Guest guest Posted April 30, 2006 Report Share Posted April 30, 2006 You never know, though! My nephew, Asperger’s, got SSI at 15 while still living at home, and his father is a builder and makes great money. They did not have insurance, though. They did have a college savings in his name though. He still got it. A lot of things go into the consideration. He got it on the first try. Both of my sons got it on the first try too, and we have savings bonds in both their names. Sometimes, even if you have a decent income, you can still get it, especially if you can show hardship to work because of the condition (for yourself). In other words, you may be working, but it is taking its toll on the whole family, etc. And, of course, state to state varies…. Beth in Alabama From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of Laha1960@... Sent: Saturday, April 29, 2006 8:00 PM To: Autism and Aspergers Treatment Subject: disability SS SSDI SSI etc In a message dated 4/29/2006 1:11:38 P.M. Central Daylight Time, Autism and Aspergers Treatment writes: What is the school district supposed to do to help you child with this? I had someone tell me if he is diagnosed with it we could file disability and get a check every month for this. Is this true? Why I ask is not for the money but, if that is true I think it is a wonderful thing to help families out. ** NO, it takes a lot of work to get on disability, and most people are turned down the first time. Also, it takes records, and medical records. My son was diagnosed severe ADHD at age three, and was receiving services and medical attention and all kinds of things. HE was diagnosed ASpergers in addition to his ADHD at age ten. He is now 17. I highly doubt that he could get disability, as they look at the parent's income and the child's too. My son has a college savings account in his name and that would disqualify him. Another thing to keep in mind, keep records and keep a paper trail, keep this forever. I have my son's records and school notes and IEP notes and medical record notes and letters from doctors etc since he was in preschool. He is now 17. I am saving them way into his adulthood , should he needs them for SS disability etc. in IL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2006 Report Share Posted May 1, 2006 just a note if you get turned down appeal don't reapply this is important as they count stuff from when you first apply and if you reapply you start all over Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2006 Report Share Posted May 1, 2006 I discovered that we probably could have qualified for SSI/SSDI with my son but due to the total household income/assets, he would likely receive less than $100 per month (that is what they told me in the phone interview) -Charlotte From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of Carolyn Sent: Monday, May 01, 2006 6:09 PM Autism and Aspergers Treatment Subject: Re: disability SS SSDI SSI etc Hi , Hi , Are you talking about Federal Disability, or SSI, Supplemental Security Income? My husband got on Federal Disability because he was severely injured and could not work anymore as an electrician. And yes he had to apply and was turned down, then applied again, and was accepted. He paid into the system and so was insured in this way, and also his son, our disabled son began to receive Federal Disability. This is not the same thing as SSI, I think SSI comes pretty much automatically. With our son he was a client on the case load for Developmentally Disabled Services, and then when he reached 21 through the Senior and Disabled Services. These are state programs administered through the county. Anyway they did the paper work and sent it in for us. He got on these programs because he was disabled at a young age, and had the usual special ed programs, IEPs, and all the documentation. Could try calling the county in your area and see what services are available to children with disabilities. Carolyn in Oregon disability SS SSDI SSI etc In a message dated 4/29/2006 1:11:38 P.M. Central Daylight Time, Autism and Aspergers Treatment writes: What is the school district supposed to do to help you child with this? I had someone tell me if he is diagnosed with it we could file disability and get a check every month for this. Is this true? Why I ask is not for the money but, if that is true I think it is a wonderful thing to help families out. ** NO, it takes a lot of work to get on disability, and most people are turned down the first time. Also, it takes records, and medical records. My son was diagnosed severe ADHD at age three, and was receiving services and medical attention and all kinds of things. HE was diagnosed ASpergers in addition to his ADHD at age ten. He is now 17. I highly doubt that he could get disability, as they look at the parent's income and the child's too. My son has a college savings account in his name and that would disqualify him. Another thing to keep in mind, keep records and keep a paper trail, keep this forever. I have my son's records and school notes and IEP notes and medical record notes and letters from doctors etc since he was in preschool. He is now 17. I am saving them way into his adulthood , should he needs them for SS disability etc. in IL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2006 Report Share Posted May 1, 2006 Even if you did receive that small of a cash amount, he would have been covered under medical and with so many health plans not covering meds and therapy etc that our kids need, that can be a huge blessing! --- Charlotte <scottdesigns@...