Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 My son tested positive on the PANDAS panel from Immunosciences Lab three years ago. He had three episodes of PANDAS (sudden onset severe OCD lasting 8-12 days) in 10 mos. He had high titers to strep as well as antibodies to myelin basic protein and other brain cells tested for on the panel. He never had strep throat. All the cultures were negative. My DAN! consulted with Dr. Usman who was thinking that it was due to strep in the gut vs. the throat. He also had clostridia. So after spending a huge amount for oral IG which did nothing, we did a three day course of gentamycin and vancomycin with diflucan followed by loading with lots of probiotics. That was three years ago and we have not had another episode since. From: " McDermott " jtmcde@... Date: Fri May 12, 2006 7:54am(PDT) Subject: Re: high strep titers His DAN's nurse just called and said they are going to do a PANDA's test with such high titers and if it comes back positive that will justify IVIG to be covered by insurance for treatment. Yes, my son has OCD and Focus issues. Thanks, Quote Link to comment Share on other sites More sharing options...
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