Guest guest Posted April 18, 2006 Report Share Posted April 18, 2006 Thanks for your response Stan. I've only been here a short time, but I've seen and heard your name in other places, I've seen video of your son. You are such an inspiration and a help and I thank you for being here!! I'm hoping to open my pediatricians eyes a little bit. She didn't seem against it and was willing to take printed info when I started telling her about MB12 injections when we started them in November. I have a ton of stuff for her and I think she may be the type that would seriously read it all. She may be one that can be turned in our direction. I'd love to get her on board because she really is a good doctor. Thanks for everything!! Kerrie In a message dated 4/18/2006 5:57:03 PM Eastern Daylight Time, kurtzstan@... writes: It offers hope because far too often we hear stories of doctors who either aren't willing to help, or absolutely resist. Your doctor is like my son's pediatrician. Won't help... won't stand in the way... except to say, "I don't believe in this." Part of me thinks it's a crime considering they won't go to a conference, won't really look at the data, won't try anything Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2006 Report Share Posted April 18, 2006 Thanks for your response Stan. I've only been here a short time, but I've seen and heard your name in other places, I've seen video of your son. You are such an inspiration and a help and I thank you for being here!! I'm hoping to open my pediatricians eyes a little bit. She didn't seem against it and was willing to take printed info when I started telling her about MB12 injections when we started them in November. I have a ton of stuff for her and I think she may be the type that would seriously read it all. She may be one that can be turned in our direction. I'd love to get her on board because she really is a good doctor. Thanks for everything!! Kerrie In a message dated 4/18/2006 5:57:03 PM Eastern Daylight Time, kurtzstan@... writes: It offers hope because far too often we hear stories of doctors who either aren't willing to help, or absolutely resist. Your doctor is like my son's pediatrician. Won't help... won't stand in the way... except to say, "I don't believe in this." Part of me thinks it's a crime considering they won't go to a conference, won't really look at the data, won't try anything Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2006 Report Share Posted April 18, 2006 It really takes a special person to see beyond the mainstream thinking. Most of the time it takes someone close to you being ill with autism. Occastionally you'll find doctors, usually they are young doctors, who are open to what we do. I find that when doctors are not UP on things.. they are usually down on it. I'm lucky enough to attend the DAN! physician's training at each conference and it's really interesting to see the new doctors. It's like they found a new religion... like they saw the light... and let me tell you they are really passionate about it. You can see these folks are very centered and aware... very special people to break away from their traditional roots to find answers no matter where they are. This past physician's session we taped the doctors introducing themselves and it's really moving when you hear the parts of the world they came from and why the came to DAN! It offers hope because far too often we hear stories of doctors who either aren't willing to help, or absolutely resist. Your doctor is like my son's pediatrician. Won't help... won't stand in the way... except to say, " I don't believe in this. " Part of me thinks it's a crime considering they won't go to a conference, won't really look at the data, won't try anything, won't tell parents that even some children recover from biomed... it kind of makes me angry to be honest. Angry at the part of human nature that they fit into. The part that is OK with letting children be hurt simply because they don't want to get out of the comfort of their denial... no different than the docs who believed cigarette's were OK because the studies said they were (at first), no different then all the people who get sick from the whole cell pertussis vaccine before it was taken off the market, no different then all the doctors who still believe that mercury in vaccines is OK, no different than the doctors who don't think twice about giving children 3, 4, 5, 6, 7, 8... vaccines in the same day... who see the kids become autistic afterwards but can't make the connection... no different than my son's developmental pediatrician who used to talk about diet but when GF/CF didn't work on a lot of her kids she just decided that ALL biomedical interventions didn't work..., the same people who don't believe in environmental toxicity, that there isn't global warming, that tap water and spring water don't have heavy metals.... and the list goes on. Not that I have any energy about these doctors... Don't fall into the trap of convincing people who are not ready.... my son's pediatrican origionally