> wrote: > I discovered that we probably could have qualified > for SSI/SSDI with my son > but due to the total household income/assets, he > would likely receive less > than $100 per month (that is what they told me in > the phone interview) > > -Charlotte > > > > _____ > > From: Autism and Aspergers Treatment > [mailto:Autism and Aspergers Treatment ] On Behalf > Of Carolyn > Sent: Monday, May 01, 2006 6:09 PM > Autism and Aspergers Treatment > Subject: Re: disability SS SSDI > SSI etc > > > > Hi , > > > > Hi , Are you talking about Federal > Disability, or SSI, Supplemental > Security Income? My husband got on Federal > Disability because he was > severely injured and could not work anymore as an > electrician. And yes he > had to apply and was turned down, then applied > again, and was accepted. He > paid into the system and so was insured in this way, > and also his son, our > disabled son began to receive Federal Disability. > > > > This is not the same thing as SSI, I think SSI > comes pretty much > automatically. With our son he was a client on the > case load for > Developmentally Disabled Services, and then when he > reached 21 through the > Senior and Disabled Services. These are state > programs administered through > the county. Anyway they did the paper work and sent > it in for us. He got on > these programs because he was disabled at a young > age, and had the usual > special ed programs, IEPs, and all the > documentation. > > > > Could try calling the county in your area and > see what services are > available to children with disabilities. > > > > Carolyn in Oregon > > > > disability SS SSDI SSI > etc > > > > In a message dated 4/29/2006 1:11:38 P.M. Central > Daylight Time, > Autism and Aspergers Treatment writes: > > What is the school district supposed to do to help > you child with this? > I had someone tell me if he is diagnosed with it we > could file > disability and get a check every month for this. Is > this true? > Why I ask is not for the money but, if that is true > I think it is a > wonderful thing to help families out. > > ** NO, it takes a lot of work to get on > disability, and most people are > turned down the first time. Also, it takes records, > and medical records. > > My son was diagnosed severe ADHD at age three, and > was receiving services > and medical attention and all kinds of things. HE > was diagnosed ASpergers in > addition to his ADHD at age ten. He is now 17. I > highly doubt that he could > get disability, as they look at the parent's income > and the child's too. My > son has a college savings account in his name and > that would disqualify him. > Another thing to keep in mind, keep records and keep > a paper trail, keep > this forever. I have my son's records and school > notes and IEP notes and > medical record notes and letters from doctors etc > since he was in preschool. > He is now 17. I am saving them way into his > adulthood , should he needs them > for SS disability etc. > > in IL > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2006 Report Share Posted May 1, 2006 Yes, this reminds me more of our situation here in Oregon. My son started getting SSI some years ago, and his father was and industrial electrician and earned a very good income. I didn't think it had anything to do with his father's income. And I had no income but was a SAHM my whole life, so when the $230. or whatever it was at the time started coming in, I paid it to my son's older brother to watch him while I attended college classes. The son who watched him for me was in college also at that time, so back and forth we went juggling the care of my disabled son. He is autistic but also has seizures and severe learning disability. Anyway he is 41 now, and I graduated with a BS, and later on an MS. It came in handy at the time! Have to run to church now, am running laaaaaaaate. Best wishes and prayers to you all! Carolyn in Oregon RE: disability SS SSDI SSI etc You never know, though! My nephew, Asperger’s, got SSI at 15 while still living at home, and his father is a builder and makes great money. They did not have insurance, though. They did have a college savings in his name though. He still got it. A lot of things go into the consideration. He got it on the first try. Both of my sons got it on the first try too, and we have savings bonds in both their names. Sometimes, even if you have a decent income, you can still get it, especially if you can show hardship to work because of the condition (for yourself). In other words, you may be working, but it is taking its toll on the whole family, etc. And, of course, state to state varies…. Beth in Alabama From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of Laha1960@...Sent: Saturday, April 29, 2006 8:00 PMAutism and Aspergers Treatment Subject: disability SS SSDI SSI etc In a message dated 4/29/2006 1:11:38 P.M. Central Daylight Time, Autism and Aspergers Treatment writes: What is the school district supposed to do to help you child with this? I had someone tell me if he is diagnosed with it we could