Guest guest Posted October 9, 2001 Report Share Posted October 9, 2001 Hello There is not just hope - there is great hope! My son with severe global dyspraxia has astonished the speech therapist who originally diagnosed him. He has the widest active vocabulary of any child in his school (he is now 9), can express complex ideas and is regarded as verbally highly gifted! In a recent verbal reasoning test he scored 94 out of 100. The only higher mark the tester had ever seen was his little brother's, also dyspraxic, though less severely. He scored 98. Both of them have language well under their control as a useful tool and, of course, their receptive language is even greater than what they produce themselves, so they get an immense amount from whatever they read or listen to. The speech therapist, modest beyond the call of duty, says it cannot be all her own work, or my son's or the family's. She thinks the vital difference in outcome from the original prognosis (which she told me later was " very poor indeed " ) is due to Efalex. Best of luck Sara In message <fc.d48e989.28f37e81@...>, sabens4951@... writes >> >> Hi Everyone, Can anyone (PARENTS OR SLP'S) offer any encouraging words, I >> have granddaughter 22mos. who has been diagnoised with dyspraxia. I know >> she will need extensive & intense therapy, but what I don't know are the >> results. Will she eventually learn to speak clearly? Will more therapy >> sessions help or will progress still be the same as with less? How long >> before I begin to see progress & how soon can I tell if the SLP is >> suitable? What would some of the lessons involve to begin speech? ETC. ETC. >> ETC.!!!!!! Thank You Phyllis ANIE38@... -- Sara e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2003 Report Share Posted September 7, 2003 At the time my symptoms started I was under and extrodinary amount of stress. I think the stress triggered an immunosystem response and away it went. I know our mental health plays a vitally important role in our physical well being. Unfortunately I probably will never know for sure if my hypothesis is correct, but I strongly suspect it is. And hearing other's stories and the beginning of their desease process only strengthens my thinking. Best of luck and God Bless to all, Jay > Hi everyone. I just wanted to post some encouragement as we have a > lot of new members with new diagnosis. Everyone is different and > everyone responds differently but I wanted to share my experiences > to perhaps give a ray of hope to those of you who are just getting > started in the process. > > I am 28 and have been diagnosed since last December. My RA was > diagnosed blessedly fast but until it was, I literally couldn't > walk. I was stunned with the sudden onset severity and was positive > that nothing would ever be the same. I was coaching gymnastics at > the time and it was impossible. I kept thinking about how if this > is how it was going to be, I was never going to be able to pursue > any of my goals and dreams. I was put on methotrexate right away > and it did take a couple months but I really do feel a HUGE > difference. I still have soreness and I still have flare-ups and > one day I'll want to look into the biologics but I am able to > continue on with lots that I was doing before. I've choreographed > floor routines and coached and am starting nursing school this > fall. I think having something to look forward to has made a huge > difference as well. I am fully aware that I will have to listen to > my body and have alternatives to my goals but I'm learning it can be > possible to regain almost all of where I was before. Now I'm > certainly NOT dismissing that many have had to change drastically > what they were doing and that everyone has different results but > sometimes its good to hear that this is possible. > > As to the side effects?? Fatigue is my most common and I dealt with > that as part of a continuing heart problem and associated meds for > the past 6 years... I think I'm actually getting used to it. Ha ha... > > One thing I've noticed is that many who are writing in about new > diagnosis also have had life changing events happen at the same time > and I'm wondering if extreme emotion/grief could possibly be among > the triggers for those already predisposed? Any thoughts on that? > My brother passed away right around the time of my diagnosis and I'm > noticing similar stories in many of you. > > Hang in there everyone... it can get definitely improve! Luck to > all! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2003 Report Share Posted September 7, 2003 Thanks for the upbeat post. It helps all of us to realize that life after RA is indeed possible. I have found the same thing but with different treatment. Regarding stress as the trigger for RA, we had a post on another board I follow on what caused RA. About 50 people answered and I cataloged the responses to find that about half had some physical ailment that stressed the body just before RA was noticed and virtually all the rest had severe emotional stress just before RA was noticed. My trigger was a flu shot followed by a mild case of flu that turned into pneumonia and RA. This was obviously not a scientific poll but it sure does indicate a strong correlation between physical or mental stress as a trigger for RA. God bless. ----- Original Message ----- From: Matthies Rheumatoid Arthritis Sent: Saturday, September 06, 2003 2:58 PM Subject: encouragement Hi everyone. I just wanted to post some encouragement as we have a lot of new members with new diagnosis. Everyone is different and everyone responds differently but I wanted to share my experiences to perhaps give a ray of hope to those of you who are just getting started in the process. I am 28 and have been diagnosed since last December. My RA was diagnosed blessedly fast but until it was, I literally couldn't walk. I was stunned with the sudden onset severity and was positive that nothing would ever be the same. I was coaching gymnastics at the time and it was impossible. I kept thinking about how if this is how it was going to be, I was never going to be able to pursue any of my goals and dreams. I was put on methotrexate right away and it did take a couple months but I really do feel a HUGE difference. I still have soreness and I still have flare-ups and one day I'll want to look into the biologics but I am able to continue on with lots that I was doing before. I've choreographed floor routines and coached and am starting nursing school this fall. I think having something to look forward to has made a huge difference as well. I am fully aware that I will have to listen to my body and have alternatives to my goals but I'm learning it can be possible to regain almost all of where I was before. Now I'm certainly NOT dismissing that many have had to change drastically what they were doing and that everyone has different results but sometimes its good to hear that this is possible.As to the side effects?? Fatigue is my most common and I dealt with that as part of a continuing heart problem and associated meds for the past 6 years... I think I'm actually getting used to it. Ha ha...One thing I've noticed is that many who are writing in about new diagnosis also have had life changing events happen at the same time and I'm wondering if extreme emotion/grief could possibly be among the triggers for those already predisposed? Any thoughts on that? My brother passed away right around the time of my diagnosis and I'm noticing similar stories in many of you.Hang in there everyone... it can get definitely improve! Luck to all! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2003 Report Share Posted September 11, 2003 >At the time my symptoms started I was under and extrodinary amount <BR> >of stress. I think the stress triggered an immunosystem response <BR> >and away it went. I know our mental health plays a vitally <BR> >important role in our physical well being. Unfortunately I probably <BR> >will never know for sure if my hypothesis is correct, but I strongly <BR> >suspect it is. And hearing other's stories and the beginning of <BR> >their desease process only strengthens my thinking.<BR> ><BR> Stress can do such terrible things to our bodies. I get migraine headaches and severe bodyaches when I get really stressed.Our adrenal glands can't work properly for long periods of time. -- Kara Hoover Check out my website! Sign the guest book and get a free sample! http://diamond.myarbonne.com diamond@... -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2005 Report Share Posted February 22, 2005 Hello , Yes, some of us are positive people in the world, which makes our lives much easier. I enjoy my life, my husband and my children. I am just hoping for Spring to be around the corner - we in NH have long winters. I am ready for a change it makes my CMT feel better. Willing to talk to you anytime. Thanks, Heidi Quote Link to comment Share on other sites More sharing options...
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