charged me to read my reaseach (this is when I was just getting started and was looking for people's approval) only to file it and not change his mind about anything... still the same way today. I would focus your time on finding a good doctor that can teach you something rather than a doctor who you will never teach anything. Anyway, back to your questions. I would call around to some regular docs and see if you can find a friendly one. As uptight as my son's pediatrician was, he had no issue with Valtrex, because it is known as a safe med. Otherwise, you may want to start with OLE and VS if you don't have any other choice. - Stan > > I've been reading here and I'm loving what I'm reading. Valtrex sounds like > a good route for my son. He is a very verbal child, but only about 40% of > his talking is appropriate or meaningful. He's not very conversational. When > he has a fever, its terrible but I almost hope he stays slightly ill for a few > days. He is so on when he's sick, and when he's sick and has a fever at > night, you should hear what he says in his sleep. > > His pediatrician thinks the whole biomedical approach is a crap shoot. She's > not totally against us doing it, she just thinks its a waste of time and > money. I have printed a ton of info and am sending it to her. She was open to > reading it when I offered to send it, but she won't prescribe anything for it > for us. So no Valtrex from her. My PCP won't do it because my son is not a > patient in her office but she is LOVING what we are doing with biomed, and she > won't take patients that young otherwise I'd switch him to her as his PCP. > > My DAN wants to take us in a different direction and doesn't think Valtrex > is a way to go right now. We are this close to dropping him anyway. We have an > appointment tomorrow and if I don't walk out with a prescription for it we > are not going back > > I can't go to a new DAN. We have already begged & borrowed our way into > eternal debt and most DANs have a hefty initial visit fee. I don't have that to > lay out again. > > I have a friend that is a rep for a drug company, unfortunately the wrong > one. Do any other manufacturers make a Valtrex equivalent, maybe one of them > is made by her company. She gives me my Allegra for the whole season in free > samples and I could ask for the Valtrex equivalent. > > Other than that is there anyway to get this?? I really want to try it for my > son. I think he'd do wonders. I just feel like we are so close but yet so > far with him. Its like NT is on the tip of his tongue and just needs a > proverbial smack to the back of the head as if to say " spit it out " to get it out of > him. Its there, its in there, and we see hints of it from time to time. Its > like he's sitting on a fence teetering back and forth and can't decide which > side of the fence to climb down on. > > Any help would be appreciated immensely. > > thanks > Kerrie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2006 Report Share Posted April 18, 2006 It really takes a special person to see beyond the mainstream thinking. Most of the time it takes someone close to you being ill with autism. Occastionally you'll find doctors, usually they are young doctors, who are open to what we do. I find that when doctors are not UP on things.. they are usually down on it. I'm lucky enough to attend the DAN! physician's training at each conference and it's really interesting to see the new doctors. It's like they found a new religion... like they saw the light... and let me tell you they are really passionate about it. You can see these folks are very centered and aware... very special people to break away from their traditional roots to find answers no matter where they are. This past physician's session we taped the doctors introducing themselves and it's really moving when you hear the parts of the world they came from and why the came to DAN! It offers hope because far too often we hear stories of doctors who either aren't willing to help, or absolutely resist. Your doctor is like my son's pediatrician. Won't help... won't stand in the way... except to say, " I don't believe in this. " Part of me thinks it's a crime considering they won't go to a conference, won't really look at the data, won't try anything, won't tell parents that even some children recover from biomed... it kind of makes me angry to be honest. Angry at the part of human nature that they fit into. The part that is OK with letting children be hurt simply because they don't want to get out of the comfort of their denial... no different than the docs who believed cigarette's were OK because the studies said they were (at first), no different then all the people who get sick from the whole cell pertussis vaccine before it was taken off the market, no different then all the doctors who still believe that mercury in vaccines is OK, no different than the doctors who don't think twice about giving children 3, 4, 5, 6, 7, 8... vaccines in the same day... who see the kids become autistic afterwards but can't