file disability and get a check every month for this. Is this true?Why I ask is not for the money but, if that is true I think it is a wonderful thing to help families out. ** NO, it takes a lot of work to get on disability, and most people are turned down the first time. Also, it takes records, and medical records. My son was diagnosed severe ADHD at age three, and was receiving services and medical attention and all kinds of things. HE was diagnosed ASpergers in addition to his ADHD at age ten. He is now 17. I highly doubt that he could get disability, as they look at the parent's income and the child's too. My son has a college savings account in his name and that would disqualify him. Another thing to keep in mind, keep records and keep a paper trail, keep this forever. I have my son's records and school notes and IEP notes and medical record notes and letters from doctors etc since he was in preschool. He is now 17. I am saving them way into his adulthood , should he needs them for SS disability etc. in IL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2006 Report Share Posted May 1, 2006 , I'm going through a similar process, trying to get TEFRA here in Arkansas. I submitted the application and lots of supporting documents but received a denial in the mail for failure to show up for the interview (of which I was not informed, as far as I know). Therapy for my 14 yr old Asperger son has already begun. I have called several times and my messages have not been returned. What is involved in an appeal? TIA Kathy T. From: cindyc@... just a note if you get turned down appeal don't reapply this is important as they count stuff from when you first apply and if you reapply you start all over Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 Hi , Hi , Are you talking about Federal Disability, or SSI, Supplemental Security Income? My husband got on Federal Disability because he was severely injured and could not work anymore as an electrician. And yes he had to apply and was turned down, then applied again, and was accepted. He paid into the system and so was insured in this way, and also his son, our disabled son began to receive Federal Disability. This is not the same thing as SSI, I think SSI comes pretty much automatically. With our son he was a client on the case load for Developmentally Disabled Services, and then when he reached 21 through the Senior and Disabled Services. These are state programs administered through the county. Anyway they did the paper work and sent it in for us. He got on these programs because he was disabled at a young age, and had the usual special ed programs, IEPs, and all the documentation. Could try calling the county in your area and see what services are available to children with disabilities. Carolyn in Oregon disability SS SSDI SSI etc In a message dated 4/29/2006 1:11:38 P.M. Central Daylight Time, Autism and Aspergers Treatment writes: What is the school district supposed to do to help you child with this? I had someone tell me if he is diagnosed with it we could file disability and get a check every month for this. Is this true?Why I ask is not for the money but, if that is true I think it is a wonderful thing to help families out. ** NO, it takes a lot of work to get on disability, and most people are turned down the first time. Also, it takes records, and medical records. My son was diagnosed severe ADHD at age three, and was receiving services and medical attention and all kinds of things. HE was diagnosed ASpergers in addition to his ADHD at age ten. He is now 17. I highly doubt that he could get disability, as they look at the parent's income and the child's too. My son has a college savings account in his name and that would disqualify him. Another thing to keep in mind, keep records and keep a paper trail, keep this forever. I have my son's records and school notes and IEP notes and medical record notes and letters from doctors etc since he was in preschool. He is now 17. I am saving them way into his adulthood , should he needs them for SS disability etc. in IL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 there should be a form on the back of your denial or at least in the with the letter you received I believe. it has been a while since i saw an actual denial so it might have chanhged a written paper trail is always good send receipt required to show delibvery or hand deliver and have them date a copy you keep showing they received the letter. Re: disability SS SSDI SSI etc , I'm going through a similar process, trying to get TEFRA here in Arkansas. I submitted the application and lots of supporting documents but received a denial in the mail for failure to show up for the interview (of which I was not informed, as far as I know). Therapy for my 14 yr old Asperger son has already begun. I have called several times and my messages have not been returned. What is involved in an appeal? TIA Kathy T. From: cindyc@... just a note if you get turned down appeal don't reapply this is important as they count stuff from when you first apply and if you reapply you start all over Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 there should be a form on the back of your denial or at least in the with the letter you received I believe. it has been a while since i saw an actual denial so it