently. All is fine, pretty good actually. He is very hf Aspergers, you almost wouldn't notice autism. He does two things: he "jogs" a little bit in the house, just a back and forth thing. If I tell

him "No jogging" he stops. he used to do it nightly, at the exact same time for 1/2 hour, but that was long ago. Now it;s occasional. He also chews on straws, like the kind you get with a juice box. he has taken to tearing off pieces of paper lately also. One other thing: Over Feb vacation (chelation week also) he got a major cold. He was sick the entire week, and into the next wek as well. This week (April vacation...chelation week also) he got another cold, but this time not anywhere near as bad. We started the zeolites this week too, and some ALA. Is his cold this time virus related? For the most part it has been a stuffy nose, so much so I couldn't give his nasal b12 because he couldn't breathe. He is better today. Thanks Stan, for all the help you've given all of us!! Stan Kurtz <kurtzstan@...> wrote: It really takes a special person to see beyond the mainstream thinking. Most of the time it takes someone close to you being ill with autism. Occastionally you'll find doctors, usually they are young doctors, who are open to what we do. I find that when doctors are not UP on things.. they are usually down on it. I'm lucky enough to attend the DAN! physician's training at each conference and it's really interesting to see the new doctors. It's like they found a new religion... like they saw the light... and let me tell you they are really passionate about it. You can see these folks are very centered and aware... very special people to break away from their traditional roots to find answers no matter where they are. This past physician's session we taped the doctors introducing

themselves and it's really moving when you hear the parts of the world they came from and why the came to DAN! It offers hope because far too often we hear stories of doctors who either aren't willing to help, or absolutely resist. Your doctor is like my son's pediatrician. Won't help... won't stand in the way... except to say, "I don't believe in this." Part of me thinks it's a crime considering they won't go to a conference, won't really look at the data, won't try anything, won't tell parents that even some children recover from biomed... it kind of makes me angry to be honest. Angry at the part of human nature that they fit into. The part that is OK with letting children be hurt simply because they don't want to get out of the comfort of their denial... no different than the docs who believed cigarette's were OK because the studies said they were (at first), no different then all the

people who get sick from the whole cell pertussis vaccine before it was taken off the market, no different then all the doctors who still believe that mercury in vaccines is OK, no different than the doctors who don't think twice about giving children 3, 4, 5, 6, 7, 8... vaccines in the same day... who see the kids become autistic afterwards but can't make the connection... no different than my son's developmental pediatrician who used to talk about diet but when GF/CF didn't work on a lot of her kids she just decided that ALL biomedical interventions didn't work..., the same people who don't believe in environmental toxicity, that there isn't global warming, that tap water and spring water don't have heavy metals.... and the list goes on.Not that I have any energy about these doctors... Don't fall into the trap of convincing people who are not ready.... my son's pediatrican origionally charged me to read my reaseach

(this is when I was just getting started and was looking for people's approval) only to file it and not change his mind about anything... still the same way today. I would focus your time on finding a good doctor that can teach you something rather than a doctor who you will never teach anything.Anyway, back to your questions. I would call around to some regular docs and see if you can find a friendly one. As uptight as my son's pediatrician was, he had no issue with Valtrex, because it is known as a safe med. Otherwise, you may want to start with OLE and VS if you don't have any other choice.- Stan>> I've been reading here and I'm loving what I'm reading. Valtrex sounds like > a good route for my son. He is a very verbal child, but only about 40% of > his talking is appropriate

or meaningful. He's not very conversational. When > he has a fever, its terrible but I almost hope he stays slightly ill for a few > days. He is so on when he's sick, and when he's sick and has a fever at > night, you should hear what he says in his sleep.> > His pediatrician thinks the whole biomedical approach is a crap shoot. She's > not totally against us doing it, she just thinks its a waste of time and > money. I have printed a ton of info and am sending it to her. She was open to > reading it when I offered to send it, but she won't prescribe anything for it > for us. So no Valtrex from her. My PCP won't do it because my son is not a > patient in her office but she is LOVING what we are doing with biomed, and she > won't take patients that young otherwise I'd switch him to her as his PCP.> > My

DAN wants to take us in a different direction and doesn't think Valtrex > is a way to go right now. We are this close to dropping him anyway. We have an > appointment tomorrow and if I don't walk out with a prescription for it we > are not going back> > I can't go to a new DAN. We have already begged & borrowed our way into > eternal debt and most DANs have a hefty initial visit fee. I don't have that to > lay out again. > > I have a friend that is a rep for a drug company, unfortunately the wrong > one. Do any other manufacturers make a Valtrex equivalent, maybe one of them > is made by her company. She gives me my Allegra for the whole season in free > samples and I could ask for the Valtrex equivalent.> > Other than that is there anyway to get this?? I really want to try it for my

> son. I think he'd do wonders. I just feel like we are so close but yet so > far with him. Its like NT is on the tip of his tongue and just needs a > proverbial smack to the back of the head as if to say "spit it out" to get it out of > him. Its there, its in there, and we see hints of it from time to time. Its > like he's sitting on a fence teetering back and forth and can't decide which > side of the fence to climb down on.> > Any help would be appreciated immensely.> > thanks> Kerrie>

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