make the connection... no different than my son's developmental pediatrician who used to talk about diet but when GF/CF didn't work on a lot of her kids she just decided that ALL biomedical interventions didn't work..., the same people who don't believe in environmental toxicity, that there isn't global warming, that tap water and spring water don't have heavy metals.... and the list goes on. Not that I have any energy about these doctors... Don't fall into the trap of convincing people who are not ready.... my son's pediatrican origionally charged me to read my reaseach (this is when I was just getting started and was looking for people's approval) only to file it and not change his mind about anything... still the same way today. I would focus your time on finding a good doctor that can teach you something rather than a doctor who you will never teach anything. Anyway, back to your questions. I would call around to some regular docs and see if you can find a friendly one. As uptight as my son's pediatrician was, he had no issue with Valtrex, because it is known as a safe med. Otherwise, you may want to start with OLE and VS if you don't have any other choice. - Stan > > I've been reading here and I'm loving what I'm reading. Valtrex sounds like > a good route for my son. He is a very verbal child, but only about 40% of > his talking is appropriate or meaningful. He's not very conversational. When > he has a fever, its terrible but I almost hope he stays slightly ill for a few > days. He is so on when he's sick, and when he's sick and has a fever at > night, you should hear what he says in his sleep. > > His pediatrician thinks the whole biomedical approach is a crap shoot. She's > not totally against us doing it, she just thinks its a waste of time and > money. I have printed a ton of info and am sending it to her. She was open to > reading it when I offered to send it, but she won't prescribe anything for it > for us. So no Valtrex from her. My PCP won't do it because my son is not a > patient in her office but she is LOVING what we are doing with biomed, and she > won't take patients that young otherwise I'd switch him to her as his PCP. > > My DAN wants to take us in a different direction and doesn't think Valtrex > is a way to go right now. We are this close to dropping him anyway. We have an > appointment tomorrow and if I don't walk out with a prescription for it we > are not going back > > I can't go to a new DAN. We have already begged & borrowed our way into > eternal debt and most DANs have a hefty initial visit fee. I don't have that to > lay out again. > > I have a friend that is a rep for a drug company, unfortunately the wrong > one. Do any other manufacturers make a Valtrex equivalent, maybe one of them > is made by her company. She gives me my Allegra for the whole season in free > samples and I could ask for the Valtrex equivalent. > > Other than that is there anyway to get this?? I really want to try it for my > son. I think he'd do wonders. I just feel like we are so close but yet so > far with him. Its like NT is on the tip of his tongue and just needs a > proverbial smack to the back of the head as if to say " spit it out " to get it out of > him. Its there, its in there, and we see hints of it from time to time. Its > like he's sitting on a fence teetering back and forth and can't decide which > side of the fence to climb down on. > > Any help would be appreciated immensely. > > thanks > Kerrie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2006 Report Share Posted April 18, 2006 sorry, no, there is no other subsititute for Valtrex. - Stan > > I've been reading here and I'm loving what I'm reading. Valtrex sounds like > a good route for my son. He is a very verbal child, but only about 40% of > his talking is appropriate or meaningful. He's not very conversational. When > he has a fever, its terrible but I almost hope he stays slightly ill for a few > days. He is so on when he's sick, and when he's sick and has a fever at > night, you should hear what he says in his sleep. > > His pediatrician thinks the whole biomedical approach is a crap shoot. She's > not totally against us doing it, she just thinks its a waste of time and > money. I have printed a ton of info and am sending it to her. She was open to > reading it when I offered to send it, but she won't prescribe anything for it > for us. So no Valtrex from her. My PCP won't do it because my son is not a > patient in her office but she is LOVING what we are doing with biomed, and she > won't take patients that young otherwise I'd switch him to her as his PCP. > > My DAN wants to take us in a different direction and doesn't think Valtrex > is a way to go right now. We are this close to dropping him anyway. We have an > appointment tomorrow and if I don't walk out with a prescription for it we > are not going back > > I can't go to a new DAN. We have already begged & borrowed our way into > eternal debt and most DANs have a hefty initial visit fee. I don't have that to > lay out again. > > I have a friend