might have chanhged a written paper trail is always good send receipt required to show delibvery or hand deliver and have them date a copy you keep showing they received the letter. Re: disability SS SSDI SSI etc , I'm going through a similar process, trying to get TEFRA here in Arkansas. I submitted the application and lots of supporting documents but received a denial in the mail for failure to show up for the interview (of which I was not informed, as far as I know). Therapy for my 14 yr old Asperger son has already begun. I have called several times and my messages have not been returned. What is involved in an appeal? TIA Kathy T. From: cindyc@... just a note if you get turned down appeal don't reapply this is important as they count stuff from when you first apply and if you reapply you start all over Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 do it quickly ,you only have so many days to appeal.cindyc@... wrote: there should be a form on the back of your denial or at least in the with the letter you received I believe. it has been a while since i saw an actual denial so it might have chanhged a written paper trail is always good send receipt required to show delibvery or hand deliver and have them date a copy you keep showing they received the letter. Re: disability SS SSDI SSI etc , I'm going through a similar process, trying to get TEFRA here in Arkansas. I submitted the application and lots of supporting documents but received a denial in the mail for failure to show up for the interview (of which I was not informed, as far as I know). Therapy for my 14 yr old Asperger son has already begun. I have called several times and my messages have not been returned. What is involved in an appeal? TIA Kathy T. From: cindyc@... just a note if you get turned down appeal don't reapply this is important as they count stuff from when you first apply and if you reapply you start all over Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 Medical, at least here, you qualify for seperately. We would never qualify based on income alone. We pay 1000 a month for a premium PPO -Charlotte Re: disability SS SSDI > SSI etc > > > > Hi , > > > > Hi , Are you talking about Federal > Disability, or SSI, Supplemental > Security Income? My husband got on Federal > Disability because he was > severely injured and could not work anymore as an > electrician. And yes he > had to apply and was turned down, then applied > again, and was accepted. He > paid into the system and so was insured in this way, > and also his son, our > disabled son began to receive Federal Disability. > > > > This is not the same thing as SSI, I think SSI > comes pretty much > automatically. With our son he was a client on the > case load for > Developmentally Disabled Services, and then when he > reached 21 through the > Senior and Disabled Services. These are state > programs administered through > the county. Anyway they did the paper work and sent > it in for us. He got on > these programs because he was disabled at a young > age, and had the usual > special ed programs, IEPs, and all the > documentation. > > > > Could try calling the county in your area and > see what services are > available to children with disabilities. > > > > Carolyn in Oregon > > > > disability SS SSDI SSI > etc > > > > In a message dated 4/29/2006 1:11:38 P.M. Central > Daylight Time, > Autism and Aspergers Treatment writes: > > What is the school district supposed to do to help > you child with this? > I had someone tell me if he is diagnosed with it we > could file > disability and get a check every month for this. Is > this true? > Why I ask is not for the money but, if that is true > I think it is a > wonderful thing to help families out. > > ** NO, it takes a lot of work to get on > disability, and most people are > turned down the first time. Also, it takes records, > and medical records. > > My son was diagnosed severe ADHD at age three, and > was receiving services > and medical attention and all kinds of things. HE > was diagnosed ASpergers in > addition to his ADHD at age ten. He is now 17. I > highly doubt that he could > get disability, as they look at the parent's income > and the child's too. My > son has a college savings account in his name and > that would disqualify him. > Another thing to keep in mind, keep records and keep > a paper trail, keep > this forever. I have my son's records and school > notes and IEP notes and > medical record notes and letters from doctors etc > since he was in preschool. > He is now 17. I am saving them way into his > adulthood , should he needs them > for SS disability etc. > > in IL > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2006 Report Share Posted May 3, 2006 Thank you for the info, . I went to the DHS and got the appeal request form. Your post was right on time for me! Kathy T. > > there should be a form on the back of your denial or at least in the with the letter you received I believe. it has been a while since i saw an actual denial so it might have chanhged a written paper trail is always good send receipt required to show delibvery or hand deliver and have them date a copy you keep showing they received the letter. Quote Link to comment Share on other sites More sharing options...
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