that is a rep for a drug company, unfortunately the wrong > one. Do any other manufacturers make a Valtrex equivalent, maybe one of them > is made by her company. She gives me my Allegra for the whole season in free > samples and I could ask for the Valtrex equivalent. > > Other than that is there anyway to get this?? I really want to try it for my > son. I think he'd do wonders. I just feel like we are so close but yet so > far with him. Its like NT is on the tip of his tongue and just needs a > proverbial smack to the back of the head as if to say " spit it out " to get it out of > him. Its there, its in there, and we see hints of it from time to time. Its > like he's sitting on a fence teetering back and forth and can't decide which > side of the fence to climb down on. > > Any help would be appreciated immensely. > > thanks > Kerrie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2006 Report Share Posted April 18, 2006 sorry, no, there is no other subsititute for Valtrex. - Stan > > I've been reading here and I'm loving what I'm reading. Valtrex sounds like > a good route for my son. He is a very verbal child, but only about 40% of > his talking is appropriate or meaningful. He's not very conversational. When > he has a fever, its terrible but I almost hope he stays slightly ill for a few > days. He is so on when he's sick, and when he's sick and has a fever at > night, you should hear what he says in his sleep. > > His pediatrician thinks the whole biomedical approach is a crap shoot. She's > not totally against us doing it, she just thinks its a waste of time and > money. I have printed a ton of info and am sending it to her. She was open to > reading it when I offered to send it, but she won't prescribe anything for it > for us. So no Valtrex from her. My PCP won't do it because my son is not a > patient in her office but she is LOVING what we are doing with biomed, and she > won't take patients that young otherwise I'd switch him to her as his PCP. > > My DAN wants to take us in a different direction and doesn't think Valtrex > is a way to go right now. We are this close to dropping him anyway. We have an > appointment tomorrow and if I don't walk out with a prescription for it we > are not going back > > I can't go to a new DAN. We have already begged & borrowed our way into > eternal debt and most DANs have a hefty initial visit fee. I don't have that to > lay out again. > > I have a friend that is a rep for a drug company, unfortunately the wrong > one. Do any other manufacturers make a Valtrex equivalent, maybe one of them > is made by her company. She gives me my Allegra for the whole season in free > samples and I could ask for the Valtrex equivalent. > > Other than that is there anyway to get this?? I really want to try it for my > son. I think he'd do wonders. I just feel like we are so close but yet so > far with him. Its like NT is on the tip of his tongue and just needs a > proverbial smack to the back of the head as if to say " spit it out " to get it out of > him. Its there, its in there, and we see hints of it from time to time. Its > like he's sitting on a fence teetering back and forth and can't decide which > side of the fence to climb down on. > > Any help would be appreciated immensely. > > thanks > Kerrie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2006 Report Share Posted April 18, 2006 Hi Kerrie Just wanted to wish you the best tomorrow..Perhaps when you lay out all the reasons you feel Valtrex will benefit your son, your DAN will be ok with it. And if he's not, it would be interesting to know the rationale and the other direction he wants to take. All of this is so frustrating to me as a health practitioner - sooo many kids and individuals can benefit from bio-med and yet since it's non-mainstream, it's seen as ineffective. I will say that the new docs coming into our hospital are now routinely ordering probiotics for most of their patients on antibiotics.. i was like " YES! " ...ok baby steps, but it's a start. We've had some pretty good success with our GP...he was always more inclined to send us to Whole Foods for a Probiotic instead of to Longs for an antibiotic - for that I'm eternally grateful. He's very holistically minded, but when you bring up mercury in vaccines, he completely disagrees. However, he's seen the great progress my two children have made, and he knows it's working. I sure hope if the day comes when I cant quickly get into our DAN, I'll be able to rely on him as a back-up. Please let us know how it goes tomorrow... Leigh > > > > I've been reading here and I'm loving what I'm reading. Valtrex sounds like > > a good route for my son. He is a very verbal child, but only about 40% of > > his talking is appropriate or meaningful. He's not very conversational. When > > he has a fever, its terrible but I almost hope he stays slightly ill for a few > > days. He is so on when he's sick, and when he's sick and has a fever at > > night, you should hear what he says in his sleep. > > > > His pediatrician thinks the whole biomedical approach is a crap shoot. She's > > not totally against us doing it, she just thinks its a waste of time and > > money. I have printed a ton of info and am sending it to her. She was open to > > reading it when I offered to send it, but she won't prescribe anything for it > > for us. So no Valtrex from her. My PCP won't do it because my son is not a > > patient in her office but she is LOVING what we are doing with biomed, and she > > won't take patients that young otherwise I'd switch him to her as his PCP. > > > > My DAN wants to take us in a different direction and doesn't think Valtrex > > is a way to go right now. We are this close to dropping him anyway. We have an > > appointment tomorrow and if I don't walk out with a prescription for it we > > are not going back > > > > I can't go to a new DAN. We have already begged & borrowed our way into > > eternal debt and most DANs have a hefty initial visit fee. I don't have that to > > lay out again. > > > > I have a friend that is a rep for a drug company, unfortunately the wrong > > one. Do any other manufacturers make a Valtrex equivalent, maybe one of them > > is made by her company. She gives me my Allegra for the whole season in free > > samples and I could ask for the Valtrex equivalent. > > > > Other than that is there anyway to get this?? I really want to try it for my > > son. I think he'd do wonders. I just feel like we are so close but yet so > > far with him. Its like NT is on the tip of his tongue and just needs a > > proverbial smack to the back of the head as if to say " spit it out " to get it out of > > him. Its there, its in there, and we see hints of it from time to time. Its > > like he's sitting on a fence teetering back and forth and can't decide which > > side of the fence to climb down on. > > > > Any help would be appreciated immensely. > > > > thanks > > Kerrie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2006 Report Share Posted April 18, 2006 Hi Kerrie Just wanted to wish you the best tomorrow..Perhaps when you lay out all the reasons you feel Valtrex will benefit your son, your DAN will be ok with it. And if he's not, it would be interesting to know the rationale and the other direction he wants to take. All of this is so frustrating to me as a health practitioner - sooo many kids and individuals can benefit from bio-med and yet since it's non-mainstream, it's seen as ineffective. I will say that the new docs coming into our hospital are now routinely ordering probiotics for most of their patients on antibiotics.. i was like " YES! " ...ok baby steps, but it's a start. We've had some pretty good success with our GP...he was always more inclined to send us to Whole Foods for a Probiotic instead of to Longs for an antibiotic - for that I'm eternally grateful. He's very holistically minded, but when you bring up mercury in vaccines, he completely disagrees. However, he's seen the great progress my two children have made, and he knows it's working. I sure hope if the day comes when I cant quickly get into our DAN, I'll be able to rely on him as a back-up. Please let us know how it goes tomorrow... Leigh > > > > I've been reading here and I'm loving what I'm reading. Valtrex sounds like > > a good route for my son. He is a very verbal child, but only about 40% of > > his talking is appropriate or meaningful. He's not very conversational. When > > he has a fever, its terrible but I almost hope he stays slightly ill for a few > > days. He is so on when he's sick, and when he's sick and has a fever at > > night, you should hear what he says in his sleep. > > > > His pediatrician thinks the whole biomedical approach is a crap shoot. She's > > not totally against us doing it, she just thinks its a waste of time and > > money. I have printed a ton of info and am sending it to her. She was open to > > reading it when I offered to send it, but she won't prescribe anything for it > > for us. So no Valtrex from her. My PCP won't do it because my son is not a > > patient in her office but she is LOVING what we are doing with biomed, and she > > won't take patients that young otherwise I'd switch him to her as his PCP. > > > > My DAN wants to take us in a different direction and doesn't think Valtrex > > is a way to go right now. We are this close to dropping him anyway. We have an > > appointment tomorrow and if I don't walk out with a prescription for it we > > are not going back > > > > I can't go to a new DAN. We have already begged & borrowed our way into > > eternal debt and most DANs have a hefty initial visit fee. I don't have that to > > lay out again. > > > > I have a friend that is a rep for a drug company, unfortunately the wrong > > one. Do any other manufacturers make a Valtrex equivalent, maybe one of them > > is made by her company. She gives me my Allegra for the whole season in free > > samples and I could ask for the Valtrex equivalent. > > > > Other than that is there anyway to get this?? I really want to try it for my > > son. I think he'd do wonders. I just feel like we are so close but yet so > > far with him. Its like NT is on the tip of his tongue and just needs a > > proverbial smack to the back of the head as if to say " spit it out " to get it out of > > him. Its there, its in there, and we see hints of it from time to time. Its > > like he's sitting on a fence teetering back and forth and can't decide which > > side of the fence to climb down on. > > > > Any help would be appreciated immensely. > > > > thanks > > Kerrie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2006 Report Share Posted April 18, 2006 If your doctor will not attend the DAN! conference, they can also see the procedings online or call the Autism Research Institute and order the Physician's Training on Video. We videoed this last one as well and that will be available shortly. - Stan > > > > Thanks for your response Stan. I've only been here a short time, but I've > seen and heard your name in other places, I've seen video of your son. You are > such an inspiration and a help and I thank you for being here!! > > I'm hoping to open my pediatricians eyes a little bit. She didn't seem > against it and was willing to take printed info when I started telling her about > MB12 injections when we started them in November. I have a ton of stuff for > her and I think she may be the type that would seriously read it all. She > may be one that can be turned in our direction. I'd love to get her on board > because she really is a good doctor. > > Thanks for everything!! > > Kerrie > > In a message dated 4/18/2006 5:57:03 PM Eastern Daylight Time, > kurtzstan@... writes: > > It > offers hope because far too often we hear stories of doctors who either > aren't willing to > help, or absolutely resist. Your doctor is like my son's pediatrician. > Won't help... won't > stand in the way... except to say, " I don't believe in this. " Part of me > thinks it's a crime > considering they won't go to a conference, won't really look at the data, > won't try anything > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2006 Report Share Posted April 18, 2006 If your doctor will not attend the DAN! conference, they can also see the procedings online or call the Autism Research Institute and order the Physician's Training on Video. We videoed this last one as well and that will be available shortly. - Stan > > > > Thanks for your response Stan. I've only been here a short time, but I've > seen and heard your name in other places, I've seen video of your son. You are > such an inspiration and a help and I thank you for being here!! > > I'm hoping to open my pediatricians eyes a little bit. She didn't seem > against it and was willing to take printed info when I started telling her about > MB12 injections when we started them in November. I have a ton of stuff for > her and I think she may be the type that would seriously read it all. She > may be one that can be turned in our direction. I'd love to get her on board > because she really is a good doctor. > > Thanks for everything!! > > Kerrie > > In a message dated 4/18/2006 5:57:03 PM Eastern Daylight Time, > kurtzstan@... writes: > > It > offers hope because far too often we hear stories of doctors who either > aren't willing to > help, or absolutely resist. Your doctor is like my son's pediatrician. > Won't help... won't > stand in the way... except to say, " I don't believe in this. " Part of me > thinks it's a crime > considering they won't go to a conference, won't really look at the data, > won't try anything > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2006 Report Share Posted April 18, 2006 If your doctor will not attend the DAN! conference, they can also see the procedings online or call the Autism Research Institute and order the Physician's Training on Video. We videoed this last one as well and that will be available shortly. - Stan > > > > Thanks for your response Stan. I've only been here a short time, but I've > seen and heard your name in other places, I've seen video of your son. You are > such an inspiration and a help and I thank you for being here!! > > I'm hoping to open my pediatricians eyes a little bit. She didn't seem > against it and was willing to take printed info when I started telling her about > MB12 injections when we started them in November. I have a ton of stuff for > her and I think she may be the type that would seriously read it all. She > may be one that can be turned in our direction. I'd love to get her on board > because she really is a good doctor. > > Thanks for everything!! > > Kerrie > > In a message dated 4/18/2006 5:57:03 PM Eastern Daylight Time, > kurtzstan@... writes: > > It > offers hope because far too often we hear stories of doctors who either > aren't willing to > help, or absolutely resist. Your doctor is like my son's pediatrician. > Won't help... won't > stand in the way... except to say, " I don't believe in this. " Part of me > thinks it's a crime > considering they won't go to a conference, won't really look at the data, > won't try anything > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.